Disease Politics and Medical Research Funding
Three Ways Advocacy Shapes Policy
Bibliographic Data
| ID | 4522040 |
|---|---|
| Authors | Rachel Kahn Best (0000-0002-9372-1792, University of Michigan, corresponding author) |
| Year | 2012 |
| Volume | 77 |
| Issue | 5 |
| Pages | 780-803 |
| Publication date | 2012-10-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | American Sociological Review (JOURNAL) |
| Journal identifiers | ISSN: 0003-1224 • E-ISSN: 1939-8271 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/0003122412458509 |
| OpenAlex | W2099603975 |
| Language | EN |
| Citations received | 56 |
| References cited | 109 |
In the 1980s and 1990s, single-disease interest groups emerged as an influential force in U.S. politics. This article explores their effects on federal medical research priority-setting. Previous studies of advocacy organizations' political effects focused narrowly on direct benefits for constituents. Using data on 53 diseases over 19 years, I find that in addition to securing direct benefits, advocacy organizations have aggregate effects and can systemically change the culture of policy arenas. Disease advocacy reshaped funding distributions, changed the perceived beneficiaries of policies, promoted metrics for commensuration, and made cultural categories of worth increasingly relevant to policymaking
Disease · Interest group · Medical research · Political science · Politics · Public relations · Climate Change Communication and Perception · Global Public Health Policies and Epidemiology · Law · Medicine · Policy Transfer and Learning · Public Administration
Is it good to work with? Workability and the meaning of non-native species in urban policy
Health Research Funders and Justice
Creating a priority list of non-communicable diseases to support health research funding decision-making
Retracted
Advocacy by nonprofit scientific institutions needs to be evidence-based
Concentration of Danish research funding on individual researchers and research topics
Exploring the Landscape of American Sociology
Divergent evolution of newborn screening
Chasing cures
From ‘politics of numbers’ to ‘politics of singularisation’
The Corporate Permeation Index – A tool to study the macrosocial determinants of Non-Communicable Disease
What has been preventing the emergence of a broad social movement on diabetes (and NCDs)? Insights from the mobilisation of diabetes patients' associations in Bamako, Mali
Governance Choices of Genome Editing Patents
American Exceptionalism Revisited
Poisoning the Well
The influence of organizations on policy
The Politics of Pseudoscience
Scientific Reforms, Feminist Interventions, and the Politics of Knowing
Stigma, Scarcity and the Price of Legitimacy
Introduction to special issue
Patient-activist or ally? Assessing the effectiveness of conscience and beneficiary constituents in disease advocacy fundraising
Sampling Social Movement Organizations
The Determinants of Public Policy
Social Movements and Policy Entrenchment
Where Movements Matter
Criminalization and Drug “Wars” or Medicalization and Health “Epidemics
How social inequities get under the skin
Shaming the Corporation
Playing Russian roulette with their kids
The Fringe Effect
Measuring mental disorders
The politics of health mobilization in the United States
The role of patient organisations in research and development
Cross-disease spillover from research funding
Deserving but not entitled
Disease frames and their consequences for stigma and medical research funds
Negotiating intersex
Even my sister says I'm acting like a crazy to get a check
The Stigma of Diseases
Global Markets, Corporate Assurances, and the Legitimacy of State Intervention
Legality with a Vengeance
Geographic Mythology and Global Health
Theorizing Issue Selection in Advocacy Organizations
Affective Economies and the Politics of Saving Babies' Lives
Logics of Redistribution
The Social Autopsy
Advocacy Research on Homophobia in Education
In Sickness and in Health? Physical Illness as a Risk Factor for Marital Dissolution in Later Life
The Cultural Impacts of Social Movements
Automated Text Analysis for Consumer Research
Looping Genomes
Effective altruism, technoscience and the making of philanthropic value
From Rights Claims to Quality Frames in US Child Care Advocacy
The Stakes of Symbolic Boundaries
Philanthropic Foundations and Institutional Change under Rigid Authoritarianism
They Are Just Like You and Me
Reputation and Power
Boundaries of Contagion
Basic Interests
Why Americans Hate Welfare
Inclusion
Our Present Complaint
Between Politics and Science
A Note on Robust Variance Estimation for Cluster‐Correlated Data
Social Protest and Policy Change
How Social Movements Matter
Introduction
Interest Organizations, Information, and Policy Innovation in the U.S. Congress 1 2
Advocacy, Interpretation, and Influence in the U.S. Congress
Resources and Social Movement Mobilization
The Minority Rights Revolution
Protecting Soldiers and Mothers
Sorting Things Out
The Politics of Life Itself
The Ironies of Affirmative Action
Power in Movement
Patient Power
General Economic History
Using NTEE to classify non-profit organisations
Restricted and Elaborated Modes in the Cultural Analysis of Politics 1
Politics and Jobs
The Fight against Big Tobacco
Victims of the System
The Politics of Social Protest
Organizational Repertoires and Institutional Change
Policy‐Elite Perceptions and Social Movement Success
Advocacy Organizations in the U.S. Political Process
Interest Group Influence in the U. S. Congress
Movement Framing and Discursive Opportunity Structures
Biomedicalization
A New Political Sociology of Science
American Business, Public Policy, Case-Studies, and Political Theory
When Effect Becomes Cause
Labor Organization and Public Policy in the American States
Problem Definition, Agenda Access, and Policy Choice
Reconsidering Policy Design
General Economic History
Political Opportunity Structures and Political Protest
Beyond Deservingness
Evaluating Nonprofit Databases
The War at Home
Causal Stories and the Formation of Policy Agendas
The Handbook of Science and Technology Studies
The Winds of Change
Working from the inside out
Social Movements and Policy Implementation
Hate Crime Reporting as a Successful Social Movement Outcome
Inequality and American Democracy
Social Construction of Target Populations
Conceptualizing Political Opportunity
Cross-Cutting Influences of Environmental Protest and Legislation
Protest and Policymaking
Social Movement Size, Organizational Diversity and the Making of Federal Law
Organizational Diversity, Vitality and Outcomes in the Civil Rights Movement
Professional dominance and the limits of erosion
Political Process and the Development of Black Insurgency, 1930-1970
The Organizational State
The Strategy of Social Protest
Why Did Affirmative Action in Housing Fail during the Nixon Era? Exploring the 'Institutional Homes' of Social Policies
Social Movement Insiders
Movement-Countermovement Dynamics and the Emergence of New Institutions
Winner-Take-All Politics
Ideas, Politics, and Public Policy
The Study of Boundaries in the Social Sciences
Collective Identity and Social Movements
Framing Processes and Social Movements
Politics and Institutionalism
Commensuration as a Social Process
Politics and Culture
A World of Standards but not a Standard World
Policy Domains
The Political Consequences of Social Movements
Embodied health movements
Culture, Power, and Institutions
Health consumer groups in the UK
Social movements in health
Impure Science
Competition and Resource Partitioning in Three Social Movement Industries
Cultural Categories and the American Welfare State
Political Culture Wars 1960s Style
Resource Mobilization and Social Movements
The Outcomes of Homeless Mobilization
| Unique citing works | 56 |
|---|---|
| Citations per year | 4 |
| Citation span | 2012 - 2026 (15) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 56 |