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David S Tulsky

Datos Biográficos

ID1737511
NOMBREDavid S Tulsky
NOMBRESDavid S
APELLIDOTulsky
FIRMATULSKY D S
AFILIACIONESUniversity of Delaware
ORCID0000-0002-4335-4509
VERIFICADOSí
TOTAL DE OBRAS17
TOTAL DE CITAS3
TOTAL COMO AUTOR17
TOTAL COMO EDITOR0
PRIMER AÑO DE PUBLICACIÓN1993
AÑO MÁS RECIENTE DE PUBLICACIÓN2026
ÍNDICE H1
  • Using confirmatory factor analysis to identify symptom clusters in individuals with acquired disabilities

    Open Access•David S Tulsky, Aaron J Boulton et al.•ARTICLE•Quality of Life Research•2026

    Acquired disabilities, such as spinal cord injury, traumatic brain injury, limb loss (or other major limb injury/illness), or stroke, are typically accompanied by an array of physical and emotional symptoms and social challenges that interfere with recovery and affect quality of life (QOL). Despite advances in personalized medicine, interrelationships between symptoms remain unclear, and clinicians often treat individual symptoms in isolation. Th…

  • Health-related quality of life after major extremity trauma

    Open Access•Callie E Tyner, Pamela A Kisala et al.•ARTICLE•Quality of Life Research•2025

    Many HRQOL topics identified are shared with existing general PRO measures-including pain, physical function, anxiety, depression, anger, positive affect and well-being, fatigue, social participation, and loneliness-as well as rehabilitation-focused PRO measures-such as resilience, grief/loss, stigma, self-esteem, mobility, fine motor functioning, self-care, and independence. This qualitative research can be used to inform domains of HRQOL in nee…

  • Measurement invariance of physical, mental, and social health PROMIS measures across individuals with spinal cord injury and traumatic brain injury

    Open Access•Sarah D Patrick, Gavin D Sanders et al.•ARTICLE•Quality of Life Research•2022

  • Establishing severity levels for patient-reported measures of functional communication, participation, and perceived cognitive function for adults with acquired cognitive and language disorders

    Open Access•Matthew L Cohen, Stacy M Harnish et al.•ARTICLE•Quality of Life Research•2022

    Standardized, stakeholder-informed severity levels that aid interpretation of PROM scores can help clinicians and researchers derive better clinical meaning from those scores, for example, by identifying important clinical windows of opportunity and assessing when symptoms have returned to a "normal" range

  • Determining a transitional scoring link between PROMIS® pediatric and adult physical health measures

    Open Access•David S Tulsky, Pamela A Kisala et al.•ARTICLE•Quality of Life Research•2018

  • Psychometric evaluation of the pediatric and parent-proxy Patient-Reported Outcomes Measurement Information System and the Neurology and Traumatic Brain Injury Quality of Life measurement item banks i…

    Open Access•Hilary Bertisch, Frederick P Rivara et al.•ARTICLE•Quality of Life Research•2017

  • Relationships between environmental factors and participation in adults with traumatic brain injury, stroke, and spinal cord injury

    Open Access•Alex Wong, Alex W K Wong et al.•ARTICLE•Quality of Life Research•2017

  • Using the ICF’s environmental factors framework to develop an item bank measuring built and natural environmental features affecting persons with disabilities

    Open Access•Allen W Heinemann, Jin‐Shei Lai et al.•ARTICLE•Quality of Life Research•2016

  • Environmental Barriers and Supports to Everyday Participation

    Open Access•Joy Hammel, Susan Magasi et al.•ARTICLE•Archives of Physical Medicine and…•2015

  • Linkage between the PROMIS® pediatric and adult emotional distress measures

    Open Access•Bryce B Reeve, David Thissen et al.•ARTICLE•Quality of Life Research•2015

  • An examination of the PROMIS® pediatric instruments to assess mobility in children with cerebral palsy

    Open Access•Anna L Kratz, Mary D Slavin et al.•ARTICLE•Quality of Life Research•2013

  • Identification of health-related quality of life (HRQOL) issues relevant to individuals with Huntington disease

    Open Access•Noelle E Carlozzi, David S Tulsky•ARTICLE•Journal of Health Psychology•2013•Referencias: 23

    This qualitative study explored health-related quality of life (HRQOL) in individuals with Huntington disease (HD). Sixteen focus groups were conducted ( n = 6 groups with symptomatic HD individuals; n = 5 with individuals who are at-risk or prodromal for HD; n = 3 non-clinical HD caregivers; n = 2 groups with HD clinicians). Qualitative analysis indicated that 28% of focus group comments were related to emotional health, 27% to social participat…

  • Geographic variation in participation for physically disabled adults

    Open Access•Amanda L Botticello, Amanda Botticello et al.•ARTICLE•Social Science & Medicine•2012•Citada por: 2•Referencias: 8

  • Access and Coordination of Health Care Service for People With Disabilities

    Open Access•Karen Hwang, Mark Johnston et al.•ARTICLE•Journal of Disability Policy…•2008•Citada por: 1•Referencias: 3

    Individuals with disabilities often have multiple complex medical and nonmedical needs. Furthermore, in the current facility-directed health care system, they are at enhanced risk of receiving poorly coordinated, suboptimal care. This is especially problematic because individuals with disabilities face multiple barriers to receiving quality health care services, ranging from structural barriers (e.g., physical access to doctors' offices) to proce…

  • Reliability and validity of the Functional Assessment of Cancer Therapy-Colorectal (Fact-C) quality of life instrument

    Open Access•Wendy L Ward, Elizabeth A Hahn et al.•ARTICLE•Quality of Life Research•1999

  • Reliability and validity of the Functional Assessment of Cancer Therapy-Breast quality-of-life instrument.

    Marianne J Brady, David Cella et al.•ARTICLE•Journal of Clinical Oncology•1997

    PURPOSE: This is the first published report on the validation of the Functional Assessment of Cancer Therapy-Breast (FACT-B), a 44-item self-report instrument designed to measure multidimensional quality of life (QL) in patients with breast cancer. The FACT-B consists of the FACT-General (FACT-G) plus the Breast Cancer Subscale (BCS), which complements the general scale with items specific to QL in breast cancer. The FACT-B was developed with an …

  • The Functional Assessment of Cancer Therapy scale

    David Cella, D F Cella et al.•ARTICLE•Journal of Clinical Oncology•1993

    PURPOSE: We developed and validated a brief, yet sensitive, 33-item general cancer quality-of-life (QL) measure for evaluating patients receiving cancer treatment, called the Functional Assessment of Cancer Therapy (FACT) scale. METHODS AND RESULTS: The five-phase validation process involved 854 patients with cancer and 15 oncology specialists. The initial pool of 370 overlapping items for breast, lung, and colorectal cancer was generated by open…

  • Geographic variation in participation for physically disabled adults

    Open Access•Amanda L Botticello, Amanda Botticello et al.•ARTICLE•Social Science & Medicine•2012•Citada por: 2•Referencias: 8

  • Access and Coordination of Health Care Service for People With Disabilities

    Open Access•Karen Hwang, Mark Johnston et al.•ARTICLE•Journal of Disability Policy…•2008•Citada por: 1•Referencias: 3

    Individuals with disabilities often have multiple complex medical and nonmedical needs. Furthermore, in the current facility-directed health care system, they are at enhanced risk of receiving poorly coordinated, suboptimal care. This is especially problematic because individuals with disabilities face multiple barriers to receiving quality health care services, ranging from structural barriers (e.g., physical access to doctors' offices) to proce…

  • The Functional Assessment of Cancer Therapy scale

    David Cella, D F Cella et al.•ARTICLE•Journal of Clinical Oncology•1993

    PURPOSE: We developed and validated a brief, yet sensitive, 33-item general cancer quality-of-life (QL) measure for evaluating patients receiving cancer treatment, called the Functional Assessment of Cancer Therapy (FACT) scale. METHODS AND RESULTS: The five-phase validation process involved 854 patients with cancer and 15 oncology specialists. The initial pool of 370 overlapping items for breast, lung, and colorectal cancer was generated by open…

  • Reliability and validity of the Functional Assessment of Cancer Therapy-Breast quality-of-life instrument.

    Marianne J Brady, David Cella et al.•ARTICLE•Journal of Clinical Oncology•1997

    PURPOSE: This is the first published report on the validation of the Functional Assessment of Cancer Therapy-Breast (FACT-B), a 44-item self-report instrument designed to measure multidimensional quality of life (QL) in patients with breast cancer. The FACT-B consists of the FACT-General (FACT-G) plus the Breast Cancer Subscale (BCS), which complements the general scale with items specific to QL in breast cancer. The FACT-B was developed with an …

  • Reliability and validity of the Functional Assessment of Cancer Therapy-Colorectal (Fact-C) quality of life instrument

    Open Access•Wendy L Ward, Elizabeth A Hahn et al.•ARTICLE•Quality of Life Research•1999

  • Access and Coordination of Health Care Service for People With Disabilities

    Open Access•Karen Hwang, Mark Johnston et al.•ARTICLE•Journal of Disability Policy…•2008•Citada por: 1•Referencias: 3

    Individuals with disabilities often have multiple complex medical and nonmedical needs. Furthermore, in the current facility-directed health care system, they are at enhanced risk of receiving poorly coordinated, suboptimal care. This is especially problematic because individuals with disabilities face multiple barriers to receiving quality health care services, ranging from structural barriers (e.g., physical access to doctors' offices) to proce…

  • Geographic variation in participation for physically disabled adults

    Open Access•Amanda L Botticello, Amanda Botticello et al.•ARTICLE•Social Science & Medicine•2012•Citada por: 2•Referencias: 8

  • An examination of the PROMIS® pediatric instruments to assess mobility in children with cerebral palsy

    Open Access•Anna L Kratz, Mary D Slavin et al.•ARTICLE•Quality of Life Research•2013

  • Identification of health-related quality of life (HRQOL) issues relevant to individuals with Huntington disease

    Open Access•Noelle E Carlozzi, David S Tulsky•ARTICLE•Journal of Health Psychology•2013•Referencias: 23

    This qualitative study explored health-related quality of life (HRQOL) in individuals with Huntington disease (HD). Sixteen focus groups were conducted ( n = 6 groups with symptomatic HD individuals; n = 5 with individuals who are at-risk or prodromal for HD; n = 3 non-clinical HD caregivers; n = 2 groups with HD clinicians). Qualitative analysis indicated that 28% of focus group comments were related to emotional health, 27% to social participat…

  • Environmental Barriers and Supports to Everyday Participation

    Open Access•Joy Hammel, Susan Magasi et al.•ARTICLE•Archives of Physical Medicine and…•2015

  • Linkage between the PROMIS® pediatric and adult emotional distress measures

    Open Access•Bryce B Reeve, David Thissen et al.•ARTICLE•Quality of Life Research•2015

  • Using the ICF’s environmental factors framework to develop an item bank measuring built and natural environmental features affecting persons with disabilities

    Open Access•Allen W Heinemann, Jin‐Shei Lai et al.•ARTICLE•Quality of Life Research•2016

  • Psychometric evaluation of the pediatric and parent-proxy Patient-Reported Outcomes Measurement Information System and the Neurology and Traumatic Brain Injury Quality of Life measurement item banks i…

    Open Access•Hilary Bertisch, Frederick P Rivara et al.•ARTICLE•Quality of Life Research•2017

  • Relationships between environmental factors and participation in adults with traumatic brain injury, stroke, and spinal cord injury

    Open Access•Alex Wong, Alex W K Wong et al.•ARTICLE•Quality of Life Research•2017

  • Determining a transitional scoring link between PROMIS® pediatric and adult physical health measures

    Open Access•David S Tulsky, Pamela A Kisala et al.•ARTICLE•Quality of Life Research•2018

  • Measurement invariance of physical, mental, and social health PROMIS measures across individuals with spinal cord injury and traumatic brain injury

    Open Access•Sarah D Patrick, Gavin D Sanders et al.•ARTICLE•Quality of Life Research•2022

  • Establishing severity levels for patient-reported measures of functional communication, participation, and perceived cognitive function for adults with acquired cognitive and language disorders

    Open Access•Matthew L Cohen, Stacy M Harnish et al.•ARTICLE•Quality of Life Research•2022

    Standardized, stakeholder-informed severity levels that aid interpretation of PROM scores can help clinicians and researchers derive better clinical meaning from those scores, for example, by identifying important clinical windows of opportunity and assessing when symptoms have returned to a "normal" range

  • Health-related quality of life after major extremity trauma

    Open Access•Callie E Tyner, Pamela A Kisala et al.•ARTICLE•Quality of Life Research•2025

    Many HRQOL topics identified are shared with existing general PRO measures-including pain, physical function, anxiety, depression, anger, positive affect and well-being, fatigue, social participation, and loneliness-as well as rehabilitation-focused PRO measures-such as resilience, grief/loss, stigma, self-esteem, mobility, fine motor functioning, self-care, and independence. This qualitative research can be used to inform domains of HRQOL in nee…

  • Using confirmatory factor analysis to identify symptom clusters in individuals with acquired disabilities

    Open Access•David S Tulsky, Aaron J Boulton et al.•ARTICLE•Quality of Life Research•2026

    Acquired disabilities, such as spinal cord injury, traumatic brain injury, limb loss (or other major limb injury/illness), or stroke, are typically accompanied by an array of physical and emotional symptoms and social challenges that interfere with recovery and affect quality of life (QOL). Despite advances in personalized medicine, interrelationships between symptoms remain unclear, and clinicians often treat individual symptoms in isolation. Th…

Medicine (16 obras) · Psychology (13 obras) · Nursing (10 obras) · Clinical Psychology (9 obras) · Clinical Psychology (9 obras) · Psychiatry (7 obras) · Cerebral Palsy and Movement Disorders (6 obras) · Psychometrics (6 obras) · Public health (6 obras) · Quality of life (healthcare (6 obras)

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