Recruiting and Retaining People With Disabilities for Qualitative Health Research
Challenges and Solutions
Bibliographic Data
| ID | 4619422 |
|---|---|
| Authors | Jennifer R Banas (0000-0003-1289-9255, Northeastern Illinois University, Chicago, Illinois, USA, corresponding author), Susan Magasi (0000-0001-6386-2386, The University of Illinois at Chicago, Illinois, USA), Kim The (The University of Illinois at Chicago, Illinois, USA), Kimberly The (0000-0002-1679-0962, University of Illinois Chicago), David E Victorson (Northwestern University, Evanston, Illinois, USA), David Victorson (0000-0002-3530-8633, Northwestern University) |
| Year | 2019 |
| Volume | 29 |
| Issue | 7 |
| Pages | 1056-1064 |
| Publication date | 2019-06-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Qualitative Health Research (JOURNAL) |
| Journal identifiers | ISSN: 1049-7323 • E-ISSN: 1552-7557 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/1049732319833361 |
| PMID | 30862260 |
| OpenAlex | W2921874741 |
| Language | EN |
| Citations received | 20 |
| References cited | 57 |
There are 56.7 million people with disabilities (PWD) living in the United States; yet, PWD are significantly underrepresented in health research. Even when researchers purposively seek to include PWD in studies, challenges emerge related to recruitment and retention, leading to inadequate representation and surface understandings of this population. This in turn contributes to the perpetuation of implicit and explicit health disparities that are already experienced by this population. Grounded within a qualitative, community-based participatory health research framework, we highlight challenges associated with recruiting and retaining PWD in health research, including a critical analysis of the research enterprise structure, how this disables accessible research practices for PWD, and leads to continued skepticism among PWD regarding the value of participating in research. Finally, we propose solutions to create and maintain a culture of access and inclusion as well as long-term collaborative and equity-focused partnerships
Citizen journalism · Community-based participatory research · Environmental health · Grounded theory · Health equity · Participatory action research · Political science · Population · Public health · Public relations · Qualitative research · Skepticism · Social science · Sociology · Disability Rights and Representation · Down syndrome and intellectual disability research · Health Policy Implementation Science · Medicine · Nursing · Psychology · Social Psychology
Frameworks to analyse accessibility of public recreational spaces for persons with disabilities
A rapid review informing an assessment tool to support the inclusion of lived experience researchers in disability research
Non-disabled Space Invaders! A Study Critically Exploring the Scholarly Reporting of Research Attributes for Persons With and Without Disability
Community Inclusion for People with Intellectual and Developmental Disabilities
Shifting the discourse on disability
Ableism in the Child Welfare System
Working Conditions in Social Firms and Health Promotion Interventions in Relation to Employees’ Health and Work-Related Outcomes—A Scoping Review
Workplace Health Promotion in German Social Firms—Offers, Needs and Challenges from the Perspectives of Employees, Supervisors and Experts
One of My Basic Necessities of Life Is Work. That’s Just Broken Away.”—Explorative Triangulation of Personal and Work-Related Impacts for Supervisors and Disabled Employees in German Social Firms during the Covid-19 Pandemic
Bridging barriers
The impact of voice assistant home devices on people with disabilities
Supporting disabled parents and their families
Exploring the use of Ketso workshops and mobile methods in tourism research
The taboo of sexuality and the desire for parenthood of people with intellectual disabilities living in care facilities in France
Partnered Recruitment
Adjustments to and innovations in the implementation of qualitative research with people with disabilities
"They Didn't Ask." Rural Women With Disabilities and Experiences of Violence Describe Interactions With the Healthcare System
Healthcare Barriers Among Working-Age Persons with Disabilities in Trinidad
Sensitive, Challenging, and Difficult Topics
Reconceptualizing Recruitment in Qualitative Research
The Life Story Interview
Doing research inclusively
Conceptualizing Inclusive Research with People with Intellectual Disability
Environmental Barriers and Supports to Everyday Participation
Prenatal Care Use Among Women of Low Income
The Politics of Disablement
Using Focus Groups in Disability Research
Journal article reporting standards for qualitative primary, qualitative meta-analytic, and mixed methods research in psychology
You Can’t be Cold and Scientific”
Disability Research by Disabled and Non‐Disabled People
Problematizing Reflexivity, Validity, and Disclosure
Recruitment and consent of adults with intellectual disabilities in a classic grounded theory research study
The Researched Opinions on Research
What a Difference a Decade Makes
Persons With Disabilities as an Unrecognized Health Disparity Population
Parasites, Pawns and Partners
Ethics, "Vulnerability," and Feminist Participatory Action Research With a Disability Community
Researching Mental Health in Minority Ethnic Communities
Deaf Qualitative Health Research
In Their Own Voices
Determining Validity in Qualitative Inquiry
Finding the Hidden Participant
Beyond Words
Dyadic interviewing
| Unique citing works | 20 |
|---|---|
| Citations per year | 3,33 |
| Citation span | 2020 - 2026 (7) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 15 |