F Rapport
Datos Biográficos
| ID | 14704 |
|---|---|
| NOMBRE | F Rapport |
| NOMBRES | F |
| APELLIDO | Rapport |
| FIRMA | RAPPORT F |
| AFILIACIONES | Swansea University |
| ORCID | 0000-0002-4428-2826 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 41 |
| TOTAL DE CITAS | 93 |
| TOTAL COMO AUTOR | 41 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 1998 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2024 |
| ÍNDICE H | 6 |
The (in)visibility of deafness
INTRODUCTION: The disclosure of deafness is complex, given the historic and on-going stigma associated with being deaf. The aim of this study was to explore how identity, stigma, and quality of life may be impacted when using cochlear implants (CIs) and totally implantable cochlear implants (TICIs). The physical difference between these two assistive listening devices is significant, given many CI users opt to hide their sound processor behind ha…
Integrated Care in Epilepsy Management
Introduction: Epilepsy is the most common neurological condition globally. Integrating health and social care is fundamental in epilepsy management, but the scope of progress in this area is unclear. This scoping review aimed to capture the range and type of integrated care components and models in epilepsy management. Methods: Four databases were searched for articles published since 2010 that reported on integrated care in epilepsy. Data were e…
Determinants of women’s agency in accessing and utilising reproductive healthcare services; a systematic review
Impact of Agency on Iranian Women’s Access to and Utilisation of Reproductive Healthcare Services
Integrated care in epilepsy
Introduction: Epilepsy is the most common neurological condition globally, and is associated with significant behavioural, physical, and psychological burden. People living with epilepsy and their families often face extreme difficulty receiving timely and efficient healthcare due to the fragmented nature of epilepsy care delivery and the predominance of hospital-based services. The need to integrate epilepsy care services across healthcare secto…
The impact of migration and settlement context on Iranian Women's agency in accessing and using reproductive healthcare services in Australia
The Voices of Stakeholders Involved in Precision Medicine
We report a novel approach of amalgamating implementation outcomes of acceptability and fidelity alongside context as a new way of qualitatively evaluating implementation outcomes and context of a precision medicine intervention. A rapid qualitative online proforma was co-designed with stakeholders and sent to a purposive sample of healthcare professionals involved in an early-phase clinical trial intervention. Data were analysed using Framework …
Re-Imagining the Data Collection and Analysis Research Process by Proposing a Rapid Qualitative Data Collection and Analytic Roadmap Applied to the Dynamic Context of Precision Medicine
Our implementation science study focuses on implementing a new way of practice and offers methodological specificity about how to rapidly investigate an individually tailored precision medicine intervention. A qualitative study advancing a new methodology for speedily identifying barriers and enablers to implementation in the context of childhood cancer. Data were collected through rapid ethnography, coded using the Consolidated Framework for Imp…
Parent recommendations to support physical activity for families with young children
BACKGROUND: Physical inactivity is the fourth leading cause of mortality worldwide. Early childhood is a critical period when healthy behaviours can be instilled for a future active lifestyle. We explored community, societal and environmental factors affecting child and family physical activity and sought parent recommendations to support physical activity in families with young children. METHODS: We interviewed 61 parents expecting a child or wi…
It’s Always About the Eating Disorder
Appraising risk in active surveillance of localized prostate cancer
OBJECTIVES: Men diagnosed with low-risk prostate cancer are typically eligible for active surveillance of their cancer, involving monitoring for cancer progression and making judgements about the risks of prostate cancer against those of active intervention. Our study examined how risk for prostate cancer is perceived and experienced by patients undergoing active surveillance with their clinicians, how risk is communicated in clinical consultatio…
How Are University Gyms Used by Staff and Students? A Mixed-Method Study Exploring Gym Use, Motivation, and Communication in Three UK Gyms
This study examined university gym use by staff and students using mixed methods: participant observation and an e-survey. Research in three UK universities entailed 16 observation sessions and an e-survey that reached 3396 students and staff. The research focused on gym use, the gym environment, the presentation of the self, and social interaction within gym spaces. The gyms were found to have a difficult role to play in providing functionality …
Women's Perceptions of Journeying Toward an Unknown Future With Breast Cancer
Breast cancer risk classifications are useful for prognosis, yet little is known of their effect on patients. This study clarified women's understandings of risk as they "journeyed" through the health care system. Breast cancer patients and women undergoing genetic investigation were recruited ( N = 25) from a large UK Health Board, 2014-2015, completing a "Book of Experience," and Bio-photographic elicitation interviews. Stakeholder and Particip…
Life according to ME
In this article, we explore the role of 'place' in shaping people's illness experiences through a data-led inductive case-study based on experiential data from people living with myalgic encephalomyelitis (ME) in Norway. Our main aim is to understand how they experience, interpret and attach meaning to various places in which they reside, and how they construct the course of a life influenced by chronic illness. The study is based on stories cont…
Parental recommendations for population level interventions to support infant and family dietary choices
There is a need for parent directed community/population level interventions that aims to reduce socio-ecological barriers to making healthy dietary choices. Parents desired improvements in meals provided in workplaces, schools and hospitals, as well as increased access to healthy foods by increasing local healthy food outlets and reducing unhealthy, fast food outlets. Knowledge and skills could then be enhanced in line with these improvements, w…
Community led active schools programme (CLASP) exploring the implementation of health interventions in primary schools
This work explores schools' perspectives regarding the implementation of health interventions and utilises these thoughts to create guidelines for developing future school-based interventions. Recommendations include the need to account for variability between school environments, staff and pupils. Interventions with an element of adaptability were preferred over the delivery of blanket fixed interventions. Involving schools in the developmental …
Complex and dynamic times of being chronically ill
Mothers’ perspectives on the delivery of childhood injury messages
The findings suggest that timely childhood injury-related risk messages should be delivered during pregnancy and in line with developmental milestones of the child, through a range of sources including social networks, mass media, face-to-face advice from health professionals and other suitably trained mothers. In addition information on the safe use of home appliances around children and use of child safety equipment should be targeted specifica…
Suicide communication events
Costs and effects of a 'healthy living' approach to community development in two deprived communities
The intervention was feasible and inexpensive, with indications of potential impact at individual, community and policy planning levels. However, it is a long term process which requires sustained investment and must be embedded in planning and service delivery processes
Recommendations to improve physical activity among teenagers- A qualitative study with ethnic minority and European teenagers
This study takes a child-focused approach to explore how interventions should be designed to promote physical activity in youth. Interventions need to improve access to facilities but also counteract attitudes that teenagers should be studying or working and not 'hanging about' playing with friends. Thus, the value of activity for teenagers needs to be promoted not just among the teenagers but with their teachers, parents and members of the commu…
Poetics of Memory
This article defends literary experimentation through poetics, suggesting it is both valid and powerful for re‐presenting social data. The article concentrates on methodological debates surrounding the use of poetics in social science studies, contextualizing the theoretical with exemplars taken from a study of Holocaust survivors' life stories that aimed to clarify whether notions of health and well‐being were in evidence in survivor testimony. …
Evaluating Innovations in the Delivery and Organization of Endoscopy Services in England and Wales
This article presents four focus groups conducted with health professionals, part of a mixed-method evaluation of modernization of endoscopy services in England catalyzed by the UK National Health Service Modernisation Agency. Transcripts were analyzed adapting van Manen's "sententious" or "wholistic" approach to thematic analysis. Seven analysts worked to distil lengthy transcripts into summative paragraphs to capture the essentiality of text. F…
“Public” perceptions of gamete donation
This paper reviews the literature on “public” perceptions of the practice of gamete (egg and sperm) donation in the treatment of infertility. Despite regular “consultation” exercises in the UK on the manner in which infertility treatments should be regulated, there is little sense of how a range of public groups respond to developments in this area. The key themes from thirty-three articles, chapters and reports are discussed. The review reveals …
“Nothing to Look Forward to”
Did I tell you how I got home to Hungary? I was freed. War ended, beginning of May. Started to walk towards home, it was a clear night at the border. In the farmer's garden the stars were in the sky. They'd just had their supper and the stars were in the sky. A group of women from the camp, we had to beg for morsels. I was Jewish you see, I have my tattoo, had nothing to look forward to. Didn't I tell you? I talked to God. Arrived finally in Card…
Snapshots and snippets
Suicide communication events
Using Focus Groups With Minority Ethnic Communities
Little attention has been given to the specific methodological issues that can accompany the use of focus groups with minority ethnic communities in the United Kingdom. In this article, the authors discuss the use of this method in a study of the provision of infertility services to South Asian communities in three English cities. Focus groups are an invaluable research method for working in a diverse linguistic and cultural environment, providin…
Of the edgelands”
In an editorial in a previous issue of this journal Rapport et al introduced the metaphor of the edgelands, arguing that the area between urban and rural landscapes serves to illustrate some of the difficulties of interdisciplinarity experienced by those who work in the medical humanities. In this paper the authors explore some specific issues of qualitative research methodology in health care research. The paper describes a broadening out of the…
Convenient space” or “a tight squeeze”
Life according to ME
In this article, we explore the role of 'place' in shaping people's illness experiences through a data-led inductive case-study based on experiential data from people living with myalgic encephalomyelitis (ME) in Norway. Our main aim is to understand how they experience, interpret and attach meaning to various places in which they reside, and how they construct the course of a life influenced by chronic illness. The study is based on stories cont…
It’s Always About the Eating Disorder
Narrating the Holocaust
This paper considers the scope of poetic representation for exploring notions of health and wellbeing in the testimony of Holocaust survivors. The paper is based on the representation, through poetic form, of testimony derived from multiple in-depth interviews with a Holocaust survivor, Anka, in south-east Wales. This paper concentrates on two of those interviews, the first a life story and the second an interview focusing on health, illness and …
Re-Imagining the Data Collection and Analysis Research Process by Proposing a Rapid Qualitative Data Collection and Analytic Roadmap Applied to the Dynamic Context of Precision Medicine
Our implementation science study focuses on implementing a new way of practice and offers methodological specificity about how to rapidly investigate an individually tailored precision medicine intervention. A qualitative study advancing a new methodology for speedily identifying barriers and enablers to implementation in the context of childhood cancer. Data were collected through rapid ethnography, coded using the Consolidated Framework for Imp…
Women's Perceptions of Journeying Toward an Unknown Future With Breast Cancer
Breast cancer risk classifications are useful for prognosis, yet little is known of their effect on patients. This study clarified women's understandings of risk as they "journeyed" through the health care system. Breast cancer patients and women undergoing genetic investigation were recruited ( N = 25) from a large UK Health Board, 2014-2015, completing a "Book of Experience," and Bio-photographic elicitation interviews. Stakeholder and Particip…
Challenges to UK community pharmacy
This paper presents a novel, qualitative, bio-photographic study with intertextual analysis highlighting the relationship between community pharmacy workspace and practice. Sixteen pharmacists working across pharmacy types such as independent shops, large and small pharmacy chains and multiple pharmacies such as those in supermarkets participated in data capture and feedback consultation. Findings disclosed workspaces unfit for purpose and a work…
Complex and dynamic times of being chronically ill
Evaluating Innovations in the Delivery and Organization of Endoscopy Services in England and Wales
This article presents four focus groups conducted with health professionals, part of a mixed-method evaluation of modernization of endoscopy services in England catalyzed by the UK National Health Service Modernisation Agency. Transcripts were analyzed adapting van Manen's "sententious" or "wholistic" approach to thematic analysis. Seven analysts worked to distil lengthy transcripts into summative paragraphs to capture the essentiality of text. F…
From manila to monitor
This article presents a study that explores how general practitioners (GPs) reflect on their workspaces and what that tells us about how professional practice is enacted. The study employed biography as its data collection method to enable three pilot and nine other GPs from the Swansea Region in the UK to write about their consulting rooms. Thematic analysis of biographies, employing individual and group analysis sessions, revealed eleven themes…
The view from the edgelands
Medical humanities is characterised as occupying the “edgelands” between science and the humanities In a discussion of the built landscape, Shoard has coined the expression “the edgelands” to describe that interesting area to be found on the outskirts of towns, between rural and urban areas. This area is: “an interfacial rim...characterised by rubbish tips and warehouses, superstores and derelict industrial plant, office parks and gypsy encampmen…
Impact of Agency on Iranian Women’s Access to and Utilisation of Reproductive Healthcare Services
The nature of self and how it is experienced within and beyond the health care setting
The nature or self within and beyond the health care setting In his recent book “The healing tradition” David Greaves 1, a former editor of this journal, describes accompanying a hospital consultant on a ward round. He describes how the consultant, having been through the notes, charts, x-rays, and lab reports, sat on the edge of the bed, took the patient’s hand and asked “And how are you feeling in yourself?” To a lay person such a question may …
In-house referral
Special thematic issue of Medical Humanities
In his new book, Making Stories: Law, Literature, Life , Jerome Bruner claims that the “self is a perpetually rewritten story”. We are all constantly engaged in “self making narrative”, in the end becoming “the autobiographical narratives by which we ‘tell about’ our lives”.1 Galen Strawson, Professor of Philosophy at the University of Reading, reviewing the book for The Guardian newspaper takes a very different line. Strawson says: “Every consci…
The view from the edgelands
Medical humanities is characterised as occupying the “edgelands” between science and the humanities In a discussion of the built landscape, Shoard has coined the expression “the edgelands” to describe that interesting area to be found on the outskirts of towns, between rural and urban areas. This area is: “an interfacial rim...characterised by rubbish tips and warehouses, superstores and derelict industrial plant, office parks and gypsy encampmen…
The Option scale
Objective To examine the psychometric properties of a revised scale, named ‘observing patient involvement in decision making’ (OPTION), by analysing its reapplication to a sample of routine primary care consultations. The OPTION instrument assesses to what degree clinicians involve patients in decision making. Design Cross‐sectional assessment of medical interaction by two calibrated raters. Setting Primary care. Participants Twenty‐one general p…
The nature of self and how it is experienced within and beyond the health care setting
The nature or self within and beyond the health care setting In his recent book “The healing tradition” David Greaves 1, a former editor of this journal, describes accompanying a hospital consultant on a ward round. He describes how the consultant, having been through the notes, charts, x-rays, and lab reports, sat on the edge of the bed, took the patient’s hand and asked “And how are you feeling in yourself?” To a lay person such a question may …
Of the edgelands”
In an editorial in a previous issue of this journal Rapport et al introduced the metaphor of the edgelands, arguing that the area between urban and rural landscapes serves to illustrate some of the difficulties of interdisciplinarity experienced by those who work in the medical humanities. In this paper the authors explore some specific issues of qualitative research methodology in health care research. The paper describes a broadening out of the…
Decision aids for familial breast cancer
Background There is increasing need for accessible information about familial breast cancer for those facing complex decisions around genetic testing, screening and treatment. Information currently includes leaflets and computerized decision aids, offering interactive interfaces to clarify complex choices. Objective Exploration of users’ views and reactions to three decision aids for genetic testing for breast cancer using focus groups. Setting A…
Snapshots and snippets
From manila to monitor
This article presents a study that explores how general practitioners (GPs) reflect on their workspaces and what that tells us about how professional practice is enacted. The study employed biography as its data collection method to enable three pilot and nine other GPs from the Swansea Region in the UK to write about their consulting rooms. Thematic analysis of biographies, employing individual and group analysis sessions, revealed eleven themes…
Using Focus Groups With Minority Ethnic Communities
Little attention has been given to the specific methodological issues that can accompany the use of focus groups with minority ethnic communities in the United Kingdom. In this article, the authors discuss the use of this method in a study of the provision of infertility services to South Asian communities in three English cities. Focus groups are an invaluable research method for working in a diverse linguistic and cultural environment, providin…
Honorable Mention
Getting involved means making a difference?’ Insider views on the impact of a ‘healthy living’ community intervention
Addressing inequalities in health has featured strongly in UK health care policy over recent years, and efforts to consider inequalities at ‘ground level’ are increasingly evident. This includes enhancing primary care and other community-based services and emphasising consultation at community levels. The Healthy Living Approach to community development in Pembrokeshire, West Wales, was initiated and evaluated as part of the Welsh Assembly Govern…
Convenient space” or “a tight squeeze”
“Public” perceptions of gamete donation
This paper reviews the literature on “public” perceptions of the practice of gamete (egg and sperm) donation in the treatment of infertility. Despite regular “consultation” exercises in the UK on the manner in which infertility treatments should be regulated, there is little sense of how a range of public groups respond to developments in this area. The key themes from thirty-three articles, chapters and reports are discussed. The review reveals …
“Nothing to Look Forward to”
Did I tell you how I got home to Hungary? I was freed. War ended, beginning of May. Started to walk towards home, it was a clear night at the border. In the farmer's garden the stars were in the sky. They'd just had their supper and the stars were in the sky. A group of women from the camp, we had to beg for morsels. I was Jewish you see, I have my tattoo, had nothing to look forward to. Didn't I tell you? I talked to God. Arrived finally in Card…
Public involvement in suicide prevention
The study will inform interventions to promote public mental health awareness and will provide a basis on which to develop community-focussed suicide prevention strategies
Challenges to UK community pharmacy
This paper presents a novel, qualitative, bio-photographic study with intertextual analysis highlighting the relationship between community pharmacy workspace and practice. Sixteen pharmacists working across pharmacy types such as independent shops, large and small pharmacy chains and multiple pharmacies such as those in supermarkets participated in data capture and feedback consultation. Findings disclosed workspaces unfit for purpose and a work…
Narrating the Holocaust
This paper considers the scope of poetic representation for exploring notions of health and wellbeing in the testimony of Holocaust survivors. The paper is based on the representation, through poetic form, of testimony derived from multiple in-depth interviews with a Holocaust survivor, Anka, in south-east Wales. This paper concentrates on two of those interviews, the first a life story and the second an interview focusing on health, illness and …
Poetics of Memory
This article defends literary experimentation through poetics, suggesting it is both valid and powerful for re‐presenting social data. The article concentrates on methodological debates surrounding the use of poetics in social science studies, contextualizing the theoretical with exemplars taken from a study of Holocaust survivors' life stories that aimed to clarify whether notions of health and well‐being were in evidence in survivor testimony. …
Evaluating Innovations in the Delivery and Organization of Endoscopy Services in England and Wales
This article presents four focus groups conducted with health professionals, part of a mixed-method evaluation of modernization of endoscopy services in England catalyzed by the UK National Health Service Modernisation Agency. Transcripts were analyzed adapting van Manen's "sententious" or "wholistic" approach to thematic analysis. Seven analysts worked to distil lengthy transcripts into summative paragraphs to capture the essentiality of text. F…
Costs and effects of a 'healthy living' approach to community development in two deprived communities
The intervention was feasible and inexpensive, with indications of potential impact at individual, community and policy planning levels. However, it is a long term process which requires sustained investment and must be embedded in planning and service delivery processes
Recommendations to improve physical activity among teenagers- A qualitative study with ethnic minority and European teenagers
This study takes a child-focused approach to explore how interventions should be designed to promote physical activity in youth. Interventions need to improve access to facilities but also counteract attitudes that teenagers should be studying or working and not 'hanging about' playing with friends. Thus, the value of activity for teenagers needs to be promoted not just among the teenagers but with their teachers, parents and members of the commu…
Suicide communication events
Mothers’ perspectives on the delivery of childhood injury messages
The findings suggest that timely childhood injury-related risk messages should be delivered during pregnancy and in line with developmental milestones of the child, through a range of sources including social networks, mass media, face-to-face advice from health professionals and other suitably trained mothers. In addition information on the safe use of home appliances around children and use of child safety equipment should be targeted specifica…
Parental recommendations for population level interventions to support infant and family dietary choices
There is a need for parent directed community/population level interventions that aims to reduce socio-ecological barriers to making healthy dietary choices. Parents desired improvements in meals provided in workplaces, schools and hospitals, as well as increased access to healthy foods by increasing local healthy food outlets and reducing unhealthy, fast food outlets. Knowledge and skills could then be enhanced in line with these improvements, w…
Medicine (29 obras) · Sociology (24 obras) · Psychology (20 obras) · Political science (19 obras) · Nursing (18 obras) · Qualitative research (18 obras) · Computer Science (15 obras) · Public relations (12 obras) · Mental Health and Patient Involvement (8 obras) · Thematic analysis (8 obras)