John Barugahare

Biographic Data

ID6763371
NAMEJohn Barugahare
GIVEN NAMESJohn
FAMILY NAMEBarugahare
SIGNATUREBARUGAHARE J
AFFILIATIONSMakerere University
ORCID0000-0001-6420-4756
VERIFIEDYes
TOTAL WORKS9
TOTAL CITATIONS0
AUTHOR COUNT9
EDITOR COUNT0
FIRST PUBLICATION YEAR2016
LATEST PUBLICATION YEAR2026
H-INDEX0

  • “It just feels morally not right to Sell the data”

    Open AccessDeborah Ekusai‐Sebatta, David Kyaddondo et al.ARTICLEResearch Ethics2026

    While genomic data sharing enhances transparency and research efficiency, it also raises significant ethical and social challenges. This study explored stakeholders’ perspectives on these issues, particularly around privacy, confidentiality, and equity in collaborative research. A phenomenological qualitative study was conducted between August and December 2023 at Makerere University College of Health Sciences, other research-intensive institutio…

  • Observational research in epidemic settings

    Open AccessEmily Ricotta, Fausto Andres Bustos Carrillo et al.ARTICLEBMJ Global Health2025

    Observational studies are critical tools in clinical research and public health response, but challenges arise in ensuring the data produced by these studies are scientifically robust and socially valuable. Resolving these challenges requires careful attention to prioritising the most valuable research questions, ensuring robust study design, strong data management practices, expansive community engagement, and access and benefit sharing of resul…

  • Awareness, experiences and perceptions regarding genetic testing and the return of genetic and genomics results in a hypothetical research context among patients in Uganda

    Open AccessJoseph Ochieng, Betty Kwagala et al.ARTICLEJournal of Medical Ethics2024

    BACKGROUND: Genetic testing presents unique ethical challenges for research and clinical practice, particularly in low-resource settings. To address such challenges, context-specific understanding of ethical, legal and social issues is essential. Return of genetics and genomics research (GGR) results remains an unresolved yet topical issue particularly in African settings that lack appropriate regulation and guidelines. Despite the need to unders…

  • Understanding of Key Considerations for Effective Community Engagement in Genetics and Genomics Research

    Open AccessHarriet Nankya, Vincent Pius Alibu et al.ARTICLEJournal of Empirical Research on…2024References: 2

    To attain effective community engagement (CE) for genetics and genomics research (GGR) is a challenge. This study aimed to analyzed participants' perspectives on how to attain effective CE for GGR in Uganda. A cross-sectional qualitative study involving in-depth interviews with twenty research ethics committee members and three national research regulators was conducted. GGR is faced with; low genetic literacy among stakeholders, social implicati…

  • Experiences and practices of key research team members in obtaining informed consent for pharmacogenetic research among people living with HIV

    Open AccessNabukenya Sylvia, Joseph Ochieng et al.ARTICLEResearch Ethics2022

    This study aimed to explore experiences and practices of key research team members in obtaining informed consent for pharmacogenetics research and to identify the approaches used for enhancing understanding during the consenting process. Data collection involved 15 qualitative, in-depth interviews with key researchers who were involved in obtaining informed consent from HIV infected individuals in Uganda for participation in pharmacogenetic clini…

  • Understanding of Critical Elements of Informed Consent in Genomic Research

    Open AccessFrancis Anyaka Amayoa, Frederick Nelson Nakwagala et al.ARTICLEJournal of Empirical Research on…2022References: 3

    Several studies have reported inadequate comprehension of informed consent for genomic research. This study aimed to assess research participants' understanding of critical elements of informed consent for genomic research. A cross-sectional survey involving 123 parents/caregivers of children participating in a paediatric genomic TB/HIV study was conducted . Only 47.2% of the participants had adequate understanding of consent information. The mea…

  • Nature and history of the Cioms International Ethical Guidelines and implications for local implementation

    Open AccessJohn Barugahare, Paul KutyabamiARTICLEDeveloping World Bioethics2020

    The theme of the 10 th Annual Research Ethics Conference organized by the Uganda National Council for Science and Technology (2018) was “Evolution of Research Ethics in Uganda and the Region: Past, Present and Future”. We were asked to address the topic: “The History of CIOMS and the recent changes in the international ethics guidelines: implications for local research”. The thrust of the conference was to track progress in ensuring ethical condu…

  • ‘Bioethical Realism’

    Open AccessJohn BarugahareARTICLEDeveloping World Bioethics2019

    Implementation of existing ethical guidelines for international collaborative medical and health research is still largely controversial in sub‐Saharan Africa for two major reasons: One, they are seen as foreign and allegedly inconsistent with what has been described as an ‘African worldview’, hence, demand for their strict implementations reeks of ‘bioethical imperialism’. Two, they have other discernible inadequacies – lack of sufficient detail…

  • Understanding the futility of countries’ obligations for health rights

    Open AccessJohn Barugahare, Reidar K LieARTICLEBMC International Health and…2016

    BACKGROUND: Although health is a right of all individuals without any distinction, the realisation of this right has remained very difficult for the marginalised populations of poor countries. Inequitable distribution of health opportunities globally is a major factor in explaining why this is the case. Whereas the Protection, Promotion and Fulfilment of the health rights of poor country citizens are a joint responsibility of both domestic and ex…