A Proposal for Addressing Bioethical Concerns Along the 10‐Step Framework for Community Engagement

Bibliographic Data

ID19508551
AuthorsAbdou Simon Senghor (0000-0001-9353-5482, University of Maryland School of Pharmacy Baltimore Maryland USA, corresponding author), Michelle Medeiros (0000-0002-6093-9445, University of Maryland School of Pharmacy Baltimore Maryland USA), Claudia R Baquet (0000-0002-7914-1871, University of Maryland School of Pharmacy Baltimore Maryland USA), Franklin Lance (Mount Lebanon Baptist Church Baltimore Maryland USA), C Daniel Mullins (0000-0003-4322-2490, University of Maryland School of Pharmacy Baltimore Maryland USA)
Year2025
Volume28
Issue4
Pagese70345-e70345
Publication date2025-08-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueHealth Expectations (JOURNAL)
Journal identifiersISSN: 1369-6513 • E-ISSN: 1369-7625
PublisherWiley (PUBLISHER • GB)
DOI10.1111/hex.70345
PMID40631505
OpenAlexW4412118305
LanguageEN
References cited55

INTRODUCTION: Building trust by applying an ethical deliberation approach can increase Black/African American participation in clinical and translational community-engaged research (CEnR). MATERIALS AND METHODS: We provide examples of case studies from the literature to identify ethical issues associated with each step of the 10-Step Framework. To address these ethical issues, we applied an ethical deliberation approach embodied in three moments: (1) broadening and deepening the understanding of the situation and/or research scenarios, (2) envisioning action scenarios for more trustworthy research, and (3) coming to a judgement based on the comparative evaluation of scenarios. RESULTS: Examples of ethical issues identified include a lack of shared decision-making on proposed research topics, lengthy periods for data analysis and reporting that frustrate partners who want more timely results, and the lack of privacy, confidentiality and non-compliance with consent permissions for the dissemination of results. CONCLUSION: We recommend tailoring the ethical deliberation approach to any project dealing with ethical issues and conducting empirical studies to test this approach in CEnR. PATIENT OR PUBLIC CONTRIBUTION: As part of a community-engaged research (CEnR) project, this paper benefited from the contribution of F.L., a member of a community organisation, as a co-author. This author was actively involved in contributing to the review of ethical issues in community-engaged research and how the ethical deliberation approach can contribute to addressing these ethical issues

Alternative medicine · Bioethics · Community engagement · Community-based participatory research · Confidentiality · Deliberation · Engineering ethics · Ethical issues · Informed consent · Participatory action research · Political science · Public engagement · Public relations · Research ethics · Sociology · Ethics in Clinical Research · Health Policy Implementation Science · Medicine · Mental Health and Patient Involvement · Psychology