"Citizen science "from the margins

Epistemologies of ignorance in the Movement of Women with Endometriosis in Mexico

Bibliographic Data

ID4448029
AuthorsJulieta Piña-Romero (Universidad de Morelia, corresponding author)
Year2023
Volume6
Issue1
Publication date2023-12-31
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueTapuya Latin American Science Technology and Society (JOURNAL)
Journal identifiersISSN: 2572-9861 • E-ISSN: 2572-9861
PublisherInforma UK Limited (PUBLISHER • GB)
DOI10.1080/25729861.2023.2247834
OpenAlexW4388082675
LanguageEN
Citations received2
References cited20

This paper analyzes, from the perspective of feminist epistemologies of ignorance, the case of Endometriosis Mxico: an association of women with endometriosis that denounces different types of ignorance produced around their disease.I examine how the unveiling and analysis of the production of ignorance has become a central element of their struggle and the driving force behind the creation of new knowledge.This is a case of citizen science made "from the margins" that does not fit the typical citizen science instrumental or democratic discourse.In this sense, it proposes new directions for discussing public participation in science and technology.The work accounts for the process of production of ignorance identified by the Association in the light of three forms suggested by Nancy Tuana: (i) "knowing that we do not know, but not caring to know," (ii) "we do not even know that we do not know," and (iii) "they do not want us to know."I propose a citizen science "from the margins" as a form of public participation in science and technology based on an epistemology of ignorance

Aesthetics · Art · Endometriosis · Environmental ethics · Gynecology · Ignorance · Political science · Sociology · Animal and Plant Science Education · Climate Change Communication and Perception · Gender Studies · Interdisciplinary Research and Collaboration · Law · Medicine · Philosophy