Charles W Lidz
Biographic Data
| ID | 101402 |
|---|---|
| NAME | Charles W Lidz |
| GIVEN NAMES | Charles W |
| FAMILY NAME | Lidz |
| SIGNATURE | LIDZ C W |
| AFFILIATIONS | University of Massachusetts Chan Medical School |
| VERIFIED | No |
| TOTAL WORKS | 36 |
| TOTAL CITATIONS | 32 |
| AUTHOR COUNT | 36 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 1976 |
| LATEST PUBLICATION YEAR | 2017 |
| H-INDEX | 2 |
Enrolling in Clinical Research While Incarcerated
As a 2006 Institute of Medicine report highlights, surprisingly little empirical attention has been paid to how prisoners arrive at decisions to participate in modern research. With our study, we aimed to fill this gap by identifying a more comprehensive range of factors as reported by prisoners themselves during semistructured interviews. Our participants described a diverse range of motives, both favoring and opposing their eventual decision to…
Factors Influencing Iacuc Decision Making
Decisions about the appropriate use of animals in research are largely made by Institutional Animal Care and Use Committees (IACUCs). Several commentators claim that scientists exert excessive influence on IACUC decisions. We studied 87 protocol reviews from 10 IACUCs to assess whether any group of participants appeared to dominate the protocol discussions. Audio recordings of the meetings were coded to capture the topics of the discussions. We f…
The Limits of Person-centered Care
UMASS Medical School, Worcester, MA C.W.L. is the sole author of this commentary and has received advice and suggestions for wording from Ronnie Horner, PhD (a Medical Care editor). The author declares no conflict of interest. Reprints: Charles W. Lidz, PhD, UMASS Medical School, 55 Lake Avenue North, Worcester, MA 01655. E-mail: [email protected]
Context is Everything
Issues associated with consent to clinical trials have attracted considerable attention recently, spurred in part by controversies over alleged inadequacies in the consent process. Professor Jansen's interesting essay is unusual in two ways. First, it raises issues about the conceptualization of one set of problems in informed consent (which Jansen subsumes under the term “therapeutic error”) and, more critically, about the methods and the data u…
Restoring Balance
A diverse panel convened in June 2011 to explore a dilemma in human research: some traits may make individuals or communities particularly vulnerable to a variety of harms in research; however, well-intended efforts to protect these vulnerable individuals and communities from harm may actually generate a series of new harms. We have presented a consensus statement forged by the panel through discussion during a 2-day meeting and the article-writi…
The Participation of Community Members on Medical Institutional Review Boards
The goal of this study was to describe the contributions of community members (unaffiliated members) who serve on institutional review boards (IRBs) at large medical research centers and to compare their contributions to those of other IRB members. We observed and audiotaped 17 panel meetings attended by community members and interviewed 15 community members, as well as 152 other members and staff. The authors coded transcripts of the panel meeti…
Therapeutic misconception and the limits of ethnography. A commentary on Timmermans and McKay
Therapeutic Misconception in Clinical Research
The article addresses the frequency and risk factors of therapeutic misconceptions in clinical research. When clinical researchers fail to recognize the ways in which research participation may involve the sacrifice of some degree of personal cares they are said to manifest a therapeutic misconception. Growing concern about the validity of consent obtained from many research subjects has led experts to suggest that therapeutic misconception may c…
Therapeutic misconception and the appreciation of risks in clinical trials
The Therapeutic Misconception
Background. The therapeutic misconception occurs when a research subject fails to appreciate the distinction between the imperatives of clinical research and of ordinary treatment, and therefore inaccurately attributes therapeutic intent to research procedures. The therapeutic misconception is a serious problem for informed consent in clinical research. Objectives. This paper analyzes the nature and origins of the therapeutic misconception and su…
Beyond Regulation
The Enigma of Health
Research on informed consent
Familial Coercion to Participate in Genetic Family Studies
Lisa S. Parker, Charles W. Lidz, Familial Coercion to Participate in Genetic Family Studies: Is There Cause for IRB Intervention?, IRB: Ethics & Human Research, Vol. 16, No. 1/2 (Jan. - Apr., 1994), pp. 6-12
The Erosion of Autonomy in Long-Term Care
1. The Meaning of Autonomy in Long-Term Care 2. How Did We Get There? A Brief History of the Nursing Home 3. The Setting and Research Strategies 4. The Value Basis of Long-Term Care 5. Caring and Cared For: Role Relationships in Long-Term Care 6. Restrictions 7. Activities and Schedules: The Routine of Daily Life 8. Interaction Patterns and Autonomy 9. Privacy: Access to Space and Property 10. Physical Redirection and Restraint 11. Summary and Im…
Patient Dominance
Funding large-scale qualitative sociology
‘Objectivity’ and Rapport
Family violence reported in a psychiatric emergency room
False Hopes and Best Data
Paul S. Appelbaum, Loren H. Roth, Charles W. Lidz, Paul Benson, William Winslade, False Hopes and Best Data: Consent to Research and the Therapeutic Misconception, The Hastings Center Report, Vol. 17, No. 2 (Apr., 1987), pp. 20-24
When the Subjects Are Hospital Staff, Is It Ethical (Or Possible) to Get Informed Consent
Chronic disease
Psychiatric Treatment and the Romance of the Law
Requisites for a model of institutionalized normative structures
Case Studies
Therapeutic misconception and the appreciation of risks in clinical trials
Funding large-scale qualitative sociology
Family violence reported in a psychiatric emergency room
Requisites for a model of institutionalized normative structures
Conspiracy, Paranoia and the problem of knowledge
Therapeutic Control of Heroin
The Participation of Community Members on Medical Institutional Review Boards
The goal of this study was to describe the contributions of community members (unaffiliated members) who serve on institutional review boards (IRBs) at large medical research centers and to compare their contributions to those of other IRB members. We observed and audiotaped 17 panel meetings attended by community members and interviewed 15 community members, as well as 152 other members and staff. The authors coded transcripts of the panel meeti…
Connections
The Concept of Cruel and Unusual Punishment
Therapeutic Control of Heroin
Conspiracy, Paranoia and the problem of knowledge
What did Lemert mean and does it matter
Counterdeterrence
The therapeutic misconception
Heroin, Deviance and Morality
Case Studies
Mrs. X and the Bone Marrow Transplant
The case is presented in which a leukemia patient sought an order from an Iowa district court to compel the University of Iowa Institutional Review Board (IRB) to recontact, specifically on the patient's behalf, a potential bone marrow donor who had refused a general request to participate in the transplant program. Charles Lidz, Alan Meisel, and Loren Roth argue against judicial intervention, primarily on the grounds that a follow-up letter woul…
Heroin, Deviance and Morality
Examines the data on drug abuse in the late Sixties and early Seventies and concludes that there was probably no significant increase in the use of heroin. The crisis of drug abuse that many Americans perceived at the time was in fact a crisis of politics and morality. These findings lead the authors to fascinating and important revisions of theories of labelling and deviance. 'The book has a broad perspective and, through analytical and theoreti…
Understanding Crime
This title features eight articles that represent a variety of viewpoints on the causes of crime - from the social learning tradition to the multiple factor approach to sociobiology and the behaviourist approaches. editors' introduction puts the research reported here into the context of the long-standing debate. 'SAGE Publications are to be congratulated on their excellent series of books called Research Progress Series in Criminology...one of t…
Requisites for a model of institutionalized normative structures
Chronic disease
Psychiatric Treatment and the Romance of the Law
False Hopes and Best Data
Paul S. Appelbaum, Loren H. Roth, Charles W. Lidz, Paul Benson, William Winslade, False Hopes and Best Data: Consent to Research and the Therapeutic Misconception, The Hastings Center Report, Vol. 17, No. 2 (Apr., 1987), pp. 20-24
When the Subjects Are Hospital Staff, Is It Ethical (Or Possible) to Get Informed Consent
‘Objectivity’ and Rapport
Family violence reported in a psychiatric emergency room
Funding large-scale qualitative sociology
Patient Dominance
Familial Coercion to Participate in Genetic Family Studies
Lisa S. Parker, Charles W. Lidz, Familial Coercion to Participate in Genetic Family Studies: Is There Cause for IRB Intervention?, IRB: Ethics & Human Research, Vol. 16, No. 1/2 (Jan. - Apr., 1994), pp. 6-12
The Erosion of Autonomy in Long-Term Care
1. The Meaning of Autonomy in Long-Term Care 2. How Did We Get There? A Brief History of the Nursing Home 3. The Setting and Research Strategies 4. The Value Basis of Long-Term Care 5. Caring and Cared For: Role Relationships in Long-Term Care 6. Restrictions 7. Activities and Schedules: The Routine of Daily Life 8. Interaction Patterns and Autonomy 9. Privacy: Access to Space and Property 10. Physical Redirection and Restraint 11. Summary and Im…
Research on informed consent
The Enigma of Health
Psychology (26 works) · Medicine (19 works) · Political science (16 works) · Sociology (14 works) · Ethics in Clinical Research (13 works) · Alternative medicine (9 works) · Ethics in medical practice (9 works) · Informed consent (9 works) · Law (9 works) · Psychiatry (9 works)