The Childhood Cancer Centre Is Coming Home

Experiences of Hospital-Based Home Care

Bibliographic Data

ID15477889
AuthorsMalin de Flon (0000-0002-3195-6908, University of Gothenburg), Gisela Glaffey (University of Gothenburg), Linda Jarl (University of Gothenburg), Kristin Sellbrant (University of Gothenburg), Sofia Nilsson (0000-0002-8847-9559, University of Gothenburg, corresponding author)
Year2021
Volume18
Issue12
Pages6241-6241
Publication date2021-06-09
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueInternational Journal of Environmental Research and Public Health (JOURNAL)
Journal identifiersISSN: 1661-7827 • E-ISSN: 1660-4601
PublisherMultidisciplinary Digital Publishing Institute (PUBLISHER • CH)
DOI10.3390/ijerph18126241
OpenAlexW3166149153
LanguageEN
Citations received1
References cited37

Today, there is a shift towards care being given closer to the patient, with more children receiving care in their homes. Care at home has proven to be a viable alternative to hospital care, as shown by a project for hospital-based home care conducted in West Sweden. The aim of this study was to describe how children with cancer and parents experienced receiving care at home. After purposive sampling, six children with cancer aged 6–16 and eight parents participated. Semistructured interviews were performed, and the data were analysed using qualitative content analysis. Four main categories emerged: save time and energy in the family; maintain everyday life; feel trust in the healthcare professionals; mixed feelings about getting treatment at home. This hospital-based home care project created good conditions for both children with cancer and their parents to feel secure. In addition, home care can be very child-centric, whereby the caregivers involve the children by taking their thoughts and utterances into account

Cancer · Childhood cancer · Family medicine · Adolescent and Pediatric Healthcare · Childhood Cancer Survivors' Quality of Life · Family Support in Illness · Medicine · Gerontology