“We Don’t Get Drugs Targeted for Us

” Applying the Integrated Behavioral Model to Understand Why Black Women Chose to Participate in a Breast Cancer Clinical Trial

Bibliographic Data

ID21617401
AuthorsKatherine E Ridley‐Merriweather (0000-0002-8556-6382, Indiana University Melvin and Bren Simon Comprehensive Cancer Center, corresponding author), Katharine J Head (0000-0001-8946-1716, Indiana University – Purdue University Indianapolis), Maria Brann (0000-0002-9820-4145, Indiana University – Purdue University Indianapolis), Cynthia Y Wu (0000-0003-4435-6845, Indiana University School of Medicine, Indiana University Indianapolis), Daniel Adan (0000-0002-2539-8663, Indiana Cancer Research Institute)
Year2025
Volume40
Issue11
Pages2280-2289
Publication date2025-09-19
Peer ReviewedYes
Open AccessNo
TypeARTICLE
VenueHealth Communication (JOURNAL)
Journal identifiersISSN: 1041-0236 • E-ISSN: 1532-7027
PublisherInforma UK Limited (PUBLISHER • GB)
DOI10.1080/10410236.2024.2448701
PMID39810332
OpenAlexW4406406399
LanguageEN
References cited27

14) who had participated in a breast cancer clinical trial. This study aimed to better understand what may motivate Black women to engage in medical research and decide to participate in medical research. Findings revealed that Black women's altruistic desires to serve others and their communities are greatly influenced by the need to leave a "legacy" of better treatment for other Black women. The participants mostly learned about clinical trials through communicating with friends, family, or other breast cancer patients and survivors, rather than from their physicians. Many were influenced to participate by other Black breast cancer patients they knew, suggesting that social norms messaging may help alert other Black women about the continuing disparity in clinical trial participation. Finally, the participants in this study demonstrated high levels of involvement not only in seeking out clinical trials, but also in engaging in informed and shared decision-making with their providers about participating in the trials. The findings from this work illuminate important reasons Black women chose to participate in breast cancer clinical trials. Additionally, we offer robust and valuable theoretical and practical implications for researchers, so they can work toward successfully increasing Black women's participation in clinical trials

Breast cancer · Cancer · Chose · BRCA gene mutations in cancer · Ethics in Clinical Research · Medicine · Psychology · Sex and Gender in Healthcare · Internal Medicine