Community Advisory Board Members Speak Out
Insights From an Opioid Overdose Study
Bibliographic Data
| ID | 24020875 |
|---|---|
| Authors | Deborah Chassler (0009-0006-8556-5271, Boston University, corresponding author), Ariel Hayes (0009-0006-5930-9899, Boston University), Craig Mcclay (Boston Medical Center), Andrea Macone (Boston Medical Center), Magda Colón (Boston Medical Center), Kim Powers (Boston Medical Center), Pedro Álvarez (0000-0002-6584-7259, Boston Medical Center), Andrew Laudate (Boston Medical Center), Gary Langis (Boston Medical Center), Teri Tirado (Boston Medical Center), Tracy A Battaglia (0000-0001-8475-1212, Boston Medical Center), Linda S Sprague Martinez (0000-0002-5070-7640, Boston University) |
| Year | 2026 |
| Volume | 29 |
| Issue | 4 |
| Pages | e70794-e70794 |
| Publication date | 2026-08-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Health Expectations (JOURNAL) |
| Journal identifiers | ISSN: 1369-6513 • E-ISSN: 1369-7625 |
| Publisher | Wiley (PUBLISHER • GB) |
| DOI | 10.1111/hex.70794 |
| PMID | 42542979 |
| OpenAlex | W7172199200 |
| Language | EN |
| References cited | 33 |
INTRODUCTION: Incorporating the knowledge of people who use/have used drugs into academic research presents the possibility of new ways of understanding drug use, increasing opportunities for equitable outcomes. Community Advisory Boards (CAB) are part of the community-engaged research continuum offering community members clearly defined roles and a structure to advise academic researchers. Acting in an advisory capacity, CAB members have a platform for sharing community-informed knowledge with researchers. The concept of knowledge democracy suggests that not all knowledge is valued equally, with scientific knowledge often considered neutral or more valuable than community knowledge which is sometimes understood as subjective opinion. Transformative change requires an embrace of knowledge that extends beyond the sole perspective of academic research to embrace multiple ways of knowing. METHODS: We used directed content analysis to analyze minutes from 43 monthly CAB meetings, focusing on member knowledge about opioid use and overdose. We centre the expertise of people who use/have used drugs and propose that academic researchers should listen to and embrace knowledge that is held by the communities and people being studied. AIMS: (1) identify and describe the knowledge Massachusetts CAB members shared with academic researchers and each other during a federally-funded study to reduce opioid overdose fatalities and (2) centre the contributions of community knowledge for the study. RESULTS: Three themes were identified: (1) CAB members generously shared their knowledge; (2) Members brought attention to root causes of opioid overdose fatalities; and (3) Honest and challenging meeting discussions created solidarity and trust among members and with staff. CONCLUSIONS: This case study makes an important contribution to the literature by highlighting the knowledge that a Community Advisory Board, including people with lived and living experience of drug use, can bring to substance use research. By centreing the voices of people with lived and living experience, front line staff, and family members, the study confirms that a substance use research-focused CAB can be an important source of valuable knowledge, contributing to the development of knowledge democracy. PUBLIC CONTRIBUTION: The HEALing Communities Study Massachusetts Community Advisory Board members - people with lived and living experience with their own or family member drug use, harm reductionists, recovery coaches, and public health advocates committed to saving the lives of people who use drugs - were active participants in the HEALING Communities Study. They were involved in local, statewide and national levels of the study, including community coalitions, study cores, the national steering committee, and dissemination, acting as advisors and consultants with staff throughout the 4 years of the study and beyond. Eighteen months after the study officially ended, members continue to stay in frequent contact with each other and staff and many chose to be co-authors of this manuscript.
Drug overdose · Knowledge sharing · Opioid overdose · Perspective (graphical) · Sociology of scientific knowledge · Solidarity · Tacit knowledge · Transformative learning · Health Policy Implementation Science · HIV, Drug Use, Sexual Risk · Mental Health and Patient Involvement
Content analysis and thematic analysis
The engagement of people with lived experiences in substance use research
Decolonization of knowledge, epistemicide, participatory research and higher education
A practical guide to reflexivity in qualitative research
From Dialogue to Action
Interrogation, Negotiation, and Subversion of Power Differentials in Community-Based Participatory Research
Participant, peer and Peep
The Continuum of Community Engagement in Research
Community Advisory Boards Guiding Engaged Research Efforts within a Clinical Translational Sciences Award
The Community is the Cure
Development of Guidelines to Improve the Effectiveness of Community Advisory Boards in Health Research
Partnership in Promoting Community Health Research
Across the Miles
Work Really Is Being Done and It's Very Worthwhile
The Process and Cost of Developing a Community Advisory Board Focused on Opioid Overdose Deaths
Issues of equity and empowerment in knowledge democracy
Three Approaches to Qualitative Content Analysis
Boundary spanners
| Citation velocity | historical |
|---|---|
| Highly cited | No |