J Hunleth
Biographic Data
| ID | 14576 |
|---|---|
| NAME | J Hunleth |
| GIVEN NAMES | J |
| FAMILY NAME | Hunleth |
| SIGNATURE | HUNLETH J |
| AFFILIATIONS | Washington University in St. Louis |
| ORCID | 0000-0003-4516-4407 |
| VERIFIED | Yes |
| TOTAL WORKS | 31 |
| TOTAL CITATIONS | 108 |
| AUTHOR COUNT | 31 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2011 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 5 |
“Using theories” and “doing theory”
The use of “theory” is a common concern in public health and anthropology. However, the term can have quite distinct meanings. In this piece, we seek to name and characterize some tendencies in anthropological theorizing that contribute to potential misunderstandings when communicating with non-anthropologist colleagues in public health. In particular, we highlight differences between the use of recognizable, named “theories” that often explicitl…
Integrating HPV vaccination into ART clinics
People living with HIV are more likely to have persistent HPV infections, increasing the risk of developing HPV-related cancers (e.g., cervical cancer). The HPV vaccination offers protection against such cancers. However, administering the HPV vaccination according to the recommended schedule for adolescents who are living with HIV holds challenges. ART clinics may provide opportune locations in places with high burden of HIV. In our 5-year study…
Working through cancer
While US cancer survival rates have improved in recent years, the rising incidence of early‐onset cancers means cancer is shifting younger, imposing new generational challenges for survivors and their families. This article explores the experience of a cancer diagnosis during one's re/productive years by analyzing how parents with dependent children maintain a future amid heightened economic precarity (e.g., loss of stable employment, downward mo…
Preliminary Impact of Public Health Messaging on HPV Vaccine Uptake Among Adolescent Girls and Young Women Living with HIV in Central Uganda
HPV Vaccine Uptake and its Predictors among Adolescent Girls and Young Women Living with HIV-in Central Uganda
Managing children’s asthma
Objective Pediatric asthma management is challenging for parents and guardians (hereafter caregivers). We examined (1) how caregivers mentally represent trigger and symptom management strategies, and (2) how those mental representations are associated with actual management behavior.Methods In an online survey, N = 431 caregivers of children with asthma rated 20 trigger management behaviors and 20 symptom management behaviors across 15 characteri…
How are mental representations of asthma triggers and symptoms related to interpersonal risk perceptions? A psychometric investigation of caregivers of children with asthma
Objective Parents and guardians (hereafter caregivers) make decisions for their children’s medical care. However, many caregivers of children with asthma struggle to understand their child’s illness. We used the psychometric paradigm to investigate how caregivers conceptualize, or mentally represent, asthma triggers and symptoms and how these representations are linked to perceived asthma exacerbation risk.Methods We asked 377 caregivers of child…
Where there are no visitors
Against Image Positivism
Images are increasingly used in health research as a complement to discursive methods, to elicit more and different types of knowledge and experience from participants. The use of image-based research, such as drawing and photography, then, holds promises for understanding health in new ways. However, such promises fall short when researchers and audiences treat images as realist representations of participants' lives. Images are never clear repr…
Interpersonal comparison among caregivers of children with asthma
Objective: We examined the extent to which caregivers of children with asthma used interpersonal comparisons—a novel comparison process that parallels social comparison and temporal comparison—to form judgments about their child. Methods & Measures: Using semi-structured interviews adapted from the McGill Illness Narrative Interview, we examined the interpersonal comparisons that caregivers of a child with asthma (n = 41) made regarding their chi…
A Heart for the Care
At the only standalone pediatric hospital in Zambia, patient wellbeing often rests in the hands of bedsiders. Bedsiders are caregivers, often family, who sit at the patient's bedside, feeding, cleaning them, and running medical errands. Bedsiders are critical human infrastructure for the hospital and its staff. In our research, we heard repeatedly that bedsiders must have a "heart" for caregiving, taking on unremunerated and exhausting informal l…
Breathing Together
Through the Zoom window
Virtual technologies gained popularity during the COVID-19 pandemic for use in research, including research with children. As scholarship from the field of science, technology and society (STS) suggests, technologies are never neutral, but embedded with social values and, as such, used by people to navigate identities and relationships. Building on childhood studies research that has shown how children appropriate and use research tools, this art…
The adult in the room
Parental involvement in research where children are the primary study participants is frequent but under-analyzed. To understand such dynamics in research with children, we examined children's (ages 8-14) interactions with parents who came in and out of view during our virtual interviews in our study, Photographing Health by Rural Adolescents in the MidwEst (PHRAME). We identified the pull and push of this adult involvement-a choreography in whic…
The Rural Household Production of Health Approach
The recent focus on rural-urban cancer disparities in the United States (U.S.) requires a comprehensive understanding of the processes and relations that influence cancer care seeking and decision making. This is of particular importance for Black, Latino, and Native populations living in rural areas in the U.S., who remain marginalized in health care spaces. In this article, we describe the household production of health approach (HHPH) as a con…
Emotional Reflexivity in Research and Teaching
Views Icon Views Article contents Figures & tables Video Audio Supplementary Data Peer Review Share Icon Share Facebook Twitter LinkedIn MailTo Tools Icon Tools Get Permissions Cite Icon Cite Search Site Citation Jean Hunleth; EMOTIONAL REFLEXIVITY IN RESEARCH AND TEACHING: REVISITING MUTALE CHILESHE'S LEGACY. Practicing Anthropology 1 March 2022; 44 (2): 3–9. doi: https://doi.org/10.17730/0888-4552.44.2.3 Download citation file: Ris (Zotero) Ref…
Towards emplaced understandings of risk
Navigating Breast Cancer Screening in Rural Missouri
The National Cancer Institute recently identified rural cancer disparities as a priority issue, dedicating resources to rural cancer prevention, presenting opportunities and also risks. We bring an anthropological concept, social navigation, to bear on a popular public health intervention, patient navigation, increasingly proposed as an "evidence-based" approach to reducing health disparities. Our study of mammography in the Missouri Bootheel dem…
How do embodied experiences of asthma influence caregiver conceptual models
What Do Arts-Based Methods Do? A Story of (What Is) Art and Online Research With Children During a Pandemic
This comic draws viewers behind the final product and into the process of arts-based research. Specifically, we focus on research produced over Zoom during the Covid-19 pandemic. Based on a study of asthma caregiving, we illustrate how a 10-year-old study participant, Becca, and researcher Hannah connected in embodied, sensory and material-spatial ways across digital space through the making and unmaking of art forms using simple sensory-sculptur…
Not Breathing Easy
Recent health policy in the United States encourages an outsourcing of labor from professional practice into domestic spaces, where in theory, medical professionals supply the training, technologies, and guidance needed to discharge responsibility for care to patients or caregivers. Mattingly et al. (2011) term this labor "chronic homework," describing the relationship between the assigning and undertaking of medical care at the borders of profes…
Co-producing knowledge and care in team-based fieldwork in the Covid-19 era
In this article, we examine how the pandemic has led us to a dispersed and technologically mediated form of team-based fieldwork framed by an ethics of care. Covid-19 has changed the proximity of research teams and, thus, affected how teams are present for one another during challenging times, such as when researchers witness extreme suffering or death during a study. The four authors present reflections on collaborating on a caregiving study in …
Waiting for care
Where Have All the Children Gone? Against Children's Invisibility in the Covid-19 Pandemic
Notes1 https://www.instagram.com/p/CAUvntwnQ3H/?utm_source=ig, Posted May 18 2020.2 Jean Hunleth, “Zambian Children’s Imaginal Caring: On Fantasy, Play, and Anticipation in an Epidemic,” Cultural Anthropology 34, no. 2 (May 2019): 155-86. https://doi.org/10.14506/ca34.2.01.3 Jean Hunleth, Children as Caregivers: The Global Fight Against Tuberculosis and HIV in Zambia (New Brunswick, NJ: Rutgers University Press, 2017).4 Julie Spray, The Children …
Zambian Children's Imaginal Caring
Based on ethnographic fieldwork in Lusaka, Zambia, this article puts forth the concept of imaginal caring to examine a form of caring that is fantastical, exaggerated, and counterfactual. To develop this concept, I take the vantage point of young children (ages eight through twelve) who lived in households with persons who were suffering from tuberculosis and HIV. The children were involved in providing day-to-day care in many ways. They were als…
Beyond on or with
By taking a reflexive approach to research methodology, this article contributes to discussions on power dynamics and knowledge production in the social studies of children. The author describes and analyzes three research methods that she used with children - drawing, child-led tape-recording and focus group discussions. These methods were carried out during 15 months of research in a low-income urban settlement in Zambia with children (ages 8-1…
Zambian Children's Imaginal Caring
Based on ethnographic fieldwork in Lusaka, Zambia, this article puts forth the concept of imaginal caring to examine a form of caring that is fantastical, exaggerated, and counterfactual. To develop this concept, I take the vantage point of young children (ages eight through twelve) who lived in households with persons who were suffering from tuberculosis and HIV. The children were involved in providing day-to-day care in many ways. They were als…
Children's Roles in Tuberculosis Treatment Regimes
In Zambia, the burden of HIV-related diseases such as tuberculosis has received substantial international attention. Zambians experience and participate in a range of globally produced programs to manage TB and cure TB sufferers. Guided by WHO's Directly Observed Treatment, Short-course protocol, TB treatment regimens now emphasize adherence to medications as the primary way to achieve cure. This article aims to understand how adherence models en…
Where Have All the Children Gone? Against Children's Invisibility in the Covid-19 Pandemic
Notes1 https://www.instagram.com/p/CAUvntwnQ3H/?utm_source=ig, Posted May 18 2020.2 Jean Hunleth, “Zambian Children’s Imaginal Caring: On Fantasy, Play, and Anticipation in an Epidemic,” Cultural Anthropology 34, no. 2 (May 2019): 155-86. https://doi.org/10.14506/ca34.2.01.3 Jean Hunleth, Children as Caregivers: The Global Fight Against Tuberculosis and HIV in Zambia (New Brunswick, NJ: Rutgers University Press, 2017).4 Julie Spray, The Children …
Waiting for care
Not Breathing Easy
Recent health policy in the United States encourages an outsourcing of labor from professional practice into domestic spaces, where in theory, medical professionals supply the training, technologies, and guidance needed to discharge responsibility for care to patients or caregivers. Mattingly et al. (2011) term this labor "chronic homework," describing the relationship between the assigning and undertaking of medical care at the borders of profes…
A Heart for the Care
At the only standalone pediatric hospital in Zambia, patient wellbeing often rests in the hands of bedsiders. Bedsiders are caregivers, often family, who sit at the patient's bedside, feeding, cleaning them, and running medical errands. Bedsiders are critical human infrastructure for the hospital and its staff. In our research, we heard repeatedly that bedsiders must have a "heart" for caregiving, taking on unremunerated and exhausting informal l…
The adult in the room
Parental involvement in research where children are the primary study participants is frequent but under-analyzed. To understand such dynamics in research with children, we examined children's (ages 8-14) interactions with parents who came in and out of view during our virtual interviews in our study, Photographing Health by Rural Adolescents in the MidwEst (PHRAME). We identified the pull and push of this adult involvement-a choreography in whic…
What Do Arts-Based Methods Do? A Story of (What Is) Art and Online Research With Children During a Pandemic
This comic draws viewers behind the final product and into the process of arts-based research. Specifically, we focus on research produced over Zoom during the Covid-19 pandemic. Based on a study of asthma caregiving, we illustrate how a 10-year-old study participant, Becca, and researcher Hannah connected in embodied, sensory and material-spatial ways across digital space through the making and unmaking of art forms using simple sensory-sculptur…
Co-producing knowledge and care in team-based fieldwork in the Covid-19 era
In this article, we examine how the pandemic has led us to a dispersed and technologically mediated form of team-based fieldwork framed by an ethics of care. Covid-19 has changed the proximity of research teams and, thus, affected how teams are present for one another during challenging times, such as when researchers witness extreme suffering or death during a study. The four authors present reflections on collaborating on a caregiving study in …
Beyond Adherence
Dominant health care professional discourses on cancer take for granted high levels of individual responsibility in cancer prevention, especially in expectations about preventive screening. At the same time, adhering to screening guidelines can be difficult for lower income and under-insured individuals. Colorectal cancer (CRC) is a prime example. Since the advent of CRC screening, disparities in CRC mortality have widened along lines of income, …
Through the Zoom window
Virtual technologies gained popularity during the COVID-19 pandemic for use in research, including research with children. As scholarship from the field of science, technology and society (STS) suggests, technologies are never neutral, but embedded with social values and, as such, used by people to navigate identities and relationships. Building on childhood studies research that has shown how children appropriate and use research tools, this art…
How do embodied experiences of asthma influence caregiver conceptual models
Towards emplaced understandings of risk
Navigating Breast Cancer Screening in Rural Missouri
The National Cancer Institute recently identified rural cancer disparities as a priority issue, dedicating resources to rural cancer prevention, presenting opportunities and also risks. We bring an anthropological concept, social navigation, to bear on a popular public health intervention, patient navigation, increasingly proposed as an "evidence-based" approach to reducing health disparities. Our study of mammography in the Missouri Bootheel dem…
School holidays
This article discusses a practice of child residential mobility in Zambia that is frequently overlooked in migration studies and difficult to capture through standard survey methods: the practice of 'going on holiday' to the homes of relatives during breaks in the school term. Drawing on child-centered and quantitative research, this article examines the multiple dimensions of 'going on holiday' for children living in a low-income urban settlemen…
Beyond on or with
By taking a reflexive approach to research methodology, this article contributes to discussions on power dynamics and knowledge production in the social studies of children. The author describes and analyzes three research methods that she used with children - drawing, child-led tape-recording and focus group discussions. These methods were carried out during 15 months of research in a low-income urban settlement in Zambia with children (ages 8-1…
“ARVs” as sickness and medicine
Since the roll out of no cost antiretroviral drugs (ARVs) in health centers in Zambia in 2004, the number of Zambians receiving treatment has substantially increased. While research has addressed adult responses to ARVs in Zambia and elsewhere, there is little known about how children experience and respond to the presence of treatment in their communities and households. To examine children's ARV knowledge, this article focuses on three children…
Daily Hassles' Role in Health Seeking Behavior among Low-income Populations
Findings suggest daily hassles are unique among low-income populations and should be considered in health behavior interventions
Children's Roles in Tuberculosis Treatment Regimes
In Zambia, the burden of HIV-related diseases such as tuberculosis has received substantial international attention. Zambians experience and participate in a range of globally produced programs to manage TB and cure TB sufferers. Guided by WHO's Directly Observed Treatment, Short-course protocol, TB treatment regimens now emphasize adherence to medications as the primary way to achieve cure. This article aims to understand how adherence models en…
School holidays
This article discusses a practice of child residential mobility in Zambia that is frequently overlooked in migration studies and difficult to capture through standard survey methods: the practice of 'going on holiday' to the homes of relatives during breaks in the school term. Drawing on child-centered and quantitative research, this article examines the multiple dimensions of 'going on holiday' for children living in a low-income urban settlemen…
Beyond Adherence
Dominant health care professional discourses on cancer take for granted high levels of individual responsibility in cancer prevention, especially in expectations about preventive screening. At the same time, adhering to screening guidelines can be difficult for lower income and under-insured individuals. Colorectal cancer (CRC) is a prime example. Since the advent of CRC screening, disparities in CRC mortality have widened along lines of income, …
Zambian Children's Imaginal Caring
Based on ethnographic fieldwork in Lusaka, Zambia, this article puts forth the concept of imaginal caring to examine a form of caring that is fantastical, exaggerated, and counterfactual. To develop this concept, I take the vantage point of young children (ages eight through twelve) who lived in households with persons who were suffering from tuberculosis and HIV. The children were involved in providing day-to-day care in many ways. They were als…
Waiting for care
Where Have All the Children Gone? Against Children's Invisibility in the Covid-19 Pandemic
Notes1 https://www.instagram.com/p/CAUvntwnQ3H/?utm_source=ig, Posted May 18 2020.2 Jean Hunleth, “Zambian Children’s Imaginal Caring: On Fantasy, Play, and Anticipation in an Epidemic,” Cultural Anthropology 34, no. 2 (May 2019): 155-86. https://doi.org/10.14506/ca34.2.01.3 Jean Hunleth, Children as Caregivers: The Global Fight Against Tuberculosis and HIV in Zambia (New Brunswick, NJ: Rutgers University Press, 2017).4 Julie Spray, The Children …
Not Breathing Easy
Recent health policy in the United States encourages an outsourcing of labor from professional practice into domestic spaces, where in theory, medical professionals supply the training, technologies, and guidance needed to discharge responsibility for care to patients or caregivers. Mattingly et al. (2011) term this labor "chronic homework," describing the relationship between the assigning and undertaking of medical care at the borders of profes…
Co-producing knowledge and care in team-based fieldwork in the Covid-19 era
In this article, we examine how the pandemic has led us to a dispersed and technologically mediated form of team-based fieldwork framed by an ethics of care. Covid-19 has changed the proximity of research teams and, thus, affected how teams are present for one another during challenging times, such as when researchers witness extreme suffering or death during a study. The four authors present reflections on collaborating on a caregiving study in …
The Rural Household Production of Health Approach
The recent focus on rural-urban cancer disparities in the United States (U.S.) requires a comprehensive understanding of the processes and relations that influence cancer care seeking and decision making. This is of particular importance for Black, Latino, and Native populations living in rural areas in the U.S., who remain marginalized in health care spaces. In this article, we describe the household production of health approach (HHPH) as a con…
Emotional Reflexivity in Research and Teaching
Views Icon Views Article contents Figures & tables Video Audio Supplementary Data Peer Review Share Icon Share Facebook Twitter LinkedIn MailTo Tools Icon Tools Get Permissions Cite Icon Cite Search Site Citation Jean Hunleth; EMOTIONAL REFLEXIVITY IN RESEARCH AND TEACHING: REVISITING MUTALE CHILESHE'S LEGACY. Practicing Anthropology 1 March 2022; 44 (2): 3–9. doi: https://doi.org/10.17730/0888-4552.44.2.3 Download citation file: Ris (Zotero) Ref…
Towards emplaced understandings of risk
Navigating Breast Cancer Screening in Rural Missouri
The National Cancer Institute recently identified rural cancer disparities as a priority issue, dedicating resources to rural cancer prevention, presenting opportunities and also risks. We bring an anthropological concept, social navigation, to bear on a popular public health intervention, patient navigation, increasingly proposed as an "evidence-based" approach to reducing health disparities. Our study of mammography in the Missouri Bootheel dem…
How do embodied experiences of asthma influence caregiver conceptual models
What Do Arts-Based Methods Do? A Story of (What Is) Art and Online Research With Children During a Pandemic
This comic draws viewers behind the final product and into the process of arts-based research. Specifically, we focus on research produced over Zoom during the Covid-19 pandemic. Based on a study of asthma caregiving, we illustrate how a 10-year-old study participant, Becca, and researcher Hannah connected in embodied, sensory and material-spatial ways across digital space through the making and unmaking of art forms using simple sensory-sculptur…
Breathing Together
Through the Zoom window
Virtual technologies gained popularity during the COVID-19 pandemic for use in research, including research with children. As scholarship from the field of science, technology and society (STS) suggests, technologies are never neutral, but embedded with social values and, as such, used by people to navigate identities and relationships. Building on childhood studies research that has shown how children appropriate and use research tools, this art…
The adult in the room
Parental involvement in research where children are the primary study participants is frequent but under-analyzed. To understand such dynamics in research with children, we examined children's (ages 8-14) interactions with parents who came in and out of view during our virtual interviews in our study, Photographing Health by Rural Adolescents in the MidwEst (PHRAME). We identified the pull and push of this adult involvement-a choreography in whic…
Interpersonal comparison among caregivers of children with asthma
Objective: We examined the extent to which caregivers of children with asthma used interpersonal comparisons—a novel comparison process that parallels social comparison and temporal comparison—to form judgments about their child. Methods & Measures: Using semi-structured interviews adapted from the McGill Illness Narrative Interview, we examined the interpersonal comparisons that caregivers of a child with asthma (n = 41) made regarding their chi…
A Heart for the Care
At the only standalone pediatric hospital in Zambia, patient wellbeing often rests in the hands of bedsiders. Bedsiders are caregivers, often family, who sit at the patient's bedside, feeding, cleaning them, and running medical errands. Bedsiders are critical human infrastructure for the hospital and its staff. In our research, we heard repeatedly that bedsiders must have a "heart" for caregiving, taking on unremunerated and exhausting informal l…
Preliminary Impact of Public Health Messaging on HPV Vaccine Uptake Among Adolescent Girls and Young Women Living with HIV in Central Uganda
HPV Vaccine Uptake and its Predictors among Adolescent Girls and Young Women Living with HIV-in Central Uganda
Managing children’s asthma
Objective Pediatric asthma management is challenging for parents and guardians (hereafter caregivers). We examined (1) how caregivers mentally represent trigger and symptom management strategies, and (2) how those mental representations are associated with actual management behavior.Methods In an online survey, N = 431 caregivers of children with asthma rated 20 trigger management behaviors and 20 symptom management behaviors across 15 characteri…
Medicine (20 works) · Psychology (18 works) · Sociology (13 works) · Children's Rights and Participation (11 works) · Asthma (7 works) · Political science (7 works) · Health care (6 works) · Nursing (6 works) · Poverty, Education, and Child Welfare (6 works) · Geography (5 works)