Enacting Varieties of Subjectivity Through Practices of Care
A Story of Living With Motor Neuron Disease
Bibliographic Data
| ID | 4722236 |
|---|---|
| Authors | D Sakellariou (0000-0002-2668-2834, Cardiff University, Cardiff, UK, corresponding author) |
| Year | 2016 |
| Volume | 26 |
| Issue | 14 |
| Pages | 1902-1910 |
| Publication date | 2016-12-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Qualitative Health Research (JOURNAL) |
| Journal identifiers | ISSN: 1049-7323 • E-ISSN: 1552-7557 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/1049732315584744 |
| PMID | 25918113 |
| OpenAlex | W2135067517 |
| Language | EN |
| Citations received | 5 |
| References cited | 40 |
People living with disability or chronic illness often use practices of care to construct a version of life they are satisfied with. Drawing from a narrative-based study with people living with motor neuron disease (MND), I show how one couple tried to be recognized as active agents in their life, although oscillating between positions of less and more power. Through an examination of the practices of care that the couple enacted, I illustrate how their positioning in relation to practices of care helped them create meaning in their life. In their efforts to create a way of living they were satisfied with, they engaged in negotiations between varieties of subjectivity. Their subjectivity was not static but was constructed as they shared power to carry out everyday self-care activities. The findings also underline the importance for health care practices of exploring the experiential knowledge of people living with MND
Epistemology · Health care · Narrative · Negotiation · Political science · Psychotherapist · Social science · Sociology · Subjectivity · Disability Rights and Representation · Foucault, Power, and Ethics · Medicine · Mental Health and Patient Involvement · Nursing · Psychology
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| Unique citing works | 5 |
|---|---|
| Citations per year | 0,63 |
| Citation span | 2018 - 2025 (8) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 5 |