Catherine Pope
Biographic Data
| ID | 76380 |
|---|---|
| NAME | Catherine Pope |
| GIVEN NAMES | Catherine |
| FAMILY NAME | Pope |
| SIGNATURE | POPE C |
| AFFILIATIONS | University of Southampton |
| ORCID | 0000-0002-8935-6702 |
| VERIFIED | Yes |
| TOTAL WORKS | 56 |
| TOTAL CITATIONS | 437 |
| AUTHOR COUNT | 54 |
| EDITOR COUNT | 2 |
| FIRST PUBLICATION YEAR | 1991 |
| LATEST PUBLICATION YEAR | 2025 |
| H-INDEX | 9 |
Can the Development of Orphan Drugs Include Wider Patient Engagement? A Citizens' Jury to Explore a Promissory Notion
BACKGROUND: Drug development practices for rare diseases promote a promissory notion that the drug pipeline will succeed (with the next new drug/drug trial) and an imaginary of widening patient engagement (often desired but yet to be enacted). Contemporary industry practices of patient engagement are shaped by this promissory, and engagement often includes limited patient perspectives, typically relying on patients from established Patient Organi…
Widening Patient Engagement for Rare Disease Drug Trials
BACKGROUND: Research about patient engagement for people with rare diseases has identified how the experiences of some members of the public are overlooked in relation to clinical trial design and trial participation. As part of a knowledge transfer partnership (KTP), the authors were granted access to patient insight reports about the needs of people with idiopathic pulmonary fibrosis (IPF), to inform clinical trial design and marketing strategy…
How can we make postnatal information resources more accessible to women experiencing challenges accessing healthcare? Report of a co-production project
Working in a collaborative way requires time, flexibility and openness from everyone involved. It may feel unstructured or challenging at times, and produce unexpected findings, but this equitable way of working is respectful, develops valuable partnerships and authentic outputs
Mapping the Social Organisation of Neglect in the Case of Fibromyalgia
Fibromyalgia is a syndrome characterised by persistent unexplained pain and fatigue. People with fibromyalgia report receiving little support to manage symptoms, difficult interactions with healthcare practitioners and stigma associated with this contested condition. In this article, we employ Dorothy E Smith's Sociology for People to undertake a systems‐focused literature review from the standpoint of people with fibromyalgia, moving beyond indi…
Newborn technology use in low-resource settings
Neonatal deaths remain a critical public health challenge in many low- and middle-income countries (LMICs), including Kenya. Affordable technologies such as Comprehensive Positive Airway Pressure (CPAP) and phototherapy machines can reduce neonatal mortality and are used in these settings. However, their introduction and implementation in resource-constrained health system contexts are poorly understood. This study investigates how communication …
Chronicity rhetoric in health and welfare systems inhibits patient recovery
Fibromyalgia is a leading cause of disability in the UK and worldwide, but is difficult to diagnose and treat due to unclear pathogenesis and diverse and fluctuating symptoms. Although various treatment modalities are recommended, no treatments have been proven to effect sustainable improvement or recovery, and patients are typically dissatisfied with their care. Increasingly, biopsychosocial services are being developed, that aim to take a multi…
Bugbears in the Waiting Room
In 1985, Arber and Sawyer described the discretionary rationing power of general practice receptionists. Our paper revisits this territory. Much has changed in the intervening decades. Digitalisation has altered reception work. Increasing multimorbidity and rising chronic illness, combined with a dwindling workforce, restricted funding and systemic pressures on public services, have fuelled the 'crisis' in general practice. 'Unacceptable' delays …
Semantic Web Practices
In the past thirty years, the Web has developed from its inception as a layer of protocols on top of the Internet to use by more than 5 billion people and organizations. This has driven the creation of vast quantities of data and led to deep concerns about the politics of digital data and computational methods. To date, critical investigation of these concerns has focused on large commercial platforms built on top of the Web, and their use of mac…
She’s Been a Rock”
Social prescribing link workers are recently introduced roles in English primary care. One of their intended functions is to support patients with conditions influenced by the wider, social determinants of health. Their main purpose is to connect people to community resources to meet their nonmedical needs. However, our research reveals that link workers provide not only connections but also what we have described as “holding” for individuals wit…
Infant feeding as a transgressive practice in the context of HIV in the UK
HIV transmission risk via breastfeeding is greatly reduced by antiretroviral therapy but is not zero. Current UK guidelines recommend exclusive formula feeding; however, women can breastfeed if they meet certain criteria. We examine the narrative accounts of mothers with HIV (pregnant or recently given birth) who navigated divergent cultural and national policy norms regarding infant feeding. Mothers with HIV, the majority of whom in the UK are o…
The remarkable invisibility of NHS 111 online
In 2017, the NHS 111 telephone service was augmented by an online service. This is an exemplar of 'digital-first', the push to enrol digital technologies to deliver services, and is viewed by policymakers as an important vehicle for managing demand for overburdened health services. This article reports the qualitative component of a larger multi-method study of NHS 111 online. Qualitative telephone interviews with 80 staff and stakeholders implic…
Paragons, Mavericks and Innovators—A typology of orthopaedic surgeons' professional identities. A comparative case study of evidence‐based practice
Clinical guidelines, as vehicles for evidence‐based practice (EBP) attempt to standardize health‐care practice, reduce variation and increase quality. However, their use for surgery has been contested, and often resisted. This article examines professional responses to EBP in hip replacement surgery using data from case study observations and interviews in three English orthopaedic departments. A professional identity perspective is adopted to ex…
What would it take to meaningfully attend to ethnicity and race in health research? Learning from a trial intervention development study
The lack of ethnic diversity in health research participation is a multi-dimensional problem. Racism and intersectional disadvantage compel us to use racial and ethnic categories to explore health, but race theorists warn that these can be essentialising and pathologising. Yet, the alternative, the pursuit of colour-blindness, can render the impact of race and ethnicity on health invisible. This paper describes the attempt to recruit an ethnicall…
Combining patient talk about internet use during primary care consultations with retrospective accounts. A qualitative analysis of interactional and interview data
Limited pharmaceuticalisation
Over the last quarter century, non-medical prescribing in the UK has grown significantly; eight non-medical professional groups now have authority to prescribe a wide range of medicines, suggesting it could be a potent driver of pharmaceuticalisation. In this article, we present data from a case study of physiotherapists' prescribing practices. UK physiotherapists have had legal rights to prescribe medicines since 2005, but relatively little is k…
Improving reporting of meta-ethnography
AIMS: The aim of this study was to provide guidance to improve the completeness and clarity of meta-ethnography reporting. BACKGROUND: Evidence-based policy and practice require robust evidence syntheses which can further understanding of people's experiences and associated social processes. Meta-ethnography is a rigorous seven-phase qualitative evidence synthesis methodology, developed by Noblit and Hare. Meta-ethnography is used widely in healt…
Navigating and making sense of urgent and emergency care processes and provision
BACKGROUND: Whilst many health systems offer a range of urgent and emergency care services to deal with the need for unscheduled care, these can be problematic to navigate. OBJECTIVE: To explore how lay people make sense of urgent care provision and processes. DESIGN: Qualitative study, incorporating citizen panels and longitudinal semi-structured qualitative interviews. SETTING AND PARTICIPANTS: Two citizens' panels, comprising purposively selec…
General Practitioner's use of online resources during medical visits
In an increasingly connected world, information about health can be exchanged at any time, in any location or direction, and is no longer dominated by traditional authoritative sources. We consider the ways information and advice given in consultations by doctors transcends the boundary between the clinic and the home. We explore how information that is widely accessible outside the consultation is transformed by General Practitioners (GPs) into …
Digitized patient-provider interaction
Ethical challenges in online research
With its wealth of readily and often publicly available information about Web users’ lives, the Web has created new opportunities for conducting online research. Although digital data are easily accessible, ethical guidelines are inconsistent about how researchers should use them. Some academics claim that traditional ethical principles are sufficient and applicable to online research. However, the Web poses new challenges that compel researchers…
Risk work in NHS 111
The substitution of clinical with non-clinical staff to triage and manage calls in the NHS urgent care services is one of the number of measures designed to meet growing health services demand. The deployment of a Computer Decision Support System ‘NHS Pathways’ to support this work has created a new type of health worker and a new form of risk work. In this article, we examine how call handlers manage, experience and respond to risk in their ever…
Asking More of Qualitative Synthesis
We continue the conversation initiated by Sally Thorne’s observations about “metasynthetic madness.” We note that the variety of labels used to describe qualitative syntheses often reflect authors’ disciplines and geographical locations. The purpose of systematic literature searching is to redress authors’ lack of citation of relevant earlier work and to reassure policy makers that qualitative syntheses are systematic and transparent. There is cl…
Understanding the production and circulation of social media data
Social media data have provoked a mixed response from researchers. While there is great enthusiasm for this new source of social data – Twitter data in particular – concerns are also expressed about their biases and unknown provenance and, consequently, their credibility for social research. This article seeks a middle path, arguing that we must develop better understanding of the construction and circulation of social media data to evaluate thei…
Discourses of joint commissioning
Increasing attention has focused on the role of joint commissioning in health and social care policy and practice in England. This paper provides an empirical examination of the three discourses of joint commissioning developed from an interpretative analysis of documents by Dickinson et al. (2013; BMC Health Services Research, 13) and applied to data from our study exploring the role of knowledge in commissioning in England. Based on interviews …
Dipping Into the Pool of Creative Ethnography—A Joint Review
The author has nothing to report
Evaluating meta-ethnography
Resisting medicines
Resisting Evidence
Evidence-based medicine (EBM) emerged relatively recently to describe the explicit process of applying research evidence to medical practice. The movement was high profile, yet not overly successful: many clinicians do not use up-to-date evidence in their everyday work. This article shows how a social movement perspective can be used to analyse the emergence of EBM and shed light on power struggles between segments of the medical profession. It d…
Big Data
The emergence of Big Data is both promising and challenging for social research. This article suggests that realising this promise has been restricted by the methods applied in social science research, which undermine our potential to apprehend the qualities that make Big Data so appealing, not least in relation to the sociology of networks and flows. With specific reference to the micro-blogging website Twitter, the article outlines a set of met…
Ethics and Ethnography
In this article, the authors discuss an ethical dilemma faced by the first author during the fieldwork of an ethnographic study of expertise in anesthesia. The example, written from the perspective of the first author, addresses a number of ethical issues commonly faced, namely, the researcher-researched relationship, anonymity and confidentiality, privacy, and exploitation. She deliberates on the influences that guided her decision and in doing …
Digital Futures? Sociological Challenges and Opportunities in the Emergent Semantic Web
In the context of recent debates about the 'data deluge' and the future of empirical sociology, this article turns attention to current activities aimed at achieving far-reaching transformations to the World Wide Web. The emergent 'Semantic Web' has received little attention in sociology, despite its potentially profound consequences for data. In response to more general recent calls for a critical politics of data we focus our enquiry as follows…
Contingency in everyday surgical work
This paper concerns a qualitative study exploring the nature of surgical work with a group of 34 surgeons involved in treating urinary incontinence. Sources of surgical variation are identified from surgeons' own accounts of their work as well as observation of the selection of patients and operative procedures, and the operative process itself. A typology of contingency, consisting of three categories of contingency (case, surgeon and external),…
Access, boundaries and their effects
The distribution of work, knowledge and responsibilities in the delivery of anaesthesia has attained particular significance recently as attempts to meet the demands of the European Working Times Directive intensify existing pressures to reorganise anaesthetic services. Using Lave and Wenger's (1991) notions of 'legitimate peripheral participation' in 'communities of practice' (and Wenger 1998) to analyse ethnographic data of anaesthetic practice…
General Practitioner's use of online resources during medical visits
In an increasingly connected world, information about health can be exchanged at any time, in any location or direction, and is no longer dominated by traditional authoritative sources. We consider the ways information and advice given in consultations by doctors transcends the boundary between the clinic and the home. We explore how information that is widely accessible outside the consultation is transformed by General Practitioners (GPs) into …
Lost in Translation
This paper explores the early implementation of an organizational innovation in the UK National Health Service (NHS) – Treatment Centres (TCs) – designed to dramatically reduce waiting lists for elective care. The paper draws on case studies of 8 TCs (each at varying stages of their development) and aims to explore how meanings about TCs are created and evolve, and how these meanings impact upon the development of the organizational innovation. R…
Challenging operations
Kellogg, Katherine C. Challenging operations: medical reform and resistance in surgery . Chicago : University of Chicago Press , 2011 , xi + 230 pp. £16.00 (pbk) ISBN 13:978-0-226-43003-4 ( paper) In 1984 Libby Zion died in a New York Hospital following a medication error. The Grand Jury decided that the fault lay with medical training: that long hours worked by trainee doctors were a threat to patient safety. Her death became part of a wider cam…
Safe asleep? Human-machine relations in medical practice
Combining patient talk about internet use during primary care consultations with retrospective accounts. A qualitative analysis of interactional and interview data
Digitized patient-provider interaction
Trouble in store
This paper examines the day to day organisation and management of surgical waiting lists. A review of the literature on waiting lists identifies the main perspectives on waiting lists and two of these, the queue and the mortlake, are examined. This paper provides a critical analysis of these two theoretical outlooks and considers the explanatory power of each. It draws upon the sociology of work to understand the process of waiting list managemen…
Trusting technical change in call centres
Technical change is an on-going organizational challenge in call centres. While new technologies continually promise enhanced performance, not least by extending managerial control, the implementation of these technologies is an emergent process that requires effort by workers to establish new routines that embed innovations into everyday work. This article considers the role that trust may play in this process. Drawing on a theoretical framework…
Understanding the production and circulation of social media data
Social media data have provoked a mixed response from researchers. While there is great enthusiasm for this new source of social data – Twitter data in particular – concerns are also expressed about their biases and unknown provenance and, consequently, their credibility for social research. This article seeks a middle path, arguing that we must develop better understanding of the construction and circulation of social media data to evaluate thei…
The remarkable invisibility of NHS 111 online
In 2017, the NHS 111 telephone service was augmented by an online service. This is an exemplar of 'digital-first', the push to enrol digital technologies to deliver services, and is viewed by policymakers as an important vehicle for managing demand for overburdened health services. This article reports the qualitative component of a larger multi-method study of NHS 111 online. Qualitative telephone interviews with 80 staff and stakeholders implic…
She’s Been a Rock”
Social prescribing link workers are recently introduced roles in English primary care. One of their intended functions is to support patients with conditions influenced by the wider, social determinants of health. Their main purpose is to connect people to community resources to meet their nonmedical needs. However, our research reveals that link workers provide not only connections but also what we have described as “holding” for individuals wit…
What would it take to meaningfully attend to ethnicity and race in health research? Learning from a trial intervention development study
The lack of ethnic diversity in health research participation is a multi-dimensional problem. Racism and intersectional disadvantage compel us to use racial and ethnic categories to explore health, but race theorists warn that these can be essentialising and pathologising. Yet, the alternative, the pursuit of colour-blindness, can render the impact of race and ethnicity on health invisible. This paper describes the attempt to recruit an ethnicall…
Governing healthcare
Waiting list information
(1991). Waiting list information: Cards versus computers. Critical Public Health: Vol. 2, No. 3, pp. 44-49
Trouble in store
This paper examines the day to day organisation and management of surgical waiting lists. A review of the literature on waiting lists identifies the main perspectives on waiting lists and two of these, the queue and the mortlake, are examined. This paper provides a critical analysis of these two theoretical outlooks and considers the explanatory power of each. It draws upon the sociology of work to understand the process of waiting list managemen…
Genetics After the Act
This article considers the impact of the recent reform of the National Health Service (NHS) on specialist regional health services. A case study of medical genetic services is presented to highlight some problems arising from the implementation of the 1990 NHS and Community Care Act. New financial arrangements introduced by the Act have led many regional health authorities to devolve the finance and organization of specialist health services to d…
Towards a new Science of Health (Book)
Qualitative Research
Various strategies are available within qualitative research to protect against bias and enhance the reliability of findings. This paper gives examples of the principal approaches and summarises them into a methodological checklist to help readers of reports of qualitative projects to assess the quality of the research. In the health field--with its strong tradition of biomedical research using conventional, quantitative, and often experimental m…
Qualitative Research
Qualitative research methods have a long history in the social sciences and deserve to be an essential component in health and health services research. Qualitative and quantitative approaches to research tend to be portrayed as antithetical; the aim of this series of papers is to show the value of a range of qualitative techniques and how they can complement quantitative research.
Qualitative research in health care
This is the second in a series of three articles Contrary to popular perception, qualitative research can produce vast amounts of data. These may include verbatim notes or transcribed recordings of interviews or focus groups, jotted notes and more detailed “fieldnotes” of observational research, a diary or chronological account, and the researcher's reflective notes made during the research. These data are not necessarily small scale: transcribin…
Qualitative methods in research on healthcare quality
There are no easy solutions to the problem of improving the quality of care. Research has shown how difficult it can be, but has failed to provide reliable and effective ways to change services and professional performance for the better. Much depends on the perspectives of users and the attitudes and behaviours of professionals in the context of their organisations and healthcare teams. Qualitative research offers a variety of methods for identi…
Using meta ethnography to synthesise qualitative research
Objectives: To demonstrate the benefits of applying meta ethnography to the synthesis of qualitative research, by means of a worked example. Methods: Four papers about lay meanings of medicines were arbitrarily chosen. Noblit and Hare's seven-step process for conducting a meta ethnography was employed: getting started; deciding what is relevant to the initial interest; reading the studies; determining how the studies are related; translating the …
Contingency in everyday surgical work
This paper concerns a qualitative study exploring the nature of surgical work with a group of 34 surgeons involved in treating urinary incontinence. Sources of surgical variation are identified from surgeons' own accounts of their work as well as observation of the selection of patients and operative procedures, and the operative process itself. A typology of contingency, consisting of three categories of contingency (case, surgeon and external),…
Evaluating meta-ethnography
Ethics and Ethnography
In this article, the authors discuss an ethical dilemma faced by the first author during the fieldwork of an ethnographic study of expertise in anesthesia. The example, written from the perspective of the first author, addresses a number of ethical issues commonly faced, namely, the researcher-researched relationship, anonymity and confidentiality, privacy, and exploitation. She deliberates on the influences that guided her decision and in doing …
Resisting Evidence
Evidence-based medicine (EBM) emerged relatively recently to describe the explicit process of applying research evidence to medical practice. The movement was high profile, yet not overly successful: many clinicians do not use up-to-date evidence in their everyday work. This article shows how a social movement perspective can be used to analyse the emergence of EBM and shed light on power struggles between segments of the medical profession. It d…
Patients' help-seeking experiences and delay in cancer presentation
Systematically reviewing qualitative and quantitative evidence to inform management and policy-making in the health field
Policy-makers and managers have always used a wide range of sources of evidence in making decisions about policy and the organization of services. However, they are under increasing pressure to adopt a more systematic approach to the utilization of the complex evidence base. Decision-makers must address complicated questions about the nature and significance of the problem to be addressed; the nature of proposed interventions; their differential …
Safe asleep? Human-machine relations in medical practice
Resisting medicines
Access, boundaries and their effects
The distribution of work, knowledge and responsibilities in the delivery of anaesthesia has attained particular significance recently as attempts to meet the demands of the European Working Times Directive intensify existing pressures to reorganise anaesthetic services. Using Lave and Wenger's (1991) notions of 'legitimate peripheral participation' in 'communities of practice' (and Wenger 1998) to analyse ethnographic data of anaesthetic practice…
Qualitative Research in Health Care
This fully revised and updated edition of Qualitative Research in Health Care offers a clear and accessible introduction to conducting and interpreting qualitative research, incorporating new examples, references and chapters relevant for a comprehensive introduction to the subject. New chapters and references include: • Synthesising qualitative research • Secondary analysis of primary data • Ethical issues • Mixed research methods and integratin…
Utopian Theory and the Discourse of Natural Birth
Lost in Translation
This paper explores the early implementation of an organizational innovation in the UK National Health Service (NHS) – Treatment Centres (TCs) – designed to dramatically reduce waiting lists for elective care. The paper draws on case studies of 8 TCs (each at varying stages of their development) and aims to explore how meanings about TCs are created and evolve, and how these meanings impact upon the development of the organizational innovation. R…
The Importance of Class
Culture and Climate in Health Care Organizations
Introduction
This book brings together a series of papers which detail recent international research on the theme of culture and climate in health care organizations. It is the sixth edition in the Palgrave series of edited collections on organizational behaviour in health care and was developed from the highly successful Organizational Behaviour in Health Care Conference held at the University of New South Wales, Sydney in March 2008. These keywords were add…
Normalisation process theory
BACKGROUND: The past decade has seen considerable interest in the development and evaluation of complex interventions to improve health. Such interventions can only have a significant impact on health and health care if they are shown to be effective when tested, are capable of being widely implemented and can be normalised into routine practice. To date, there is still a problematic gap between research and implementation. The Normalisation Proc…
Sociology (39 works) · Medicine (34 works) · Political science (29 works) · Computer Science (26 works) · Psychology (26 works) · Law (17 works) · Public relations (17 works) · Qualitative research (17 works) · Health care (16 works) · Nursing (16 works)