Experiences of influencing one's own life when living with working-age dementia
Bibliographic Data
| ID | 11201296 |
|---|---|
| Authors | Mervi Issakainen (0000-0001-7471-2148, University of Eastern Finland, corresponding author), Anna Mäki‐petäjä‐leinonen (0000-0001-7142-3498, University of Eastern Finland), Anna Mäki-Petäjä-Leinonen, Sirkkaliisa Heimonen (Age Institute), Ann-Charlotte Nedlund (0000-0003-0204-4536, Linköping University), Arlene Astell (0000-0002-6822-9472, University Health Network), Jennifer Boger (0000-0001-6150-151X, University of Waterloo), Sari Rissanen (0000-0002-9882-7991, University of Eastern Finland), Louise Nygård (0000-0003-1813-7390, Karolinska Institutet) |
| Year | 2023 |
| Volume | 43 |
| Issue | 8 |
| Pages | 1934-1953 |
| Publication date | 2023-08-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Ageing and Society (JOURNAL) |
| Journal identifiers | ISSN: 0144-686X • E-ISSN: 1469-1779 |
| Publisher | Cambridge University Press (CUP) (PUBLISHER) |
| DOI | 10.1017/s0144686x21001525 |
| OpenAlex | W3201841394 |
| Language | EN |
| Citations received | 2 |
| References cited | 41 |
Having opportunities to make decisions and choices regarding one's life is crucial when living with dementia. This inter-disciplinary study draws on the concept of relational autonomy to explore how working-age people living dementia seek to influence their lives, and what makes it easier or more difficult for them in their everyday life. The data consist of three focus group discussions conducted with 12 retired adults who developed dementia while still employed. The results illuminate various resources that enable a person to (a) handle their difficulties at work and related consequences with dignity, (b) manage everyday tasks and live a fulfilling life, and (c) fight the stigma associated with (working-age) dementia. Challenges related to these aspects reported by the participants reveal gaps and obstacles that impede the full realisation of the rights of people living with early onset dementia. This research highlights the need for workplace education for different stakeholders, equal and ongoing access to guidance and counselling for younger people who live with dementia, and an effort by society as a whole to eradicate stigma
Autonomy · Dementia · Dignity · Disease · Everyday life · Focus group · Political science · Psychiatry · Realisation · Sociology · Stigma (botany) · Aging and Gerontology Research · Employment and Welfare Studies · Geriatric Care and Nursing Homes · Medicine · Psychology · Gerontology
Analyzing interdisciplinarity
Autonomy and the Social Self
Advanced Focus Group Research
Focus Groups in Social Research
The Morality of Freedom
Counselling of people with dementia in legal matters – social and health care professionals’ role
Expanding the concept of participatory rights
Legal constructions of dementia
Living with young onset dementia
Dementia in the workplace case study research
The legal implications of dementia in the workplace
Understanding social theory
Three Approaches to Qualitative Content Analysis
How Many Focus Groups Are Enough? Building an Evidence Base for Nonprobability Sample Sizes
Shifting dementia discourses from deficit to active citizenship
Dichotomising dementia
Decent Living Standards
| Unique citing works | 2 |
|---|---|
| Citations per year | 0,5 |
| Citation span | 2022 - 2026 (5) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 2 |