Performingcare
Emotion Work and 'Dignity Work' - A Joint Autoethnography of Caring for Our Mum at the End of Life
Bibliographic Data
| ID | 2249792 |
|---|---|
| Authors | Samantha Wilkinson (0000-0002-1564-5472, Manchester Metropolitan University Manchester UK, corresponding author), Christopher Wilkinson (0000-0002-9313-6585, Liverpool John Moores University Liverpool UK) |
| Year | 2020 |
| Volume | 42 |
| Issue | 8 |
| Pages | 1888-1901 |
| Publication date | 2020-11-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Sociology of Health & Illness (JOURNAL) |
| Journal identifiers | ISSN: 0141-9889 • E-ISSN: 1467-9566 |
| Publisher | Wiley (PUBLISHER • GB) |
| DOI | 10.1111/1467-9566.13174 |
| PMID | 32946128 |
| OpenAlex | W3087686677 |
| Language | EN |
| Citations received | 12 |
| References cited | 51 |
In this paper we, twin sisters, present a joint autoethnographic account of providing end of life care for our mum who had terminal cancer. Using the theoretical framing of performance from Goffman's theory of Dramaturgy, we present the findings from a joint autoethnography, focusing on two key themes: performing emotion work and performing what we conceptualise as 'dignity work'. This paper's contributions are twofold. First, conceptually, this paper offers an important contribution to literature concerned with the sociology of illness, by critically engaging with Goffman's notion of frontstage and backstage performance, applied to the context of home care provided by family carers. The second contribution of this paper is methodological; we promote the under-utilised approach of a joint autoethnography and argue for its usefulness in the context of end of life care. We contend that the process of writing this paper was emotionally challenging, yet arriving at the final paper, which serves as a legacy of our mum, was cathartic. We argue for the usefulness of written diaries as a backstage arena through which other informal carers can think through, and come to terms with, experiences of death and dying
Aesthetics · Art · Autoethnography · Context (archaeology · Dignity · Dramaturgy · Emotional labor · Epistemology · Framing (construction · Psychoanalysis · Sociology · Emotional Labor in Professions · Gender Studies · Grief, Bereavement, and Mental Health · Law · Psychology · Qualitative Research Methods and Ethics · Social Psychology
Equine-assisted social work in a residential treatment context
Unforeseen emotional labour
“I need time to recuperate, I really understand that
Experiences of family caregivers caring for cancer patients at home
“Don’t I Have a Say?”
An Autoethnography on Intergenerational Relationships and Transnational Care for Older Parents
Mother blaming and anorexia
Singing with my mum
Ayahs at the deathbed re-visioning elder care
Autoethnography as a Tool of Researchers’ Identity Work Through Retrospective Care
Dental Disgust-An Ethnography of Abjection in Elderly Care
A duoethnography
Commercialization of Intimate Life
Research Ethics for Social Scientists
"How Can You Do It?"
The Presentation of Self in Everyday Life
Autoethnography as a research method
Writing Ethnographic Fieldnotes
The Managed Heart
Autoethnography as Method
What informal caregivers actually do
Her Life Rests on Your Shoulders”
The problems of a ‘dirty workplace’ in domiciliary care
Autoethnography as a Transformative Research Method
Re-membering Daddy
Comics, kitsch, and class
The ethics of autoethnography
Doing the Dirty Work? The Global Politics of Domestic Labour
Translating Autoethnography Across the Aera Standards
The Interpretation of Cultures
Qualitative methods
Carework as a form of bodywork
Companions through cancer
A Critique of Current Practice
Deleuze and research methodologies
The Sociological Eye
Ethics in Autoethnography and Collaborative Autoethnography
Integrating Dark Humor and Compassion
Toward a Sociology of (Gendered) Disgust
Reflexive Accounts and Accounts of Reflexivity in Qualitative Data Analysis
Managing the body work of home care
Conceptualising body work in health and social care
Finding dignity in dirty work
Reframing health and illness
Rehabilitative bodywork
Locating care at the end of life
Changing faces
Down the rabbit hole" - "curiouser and curiouser
Emotion Work, Feeling Rules, and Social Structure
| Unique citing works | 12 |
|---|---|
| Citations per year | 3 |
| Citation span | 2022 - 2026 (5) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 12 |