Chelsey R Carter
Biographic Data
| ID | 156282 |
|---|---|
| NAME | Chelsey R Carter |
| GIVEN NAMES | Chelsey R |
| FAMILY NAME | Carter |
| SIGNATURE | CARTER C R |
| AFFILIATIONS | Yale University |
| ORCID | 0000-0002-9176-4289 |
| VERIFIED | Yes |
| TOTAL WORKS | 16 |
| TOTAL CITATIONS | 29 |
| AUTHOR COUNT | 16 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2018 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 4 |
Interpersonal associations in mental health outcomes of people living with ALS, caregivers, and dyads
There is a significant mental health burden among individuals with amyotrophic lateral sclerosis (ALS) and their caregivers. However, limited literature exists on how ALS caregiver-recipient dyad relationships may affect mental health outcomes. The Care Interactions in ALS study is a mixed-method project exploring people with ALS and their caregivers’ care experiences. Quantitative analysis analyzed survey responses from 33 linked caregivers and …
Tackling the Everyday
St. Louis enhancing engagement and retention (STEER) in HIV/Aids care
Background Missouri is one of seven priority states identified by the Ending the HIV Epidemic Initiative, and St. Louis contains almost half of the people living with HIV (PLWH) in Missouri. As St. Louis has a marked history of structural racism and economic inequities, we utilized the Intersectionality Based Policy Analysis (IBPA) framework to guide a participatory needs assessment for planning and program development. Methods The planning team …
Anti‐Bodies, Anti‐Body
This essay introduces the special section Anti‐bodies, Anti‐body: A Black Feminist Call and Response , a collaborative Black feminist intervention that emerges from an interdisciplinary dialogue grounded in anthropological critique. Building on anthropologist Dána‐Ain Davis's concept of “Black anti‐bodies”—bodies caught in the paradox of susceptibility and immunity—we explore how Black and “Othered” bodies are positioned at the intersection of vu…
Examining relationships between multifactorial health beliefs and beliefs about the social implications of genetics
We examined how multifactorial (MF) beliefs about health relate to beliefs regarding the ethical, legal, and social implications (ELSI) of genomics research including genetic discrimination, determinism, and essentialism, and to demographic characteristics. We conducted an online, cross-sectional survey of 351 sociodemographically diverse U.S. adults (59% female, 56% having vocational-technical training or less education, 31% with low subjective …
The Difference of Black ALS Anti-Bodies for Survival
This essay responds to anthropologist Dána-Ain Davis's "Black anti-bodies" call through an examination of amyotrophic lateral sclerosis (ALS) anti-bodies. I describe how paradoxical perceptions of immunity and susceptibility extend beyond reproduction and into the rare disease ecosystem-a scientific environment ripe with biomedical speculations about etiology, cure, and risk. A brief ethnographic interlude with a physician-scientist reveals a bel…
Patients as knowledge partners in the context of complex chronic conditions
This article conveys how taking patient knowledge seriously can improve patient experience and further medical science. In clinical contexts related to infection-associated chronic conditions and other complex chronic illnesses, patient knowledge is often undervalued, even when clinicians have limited training in diagnosing and treating a particular condition. We argue that there are opportunities for clinicians and researchers to collaborate wit…
Weathering Anti-Blackness
On June 2, 2021, the National Football League announced it would discontinue the use of race-norming in legal settlements for concussion-related injuries. The anti-Black practice of scientific racism at the foundation of race-norming disproportionately affected retired Black players’ ability to access compensation for medical issues they developed from sustained football play. On the same day, Major League Baseball celebrated its inaugural Lou Ge…
Psychological distress and life satisfaction among Black working adults in the U.S. during the Covid-19 pandemic
The COVID-19 pandemic disproportionately impacted Black Americans. Rates of hospitalization, mortality, and morbidity increased and racial inequities in unemployment, job benefits, and working conditions widened. This study identifies specific factors associated with the well-being of Black adults in the U.S. workforce one year into the pandemic. Data came from the 2021 National Health Interview Survey (N = 1,984). Ordinary least squares regressi…
Past Is Prologue
Colonialism underlies the commodification of health care in the United States and continues to harm well-being among Black Americans. We present four recommendations for addressing its health consequences: (1) Investments in epigenetic research to improve our understanding of how systemic oppression becomes biology. (2) Centering Black experiences and knowledge traditions in education, practice, and policy. (3) Support for Black scholars, trainee…
Gaslighting
Gaslighting has become a popular term to describe experiences of doubt and manipulation that make individuals or groups feel like their lived realities are not valid. Much of the theoretical work utilizing gaslighting as an analytic can be found in psychology literature or feminist domestic violence discussions. More recently, political scientists, philosophers, and sociologists have noted the structural, political, economic, and social processes…
Health Disparities and Health Omissions
Racialized diagnosis of the fatal neurodegenerative disease ALS illustrates the limitations of medical anthropological knowledge that focuses only on "ethnic differences" to explain health disparities at the population level. I argue that a central focus on racism in our analysis of biomedical US spaces, and explicitly anti-Black racism, will better equip anthropologists to understand how racialized forms of knowledge production in medicine and s…
Covid-1619 Across the Black Atlantic
Not Breathing Easy
Recent health policy in the United States encourages an outsourcing of labor from professional practice into domestic spaces, where in theory, medical professionals supply the training, technologies, and guidance needed to discharge responsibility for care to patients or caregivers. Mattingly et al. (2011) term this labor "chronic homework," describing the relationship between the assigning and undertaking of medical care at the borders of profes…
Trauma at home
Protesters block Interstate 64 during protests after the not guilty verdict of former St. Louis police officer Jason Stockley, October 3, 2017. (Richard Reilly) In March 2019, I threw away my Black Lives Matter sign. I'm still not sure what came over me and why it took until then ... but it felt right. The sign was not placed in my condominium window to remind my neighbors that Black people's lives actually matter, nor to declare my solidarity wi…
Racist Monuments Are Killing Us
Racist Monuments Are Killing Us
Health Disparities and Health Omissions
Racialized diagnosis of the fatal neurodegenerative disease ALS illustrates the limitations of medical anthropological knowledge that focuses only on "ethnic differences" to explain health disparities at the population level. I argue that a central focus on racism in our analysis of biomedical US spaces, and explicitly anti-Black racism, will better equip anthropologists to understand how racialized forms of knowledge production in medicine and s…
Not Breathing Easy
Recent health policy in the United States encourages an outsourcing of labor from professional practice into domestic spaces, where in theory, medical professionals supply the training, technologies, and guidance needed to discharge responsibility for care to patients or caregivers. Mattingly et al. (2011) term this labor "chronic homework," describing the relationship between the assigning and undertaking of medical care at the borders of profes…
Trauma at home
Protesters block Interstate 64 during protests after the not guilty verdict of former St. Louis police officer Jason Stockley, October 3, 2017. (Richard Reilly) In March 2019, I threw away my Black Lives Matter sign. I'm still not sure what came over me and why it took until then ... but it felt right. The sign was not placed in my condominium window to remind my neighbors that Black people's lives actually matter, nor to declare my solidarity wi…
Weathering Anti-Blackness
On June 2, 2021, the National Football League announced it would discontinue the use of race-norming in legal settlements for concussion-related injuries. The anti-Black practice of scientific racism at the foundation of race-norming disproportionately affected retired Black players’ ability to access compensation for medical issues they developed from sustained football play. On the same day, Major League Baseball celebrated its inaugural Lou Ge…
Patients as knowledge partners in the context of complex chronic conditions
This article conveys how taking patient knowledge seriously can improve patient experience and further medical science. In clinical contexts related to infection-associated chronic conditions and other complex chronic illnesses, patient knowledge is often undervalued, even when clinicians have limited training in diagnosing and treating a particular condition. We argue that there are opportunities for clinicians and researchers to collaborate wit…
Covid-1619 Across the Black Atlantic
Racist Monuments Are Killing Us
Trauma at home
Protesters block Interstate 64 during protests after the not guilty verdict of former St. Louis police officer Jason Stockley, October 3, 2017. (Richard Reilly) In March 2019, I threw away my Black Lives Matter sign. I'm still not sure what came over me and why it took until then ... but it felt right. The sign was not placed in my condominium window to remind my neighbors that Black people's lives actually matter, nor to declare my solidarity wi…
Health Disparities and Health Omissions
Racialized diagnosis of the fatal neurodegenerative disease ALS illustrates the limitations of medical anthropological knowledge that focuses only on "ethnic differences" to explain health disparities at the population level. I argue that a central focus on racism in our analysis of biomedical US spaces, and explicitly anti-Black racism, will better equip anthropologists to understand how racialized forms of knowledge production in medicine and s…
Covid-1619 Across the Black Atlantic
Not Breathing Easy
Recent health policy in the United States encourages an outsourcing of labor from professional practice into domestic spaces, where in theory, medical professionals supply the training, technologies, and guidance needed to discharge responsibility for care to patients or caregivers. Mattingly et al. (2011) term this labor "chronic homework," describing the relationship between the assigning and undertaking of medical care at the borders of profes…
Gaslighting
Gaslighting has become a popular term to describe experiences of doubt and manipulation that make individuals or groups feel like their lived realities are not valid. Much of the theoretical work utilizing gaslighting as an analytic can be found in psychology literature or feminist domestic violence discussions. More recently, political scientists, philosophers, and sociologists have noted the structural, political, economic, and social processes…
Psychological distress and life satisfaction among Black working adults in the U.S. during the Covid-19 pandemic
The COVID-19 pandemic disproportionately impacted Black Americans. Rates of hospitalization, mortality, and morbidity increased and racial inequities in unemployment, job benefits, and working conditions widened. This study identifies specific factors associated with the well-being of Black adults in the U.S. workforce one year into the pandemic. Data came from the 2021 National Health Interview Survey (N = 1,984). Ordinary least squares regressi…
Past Is Prologue
Colonialism underlies the commodification of health care in the United States and continues to harm well-being among Black Americans. We present four recommendations for addressing its health consequences: (1) Investments in epigenetic research to improve our understanding of how systemic oppression becomes biology. (2) Centering Black experiences and knowledge traditions in education, practice, and policy. (3) Support for Black scholars, trainee…
Patients as knowledge partners in the context of complex chronic conditions
This article conveys how taking patient knowledge seriously can improve patient experience and further medical science. In clinical contexts related to infection-associated chronic conditions and other complex chronic illnesses, patient knowledge is often undervalued, even when clinicians have limited training in diagnosing and treating a particular condition. We argue that there are opportunities for clinicians and researchers to collaborate wit…
Weathering Anti-Blackness
On June 2, 2021, the National Football League announced it would discontinue the use of race-norming in legal settlements for concussion-related injuries. The anti-Black practice of scientific racism at the foundation of race-norming disproportionately affected retired Black players’ ability to access compensation for medical issues they developed from sustained football play. On the same day, Major League Baseball celebrated its inaugural Lou Ge…
St. Louis enhancing engagement and retention (STEER) in HIV/Aids care
Background Missouri is one of seven priority states identified by the Ending the HIV Epidemic Initiative, and St. Louis contains almost half of the people living with HIV (PLWH) in Missouri. As St. Louis has a marked history of structural racism and economic inequities, we utilized the Intersectionality Based Policy Analysis (IBPA) framework to guide a participatory needs assessment for planning and program development. Methods The planning team …
Anti‐Bodies, Anti‐Body
This essay introduces the special section Anti‐bodies, Anti‐body: A Black Feminist Call and Response , a collaborative Black feminist intervention that emerges from an interdisciplinary dialogue grounded in anthropological critique. Building on anthropologist Dána‐Ain Davis's concept of “Black anti‐bodies”—bodies caught in the paradox of susceptibility and immunity—we explore how Black and “Othered” bodies are positioned at the intersection of vu…
Examining relationships between multifactorial health beliefs and beliefs about the social implications of genetics
We examined how multifactorial (MF) beliefs about health relate to beliefs regarding the ethical, legal, and social implications (ELSI) of genomics research including genetic discrimination, determinism, and essentialism, and to demographic characteristics. We conducted an online, cross-sectional survey of 351 sociodemographically diverse U.S. adults (59% female, 56% having vocational-technical training or less education, 31% with low subjective …
The Difference of Black ALS Anti-Bodies for Survival
This essay responds to anthropologist Dána-Ain Davis's "Black anti-bodies" call through an examination of amyotrophic lateral sclerosis (ALS) anti-bodies. I describe how paradoxical perceptions of immunity and susceptibility extend beyond reproduction and into the rare disease ecosystem-a scientific environment ripe with biomedical speculations about etiology, cure, and risk. A brief ethnographic interlude with a physician-scientist reveals a bel…
Interpersonal associations in mental health outcomes of people living with ALS, caregivers, and dyads
There is a significant mental health burden among individuals with amyotrophic lateral sclerosis (ALS) and their caregivers. However, limited literature exists on how ALS caregiver-recipient dyad relationships may affect mental health outcomes. The Care Interactions in ALS study is a mixed-method project exploring people with ALS and their caregivers’ care experiences. Quantitative analysis analyzed survey responses from 33 linked caregivers and …
Tackling the Everyday
Medicine (7 works) · Sociology (7 works) · Psychology (6 works) · Health care (5 works) · Political science (5 works) · History (4 works) · Race, Genetics, and Society (4 works) · Racial and Ethnic Identity Research (4 works) · Social Psychology (4 works) · Economic growth (3 works)