Lessons from a community-based participatory research study with transgender and gender nonconforming youth and their families

Datos Bibliográficos

ID6134315
AutoresSabra L Katz-Wise (0000-0003-4825-6673, Division of Adolescent/Young Adult Medicine, Boston Children’s Hospital, Boston, MA, USA; Department of Pediatrics, Harvard Medical School, Boston, MA, USA; Department of Social and Behavioral Sciences, Harvard T. H. Chan School of Public Health, autor de correspondencia), Annie Pullen Sansfaçon (0000-0003-2286-8997, Université de Montréal), Laura M Bogart (0000-0003-3182-5542, RAND Corporation, Santa Monica, CA, USA), Milagros C Rosal (0000-0001-8497-5558, University of Massachusetts Chan Medical School), Diane Ehrensaft (0000-0003-2708-6310, University of California, San Francisco), Roberta E Goldman (0000-0001-7801-0530, Department of Family Medicine, Alpert Medical School of Brown University, Providence, RI, USA; Department of Social and Behavioral Sciences, Harvard T. H. Chan School of Public Health, Boston, MA, USA), B Austin (0000-0002-0830-5293, Division of Adolescent/Young Adult Medicine, Boston Children’s Hospital, Boston, MA, USA; Department of Pediatrics, Harvard Medical School; Department of Social and Behavioral Sciences, Harvard T. H. Chan School of Public Health, Boston, MA, USA)
Año2018
Volumen17
Número2
Páginas186-207
Fecha de publicación2018-12-22
Peer ReviewedSí
Open AccessSí
TipoARTICLE
RevistaAction Research (JOURNAL)
Identificadores de la revistaISSN: 1476-7503 • E-ISSN: 1741-2617
EditorialSAGE Publishing (PUBLISHER • US)
DOI10.1177/1476750318818875
PMID40303848
OpenAlexW2905633072
IdiomaEN
Citas recibidas10
Referencias citadas12

Community-based participatory research (CBPR) involves community members collaborating with academic investigators in each step of the research process. CBPR may be especially useful for research involving marginalized populations with unique perspectives and needs. In this paper, we discuss successes and challenges of using a CBPR approach for the Trans Teen and Family Narratives Project, a longitudinal mixed-methods study to examine how the family environment affects the health and well-being of transgender and gender nonconforming youth. We describe considerations for using a CBPR approach with this population, including defining the community of transgender and gender nonconforming youth and families, engaging the community in the research process, managing conflicting agendas for community partner meetings, addressing insider/outsider status of the researchers, resolving researcher/community tensions regarding data collection tools, integrating academic and community members into a cohesive research team, developing safety plans to address participant suicidality disclosures, and differentiating the role of academics as researchers vs. advocates. We conclude by sharing lessons learned, which can inform future research to address the needs of transgender and gender nonconforming youth and families

Community-based participatory research · Insider · Participatory action research · Political science · Population · Public relations · Sociology · Transgender · Gender Studies · Health Policy Implementation Science · Mental Health and Patient Involvement · Participatory Visual Research Methods · Psychology