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A systematic review of theories, models and frameworks used for youth engagement in health research

Bibliographic Data

ID19506985
AuthorsSherald Sanchez (0000-0001-5558-1007, Institute of Medical Science, Temerty Faculty of Medicine University of Toronto Toronto Ontario Canada), Rachel Thorburn (0000-0002-5157-6849, Department of Applied Psychology and Human Development University of Toronto Toronto Ontario Canada), Marika Rea (Centre for Criminology and Sociolegal Studies University of Toronto Toronto Ontario Canada), Pamela Kaufman (0000-0001-5965-8120, Ontario Tobacco Research Unit, Dalla Lana School of Public Health University of Toronto Toronto Ontario Canada), Rachel Schwartz (0000-0001-7838-0769, Ontario Tobacco Research Unit, Dalla Lana School of Public Health University of Toronto Toronto Ontario Canada), Robert Schwartz (0000-0001-8199-565X), Peter Selby (0000-0001-5401-2996, Institute of Medical Science, Temerty Faculty of Medicine University of Toronto Toronto Ontario Canada), Michael Chaiton (0000-0002-9589-2122, Institute of Medical Science, Temerty Faculty of Medicine University of Toronto Toronto Ontario Canada)
Year2024
Volume27
Issue1
Publication date2024-02-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueHealth Expectations (JOURNAL)
Journal identifiersISSN: 1369-6513 • E-ISSN: 1369-7625
PublisherWiley (PUBLISHER • GB)
DOI10.1111/hex.13975
LanguageEN
Citations received6
References cited68
  • Patient and Public Involvement and Engagement in Pediatric Health Research

    Open Access•Veronika Stadler, Rebeca Mozun et al.•Health Expectations•2026

  • Steps Toward Justice

    Open Access•Helena Gard, Gabriella E Isma et al.•Frontiers in Public Health•2025

  • Frameworks Used to Engage Postsecondary Students in Campus Mental Health Research

    Open Access•Kristin Cleverley, Soha Salman et al.•Health Expectations•2025

  • Building the Capacity of Adolescents as Researchers

    Open Access•Allyson Todd, Sara Wardak et al.•Health Expectations•2026

  • An Application of Evidence‐Based Approaches to Engage Young People in the Design of a Global Mental Health Databank

    Open Access•Augustina Mensa‐kwao, Lakshmi Neelakantan et al.•Health Expectations•2024

  • A Co‐Production Model for Youth Meaningful Participation in a Shifting City

    Open Access•Angel Hor Yan Lai, Angel Hor‐yan Lai•Children & Society•2025

  • Empowerment Education

    Open Access•Nina Wallerstein, Edward Bernstein•Health Education Quarterly•1988

  • Evaluating patient and stakeholder engagement in research

    Open Access•Laura Esmail, Emily Moore et al.•Journal of Comparative…•2015

  • Research co-design in health

    Open Access•Patrick Slattery, Alexander Saeri et al.•Health Research Policy and Systems•2020

  • Patient engagement in research

    Open Access•Juan Pablo Domecq, Gabriela Prutsky et al.•BMC Health Services Research•2014

  • The dark side of coproduction

    Open Access•Kathryn Oliver, Anita Kothari et al.•Health Research Policy and Systems•2019

  • Time to challenge the spurious hierarchy of systematic over narrative reviews?

    Open Access•Trisha Greenhalgh, Sally Thorne et al.•European Journal of Clinical…•2018

  • Engaging Youth in Participatory Research and Evaluation

    Jane L Powers, Jane Powers et al.•Journal of Public Health…•2006

  • Ethical Approaches to Adolescent Participation in Sexual Health Research

    Open Access•Sarah Flicker, Adrian Guta•Journal of Adolescent Health•2008

  • Empowerment Theory

    Marc A Zimmerman•Handbook of Community Psychology•2000

  • The PRISMA 2020 statement

    Open Access•Matthew J Page, Joanne E McKenzie et al.•BMJ•2021

  • Practitioner review

    Open Access•Rhys Bevan Jones, Paul Stallard et al.•Journal of Child Psychology and…•2020

  • Frameworks for supporting patient and public involvement in research

    Open Access•Trisha Greenhalgh, Lisa Hinton et al.•Health Expectations•2019

  • Stepping Back from ‘The Ladder’

    Roger A Hart•Participation and learning•2008

  • Implementation of a youth‐adult partnership model in youth mental health systems research

    Open Access•Olivia Heffernan, Olivia S Heffernan et al.•Health Expectations•2017

  • Epistemic justice in public involvement and engagement

    Open Access•Kristin Liabo, Emma Cockcroft et al.•Health Expectations•2022

  • Co‐producing research with youth

    Open Access•Gabriela Pavarini, Jessica Lorimer et al.•Health Expectations•2019

  • Patient and public engagement in research and health system decision making

    Open Access•Aurelien Boivin, Audrey L'Espérance et al.•Health Expectations•2018

  • Youth engagement in mental health research

    Open Access•Erin McCabe, Mungunzul Amarbayan et al.•Health Expectations•2023

  • Evaluating the “return on patient engagement initiatives” in medicines research and development

    Open Access•Lidewij Eva Vat, Teresa Finlay et al.•Health Expectations•2020

  • Self-efficacy

    Albert Bandura•Psychological Review•1977

  • Engagement as an ethical imperative in harm reduction involving at-risk youth

    Open Access•Barbara Paterson, Barbara L Paterson et al.•International Journal of Drug…•2008

  • Young people and drugs

    Open Access•Simona Merkinaitė, Jean‐paul Grund et al.•International Journal of Drug…•2010

  • Youth Participatory Approaches and Health Equity

    Open Access•Emily J Ozer, Michelle Abraczinskas et al.•American Journal of Community…•2020

  • Future Directions in Youth Involvement Research

    Open Access•Linda Rose‐krasnor•Social Development•2009

  • Re-conceptualising youth participation

    Open Access•Helen Cahill, Babak Dadvand•Children and Youth Services Review•2018

  • A Typology of Youth Participation and Empowerment for Child and Adolescent Health Promotion

    Open Access•Naima T Wong, Marc A Zimmerman et al.•American Journal of Community…•2010

  • Empowerment theory, research, and application

    Open Access•Douglas D Perkins, Marc A Zimmerman•American Journal of Community…•1995

  • Community-Based Participatory Research Contributions to Intervention Research

    Nina Wallerstein, B Duran•American Journal of Public Health•2010

  • Involving Street Youth in Peer Harm Reduction Education

    Open Access•Blake Poland, Blake D Poland et al.•Canadian Journal of Public Health•2002

  • A Ladder Of Citizen Participation

    Sherry R Arnstein•Journal of the American Institute…•1969

  • E-Par

    Open Access•Sarah Flicker, Oonagh Maley et al.•Action Research•2008

  • Youth Action for Health Through Youth-Led Research

    Ahna Ballonoff Suleiman, Samira Soleimanpour et al.•Journal of Community Practice•2006

  • Human agency in social cognitive theory

    Albert Bandura•American Psychologist•1989

  • Pathways to participation

    Open Access•Harry Shier•Children & Society•2001

Unique citing works6
Citations per year3
Citation span2024 - 2026 (3)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 5
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