Marion Danis
Datos Biográficos
| ID | 1724788 |
|---|---|
| NOMBRE | Marion Danis |
| NOMBRES | Marion |
| APELLIDO | Danis |
| FIRMA | DANIS M |
| AFILIACIONES | National Institutes of Health |
| ORCID | 0000-0002-4749-4568 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 34 |
| TOTAL DE CITAS | 31 |
| TOTAL COMO AUTOR | 34 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 1991 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2025 |
| ÍNDICE H | 3 |
Deliberating at a Distance
INTRODUCTION: Alongside software developers, our community-academic partnership adapted an exercise designed for participatory priority setting to engage low-income community members in online deliberations about health and welfare spending priorities. This study evaluated the feasibility and quality of a fully virtual deliberative exercise using an adapted Choosing All Together (CHAT) tool among low-income community members. METHODS: Twenty-one …
A global comparative analysis of the criteria and equity considerations included in eighty-six national Covid-19 plans
How did European countries set health priorities in response to the Covid-19 threat? A comparative document analysis of 24 pandemic preparedness plans across the Euro region
The COVID-19 pandemic has forced governments across the world to consider how to prioritise the allocation of scarce resources. There are many tools and frameworks that have been designed to assist with the challenges of priority setting in health care. The purpose of this study was to examine the extent to which formal priority setting was evident in the pandemic plans produced by countries in the World Health Organisation's EURO region, during …
Stakeholder participation in the Covid-19 pandemic preparedness and response plans
A global comparative analysis of the the inclusion of priority setting in national Covid-19 pandemic plans
Moving towards social inclusion
BACKGROUND: Achieving universal health coverage (UHC) in the context of limited resources will require prioritising the most vulnerable and ensuring health policies and services are responsive to their needs. One way of addressing this is through the engagement of marginalised voices in the priority setting process. Public engagement approaches that enable group level deliberation as well as individual level preference capturing might be valuable…
Was priority setting included in the Canadian Covid-19 pandemic planning and preparedness? A comparative analysis of Covid-19 pandemic plans from eight provinces and three territories
Home Care in America
Home care is one of the fastest‐growing industries in the United States, providing valuable opportunities for millions of older adults and people with disabilities to live at home rather than in institutional settings. Home care workers assist clients with essential activities of daily living, but their wages and working conditions generally fail to reflect the importance of their work. Drawing on the work of Eva Feder Kittay and other care ethic…
What values drive communities’ nutrition priorities in a resource constrained urban area in South Africa
Our study demonstrates how public engagement can facilitate the incorporation of community values and programmatic preferences into nutrition priority setting, enabling a responsive approach to local community needs, especially in resource constrained contexts. Findings could guide policy makers to facilitate more appropriate decisions and to improve nutrition in the first 1000 days of life
Building a “We” With Deliberative Dialogue in Pursuit of Health for All
Engaging community members in setting priorities for nutrition interventions in rural northern Ghana
This study used “Choosing All Together” (CHAT), a deliberative engagement tool to prioritise nutrition interventions and to understand reasons for intervention choices of a rural community in northern Ghana. The study took an exploratory cross-sectional design and used a mixed method approach to collect data between December 2020 and February 2021. Eleven nutrition interventions were identified through policy reviews, interaction with different s…
Priority setting and equity in Covid-19 pandemic plans
Priority setting represents an even bigger challenge during public health emergencies than routine times. This is because such emergencies compete with routine programmes for the available health resources, strain health systems and shift health-care attention and resources towards containing the spread of the epidemic and treating those that fall seriously ill. This paper is part of a larger global study, the aim of which is to evaluate the degr…
Priority setting during the Covid-19 pandemic
Development of vaccines is a major breakthrough in the fight against the SARS-CoV-2 virus. Much attention has been paid to how to prioritise between patient groups for vaccination and how to ensure equity, especially in low-income countries, but there are other important decisions that need to be made. These decisions include: (a) choosing between the various vaccines that will become available, (b) continuing to invest in other aspects of the CO…
Allocation of scarce biospecimens for use in research
Hundreds of millions of rare biospecimens are stored in laboratories and biobanks around the world. Often, the researchers who possess these specimens do not plan to use them, while other researchers limit the scope of their work because they cannot acquire biospecimens that meet their needs. This situation raises an important and underexplored question: how should scientists allocate biospecimens that they do not intend to use? We argue that all…
A Developing Timeline for Bioethics
This brief essay describes the purpose, the content, and the development, by a group of Hastings Center fellows and a scholar at the Center, of the Hastings Center Bioethics Timeline. The timeline covers the wide range of contemporary events pertaining to the intersection of bioethics with the medical and biological sciences, health care, and health policy, as well as the medical arts and medical humanities. A collaborative effort that documents …
Deliberative engagement methods on health care priority-setting in a rural South African community
Public engagement in priority-setting for health is increasingly recognized as a means to ensure more ethical, inclusive and legitimate decision-making processes, especially in the context of Universal Health Coverage where demands outweigh the available resources and difficult decisions need to be made. Deliberative approaches are often viewed as especially useful in considering social values and balancing trade-offs, however, implementation of …
Sharing Ethics Consultation Notes With Patients Through Online Portals
Many health systems have adopted online patient portals that allow patients to easily view their health records. As a result, notes written by health care professionals are increasingly read by both clinicians and patients, and clinicians in specialties that routinely involve sensitive information (eg, mental health care) have had to construct notes in a manner that respectfully promotes therapeutic relationships with patients. This article discu…
Evaluating community deliberations about health research priorities
CONTEXT: Engaging underrepresented communities in health research priority setting could make the scientific agenda more equitable and more responsive to their needs. OBJECTIVE: Evaluate democratic deliberations engaging minority and underserved communities in setting health research priorities. METHODS: Participants from underrepresented communities throughout Michigan (47 groups, n = 519) engaged in structured deliberations about health researc…
Solidarity and cost management
CONTEXT: Approaches to priority-setting for scarce resources have shifted to public deliberation as trade-offs become more difficult. We report results of a qualitative analysis of public deliberation in Switzerland, a country with high health-care costs, an individual health insurance mandate and a strong tradition of direct democracy with frequent votes related to health care. METHODS: We adapted the Choosing Healthplans All Together (CHAT) too…
How Should Therapeutic Decisions about Expensive Drugs Be Made in Imperfect Environments
Clinicians must inevitably make therapeutic decisions under nonideal conditions. They practice in circumstances that involve incomplete evidence. They deliver care in health care systems that are complex and poorly coordinated. Each of the patients that they take care of is unique while research offers evidence regarding relatively homogeneous populations of patients. Under these circumstances, many parties-medical scientists, reviewing agencies,…
The State as Community in Community-Based Participatory Research
A geographically and culturally diverse partnership presents challenges and opportunities in representativeness, relationship building, capacity building, and communication
Quality Attestation for Clinical Ethics Consultants
Clinical ethics consultation is largely outside the scope of regulation and oversight, despite its importance. For decades, the bioethics community has been unable to reach a consensus on whether there should be accountability in this work, as there is for other clinical activities that influence the care of patients. The American Society for Bioethics and Humanities, the primary society of bioethicists and scholars in the medical humanities and …
Prospects for acknowledging and addressing the socioeconomic determinants of health in the United States
Deliberation to enhance awareness of and prioritize socioeconomic interventions for health
The Role of Ethics Committees and Ethics Consultation in Allocation Decisions
BACKGROUND: Decisions about the allocation and rationing of medical interventions likely occur in all health care systems worldwide. So far very little attention has been given to the question of what role ethics consultation and ethics committees could or should play in questions of allocation at the hospital level. OBJECTIVES AND METHODS: This article argues for the need for ethics consultation in rationing decisions using empirical data about …
Ethical climate, ethics stress, and the job satisfaction of nurses and social workers in the United States
Deliberation to enhance awareness of and prioritize socioeconomic interventions for health
Health insurance benefit packages prioritized by low-income clients in India
The State as Community in Community-Based Participatory Research
A geographically and culturally diverse partnership presents challenges and opportunities in representativeness, relationship building, capacity building, and communication
Low-Income Employees’ Choices Regarding Employment Benefits Aimed at Improving the Socioeconomic Determinants of Health
Objectives. Socioeconomic factors are associated with reduced health status in low-income populations. We sought to identify affordable employment benefit packages that might ameliorate these socioeconomic factors and would be consonant with employees’ priorities. Methods. Working in groups (n = 53), low-income employees (n = 408; 62% women, 65% Black) from the Washington, DC, and Baltimore, Md, metropolitan area, participated in a computerized e…
Autonomy and the Common Weal
When health care providers make decisions to use resources, their\ndevotion to the patient at hand must be mediated by a framework that puts\nindividual autonomy and social equity into focus simultaneously. The concept\nof citizenship yields such a framework...The experiences of both physicians\nand patients have outgrown the older models of medical ethics. New\nintellectual paradigms are needed to reflect these more complex relationships. \nDeve…
Following Advance Directives
As we define the ethical framework in which directives operate, we must heed empirical research. Studies indicate that patients, wishes about life-sustaining treatments are not entirely stable over time, though choices to forgo life-sustaining treatment seem to be much more stable than choices to receive such treatment.[1] One report provides an excellent description of the vacillation and ambivalence of patients, choices when life-threatening ev…
Changing the Health Care Response to Battered Women
Numerous factors are thought to prevent the successful implementation of domestic violence intervention protocols and programs that are designed to encourage physicians and nurses to identify and appropriately treat battered women. Using the PRECEDE-PROCEED model of behavior change as a guide, this study investigated baseline factors associated with clinician screening behaviors prior to its implementation. Perceived competence, a composite measu…
Campaign Posters in the Clinic
Case Dr. William Harper is an obstetrician-gynecologist in a suburban group practice. He spends much of his time providing prenatal and reproductive health care to young women. Dr. Harper also has a strong interest in public policy and local politics. He has served twice on the city council and is also very active in the local chapter of his political party
To Scan or Not To Scan
Case As a fourth-year medical student planning a residency in internal medicine, Rose enjoyed her rotation in the emergency room and saw it as a chance to learn practical points about patient management. She purposely chose Percy Hospital because of its diverse patient population. One evening Rose was working with Dr. Charles, a respected attending who had been at Percy for almost 10 years. Dr. Charles handed her a chart. “Twenty-two-year-old mal…
Enhancing employee capacity to prioritize health insurance benefits
Objective To demonstrate that employees can gain understanding of the financial constraints involved in designing health insurance benefits. Background While employees who receive their health insurance through the workplace have much at stake as the cost of health insurance rises, they are not necessarily prepared to constructively participate in prioritizing their health insurance benefits in order to limit cost. Design Structured group exercis…
Low-Income Employees’ Choices Regarding Employment Benefits Aimed at Improving the Socioeconomic Determinants of Health
Objectives. Socioeconomic factors are associated with reduced health status in low-income populations. We sought to identify affordable employment benefit packages that might ameliorate these socioeconomic factors and would be consonant with employees’ priorities. Methods. Working in groups (n = 53), low-income employees (n = 408; 62% women, 65% Black) from the Washington, DC, and Baltimore, Md, metropolitan area, participated in a computerized e…
Health insurance benefit packages prioritized by low-income clients in India
Ethical climate, ethics stress, and the job satisfaction of nurses and social workers in the United States
The Role of Ethics Committees and Ethics Consultation in Allocation Decisions
BACKGROUND: Decisions about the allocation and rationing of medical interventions likely occur in all health care systems worldwide. So far very little attention has been given to the question of what role ethics consultation and ethics committees could or should play in questions of allocation at the hospital level. OBJECTIVES AND METHODS: This article argues for the need for ethics consultation in rationing decisions using empirical data about …
Deliberation to enhance awareness of and prioritize socioeconomic interventions for health
Prospects for acknowledging and addressing the socioeconomic determinants of health in the United States
Quality Attestation for Clinical Ethics Consultants
Clinical ethics consultation is largely outside the scope of regulation and oversight, despite its importance. For decades, the bioethics community has been unable to reach a consensus on whether there should be accountability in this work, as there is for other clinical activities that influence the care of patients. The American Society for Bioethics and Humanities, the primary society of bioethicists and scholars in the medical humanities and …
The State as Community in Community-Based Participatory Research
A geographically and culturally diverse partnership presents challenges and opportunities in representativeness, relationship building, capacity building, and communication
How Should Therapeutic Decisions about Expensive Drugs Be Made in Imperfect Environments
Clinicians must inevitably make therapeutic decisions under nonideal conditions. They practice in circumstances that involve incomplete evidence. They deliver care in health care systems that are complex and poorly coordinated. Each of the patients that they take care of is unique while research offers evidence regarding relatively homogeneous populations of patients. Under these circumstances, many parties-medical scientists, reviewing agencies,…
Solidarity and cost management
CONTEXT: Approaches to priority-setting for scarce resources have shifted to public deliberation as trade-offs become more difficult. We report results of a qualitative analysis of public deliberation in Switzerland, a country with high health-care costs, an individual health insurance mandate and a strong tradition of direct democracy with frequent votes related to health care. METHODS: We adapted the Choosing Healthplans All Together (CHAT) too…
Evaluating community deliberations about health research priorities
CONTEXT: Engaging underrepresented communities in health research priority setting could make the scientific agenda more equitable and more responsive to their needs. OBJECTIVE: Evaluate democratic deliberations engaging minority and underserved communities in setting health research priorities. METHODS: Participants from underrepresented communities throughout Michigan (47 groups, n = 519) engaged in structured deliberations about health researc…
Sharing Ethics Consultation Notes With Patients Through Online Portals
Many health systems have adopted online patient portals that allow patients to easily view their health records. As a result, notes written by health care professionals are increasingly read by both clinicians and patients, and clinicians in specialties that routinely involve sensitive information (eg, mental health care) have had to construct notes in a manner that respectfully promotes therapeutic relationships with patients. This article discu…
Priority setting during the Covid-19 pandemic
Development of vaccines is a major breakthrough in the fight against the SARS-CoV-2 virus. Much attention has been paid to how to prioritise between patient groups for vaccination and how to ensure equity, especially in low-income countries, but there are other important decisions that need to be made. These decisions include: (a) choosing between the various vaccines that will become available, (b) continuing to invest in other aspects of the CO…
Allocation of scarce biospecimens for use in research
Hundreds of millions of rare biospecimens are stored in laboratories and biobanks around the world. Often, the researchers who possess these specimens do not plan to use them, while other researchers limit the scope of their work because they cannot acquire biospecimens that meet their needs. This situation raises an important and underexplored question: how should scientists allocate biospecimens that they do not intend to use? We argue that all…
A Developing Timeline for Bioethics
This brief essay describes the purpose, the content, and the development, by a group of Hastings Center fellows and a scholar at the Center, of the Hastings Center Bioethics Timeline. The timeline covers the wide range of contemporary events pertaining to the intersection of bioethics with the medical and biological sciences, health care, and health policy, as well as the medical arts and medical humanities. A collaborative effort that documents …
Deliberative engagement methods on health care priority-setting in a rural South African community
Public engagement in priority-setting for health is increasingly recognized as a means to ensure more ethical, inclusive and legitimate decision-making processes, especially in the context of Universal Health Coverage where demands outweigh the available resources and difficult decisions need to be made. Deliberative approaches are often viewed as especially useful in considering social values and balancing trade-offs, however, implementation of …
Engaging community members in setting priorities for nutrition interventions in rural northern Ghana
This study used “Choosing All Together” (CHAT), a deliberative engagement tool to prioritise nutrition interventions and to understand reasons for intervention choices of a rural community in northern Ghana. The study took an exploratory cross-sectional design and used a mixed method approach to collect data between December 2020 and February 2021. Eleven nutrition interventions were identified through policy reviews, interaction with different s…
Priority setting and equity in Covid-19 pandemic plans
Priority setting represents an even bigger challenge during public health emergencies than routine times. This is because such emergencies compete with routine programmes for the available health resources, strain health systems and shift health-care attention and resources towards containing the spread of the epidemic and treating those that fall seriously ill. This paper is part of a larger global study, the aim of which is to evaluate the degr…
Was priority setting included in the Canadian Covid-19 pandemic planning and preparedness? A comparative analysis of Covid-19 pandemic plans from eight provinces and three territories
Medicine (25 obras) · Political science (23 obras) · Psychology (16 obras) · Health care (15 obras) · Economics (14 obras) · Nursing (12 obras) · Business (11 obras) · Health Systems, Economic Evaluations, Quality of Life (11 obras) · Public relations (11 obras) · Economic growth (10 obras)