Barbara E Gibson
Datos Biográficos
| ID | 169208 |
|---|---|
| NOMBRE | Barbara E Gibson |
| NOMBRES | Barbara E |
| APELLIDO | Gibson |
| FIRMA | GIBSON B E |
| AFILIACIONES | University of Toronto |
| ORCID | 0000-0003-0429-8679 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 43 |
| TOTAL DE CITAS | 239 |
| TOTAL COMO AUTOR | 43 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 2002 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2026 |
| ÍNDICE H | 10 |
Worlds in the making
This paper draws on a posthuman epistemology to reimagine disability, impairment, and young people labeled-as-disabled as open-ended processes that move in and with the world to generate creative re-orderings of time, bodies, and care. Normative ideas about development and disability often (re)produce deficit-based thinking – the belief that bodily differences necessarily diminish the lives of disabled youth. Within health and social care, these …
Differences as potentials
Drawing on a posthuman onto-epistemology, this paper explores movements of bodies labelled-as-disabled as creative 'choreographies' that are coproduced through the coming together of multiple material, social, discursive and affective forces across time-spaces. The purpose is to challenge thinking as usual towards re-envisioning differences as potentials rather than deficits. To do so, we consider how disability can move deficit-thinking and how …
It is important to be involved’
Publisher Copyright: © 2024 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group
Tinkering with responsive caring in disabled children's healthcare
Health professional education has traditionally relied on the acquisition of vertical expertise whereby learners apply top-down principles and methods to develop clinical skills. In this critical qualitative study, we examined horizontal processes of “knotworking” and “tinkering” in the development of expertise amongst clinicians and trainees in a children's rehabilitation outpatient clinic. Using ethnographic methods of observation, interviews a…
The Sensory Experience of Waiting for Parents of Children Awaiting Transplant
Despite the senses being a valuable source of knowledge, little research has explored the sensory process of medical experiences. This narrative ethnographic study investigated how the senses shaped parents’ experiences of waiting for their child to receive a solid organ, stem cell, or bone marrow transplant. Six parents from four different families primarily participated in sensory interviews as well as observations that explored the question: H…
The Disjuncture between Medication Adherence and Recovery-centered Principles in Early Psychosis Intervention
To examine how recovery principles are enacted in an early psychosis intervention (EPI) clinic, we used an institutional ethnographic approach focused on how the ideology of medication adherence organizes young people’s experiences of EPI services. Methods included ethnographic observation, in-depth interviews with 27 participants (18 clinic staff, four young people, and five family members), and textual analysis of clinic documents (e.g., case f…
Enacting objects and subjects in a children's rehabilitation clinic
In health care clinics, problems are constructed through interactions, a choreography of human and non-human actors together enacting matters of concern. Studying the ways in which a body, person, family, or environment is objectified for clinical purposes opens discussion about advantages and disadvantages of different objectification practices, and exploration of creative ways to handle the diversity and tensions that exist. In this analysis, w…
Disability, affect theory, and the politics of breathing
Seriously Foolish and Foolishly Serious
A posthuman decentring of person-centred care
In this paper, we examine person-centred care through a Deleuzian posthuman lens with the aim of exploring what becomes possible when the concepts of both person and care are de-centred . We do so through a consideration of the sets of relations that produce 'the client' in health care contexts. Our analysis maps particular entangled material-semiotic forces producing 'M/michael', a young man with a diagnosis of Duchenne muscular dystrophy, withi…
Life Quality and Participation of Disabled Children and Young People
The LIFE-DCY research project has two aims. First, to evaluate disabled children's quality of life (QoL) as reported by themselves and their parents, and second, to locate commonalities, differences, and conflicting issues in the processes that may influence disabled children's life quality and participation. This paper describes the study design, methodology, and methods along with lessons learned. In addition various methodological and ethical …
The Community Resiliency Model®
What’s shame got to do with it? The importance of affect in critical disability studies
Affect theories have become widespread in feminist research and other critical social sciences but have just recently entered critical disability studies. This paper is an attempt to connect the two. We argue that it is important to ground theoretical discussion in empirical data and discuss how affective practices can offer a deeper, more nuanced analysis to unfold shame and other negative affects. In order to shed light on how shame may unfold,…
Resisting governance and the production of trust in early psychosis intervention
Interrogating inclusion with youths who use augmentative and alternative communication
Even as the goal of social inclusion underpins health and social services for disabled youths, those with communication impairments continue to lead narrowly circumscribed lives. In this Canadian study, we combined visual methods and interviews with 13 Canadian youths who use augmentative and alternative communication (AAC) to understand how they make 'practical sense' of discourses of inclusion. Drawing on Bourdieu's theory of practice, we sugge…
Affect, intensity, and moral assemblage in rehabilitation practice
Justicia ocupacional
Este artículo –el primero de dos que se harán cargo de examinar el concepto de justicia ocupacional– presenta los hallazgos de una revisión de antecedentes respecto de cómo se ha conceptualizado la justicia ocupacional y sus conceptos asociados (privación, marginación, alienación, desequilibrio y apartheid ocupacional). Su objetivo es examinar posibles vías de desarrollo y aplicación de estos conceptos y sus potenciales obstáculos. Los resultados…
Disabled men with muscular dystrophy negotiate gender
Disability is often portrayed as a one-dimensional category devoid of further intersections. Work which has addressed the intersection of disability and male gender has rarely considered different types of disability or impairment, or foregrounded the experiences of disabled men themselves. This article is based on empirical work carried out in England with men who have Duchenne muscular dystrophy (DMD). We explored with participants their sense …
Cheer* in Health Care Practice
Clinicians' positive demeanor and "strengths based" focus can include working to create a cheerful atmosphere in health care environments, cheering for improvements in assessment outcomes, and cheering up clients in situations of decline. Drawing from philosopher Karen Barad's theories of inclusions and exclusions, we investigated what comes to matter (and what is excluded from mattering) when there is cheerfulness, cheering, and so forth (cheer*…
Keep fit
Exercise has a long history as a therapeutic modality and has existed, in some form, in all cultures throughout recorded history. In recent years, therapeutic exercise has taken on new significance as a relatively low cost medical intervention designed to improve people’s health and well-being and reduce the downstream effects of comorbidity. Drawing our inspiration from Foucault and Deleuze, we argue that seeing therapeutic exercise as primarily…
Reflection/Commentary on a Past Article
Beyond bare bones
Objecting
Drawing from Annemarie Mol's conceptulisation of multiplicity, we explore how health care practices enact their object(s), using physiotherapy as our example. Our concern is particularly to mobilise ways of practicing or doing physiotherapy that are largely under-theorised, unexamined or marginalised. This approach explores those actions that reside in the interstitial spaces around, beneath and beyond the limits of established practices. Using M…
Integrating Visual Methods With Dialogical Interviews in Research With Youth Who Use Augmentative and Alternative Communication
Scant information is available to guide the selection and modification of methods for doing research with people with communication impairments. In this article, we describe and illustrate a novel combination of methods used to optimize data generation in research with 13 disabled youth who use augmentative and alternative communication (AAC). Using a critical dialogical methodology developed for the study, we explored links between dominant call…
A Critical Dialogical Methodology for Conducting Research With Disabled Youth Who Use Augmentative and Alternative Communication
In this article, we present a theoretical examination of communication difference in the context of a critical qualitative study that explored "inclusion" with disabled youth who use augmentative and alternative communication (AAC). Drawing on Mikhail Bakhtin's dialogism, we articulate a novel critical dialogical methodology developed to rethink dominant understandings of voice, authenticity, and the autonomous participant. Case examples illustra…
The Integrated Use of Audio Diaries, Photography, and Interviews in Research with Disabled Young Men
In this article we provide a critical reflection on the integrated use of solicited audio diaries, photography, and interviews in a study with disabled young men transitioning to adulthood. In the study, we developed a methodological approach for illuminating the intersectionality of gender, disability, and generation (life stage) identities. Drawing from a critical Bourdieusian perspective, we suggest that rather than producing single or 'true' …
Children and Youth With Disabilities
There is a paucity of explicit literature outlining methods for single-interview studies with children, and almost none have focused on engaging children with disabilities. Drawing from a pilot study, we address these gaps by describing innovative techniques, strategies, and methods for engaging children and youth with disabilities in a single qualitative interview. In the study, we explored the beliefs, assumptions, and experiences of children a…
Men on the margin
A Critical Dialogical Methodology for Conducting Research With Disabled Youth Who Use Augmentative and Alternative Communication
In this article, we present a theoretical examination of communication difference in the context of a critical qualitative study that explored "inclusion" with disabled youth who use augmentative and alternative communication (AAC). Drawing on Mikhail Bakhtin's dialogism, we articulate a novel critical dialogical methodology developed to rethink dominant understandings of voice, authenticity, and the autonomous participant. Case examples illustra…
Towards a Critical Occupational Approach to Research
Critical approaches to research are becoming increasingly more prevalent but occupational science and critical approaches have not been explicitly combined into one approach despite the potential to enrich the understanding of the assumptions and ideologies underlying human activity. In this article we outline an approach to research that is mutually informed by occupational and critical social science perspectives. The critical occupational appr…
Beyond bare bones
Assembling activity/setting participation with disabled young people
Rehabilitation research investigating activity participation has been largely conducted in a realist tradition that under-theorises the relationship between persons, technologies, and socio-material places. In this Canadian study we used a post-critical approach to explore activity/setting participation with 19 young people aged 14 to 23 years with complex communication and/or mobility impairments. Methods included integrated photo-elicitation, i…
Futureless persons
Medical technological advances can have profound effects on people's lives by extending the life course and creating uncertain futures. This is the case for a number of persons with 'diseases of childhood' who can now survive well into adulthood with technological support. This paper draws on a Canadian qualitative study of young men with Duchenne muscular dystrophy (DMD) which examined the effects of a shifting life expectancy on personal identi…
Integrating Visual Methods With Dialogical Interviews in Research With Youth Who Use Augmentative and Alternative Communication
Scant information is available to guide the selection and modification of methods for doing research with people with communication impairments. In this article, we describe and illustrate a novel combination of methods used to optimize data generation in research with 13 disabled youth who use augmentative and alternative communication (AAC). Using a critical dialogical methodology developed for the study, we explored links between dominant call…
A posthuman decentring of person-centred care
In this paper, we examine person-centred care through a Deleuzian posthuman lens with the aim of exploring what becomes possible when the concepts of both person and care are de-centred . We do so through a consideration of the sets of relations that produce 'the client' in health care contexts. Our analysis maps particular entangled material-semiotic forces producing 'M/michael', a young man with a diagnosis of Duchenne muscular dystrophy, withi…
Becoming men
Children and youth with progressive conditions are living longer, and there is increased interest in designing programs that will assist them with "transitioning" to adulthood. Almost none of the transitions research to date, however, has attended to the experiences of disabled boys in "becoming men," nor has there been critical conceptual work problematizing notions of "normal" adulthood or theorizing the complex, diverse, and gendered experienc…
Disability and dignity-enabling home environments
Objecting
Drawing from Annemarie Mol's conceptulisation of multiplicity, we explore how health care practices enact their object(s), using physiotherapy as our example. Our concern is particularly to mobilise ways of practicing or doing physiotherapy that are largely under-theorised, unexamined or marginalised. This approach explores those actions that reside in the interstitial spaces around, beneath and beyond the limits of established practices. Using M…
What’s shame got to do with it? The importance of affect in critical disability studies
Affect theories have become widespread in feminist research and other critical social sciences but have just recently entered critical disability studies. This paper is an attempt to connect the two. We argue that it is important to ground theoretical discussion in empirical data and discuss how affective practices can offer a deeper, more nuanced analysis to unfold shame and other negative affects. In order to shed light on how shame may unfold,…
Consumer‐directed personal assistance and ‘care’
Consumer‐directed personal assistance' has been a central tenet of the North American Independent Living Movement since its inception. There is, however, surprisingly little research that explores how consumer‐directed assistance gets played out in practice. We conducted a qualitative study that explored the relationships between disabled ventilator users and their personal support workers (PSWs) in supportive housing environments in Ontario, Can…
Disabled men with muscular dystrophy negotiate gender
Disability is often portrayed as a one-dimensional category devoid of further intersections. Work which has addressed the intersection of disability and male gender has rarely considered different types of disability or impairment, or foregrounded the experiences of disabled men themselves. This article is based on empirical work carried out in England with men who have Duchenne muscular dystrophy (DMD). We explored with participants their sense …
Cheer* in Health Care Practice
Clinicians' positive demeanor and "strengths based" focus can include working to create a cheerful atmosphere in health care environments, cheering for improvements in assessment outcomes, and cheering up clients in situations of decline. Drawing from philosopher Karen Barad's theories of inclusions and exclusions, we investigated what comes to matter (and what is excluded from mattering) when there is cheerfulness, cheering, and so forth (cheer*…
Life Quality and Participation of Disabled Children and Young People
The LIFE-DCY research project has two aims. First, to evaluate disabled children's quality of life (QoL) as reported by themselves and their parents, and second, to locate commonalities, differences, and conflicting issues in the processes that may influence disabled children's life quality and participation. This paper describes the study design, methodology, and methods along with lessons learned. In addition various methodological and ethical …
Mediators of marginalisation in discharge planning with older adults
Returning home or moving to a more supportive setting upon discharge from inpatient health-care services can have a tremendous impact on the lives of older adults and their families. Institutional concerns with patient safety and expedience can overshadow health-care professionals' commitments to collaborative discharge planning. In light of many competing demands and agendas, it can be unclear what is driving discharge-planning processes and out…
Putting Gino's lesson to work
This article argues that rehabilitation enacts a particular understanding of "the human" throughout therapeutic assessment and treatment. Following Michel Callon and Vololona Rabeharisoa's "Gino's Lesson on Humanity," we suggest that this is not simply a top-down process, but is cultivated in the application and response to biomedical frameworks of human ability, competence, and responsibility. The emergence of the human is at once a materially c…
Disability, Technology, and Place
Medical technologies and assistive devices such as ventilators and power wheelchairs are designed to sustain life and/or improve functionality but they can also contribute to stigmatization and social exclusion. In this paper, drawing from a study of ten men with Duchenne muscular dystrophy, we explore the complex social processes that mediate the lives of persons who are dependent on multiple medical and assistive technologies. In doing so we co…
Differences as potentials
Drawing on a posthuman onto-epistemology, this paper explores movements of bodies labelled-as-disabled as creative 'choreographies' that are coproduced through the coming together of multiple material, social, discursive and affective forces across time-spaces. The purpose is to challenge thinking as usual towards re-envisioning differences as potentials rather than deficits. To do so, we consider how disability can move deficit-thinking and how …
Interrogating inclusion with youths who use augmentative and alternative communication
Even as the goal of social inclusion underpins health and social services for disabled youths, those with communication impairments continue to lead narrowly circumscribed lives. In this Canadian study, we combined visual methods and interviews with 13 Canadian youths who use augmentative and alternative communication (AAC) to understand how they make 'practical sense' of discourses of inclusion. Drawing on Bourdieu's theory of practice, we sugge…
Occupational Justice
In this paper, we build on the findings from our scoping review (Durocher, Rappolt & Gibson, 2013) of occupational justice and its associated concepts, which revealed considerable conceptual confusion and barriers to the usability and understanding of occupational justice. In this paper we expand on those findings to provide a critique and way forward by drawing from four distinct perspectives. First, we take the stance of the sceptical occupatio…
Resisting governance and the production of trust in early psychosis intervention
Issues of Race, Ethnicity, and Culture in Caregiving Research
PURPOSE: The goals of this review are to synthesize what is known about caregiving among diverse groups and to identify gaps in knowledge to guide future research on caregiving. The review focuses on conceptual and theoretical approaches, sampling strategies, measurement techniques, and similarities and differences found among groups and across studies. DESIGN AND METHODS: A narrative approach was used to review 59 articles published between 1980…
Disability, Connectivity and Transgressing the Autonomous Body
Disability, Technology, and Place
Medical technologies and assistive devices such as ventilators and power wheelchairs are designed to sustain life and/or improve functionality but they can also contribute to stigmatization and social exclusion. In this paper, drawing from a study of ten men with Duchenne muscular dystrophy, we explore the complex social processes that mediate the lives of persons who are dependent on multiple medical and assistive technologies. In doing so we co…
Men on the margin
Consumer‐directed personal assistance and ‘care’
Consumer‐directed personal assistance' has been a central tenet of the North American Independent Living Movement since its inception. There is, however, surprisingly little research that explores how consumer‐directed assistance gets played out in practice. We conducted a qualitative study that explored the relationships between disabled ventilator users and their personal support workers (PSWs) in supportive housing environments in Ontario, Can…
Futureless persons
Medical technological advances can have profound effects on people's lives by extending the life course and creating uncertain futures. This is the case for a number of persons with 'diseases of childhood' who can now survive well into adulthood with technological support. This paper draws on a Canadian qualitative study of young men with Duchenne muscular dystrophy (DMD) which examined the effects of a shifting life expectancy on personal identi…
Health Care Access and Support for Disabled Women in Canada
Disability and dignity-enabling home environments
Occupational Justice
In this paper, we build on the findings from our scoping review (Durocher, Rappolt & Gibson, 2013) of occupational justice and its associated concepts, which revealed considerable conceptual confusion and barriers to the usability and understanding of occupational justice. In this paper we expand on those findings to provide a critique and way forward by drawing from four distinct perspectives. First, we take the stance of the sceptical occupatio…
Children and Youth With Disabilities
There is a paucity of explicit literature outlining methods for single-interview studies with children, and almost none have focused on engaging children with disabilities. Drawing from a pilot study, we address these gaps by describing innovative techniques, strategies, and methods for engaging children and youth with disabilities in a single qualitative interview. In the study, we explored the beliefs, assumptions, and experiences of children a…
The Integrated Use of Audio Diaries, Photography, and Interviews in Research with Disabled Young Men
In this article we provide a critical reflection on the integrated use of solicited audio diaries, photography, and interviews in a study with disabled young men transitioning to adulthood. In the study, we developed a methodological approach for illuminating the intersectionality of gender, disability, and generation (life stage) identities. Drawing from a critical Bourdieusian perspective, we suggest that rather than producing single or 'true' …
Towards a Critical Occupational Approach to Research
Critical approaches to research are becoming increasingly more prevalent but occupational science and critical approaches have not been explicitly combined into one approach despite the potential to enrich the understanding of the assumptions and ideologies underlying human activity. In this article we outline an approach to research that is mutually informed by occupational and critical social science perspectives. The critical occupational appr…
Gender performativity during interviews with adolescent boys
The increased use, if not dominance, of interviewing techniques in qualitative research on sport and physical culture demands more focused and critical analyses of the situational factors that may influence the generation of interview data. One of the factors, of course, is the interviewer’s gender as it relates to the gender(s) of the research participants. Previous research investigating the social dynamics of interviewing suggests that gender …
Occupational Justice
This paper, the first of two examining the concept of occupational justice, presents the findings of a scoping review of how occupational justice and its associated concepts (occupational deprivation, marginalization, alienation, imbalance or apartheid) have been conceptualized. Its purpose is to examine potential avenues and barriers for development and application of these concepts. The results indicate that perspectives on occupational justice…
Becoming men
Children and youth with progressive conditions are living longer, and there is increased interest in designing programs that will assist them with "transitioning" to adulthood. Almost none of the transitions research to date, however, has attended to the experiences of disabled boys in "becoming men," nor has there been critical conceptual work problematizing notions of "normal" adulthood or theorizing the complex, diverse, and gendered experienc…
Mediators of marginalisation in discharge planning with older adults
Returning home or moving to a more supportive setting upon discharge from inpatient health-care services can have a tremendous impact on the lives of older adults and their families. Institutional concerns with patient safety and expedience can overshadow health-care professionals' commitments to collaborative discharge planning. In light of many competing demands and agendas, it can be unclear what is driving discharge-planning processes and out…
Putting Gino's lesson to work
This article argues that rehabilitation enacts a particular understanding of "the human" throughout therapeutic assessment and treatment. Following Michel Callon and Vololona Rabeharisoa's "Gino's Lesson on Humanity," we suggest that this is not simply a top-down process, but is cultivated in the application and response to biomedical frameworks of human ability, competence, and responsibility. The emergence of the human is at once a materially c…
Assembling activity/setting participation with disabled young people
Rehabilitation research investigating activity participation has been largely conducted in a realist tradition that under-theorises the relationship between persons, technologies, and socio-material places. In this Canadian study we used a post-critical approach to explore activity/setting participation with 19 young people aged 14 to 23 years with complex communication and/or mobility impairments. Methods included integrated photo-elicitation, i…
Keep fit
Exercise has a long history as a therapeutic modality and has existed, in some form, in all cultures throughout recorded history. In recent years, therapeutic exercise has taken on new significance as a relatively low cost medical intervention designed to improve people’s health and well-being and reduce the downstream effects of comorbidity. Drawing our inspiration from Foucault and Deleuze, we argue that seeing therapeutic exercise as primarily…
Reflection/Commentary on a Past Article
Beyond bare bones
Objecting
Drawing from Annemarie Mol's conceptulisation of multiplicity, we explore how health care practices enact their object(s), using physiotherapy as our example. Our concern is particularly to mobilise ways of practicing or doing physiotherapy that are largely under-theorised, unexamined or marginalised. This approach explores those actions that reside in the interstitial spaces around, beneath and beyond the limits of established practices. Using M…
Integrating Visual Methods With Dialogical Interviews in Research With Youth Who Use Augmentative and Alternative Communication
Scant information is available to guide the selection and modification of methods for doing research with people with communication impairments. In this article, we describe and illustrate a novel combination of methods used to optimize data generation in research with 13 disabled youth who use augmentative and alternative communication (AAC). Using a critical dialogical methodology developed for the study, we explored links between dominant call…
A Critical Dialogical Methodology for Conducting Research With Disabled Youth Who Use Augmentative and Alternative Communication
In this article, we present a theoretical examination of communication difference in the context of a critical qualitative study that explored "inclusion" with disabled youth who use augmentative and alternative communication (AAC). Drawing on Mikhail Bakhtin's dialogism, we articulate a novel critical dialogical methodology developed to rethink dominant understandings of voice, authenticity, and the autonomous participant. Case examples illustra…
Affect, intensity, and moral assemblage in rehabilitation practice
Psychology (37 obras) · Sociology (35 obras) · Political science (22 obras) · Medicine (15 obras) · Disability Rights and Representation (14 obras) · Social Psychology (13 obras) · Social science (13 obras) · Epistemology (11 obras) · Gender Studies (11 obras) · Social Psychology (10 obras)