Kevin W Southern
Datos Biográficos
| ID | 192540 |
|---|---|
| NOMBRE | Kevin W Southern |
| NOMBRES | Kevin W |
| APELLIDO | Southern |
| FIRMA | SOUTHERN K W |
| AFILIACIONES | Department of Women’s and Children’s Health, Institute of Translational Medicine, University of Liverpool, Alder Hey Children’s NHS Foundation Trust |
| ORCID | 0000-0001-6516-9083 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 4 |
| TOTAL DE CITAS | 2 |
| OBRAS COMO AUTOR | 4 |
| OBRAS COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 2012 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2025 |
| ÍNDICE H | 1 |
Development and validation of a short form psychometric tool assessing the caregiving Challenge of Living with Cystic Fibrosis (CLCF-SF) in a child
Objective Caring for a child with cystic fibrosis (CF) is a rigorous daily commitment for caregivers and treatment burden is a major concern. We aimed to develop and validate a short form version of a 46-item tool assessing the Challenge of Living with Cystic Fibrosis (CLCF) for clinical or research use.Design A novel genetic algorithm based on ‘evolving’ a subset of items from a pre-specified set of criteria, was applied to optimise the tool, us…
Development and preliminary validation of the challenges of living with cystic fibrosis (CLCF) questionnaire
OBJECTIVE: Treatments for cystic fibrosis (CF) are complex, labour-intensive, and perceived as highly burdensome by caregivers of children with CF. An instrument assessing burden of care is needed. DESIGN: A stepwise, qualitative design was used to create the CLCF with caregiver focus groups, participant researchers, a multidisciplinary professional panel, and cognitive interviews. MAIN OUTCOME MEASURES: ). RESULTS: = 0.002). CONCLUSIONS: The CLC…
Adherence to Aerosol Therapy in Young People With Cystic Fibrosis
The benefits of improved treatments for cystic fibrosis (CF) depend on optimal adherence, which remains problematic, particularly to aerosol therapy. In this study, we explored the process of adhering to aerosol therapy from the perspective of both adolescents with CF and their parents. Interviews were conducted individually with six adolescents and six parents, informed by accurate adherence data from an electronically chipped, aerosol device. I…
Parental information use in the context of newborn bloodspot screening. An exploratory mixed methods study
Adherence to Aerosol Therapy in Young People With Cystic Fibrosis
The benefits of improved treatments for cystic fibrosis (CF) depend on optimal adherence, which remains problematic, particularly to aerosol therapy. In this study, we explored the process of adhering to aerosol therapy from the perspective of both adolescents with CF and their parents. Interviews were conducted individually with six adolescents and six parents, informed by accurate adherence data from an electronically chipped, aerosol device. I…
Parental information use in the context of newborn bloodspot screening. An exploratory mixed methods study
Adherence to Aerosol Therapy in Young People With Cystic Fibrosis
The benefits of improved treatments for cystic fibrosis (CF) depend on optimal adherence, which remains problematic, particularly to aerosol therapy. In this study, we explored the process of adhering to aerosol therapy from the perspective of both adolescents with CF and their parents. Interviews were conducted individually with six adolescents and six parents, informed by accurate adherence data from an electronically chipped, aerosol device. I…
Development and preliminary validation of the challenges of living with cystic fibrosis (CLCF) questionnaire
OBJECTIVE: Treatments for cystic fibrosis (CF) are complex, labour-intensive, and perceived as highly burdensome by caregivers of children with CF. An instrument assessing burden of care is needed. DESIGN: A stepwise, qualitative design was used to create the CLCF with caregiver focus groups, participant researchers, a multidisciplinary professional panel, and cognitive interviews. MAIN OUTCOME MEASURES: ). RESULTS: = 0.002). CONCLUSIONS: The CLC…
Development and validation of a short form psychometric tool assessing the caregiving Challenge of Living with Cystic Fibrosis (CLCF-SF) in a child
Objective Caring for a child with cystic fibrosis (CF) is a rigorous daily commitment for caregivers and treatment burden is a major concern. We aimed to develop and validate a short form version of a 46-item tool assessing the Challenge of Living with Cystic Fibrosis (CLCF) for clinical or research use.Design A novel genetic algorithm based on ‘evolving’ a subset of items from a pre-specified set of criteria, was applied to optimise the tool, us…
Medicine (4 obras) · Clinical Psychology (3 obras) · Cystic fibrosis (3 obras) · Cystic Fibrosis Research Advances (3 obras) · Psychology (3 obras) · Convergent validity (2 obras) · Cronbach's alpha (2 obras) · Family and Disability Support Research (2 obras) · Internal consistency (2 obras) · Internal Medicine (2 obras)