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Brandon Brown

Biographic Data

ID3916563
NAMEBrandon Brown
GIVEN NAMESBrandon
FAMILY NAMEBrown
SIGNATUREBROWN B
AFFILIATIONSUniversity of California, Riverside
ORCID0000-0002-6348-4108
VERIFIEDYes
TOTAL WORKS48
TOTAL CITATIONS9
AUTHOR COUNT48
EDITOR COUNT0
FIRST PUBLICATION YEAR1972
LATEST PUBLICATION YEAR2026
H-INDEX2
  • Competence to Consent and Willingness to Participate in Behavioral Trials Among a Mixed HIV Serostatus Sample of Young Gay and Bisexual Men Who Use Stimulants

    Open Access•Pablo K Valente, Celia B Fisher et al.•ARTICLE•Substance Use & Misuse•2026

    Introduction Despite elevated need, young gay and bisexual men (YGBM) who use stimulants are underrepresented in research. Consent processes are essential for human subjects’ protection, yet shortcomings in consent practices and their role in willingness to participate in research have been underexplored.Methods Between July 2024 and January 2025, we enrolled 115 YGBM who use stimulants and are at risk for HIV transmission/acquisition in an onlin…

  • Doing Good Well in Unethical Times

    Open Access•Celia B Fisher, CELIA FISHER et al.•ARTICLE•AIDS and Behavior•2026

    Since the emergence of the AIDS epidemic, HIV research has been a mirror for humanity's moral choices that transformed biomedical and social science ethics. Four decades after the epidemic the field again faces an ethical reckoning. Once defined by its moral courage and community partnership, HIV research now operates amid political interference, data insecurity, funding contractions, and threats to academic freedom. Drawing on insights from the …

  • Procedures to Verify Legitimacy and Uniqueness of Responses in an Online Study with U.S. Young Gay and Bisexual Men Who Use Stimulants

    Open Access•Pablo K Valente, Giselle O’Connor et al.•ARTICLE•AIDS and Behavior•2026

    In this brief report, we describe our procedures to determine the legitimacy and uniqueness of responses in an online study with young gay, bisexual, and other men who have sex with men in the U.S. Our verification procedures included automated methods (e.g., Qualtrics' fraud detection, and knowledge, attention, and consistency-checks), manual methods (e.g., reviewing individuals' open-ended descriptions of an image), and verification video-confe…

  • “It’s not just HIV anymore”

    Open Access•Ali Ahmed, Jeff Taylor et al.•ARTICLE•AIDS Care•2026

    Long-term survivors (LTS) of HIV are people diagnosed before the advent of highly active antiretroviral therapy in 1996 or who have lived with HIV for more than ten years. As they age, many experience comorbidities and effects of lifelong therapy, yet they remain underrepresented in research, which limits person-centered strategies. We examined priorities related to health, aging, safer antiretroviral therapy, community, mental health, and resear…

  • Determining Ethical Incentives in Biomedical HIV Research

    Open Access•Karah Y Greene, Brandon Brown et al.•ARTICLE•Journal of Empirical Research on…•2026

    Incentives are crucial for recruiting and retaining participants in research studies, yet researchers and regulators often struggle to determine appropriate incentives due to ethical concerns and a lack of clear guidelines. We conducted interviews and focus groups with three stakeholder groups-biomedical HIV researchers (n = 12), institutional review board (IRB) members (n = 12), and people living with HIV (PLWH) (n = 69)-to explore their perspec…

  • Brief virtual intervention associated with increased social engagement and decreased negative affect among people aging with HIV

    Open Access•Andrea N Polonijo, Annie L Nguyen et al.•ARTICLE•AIDS Care•2024

    Virtual Villages—online communities that deliver supports to promote aging in place—are proposed to mitigate isolation and support the health of aging populations. Using a community-engaged approach, we developed and pilot-tested a Virtual Village intervention tailored for people living with HIV (PLWH) aged 50+ . The intervention employed a Discord server featuring social interaction, regional and national resources, expert presentations, and min…

  • A community-academic partnered approach to designing a Virtual Village to address the needs of older adults living with HIV

    Open Access•Annie L Nguyen, Andrea N Polonijo et al.•ARTICLE•AIDS Care•2024

    Many older adults living with HIV face unique challenges, including comorbidities, loneliness, and isolation. This community-academic partnered study elicited viewpoints from older adults living with HIV about the characteristics of a digital environment (“Virtual Village”) to combat against loneliness and isolation. We utilized Choice-Based Conjoint Analyses to determine preferred attributes of a Virtual Village. We also conducted focus groups a…

  • Factors Associated with Healthcare Utilization Among Adults in Saudi Arabia During the Covid-19 Pandemic

    Open Access•Balgis Gaffar, Mir Faeq Ali Quadri et al.•ARTICLE•SAGE Open•2024

    To investigate factors associated with healthcare utilization by adults in the Kingdom of Saudi Arabia (KSA) during the COVID-19 pandemic. Based on Andersen’s Behavioral Model of Health Services utilization, we conducted logistic regressions to determine the relationship between predisposing factors (age, gender, education, employment status), need factors (critical medical needs), and enabling factors (insurance coverage, financial loss) on heal…

  • Economic and social determinants of health care utilization during the first wave of Covid-19 pandemic among adults in Ghana

    Open Access•Martin Ayanore, Martin Amogre Ayanore et al.•ARTICLE•BMC Public Health•2024

    Economic and social factors were associated with low healthcare utilization in Ghana during the first wave of the pandemic. Investment or retirement loss and financial support loss during the pandemic had the largest effect on healthcare utilization. Further research is needed to understand the connection between concerns about food shortages, welfare losses during pandemics and healthcare utilization during pandemics in Ghana

  • “If People Were Told About the Cancer, They’d Want to Get Vaccinated”

    Open Access•Raneem A Alaraj, Brandon Brown et al.•ARTICLE•American Journal of Men s Health•2023

    In 2018, nine-valent human papillomavirus (HPV) vaccine eligibility expanded to include adults aged 27 to 45. This study aimed to identify knowledge, attitudes, and beliefs (KABs) about HPV and HPV vaccination among newly eligible mid-adult men, for whom uptake in adolescence and younger adulthood remains suboptimal. We conducted six virtual focus groups ( N = 34 participants) with unvaccinated men aged 27 to 45 living in Southern California’s In…

  • Social media information and its association with the adoption of Covid-19 preventive measures in four Latin American countries

    Roberto Ariel Abeldaño Zuñiga, Christian Cruz-Meléndez et al.•ARTICLE•Review of Communication•2023

    Objective: The study aimed to assess the association between adherence to COVID-19 preventive measures and access to media information related to COVID-19. Methods: A multi-country, cross-sectional study using an online survey was conducted from June to December 2020. The sample included 1,457 participants from Argentina, Brazil, Chile, and Mexico. The outcome variable was self-reported adherence to preventive measures (handwashing, social distan…

  • Health disparity in the spread of Covid-19

    Open Access•Ran Wei, Yujia Zhang et al.•ARTICLE•Health & Place•2023•Cited by: 1•References: 8

    This study answers critically unaddressed questions about health disparities in the spread of COVID-19 by assessing factors that might explain why the spread is different in different groups

  • Factors Associated With Experiences of Fear, Anxiety, Depression, and Changes in Sleep Pattern During the Covid-19 Pandemic Among Adults in Nigeria

    Open Access•Morenike O Folayan, Olanrewaju Ibıgbamı et al.•ARTICLE•Frontiers in Public Health•2022

    Background Multiple facets of the pandemic can be a source of fear, depression, anxiety and can cause changes in sleep patterns. The aim of this study was to identify health profiles and the COVID-19 pandemic related factors associated with fear, depression, anxiety and changes in sleep pattern in adults in Nigeria. Methods The data for this analysis was extracted from a cross-sectional online survey that collected information about mental health…

  • Covid ‐19, economic problems, and family relationships in eight Middle East and North African countries

    Open Access•Maha El Tantawi, Morenike O Folayan et al.•ARTICLE•Family Relations•2022

  • High levels of mild to moderate depression among men who have sex with men and transgender women in Lima, Peru

    Jerome T Galea, Stephanie L Marhefka et al.•ARTICLE•AIDS Care•2022

    Depression disproportionally affects people at risk of acquiring or living with HIV and is associated with worse health outcomes; however, depression care is not routinely integrated with HIV prevention and treatment services. Selection of the best depression intervention(s) for integration depends both on the prevalence and severity of depression among potential users. To inform depression care integration in a community-based setting in Lima, P…

  • Associations between Emotional Distress, Sleep Changes, Decreased Tooth Brushing Frequency, Self-Reported Oral Ulcers and Sars-Cov-2 Infection during the First Wave of the Covid-19 Pandemic

    Open Access•Morenike O Folayan, Roberto Ariel Abeldaño Zuñiga et al.•ARTICLE•International Journal of…•2022

    This study assessed the association between emotional distress, sleep changes, decreased frequency of tooth brushing, and self-reported oral ulcers, and the association between COVID-19 status and decreased frequency of tooth brushing. Using a cross-sectional online survey, data were collected from adults in 152 countries between July and December 2020. Binary logistic regression analyses were conducted to determine the associations between depen…

  • Validation of a Covid-19 mental health and wellness survey questionnaire

    Open Access•Maha El Tantawi, Morenike O Folayan et al.•ARTICLE•BMC Public Health•2022

    The questionnaire has good content validity and can be used to assess the impact of the pandemic in cross-sectional studies especially as individual items. The PSI and self-care strategies need revision to ensure the inclusion of items with strong discrimination

  • Attitudes Toward Payment for Research Participation

    Open Access•Andrea N Polonijo, Karine Dubé et al.•ARTICLE•AIDS and Behavior•2022

    Little is known about how payment affects individuals' decisions to participate in HIV research. Using data from a U.S. survey of people living with HIV (N = 292), we examined potential research participants' attitudes toward payment, perceived study risk based on payment amount, and preferred payment forms, and how these factors vary by sociodemographic characteristics. Most respondents agreed people should be paid for HIV research participation…

  • I Thought It Was Just For Teenagers”

    Open Access•Andrea N Polonijo, Durga Madhab Mahapatra et al.•ARTICLE•Women s Health Issues•2022

    Findings provide insight into knowledge, attitudes, and beliefs about HPV and HPV vaccination among women aged 27-45 years, which may be useful for informing interventions to promote shared clinical decision-making between patients and health providers

  • Promoting vaccination during rapid HIV testing

    Open Access•Andrea N Polonijo, Shawna Sein et al.•ARTICLE•Health & Social Care in the…•2022•References: 2

    Community-based rapid HIV testing is effective for reaching racial-ethnically diverse men who have sex with men (MSM), offering an opportunity for bundled health promotion interventions. Given MSM experience a heightened prevalence of human papillomavirus (HPV) and meningococcal disease, we examined their preferences for bundling rapid HIV testing with an intervention to promote vaccination against these infections. In 2020, we conducted five vir…

  • Perceptions of the Importance of Advance Care Planning During the Covid-19 Pandemic Among Older Adults Living With HIV

    Open Access•Annie L Nguyen, Mariam Davtyan et al.•ARTICLE•Frontiers in Public Health•2021

    Background: The importance of advance care planning (ACP) discussions have been heightened during the COVID-19 pandemic. We assessed advance directive completion, healthcare proxy (HCP), and attitudes toward ACP among older adults ages 50+ living with HIV during the COVID-19 pandemic. Methods: Internet-based surveys were administered to 100 participants residing in the Coachella Valley, California from April to June 2020. We examined self-reporte…

  • Considerations for stakeholder engagement and Covid ‐19 related clinical trials’ conduct in sub‐Saharan Africa

    Open Access•Morenike O Folayan, Brandon Brown et al.•ARTICLE•Developing World Bioethics•2021

    The aim of this study is to determine how stakeholder engagement can be adapted for the conduct of COVID ‐19‐related clinical trials in sub‐Saharan Africa. Nine essential stakeholder engagement practices were reviewed: formative research; stakeholder engagement plan; communications and issues management plan; protocol development; informed consent process; standard of prevention for vaccine research and standard of care for treatment research; po…

  • Factors Associated with Financial Security, Food Security and Quality of Daily Lives of Residents in Nigeria during the First Wave of the Covid-19 Pandemic

    Open Access•Morenike O Folayan, Olanrewaju Ibıgbamı et al.•ARTICLE•International Journal of…•2021

    An online survey was conducted to identify factors associated with financial insecurity, food insecurity and poor quality of daily lives of adults in Nigeria during the first wave of the COVID-19 pandemic. The associations between the outcome (experience of financial loss, changes in food intake and impact of the pandemic on daily lives) and the explanatory (age, sex, education level, anxiety, depression, HIV status) variables were determined usi…

  • Differences in Covid-19 Preventive Behavior and Food Insecurity by HIV Status in Nigeria

    Open Access•Morenike O Folayan, Olanrewaju Ibıgbamı et al.•ARTICLE•AIDS and Behavior•2021

  • Comparing Payments Between Sociobehavioral and Biomedical Studies in a Large Research University in Southern California

    Open Access•Brandon Brown, Logan Marg et al.•ARTICLE•Journal of Empirical Research on…•2021•References: 3

    Given the dearth of regulatory guidance and empirical research on practices of providing payments to research participants, our study aimed to examine whether there were significant differences in payment amounts between sociobehavioral and biomedical studies and to examine study factors that may explain payment differences. This study reviewed 100 sociobehavioral and 31 biomedical protocols. Results showed that both biomedical studies and sociob…

Next
  • Addressing Health Disparities Through Deliberative Methods

    Andrew M Subica, Brandon Brown et al.•ARTICLE•American Journal of Public Health•2020•Cited by: 3•References: 30

    Health disparities adversely affect millions of people living in disadvantaged communities, resisting public health interventions that do not address the specific conditions, driving forces, or health problems in these communities. Drawing from the underutilized science of deliberative methods, we introduce the innovative citizens’ panels for health equity approach—a novel methodology that engages public expertise and knowledge of community healt…

  • The Mirror of Epic

    Brandon Brown, B K M Brown•BOOK•The Mirror of Epic•2016•Cited by: 2

  • Health disparity in the spread of Covid-19

    Open Access•Ran Wei, Yujia Zhang et al.•ARTICLE•Health & Place•2023•Cited by: 1•References: 8

    This study answers critically unaddressed questions about health disparities in the spread of COVID-19 by assessing factors that might explain why the spread is different in different groups

  • Ethical Reflections on the Conduct of HIV Research with Community Members

    Open Access•Brandon Brown, Jeff Taylor et al.•ARTICLE•Journal of Empirical Research on…•2020•Cited by: 1•References: 1

    Some researchers continue to engage in "helicopter" or "parachute" research and do not ethically engage or collaborate with communities from which data are collected. This paper uses a case study to discuss the ethical issues arising from these research practices and the importance of increasing meaningful community involvement in research. Set in the context of research among older people living with HIV, the case study is followed by the perspe…

  • Perceptions of Equipoise, Risk–Benefit Ratios, and “Otherwise Healthy Volunteers” in the Context of Early-Phase HIV Cure Research in the United States

    Open Access•Karine Dubé, Lynda Dee et al.•ARTICLE•Journal of Empirical Research on…•2017•Cited by: 1

    Early-phase HIV cure research is conducted against a background of highly effective antiretroviral therapy, and involves risky interventions in individuals who enjoy an almost normal life expectancy. To explore perceptions of three ethical topics in the context of HIV cure research-(a) equipoise, (b) risk-benefit ratios, and (c) "otherwise healthy volunteers"-we conducted 36 in-depth interviews (IDIs) with three groups of purposively selected key…

  • Baseball Is Whack

    Open Access•Brandon Brown, Gregg Bennett•ARTICLE•Journal of Sport and Social Issues•2015•Cited by: 1•References: 37

    The purpose of this study is to assess the African American viewpoint on baseball consumption. Utilizing a criterion purposive sample of African Americans, the authors used a qualitative analysis to obtain viewpoints that provide a rich understanding of the motivations to consume (or not consume) baseball. Likewise, the authors investigated the facets of baseball that seemingly create social and psychological consumption barriers for African Amer…

  • Married Students in Public High Schools

    Brandon Brown, B B Brown•ARTICLE•The Family Coordinator•1972

    The legal status of married students in Texas public high schools was determined by descriptive and historical research procedures. A questionnaire, records of court cases, and opinions of United States Attorneys General were the major techniques used in this survey. Interviews were conducted with 28 administrators to supplement the questionnaire. Questionnaires were mailed to 948 superintendents of Texas school districts as listed in the 1969-19…

  • HIV/Aids and ‘othering’ in South Africa

    George Petros, Collins O Airhihenbuwa et al.•ARTICLE•Culture Health & Sexuality•2006

    In order to explore the relevance of social concepts such as stigma and denial to the transmission of HIV, this qualitative study sought to examine cultural and racial contexts of behaviour relevant to the risk of HIV infection among South Africans. A cultural model was used to analyse transcripts from 39 focus group discussions and 28 key informant interviews. Results reveal how cultural and racial positionings mediate perceptions of the groups …

  • From "Sparrow," from The Poems Of Gaius Valerius Catullus

    Open Access•Brandon Brown•ARTICLE•Postmodern Culture•2010

    From "Sparrow," from The Poems Of Gaius Valerius Catullus Brandon Brown (bio) 1 Every book has a beginning, and this is this book's beginning. It starts with a question and then it answers the question. The question is to whom should I dedicate my new little fun book nugget? That's kind of a disclaimer, saying that the book is lepidum, or "fun." But that way the book gets off the hook if it says anything irresponsible or anything that makes one's…

  • Rape in Nigeria

    Open Access•Morenike O Folayan, Morolake Odetoyinbo et al.•ARTICLE•Global Health Action•2014

    No abstract available. (Published: 22 August 2014) Citation : Glob Health Action 2014, 7 : 25583 - http://dx.doi.org/10.3402/gha.v7.25583

  • Addressing Ebola-related Stigma

    Open Access•Mariam Davtyan, Brandon Brown et al.•ARTICLE•Global Health Action•2014

    BACKGROUND: HIV/AIDS and Ebola Virus Disease (EVD) are contemporary epidemics associated with significant social stigma in which communities affected suffer from social rejection, violence, and diminished quality of life. OBJECTIVE: To compare and contrast stigma related to HIV/AIDS and EVD, and strategically think how lessons learned from HIV stigma can be applied to the current EVD epidemic. METHODS: To identify relevant articles about HIV/AIDS…

  • Black market blood transfusions for Ebola

    Open Access•Morenike O Folayan, Brandon Brown et al.•ARTICLE•Global Health Action•2014

    No abstract available. (Published: 17 November 2014) Citation : Glob Health Action 2014, 7 : 26356 - http://dx.doi.org/10.3402/gha.v7.26356

  • HIV self-testing in Nigeria

    Open Access•Brandon Brown, Morenike O Folayan et al.•ARTICLE•Global Public Health•2014

    Nigeria views the HIV self-test (HIVST) as a possible mechanism to help increase HIV testing uptake and capture otherwise undiagnosed HIV cases. The purpose of this survey was to obtain perspectives of informed members of the Nigerian public on the use of the HIVST. A convenience sample of 1712 researchers, academics, journalists, community advocates, activists and HIV policy-makers and programmers including those working in the development secto…

  • Ethical Issues in Adolescents' Sexual and Reproductive Health Research in N igeria

    Open Access•Morenike O Folayan, Bridget Haire et al.•ARTICLE•Developing World Bioethics•2015

    There is increasing interest in the need to address the ethical dilemmas related to the engagement of adolescents in sexual and reproductive health ( SRH ) research. Research projects, including those that address issues related to STI s and HIV , adverse pregnancy outcomes, violence, and mental health, must be designed and implemented to address the needs of adolescents. Decisions on when an individual has adequate capacity to give consent for r…

  • Debating Ethics in HIV Research

    Open Access•Morenike O Folayan, Kristin Peterson et al.•ARTICLE•Developing World Bioethics•2015

    HIV prevention is a critical health issue in N igeria; a country that has one of the worst HIV epidemic profiles in the world. With 270,000 new infections in 2012, N igeria is a prime site for HIV prevention research. One effect of the HIV epidemic has been to revolutionalise ethical norms for the conduct of research: it is now considered unethical to design and implement HIV related studies without community engagement. Unfortunately, there is v…

  • Rectal Douching Prevalence and Practices Among Peruvian Men Who have Sex with Men and Transwomen

    Open Access•Jerome T Galea, Janni J Kinsler et al.•ARTICLE•AIDS and Behavior•2015

  • Baseball Is Whack

    Open Access•Brandon Brown, Gregg Bennett•ARTICLE•Journal of Sport and Social Issues•2015•Cited by: 1•References: 37

    The purpose of this study is to assess the African American viewpoint on baseball consumption. Utilizing a criterion purposive sample of African Americans, the authors used a qualitative analysis to obtain viewpoints that provide a rich understanding of the motivations to consume (or not consume) baseball. Likewise, the authors investigated the facets of baseball that seemingly create social and psychological consumption barriers for African Amer…

  • The Mirror of Epic

    Brandon Brown, B K M Brown•BOOK•The Mirror of Epic•2016•Cited by: 2

  • Baby Factories in Nigeria

    Open Access•Olusesan Ayodeji Makinde, Olalekan Olaleye et al.•ARTICLE•Trauma Violence & Abuse•2017

    Baby factories and baby harvesting are relatively new terms that involve breeding, trafficking, and abuse of infants and their biological mothers. Since it was first described in a United Nations Educational, Scientific and Cultural Organization report in Nigeria in 2006, several more baby factories have been discovered over the years. Infertile women are noted to be major patrons of these baby factories due to the stigmatization of childless cou…

  • Do Subjective Alcohol Screening Tools Correlate with Biomarkers Among High-Risk Transgender Women and Men Who Have Sex with Men in Lima, Peru

    Open Access•MC Herrera, M C Herrera et al.•ARTICLE•AIDS and Behavior•2017

  • Perceptions of Equipoise, Risk–Benefit Ratios, and “Otherwise Healthy Volunteers” in the Context of Early-Phase HIV Cure Research in the United States

    Open Access•Karine Dubé, Lynda Dee et al.•ARTICLE•Journal of Empirical Research on…•2017•Cited by: 1

    Early-phase HIV cure research is conducted against a background of highly effective antiretroviral therapy, and involves risky interventions in individuals who enjoy an almost normal life expectancy. To explore perceptions of three ethical topics in the context of HIV cure research-(a) equipoise, (b) risk-benefit ratios, and (c) "otherwise healthy volunteers"-we conducted 36 in-depth interviews (IDIs) with three groups of purposively selected key…

  • Use of ‘eradication’ in HIV cure-related research

    Open Access•Karine Dubé, Stuart Luter et al.•ARTICLE•BMC Public Health•2018

    The landscape of Human Immunodeficiency Virus (HIV) research has changed drastically over the past three decades. With the remarkable success of antiretroviral treatment (ART) in decreasing AIDS-related mortality, some researchers have shifted their HIV research focus from treatment to cure research. The HIV cure research community often uses the term eradication to describe the science, and talks about eradicating the virus from the body. In pub…

  • The Relationship Between Risk Perception and Frequency of HIV Testing Among Men Who Have Sex with Men and Transgender Women, Lima, Peru

    Open Access•Silver K Vargas, Kelika A Konda et al.•ARTICLE•AIDS and Behavior•2018

  • The Need to Track Payment Incentives to Participate in HIV Research

    Open Access•Brandon Brown, Jerome T Galea et al.•ARTICLE•IRB Ethics and Human Research•2018

    Providing incentives is an accepted and common practice in human subjects research, including clinical HIV research. While we know that financial incentives among similar studies can greatly vary, surprisingly little research exists on how to determine when such incentives are excessive or constitute an "undue inducement." Multiple factors, such as risks and benefits, study procedures, study budget, historical precedent, recommendations from inst…

  • Factors Associated With Payments to Research Participants

    Open Access•Brandon Brown, Logan Marg et al.•ARTICLE•Journal of Empirical Research on…•2019

    Along with a dearth of regulatory guidance, little empirical research has examined factors related to participant payment in research. We conducted a cross-sectional study of 100 institutional review board (IRB)–approved sociobehavioral human subjects research protocols at a large research university in Southern California. The proportion of studies that paid participants differed significantly by type of research ( p

  • “We are becoming older women and then we have two stigmas”

    Logan Marg, Griselda Ruiz et al.•ARTICLE•Journal of Women & Aging•2020

    In April 2019, nine older women (age 50+) living with HIV in Palm Springs, California, participated in a 90-minute focus group to identify their major health issues, strengths, and HIV and aging-related health priorities. Using the rigorous and accelerated data reduction (RADaR) technique, we identified four major themes: (1) mental health, (2) HIV comorbidities, (3) social determinants of health, and (4) resiliencies. These results reinforce the…

  • Ethical Reflections on the Conduct of HIV Research with Community Members

    Open Access•Brandon Brown, Jeff Taylor et al.•ARTICLE•Journal of Empirical Research on…•2020•Cited by: 1•References: 1

    Some researchers continue to engage in "helicopter" or "parachute" research and do not ethically engage or collaborate with communities from which data are collected. This paper uses a case study to discuss the ethical issues arising from these research practices and the importance of increasing meaningful community involvement in research. Set in the context of research among older people living with HIV, the case study is followed by the perspe…

  • Framing a Consent Form to Improve Consent Understanding and Determine How This Affects Willingness to Participate in HIV Cure Research

    Open Access•John A Sauceda, Karine Dubé et al.•ARTICLE•Journal of Empirical Research on…•2020•References: 3

    HIV cure research carries serious risks and negligible benefits. We investigated how participants understand these risks and what influences their willingness to participate. Through internet-based and in-person convenience sampling, 86 HIV+ participants completed an experimental survey. Participants were randomized to read a standard consent form describing a hypothetical HIV cure study or one adapted using Fuzzy Trace Theory-a decision-making m…

  • Addressing Health Disparities Through Deliberative Methods

    Andrew M Subica, Brandon Brown et al.•ARTICLE•American Journal of Public Health•2020•Cited by: 3•References: 30

    Health disparities adversely affect millions of people living in disadvantaged communities, resisting public health interventions that do not address the specific conditions, driving forces, or health problems in these communities. Drawing from the underutilized science of deliberative methods, we introduce the innovative citizens’ panels for health equity approach—a novel methodology that engages public expertise and knowledge of community healt…

  • Perceptions of the Importance of Advance Care Planning During the Covid-19 Pandemic Among Older Adults Living With HIV

    Open Access•Annie L Nguyen, Mariam Davtyan et al.•ARTICLE•Frontiers in Public Health•2021

    Background: The importance of advance care planning (ACP) discussions have been heightened during the COVID-19 pandemic. We assessed advance directive completion, healthcare proxy (HCP), and attitudes toward ACP among older adults ages 50+ living with HIV during the COVID-19 pandemic. Methods: Internet-based surveys were administered to 100 participants residing in the Coachella Valley, California from April to June 2020. We examined self-reporte…

  • Considerations for stakeholder engagement and Covid ‐19 related clinical trials’ conduct in sub‐Saharan Africa

    Open Access•Morenike O Folayan, Brandon Brown et al.•ARTICLE•Developing World Bioethics•2021

    The aim of this study is to determine how stakeholder engagement can be adapted for the conduct of COVID ‐19‐related clinical trials in sub‐Saharan Africa. Nine essential stakeholder engagement practices were reviewed: formative research; stakeholder engagement plan; communications and issues management plan; protocol development; informed consent process; standard of prevention for vaccine research and standard of care for treatment research; po…

Medicine (38 works) · Psychology (24 works) · HIV/AIDS Research and Interventions (21 works) · Environmental health (17 works) · Family medicine (16 works) · Psychiatry (16 works) · Sociology (16 works) · Gerontology (15 works) · Demography (13 works) · Political science (13 works)

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