The centrality of disclosure decisions to the illness experience for youth with chronic conditions
A qualitative study
Datos Bibliográficos
| ID | 4226745 |
|---|---|
| Autores | Roberta L Woodgate (0000-0002-7176-2390, University of Manitoba, Winnipeg, MB, Canada), Pauline Tennent (0000-0002-4840-4202, University of Manitoba, Winnipeg, MB, Canada), Sarah Barriage (0000-0001-5046-9227, University of Kentucky, Lexington, KY, USA), Nicole Legras (University of Manitoba, Winnipeg, MB, Canada) |
| Año | 2022 |
| Volumen | 27 |
| Número | 3 |
| Páginas | 521-533 |
| Fecha de publicación | 2022-03-01 |
| Peer Reviewed | Sí |
| Open Access | Sí |
| Tipo | ARTICLE |
| Revista | Journal of Health Psychology (JOURNAL) |
| Identificadores de la revista | ISSN: 1359-1053 • E-ISSN: 1461-7277 |
| Editorial | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/1359105320962242 |
| PMID | 32985894 |
| OpenAlex | W3088755852 |
| Idioma | EN |
| Citas recibidas | 5 |
| Referencias citadas | 49 |
The aim of this paper is to illuminate findings of disclosure experiences for youth living with chronic illness using a non-categorical approach. The findings were derived from a larger qualitative study framed by social constructivist grounded theory that sought to understand youth's involvement in healthcare decision-making in the context of chronic illness. Fifty-four youth participated in the study, ranging from 9 to 24 years. Three main themes representing the youth's perspectives and experiences of disclosing chronic illness were identified: (1) disclosure is central to the illness experience; (2) spectrum of disclosure; and (3) navigating others' reactions to disclosure. The findings reinforce that more emphasis on decisions related to disclosing illness in research and clinical care for youth with chronic conditions is warranted
Categorical variable · Centrality · Context (archaeology · Grounded theory · Qualitative research · Self-disclosure · Sociology · Adolescent and Pediatric Healthcare · Childhood Cancer Survivors' Quality of Life · Family and Disability Support Research · Psychology · Clinical Psychology · Social Psychology
Qualitative Interviewing and Grounded Theory Analysis
Global, regional, and national incidence, prevalence, and years lived with disability for 301 acute and chronic diseases and injuries in 188 countries, 1990–2013
Grounded Theory
Sample size in qualitative research
HIV serostatus disclosure and lived experiences of adolescents at the Transition Clinic of the Infectious Diseases Clinic in Kampala, Uganda
Costs and benefits of secrecy
Quality of life among Ghanaian adolescents living with perinatally acquired HIV
Disclosing food allergy status in schools
Naturalistic inquiry
Living With Epilepsy
To tell or not to tell
A qualitative content analysis of peer mentoring video calls in adolescents with chronic illness
Conditional Disclosure on Pathways to Care
What diagnosis does not tell
That little doorway where I could suddenly start shouting out
A Metacognitive Intervention of Narrative Imagery for young people with cystic fibrosis
Disclosure and sickle cell disorder
| Obras citantes distintas | 5 |
|---|---|
| Citas por año | 1,67 |
| Intervalo de citas | 2023 - 2026 (4) |
| Velocidad de citación | current |
| Altamente citado | No |
| Tipos de cita | Neutras: 5 |