Enid K Selkirk
Datos Biográficos
| ID | 141116 |
|---|---|
| NOMBRE | Enid K Selkirk |
| NOMBRES | Enid K |
| APELLIDO | Selkirk |
| FIRMA | SELKIRK E K |
| AFILIACIONES | McMaster University |
| ORCID | 0000-0002-6624-8194 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 6 |
| TOTAL DE CITAS | 13 |
| OBRAS COMO AUTOR | 6 |
| OBRAS COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 2006 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2026 |
| ÍNDICE H | 2 |
Voxe
Background: Voxe is a novel, child- and healthcare provider (HCP)-friendly, electronic patient-reported outcome measure (ePROM) platform developed via a user-centric approach to create a digital platform that engages and empowers patients and HCPs. Approach: Iterative rounds of co-design and usability testing guided the rigorous, user-centered development of Voxe. During testing, end users (i.e., patients and HCPs) completed task-based activities…
Patient-reported outcome measures in pediatric solid organ transplantation
This study contributes to current research that supports the use of PROMs in clinical pediatric care and guides their effective implementation into practice. Future directions include the development, usability testing, and evaluation of a proposed electronic PROM platform that will inform future research initiatives
Quality of life of pediatric oncology patients
The Coconstruction of Couples' Roles in Parenting Children With a Chronic Health Condition
In this study we explored the ways that mothers and fathers of children who have a chronic health condition coconstructed their parenting roles. We wanted to move beyond the standard focus on individual parenting behaviors and use a grounded theory approach to better capture the dyadic and interpersonal gestalt of how parents worked out their roles. We explored multiple factors that influenced their decision making and the unique models that each…
The Lived Experiences of Children and Adolescents With End-Stage Renal Disease
Relatively little is known about how children perceive and manage end-stage renal disease (ESRD) in daily life. To address this gap in the literature, the experiences and perceptions of children with ESRD were examined in this study. Study design comprised ethnographic interviews with 25 children and adolescents ages 7 to 18 years. Semistructured interviews were audiotaped, transcribed verbatim, and subjected to content analysis. Participants rec…
When Family-Centered Care Is Challenged by Infectious Disease
In this ethnographic study, the authors examined the experiences and perspectives of children hospitalized because of SARS (severe acute respiratory syndrome), their parents, and pediatric health care providers. The sample included 5 children, 10 parents, and 8 health care providers who were directly affected by SARS during the time of the outbreaks and extreme infection control procedures. The data analyses illuminated a range of perceived exper…
The Lived Experiences of Children and Adolescents With End-Stage Renal Disease
Relatively little is known about how children perceive and manage end-stage renal disease (ESRD) in daily life. To address this gap in the literature, the experiences and perceptions of children with ESRD were examined in this study. Study design comprised ethnographic interviews with 25 children and adolescents ages 7 to 18 years. Semistructured interviews were audiotaped, transcribed verbatim, and subjected to content analysis. Participants rec…
When Family-Centered Care Is Challenged by Infectious Disease
In this ethnographic study, the authors examined the experiences and perspectives of children hospitalized because of SARS (severe acute respiratory syndrome), their parents, and pediatric health care providers. The sample included 5 children, 10 parents, and 8 health care providers who were directly affected by SARS during the time of the outbreaks and extreme infection control procedures. The data analyses illuminated a range of perceived exper…
The Coconstruction of Couples' Roles in Parenting Children With a Chronic Health Condition
In this study we explored the ways that mothers and fathers of children who have a chronic health condition coconstructed their parenting roles. We wanted to move beyond the standard focus on individual parenting behaviors and use a grounded theory approach to better capture the dyadic and interpersonal gestalt of how parents worked out their roles. We explored multiple factors that influenced their decision making and the unique models that each…
When Family-Centered Care Is Challenged by Infectious Disease
In this ethnographic study, the authors examined the experiences and perspectives of children hospitalized because of SARS (severe acute respiratory syndrome), their parents, and pediatric health care providers. The sample included 5 children, 10 parents, and 8 health care providers who were directly affected by SARS during the time of the outbreaks and extreme infection control procedures. The data analyses illuminated a range of perceived exper…
The Lived Experiences of Children and Adolescents With End-Stage Renal Disease
Relatively little is known about how children perceive and manage end-stage renal disease (ESRD) in daily life. To address this gap in the literature, the experiences and perceptions of children with ESRD were examined in this study. Study design comprised ethnographic interviews with 25 children and adolescents ages 7 to 18 years. Semistructured interviews were audiotaped, transcribed verbatim, and subjected to content analysis. Participants rec…
The Coconstruction of Couples' Roles in Parenting Children With a Chronic Health Condition
In this study we explored the ways that mothers and fathers of children who have a chronic health condition coconstructed their parenting roles. We wanted to move beyond the standard focus on individual parenting behaviors and use a grounded theory approach to better capture the dyadic and interpersonal gestalt of how parents worked out their roles. We explored multiple factors that influenced their decision making and the unique models that each…
Quality of life of pediatric oncology patients
Patient-reported outcome measures in pediatric solid organ transplantation
This study contributes to current research that supports the use of PROMs in clinical pediatric care and guides their effective implementation into practice. Future directions include the development, usability testing, and evaluation of a proposed electronic PROM platform that will inform future research initiatives
Voxe
Background: Voxe is a novel, child- and healthcare provider (HCP)-friendly, electronic patient-reported outcome measure (ePROM) platform developed via a user-centric approach to create a digital platform that engages and empowers patients and HCPs. Approach: Iterative rounds of co-design and usability testing guided the rigorous, user-centered development of Voxe. During testing, end users (i.e., patients and HCPs) completed task-based activities…
Childhood Cancer Survivors' Quality of Life (4 obras) · Medicine (4 obras) · Family and Disability Support Research (3 obras) · Health care (3 obras) · Nursing (3 obras) · Patient-reported outcome (3 obras) · Psychology (3 obras) · Qualitative research (3 obras) · Adolescent and Pediatric Healthcare (2 obras) · Developmental psychology (2 obras)