We're responsible for the diagnosis and for finding help'. The help-seeking trajectories of families of children on the autism spectrum
Bibliographic Data
| ID | 2249802 |
|---|---|
| Authors | Isabelle Courcy (0000-0003-2331-6836, Université du Québec à Montréal Montréal QC Canada, corresponding author), Catherine Des Rivières‐pigeon (Université du Québec à Montréal Montréal QC Canada) |
| Year | 2021 |
| Volume | 43 |
| Issue | 1 |
| Pages | 40-57 |
| Publication date | 2021-01-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Sociology of Health & Illness (JOURNAL) |
| Journal identifiers | ISSN: 0141-9889 • E-ISSN: 1467-9566 |
| Publisher | Wiley (PUBLISHER • GB) |
| DOI | 10.1111/1467-9566.13184 |
| PMID | 32931031 |
| OpenAlex | W3086278079 |
| Language | EN |
| Citations received | 5 |
| References cited | 48 |
This article focuses on parents' process of seeking help for their child when a diagnosis of autism spectrum disorder is made or suspected. The study was conducted with 18 parents of children aged 4-10 years in Quebec (Canada). A trajectory-network approach was applied in order to carry out an in-depth analysis of family help-seeking trajectories based on the relationships mobilised (or neglected) over time and on life course events that may have precipitated (or hindered) help-seeking actions. Semi-directed interviews based on a name generator were conducted. A qualitative analysis of the content of family narratives was done and followed by the production of a schematic representation of each families' help-seeking trajectory. The results identified four constitutive phases during which relationships within the family, within associations, or with health and social services or education professionals helped or hindered the help-seeking process. The results show the relevance of the proposed approach for analysing the help-seeking process and better supporting families of children on the autism spectrum
Autism · Autism spectrum disorder · Developmental psychology · Physics · Spectrum (functional analysis) · Autism Spectrum Disorder Research · Child and Adolescent Psychosocial and Emotional Development · Family and Disability Support Research · Psychology
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| Unique citing works | 5 |
|---|---|
| Citations per year | 1,25 |
| Citation span | 2022 - 2025 (4) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 5 |