Kelli Stajduhar
Datos Biográficos
| ID | 139368 |
|---|---|
| NOMBRE | Kelli Stajduhar |
| NOMBRES | Kelli |
| APELLIDO | Stajduhar |
| FIRMA | STAJDUHAR K |
| AFILIACIONES | University of Victoria |
| ORCID | 0000-0003-2381-4712 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 25 |
| TOTAL DE CITAS | 45 |
| TOTAL COMO AUTOR | 25 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 2004 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2026 |
| ÍNDICE H | 4 |
Exploring the factors that prevent or facilitate palliative care at ‘home’ for adults experiencing structural vulnerability
While most people express a preference to be cared for and die at home, not all people have access to a safe or stable home. Government policies often position home death as a proxy measure of quality end-of-life care, yet structurally vulnerable populations, including those who are precariously housed, homeless, or living in supportive or transitional housing, are frequently excluded from this possibility. This scoping review aims to summarize t…
There’s just such a mismatch”
Our findings highlight the mismatches between how cancer services are currently designed and delivered, and the specific needs of people experiencing health and social inequities. These findings also point to organizations delivering cancer services as potential sites for transformation toward more equitable access to cancer care. Equity-oriented healthcare may offer a framework for service design and delivery to improve access to cancer care and…
None of It Turned Out the Way She Wanted, So It Left a Hole in Me
Palliative care is undergoing shifts to identify and respond to social and structural inequities. Caregiving in a palliative context is steeped in assumptions that those who provide care are biologically or legally (biolegal) related, well‐resourced, and able to balance the many demands of work and life with caregiving. As families in the Western world change, people are increasingly looking outside their biolegal families for care. This is commo…
Bringing an Equity Lens to Participant Observation in Critical Ethnographic Health Research
Critically-oriented health research often engages participants whose lives are shaped by structural inequities and structural violence. As scholars who engage in critical theoretical, praxis-oriented research, including research with social justice and decolonizing aims, we are cognizant of the histories of exploitation and structural violence often perpetuated through research. To engage in research that effectively promotes health equity, we ar…
Painted in Broad Strokes
As eldercare was at the forefront of mainstream news media during the COVID-19 pandemic, these media accounts may draw on and/or further reshape public understandings of home care in Canada. A frame analysis informed by critical discourse theory was used to examine 56 English-language articles related to home care (March 2020–March 2021). Home care is often “tacked on” to discussions of long-term residential care and is constructed by what it is …
Barriers to cancer treatment and care for people experiencing structural vulnerability
Findings make visible the contextual and structural factors contributing to inequitable access to cancer treatment within a publically funded healthcare system. Identifying people who experience structural vulnerability, and approaches to delivering cancer services that are explicitly equity-oriented are urgently needed
Health and healthcare equity within the Canadian cancer care sector
Health and healthcare equity is a growing priority in the cancer care sector; however, conceptual clarity is needed to guide the development of robust equity goals, and the development of sustainable, measurable actions that redress inequities across the cancer control continuum. If we are to advance health and healthcare equity in the cancer care sector, a coordinated and integrated approach will be required to enact transformative and meaningfu…
Naturalizing dying at home for older adults
Public policy initiatives, opinion surveys, and public rhetoric in Canada suggest people wish to die at home. Discourse analysis of statements, policies, reports, and websites of municipal, provincial, and federal governments show how public policy narratives reflect specific understandings of dying at home. Dying is positioned as best kept within the private “home” space. Though frequently framed as a choice, subtle rhetoric also prioritizes hom…
A codevelopment process to advance methods for the use of patient‐reported outcome measures and patient‐reported experience measures with people who are homeless and experience chronic illness
INTRODUCTION: People who experience social disadvantage including homelessness suffer from numerous ill health effects when compared to the general public. Use of patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) enables collection of information from the point of view of the person receiving care. Involvement in research and health care decision-making, a process that can be facilitated by the use of PROM…
“We are to be like machines…fill the bed before it gets cold”
The end-of-life context is imbued with emotions, with death and dying transforming everyday places, like long-term care facilities, into entirely new emotional topographies that can evoke profound effects on those who live and work within these settings. Despite their significant role, healthcare providers' emotions and their interconnections with 'place' have received relatively little attention from researchers, including geographers of care an…
Knowledge translation resources to support the use of quality of life assessment tools for the care of older adults living at home and their family caregivers
Our study affirms the need to tailor KT resources on QOL assessment for different audiences. Our KT resources are available: www.healthyqol.com/older-adults
Micro-Meso-Macro Practice Tensions in Using Patient-Reported Outcome and Experience Measures in Hospital Palliative Care
This article applies a micro-meso-macro analytical framework to understand clinicians' experiences and perspectives of using patient-reported outcome and experience measures (PROMs and PREMs) in routine hospital-based palliative care. We structure our discussion through qualitative analysis of a design and implementation project for using an electronic tablet-based tool among hospital-based palliative clinicians to assess patients' and their fami…
Hospitals, clinics, and palliative care units
Gendered Processes in Hospice Palliative Home Care for Seniors With Cancer and Their Family Caregivers
There has been limited investigation into the processes that shape gender (in)equities in hospice palliative home care. As part of a larger critical ethnographic study, we examined how and why gender relations occur in this context. Using a critical feminist lens, we conducted in-depth interviews with clients living with terminal cancer, their family caregivers and primary nurses; observations of agency home visits; and review of institutional do…
Meaning-Making and Managing Difficult Feelings
Managing grief and difficult emotions related to end-of-life (EOL) care is an often under-recognized part of the work of resident care aides (RCAs). In this interpretive analysis we explore the shared and socially constructed ideas that 11 RCAs in 1 Canadian city employ to make sense of death and the provision of EOL care. RCAs spoke of personal challenges involved in witnessing death and experiencing loss, as well as helplessness and frustration…
Legitimising and rationalising in talk about satisfaction with formal healthcare among bereaved family members
While there is a fair amount of knowledge regarding substantive features of end of life care that family members desire and appreciate, we lack full understanding of the process whereby family members formulate care evaluations. In this article we draw on an analysis of interview data from 24 bereaved family members to explicate how they interpret their experiences and formulate evaluations of end of life care services. Most participants wove bet…
Canada's Compassionate Care Benefit
This study, from the perspective of family caregivers, demonstrates that the CCB is not living up to its full potential in sustaining informal P/EOL caregivers. Effort is required to transform the CCB so that it may fulfill the potential it holds for serving as one public health response to caregiver burden that forms part of a healthy public policy that addresses the determinants of this burden
Family caregivers’ ideal expectations of Canada’s Compassionate Care Benefit
We present the findings of 57 interviews conducted in 2007-2008 with Canadians who have cared for a dying family member to examine their ideal expectations of the Compassionate Care Benefit (CCB) - a social programme providing job security and income support for workers caring for a dying person. Our aims are to (1) appreciate how intended users and other family caregivers view the programme's very nature; (2) identify programme challenges and im…
Articulating the Role of Relationships in Access to Home Care Nursing at the End of Life
In this article, we draw on data collected from two samples of home care nurses to examine how relationships between nurses and family caregivers intersected with access to palliative home care nursing services. Participants referred to relationships as important for their practical benefits and for access to care: good relationships enhanced the nurse's ability to assess clients and families and fostered the family's trust in the nurse's care. A…
The influence of culture on home-based family caregiving at end-of-life
Resilience from the perspective of the illicit injection drug user
Interviewing Family Caregivers
Family caregiving tends to involve strong and often competing emotional experiences. Most of our knowledge of caregiving stems from interview research, much of it cross-sectional in nature. In this article we explore the implications of interviews as a research method for understanding caregiving. Specifically, we address difficulties in interpreting participants' talk about caregiving when this talk is simultaneously an articulation of experienc…
Patient Real-Time and 12-Month Retrospective Perceptions of Difficult Communications in the Cancer Diagnostic Period
Communication is a notoriously complex challenge in the cancer care context. Our program of research involves exploration of patient-provider communications across the cancer trajectory from the patient perspective.Toward this end, we have been following a cohort of 60 cancer patients, representing a range of tumor sites, from immediately after diagnosis through to recovery, chronic, or advanced disease. Drawing on interpretive description analyt…
Situated/being situated
Missed opportunities
Interviewing Family Caregivers
Family caregiving tends to involve strong and often competing emotional experiences. Most of our knowledge of caregiving stems from interview research, much of it cross-sectional in nature. In this article we explore the implications of interviews as a research method for understanding caregiving. Specifically, we address difficulties in interpreting participants' talk about caregiving when this talk is simultaneously an articulation of experienc…
The influence of culture on home-based family caregiving at end-of-life
Patient Real-Time and 12-Month Retrospective Perceptions of Difficult Communications in the Cancer Diagnostic Period
Communication is a notoriously complex challenge in the cancer care context. Our program of research involves exploration of patient-provider communications across the cancer trajectory from the patient perspective.Toward this end, we have been following a cohort of 60 cancer patients, representing a range of tumor sites, from immediately after diagnosis through to recovery, chronic, or advanced disease. Drawing on interpretive description analyt…
Situated/being situated
Micro-Meso-Macro Practice Tensions in Using Patient-Reported Outcome and Experience Measures in Hospital Palliative Care
This article applies a micro-meso-macro analytical framework to understand clinicians' experiences and perspectives of using patient-reported outcome and experience measures (PROMs and PREMs) in routine hospital-based palliative care. We structure our discussion through qualitative analysis of a design and implementation project for using an electronic tablet-based tool among hospital-based palliative clinicians to assess patients' and their fami…
Hospitals, clinics, and palliative care units
Gendered Processes in Hospice Palliative Home Care for Seniors With Cancer and Their Family Caregivers
There has been limited investigation into the processes that shape gender (in)equities in hospice palliative home care. As part of a larger critical ethnographic study, we examined how and why gender relations occur in this context. Using a critical feminist lens, we conducted in-depth interviews with clients living with terminal cancer, their family caregivers and primary nurses; observations of agency home visits; and review of institutional do…
Bringing an Equity Lens to Participant Observation in Critical Ethnographic Health Research
Critically-oriented health research often engages participants whose lives are shaped by structural inequities and structural violence. As scholars who engage in critical theoretical, praxis-oriented research, including research with social justice and decolonizing aims, we are cognizant of the histories of exploitation and structural violence often perpetuated through research. To engage in research that effectively promotes health equity, we ar…
Articulating the Role of Relationships in Access to Home Care Nursing at the End of Life
In this article, we draw on data collected from two samples of home care nurses to examine how relationships between nurses and family caregivers intersected with access to palliative home care nursing services. Participants referred to relationships as important for their practical benefits and for access to care: good relationships enhanced the nurse's ability to assess clients and families and fostered the family's trust in the nurse's care. A…
Legitimising and rationalising in talk about satisfaction with formal healthcare among bereaved family members
While there is a fair amount of knowledge regarding substantive features of end of life care that family members desire and appreciate, we lack full understanding of the process whereby family members formulate care evaluations. In this article we draw on an analysis of interview data from 24 bereaved family members to explicate how they interpret their experiences and formulate evaluations of end of life care services. Most participants wove bet…
Missed opportunities
Situated/being situated
Resilience from the perspective of the illicit injection drug user
Interviewing Family Caregivers
Family caregiving tends to involve strong and often competing emotional experiences. Most of our knowledge of caregiving stems from interview research, much of it cross-sectional in nature. In this article we explore the implications of interviews as a research method for understanding caregiving. Specifically, we address difficulties in interpreting participants' talk about caregiving when this talk is simultaneously an articulation of experienc…
Patient Real-Time and 12-Month Retrospective Perceptions of Difficult Communications in the Cancer Diagnostic Period
Communication is a notoriously complex challenge in the cancer care context. Our program of research involves exploration of patient-provider communications across the cancer trajectory from the patient perspective.Toward this end, we have been following a cohort of 60 cancer patients, representing a range of tumor sites, from immediately after diagnosis through to recovery, chronic, or advanced disease. Drawing on interpretive description analyt…
Canada's Compassionate Care Benefit
This study, from the perspective of family caregivers, demonstrates that the CCB is not living up to its full potential in sustaining informal P/EOL caregivers. Effort is required to transform the CCB so that it may fulfill the potential it holds for serving as one public health response to caregiver burden that forms part of a healthy public policy that addresses the determinants of this burden
Family caregivers’ ideal expectations of Canada’s Compassionate Care Benefit
We present the findings of 57 interviews conducted in 2007-2008 with Canadians who have cared for a dying family member to examine their ideal expectations of the Compassionate Care Benefit (CCB) - a social programme providing job security and income support for workers caring for a dying person. Our aims are to (1) appreciate how intended users and other family caregivers view the programme's very nature; (2) identify programme challenges and im…
Articulating the Role of Relationships in Access to Home Care Nursing at the End of Life
In this article, we draw on data collected from two samples of home care nurses to examine how relationships between nurses and family caregivers intersected with access to palliative home care nursing services. Participants referred to relationships as important for their practical benefits and for access to care: good relationships enhanced the nurse's ability to assess clients and families and fostered the family's trust in the nurse's care. A…
The influence of culture on home-based family caregiving at end-of-life
Legitimising and rationalising in talk about satisfaction with formal healthcare among bereaved family members
While there is a fair amount of knowledge regarding substantive features of end of life care that family members desire and appreciate, we lack full understanding of the process whereby family members formulate care evaluations. In this article we draw on an analysis of interview data from 24 bereaved family members to explicate how they interpret their experiences and formulate evaluations of end of life care services. Most participants wove bet…
Meaning-Making and Managing Difficult Feelings
Managing grief and difficult emotions related to end-of-life (EOL) care is an often under-recognized part of the work of resident care aides (RCAs). In this interpretive analysis we explore the shared and socially constructed ideas that 11 RCAs in 1 Canadian city employ to make sense of death and the provision of EOL care. RCAs spoke of personal challenges involved in witnessing death and experiencing loss, as well as helplessness and frustration…
Gendered Processes in Hospice Palliative Home Care for Seniors With Cancer and Their Family Caregivers
There has been limited investigation into the processes that shape gender (in)equities in hospice palliative home care. As part of a larger critical ethnographic study, we examined how and why gender relations occur in this context. Using a critical feminist lens, we conducted in-depth interviews with clients living with terminal cancer, their family caregivers and primary nurses; observations of agency home visits; and review of institutional do…
Hospitals, clinics, and palliative care units
Micro-Meso-Macro Practice Tensions in Using Patient-Reported Outcome and Experience Measures in Hospital Palliative Care
This article applies a micro-meso-macro analytical framework to understand clinicians' experiences and perspectives of using patient-reported outcome and experience measures (PROMs and PREMs) in routine hospital-based palliative care. We structure our discussion through qualitative analysis of a design and implementation project for using an electronic tablet-based tool among hospital-based palliative clinicians to assess patients' and their fami…
“We are to be like machines…fill the bed before it gets cold”
The end-of-life context is imbued with emotions, with death and dying transforming everyday places, like long-term care facilities, into entirely new emotional topographies that can evoke profound effects on those who live and work within these settings. Despite their significant role, healthcare providers' emotions and their interconnections with 'place' have received relatively little attention from researchers, including geographers of care an…
Knowledge translation resources to support the use of quality of life assessment tools for the care of older adults living at home and their family caregivers
Our study affirms the need to tailor KT resources on QOL assessment for different audiences. Our KT resources are available: www.healthyqol.com/older-adults
A codevelopment process to advance methods for the use of patient‐reported outcome measures and patient‐reported experience measures with people who are homeless and experience chronic illness
INTRODUCTION: People who experience social disadvantage including homelessness suffer from numerous ill health effects when compared to the general public. Use of patient-reported outcome measures (PROMs) and patient-reported experience measures (PREMs) enables collection of information from the point of view of the person receiving care. Involvement in research and health care decision-making, a process that can be facilitated by the use of PROM…
Painted in Broad Strokes
As eldercare was at the forefront of mainstream news media during the COVID-19 pandemic, these media accounts may draw on and/or further reshape public understandings of home care in Canada. A frame analysis informed by critical discourse theory was used to examine 56 English-language articles related to home care (March 2020–March 2021). Home care is often “tacked on” to discussions of long-term residential care and is constructed by what it is …
Barriers to cancer treatment and care for people experiencing structural vulnerability
Findings make visible the contextual and structural factors contributing to inequitable access to cancer treatment within a publically funded healthcare system. Identifying people who experience structural vulnerability, and approaches to delivering cancer services that are explicitly equity-oriented are urgently needed
Health and healthcare equity within the Canadian cancer care sector
Health and healthcare equity is a growing priority in the cancer care sector; however, conceptual clarity is needed to guide the development of robust equity goals, and the development of sustainable, measurable actions that redress inequities across the cancer control continuum. If we are to advance health and healthcare equity in the cancer care sector, a coordinated and integrated approach will be required to enact transformative and meaningfu…
Naturalizing dying at home for older adults
Public policy initiatives, opinion surveys, and public rhetoric in Canada suggest people wish to die at home. Discourse analysis of statements, policies, reports, and websites of municipal, provincial, and federal governments show how public policy narratives reflect specific understandings of dying at home. Dying is positioned as best kept within the private “home” space. Though frequently framed as a choice, subtle rhetoric also prioritizes hom…
Bringing an Equity Lens to Participant Observation in Critical Ethnographic Health Research
Critically-oriented health research often engages participants whose lives are shaped by structural inequities and structural violence. As scholars who engage in critical theoretical, praxis-oriented research, including research with social justice and decolonizing aims, we are cognizant of the histories of exploitation and structural violence often perpetuated through research. To engage in research that effectively promotes health equity, we ar…
There’s just such a mismatch”
Our findings highlight the mismatches between how cancer services are currently designed and delivered, and the specific needs of people experiencing health and social inequities. These findings also point to organizations delivering cancer services as potential sites for transformation toward more equitable access to cancer care. Equity-oriented healthcare may offer a framework for service design and delivery to improve access to cancer care and…
None of It Turned Out the Way She Wanted, So It Left a Hole in Me
Palliative care is undergoing shifts to identify and respond to social and structural inequities. Caregiving in a palliative context is steeped in assumptions that those who provide care are biologically or legally (biolegal) related, well‐resourced, and able to balance the many demands of work and life with caregiving. As families in the Western world change, people are increasingly looking outside their biolegal families for care. This is commo…
Exploring the factors that prevent or facilitate palliative care at ‘home’ for adults experiencing structural vulnerability
While most people express a preference to be cared for and die at home, not all people have access to a safe or stable home. Government policies often position home death as a proxy measure of quality end-of-life care, yet structurally vulnerable populations, including those who are precariously housed, homeless, or living in supportive or transitional housing, are frequently excluded from this possibility. This scoping review aims to summarize t…
Medicine (22 obras) · Psychology (19 obras) · Nursing (17 obras) · Health care (13 obras) · Palliative Care and End-of-Life Issues (13 obras) · Political science (13 obras) · Sociology (13 obras) · Geriatric Care and Nursing Homes (9 obras) · Grief, Bereavement, and Mental Health (9 obras) · Palliative care (8 obras)