Participating in Research
Exploring Participation and Engagement in a Study of Self-Management for People With Chronic Obstructive Pulmonary Disease
Bibliographic Data
| ID | 4698804 |
|---|---|
| Authors | Karen Willis (0000-0001-8036-8814, University of Tasmania, corresponding author), Karen F Willis (University of Tasmania, Launceston, Australia), Andrew Robinson (0000-0003-3403-4674, University of Tasmania, Launceston, Australia), Richard Wood-Baker (University of Tasmania, Launceston, Australia), Richard Wood‐Baker (University of Tasmania), Paul Turner (0000-0001-9862-5161, University of Tasmania, Launceston, Australia), E Haydn Walters (0000-0002-0993-4374, University of Tasmania, Launceston, Australia) |
| Year | 2011 |
| Volume | 21 |
| Issue | 9 |
| Pages | 1273-1282 |
| Publication date | 2011-09-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Qualitative Health Research (JOURNAL) |
| Journal identifiers | ISSN: 1049-7323 • E-ISSN: 1552-7557 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/1049732311405216 |
| PMID | 21474655 |
| OpenAlex | W2101507923 |
| Language | EN |
| Citations received | 6 |
| References cited | 31 |
With growing emphasis on the importance of scientific evidence through clinical trials, qualitative studies have been used to deepen our understanding of research from participants' perspectives. For people with a chronic illness, research participation could represent an additional impost on lives already overwhelmed with medical and care issues, and little is known about participants' motivations when the research requires them to think differently about their illness and participate over an extended period. We interviewed participants with chronic obstructive pulmonary disease participating in a trial of a chronic disease self-management (CDSM) program. Our finding that people participate in research for altruistic reasons has similarities with other studies. We then extend our understanding of why people participate to explore how they participate. We argue that motivation based on dominant voluntaristic or altruistic values can be problematic for researchers attempting to demonstrate the benefits of CDSM strategies
Chronic disease · Family medicine · Political science · Public relations · Pulmonary disease · Qualitative research · Social science · Sociology · Diabetes Management and Education · Health Policy Implementation Science · Medicine · Mental Health and Patient Involvement · Psychology · Social Psychology
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| Unique citing works | 6 |
|---|---|
| Citations per year | 0,46 |
| Citation span | 2013 - 2018 (6) |
| Citation velocity | historical |
| Highly cited | No |
| Citation types | Neutral: 6 |