Ruth Bartlett
Datos Biográficos
| ID | 208411 |
|---|---|
| NOMBRE | Ruth Bartlett |
| NOMBRES | Ruth |
| APELLIDO | Bartlett |
| FIRMA | BARTLETT R |
| AFILIACIONES | University of Southampton |
| ORCID | 0000-0002-3412-2300 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 22 |
| TOTAL DE CITAS | 232 |
| TOTAL COMO AUTOR | 22 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 2007 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2025 |
| ÍNDICE H | 7 |
Access to Social Farms for People With Dementia Living at Home in England
While much of the care literature has focused on the benefits of social farms for people living with dementia, less research has examined the accessibility of this form of support. Conducted in England between 2023 and 2024, this study examined access to social farms by people living with dementia using Levesque’s conceptual framework of access as a navigational guide. We surveyed 32 social farm managers, held four online focus groups—two with ca…
Vignette Research
Vignette research is an innovative qualitative, narrative and phenomenological research methodology that has gained international recognition, sparking interest from a wide range of individuals and institutions in global contexts. Vignettes are concise narratives, which capture human experiences in real life settings. They reveal surprising or intriguing facets and intangible moments. The experiential narratives resonate with readers and reduce t…
Religion and the everyday citizenship of people with dementia in Nigeria
This article contributes to advancing the understanding of the socially orientated everyday experience of dementia. It contributes to a small body of literature on the social aspect and everyday experiences of living with dementia in Africa and stands out as the first of its kind study in Nigeria
Using Walking / Go Along Interviews With People in Vulnerable Situations
Walking/go along interviews are increasingly used in qualitative research studies to explore various phenomena, including the experience of disability. The method involves a researcher walking or travelling alongside a participant in their local neighborhood and asking questions along the way. It enables researchers to generate data about a person’s relationship with themselves and others, as well as the place in which they live. Scholars acknowl…
Long-Term Care Homes
This article explores whether isolation and control observed during COVID-19 are a pandemic effect or a perpetual socio-spatial feature of long-term care (LTC) culture. We use narrative analysis to foreground the experiences of two women with dementia trying to leave LTC: one before and the other during the pandemic. Using the lens of affective citizenship, we argue that the spatial experiences of confinement for people living in LTC are routinel…
Inclusive (social) citizenship and persons with dementia
This article aims to advance knowledge of inclusive (social) citizenship, through an empirical analysis of the access work of persons with a dementia. Drawing on the notion of cognitive accessibility and empirical data collected in Southern England using a novel methodology of go-along walking interviews with 15 people with dementia followed by a sit-down interview that included a nominated family member, this paper examines how persons with deme…
Material Citizenship
Materiality has become an increasingly important topic in sociological studies of health care. How objects support the identity of people with dementia in care homes is an emerging area. While early research has tended to focus on sentimental or cherished items (such as photographs or keepsakes), the present study focused on functional objects (such as curling tongs or a hairdryer) as a mechanism to actualise citizenship. This article presents fi…
Using Walking Interviews to Enhance Research Relations with People with Dementia
Ethical research practice requires inclusionary approaches that enable people to contribute as fully as possible. Not enough is yet known about the impacts of dementia on daily life, however, people with dementia may find inclusion in research challenging, as the ‘cognitive load’ required may be overwhelming. When responding is difficult, others may contribute and the voice of people with dementia may be diminished. In this paper, the method of w…
On being outdoors
Ageing with a learning disability
Gender, citizenship and dementia care
Gender is a neglected dimension in public discourse related to people with dementia. Those living with this condition are typically portrayed in policies and strategies in gender neutral terms as 'people with dementia' and 'family carers' as if gender does not matter, when clearly it does. The purpose of this scoping review was to take stock of knowledge about gender differences in relation to dementia care to inform policy and future research. T…
I shouldn’t be living there because I am a sponger’
Learning disability policy has for some time been framed by the goal of inclusion which purports to enable people with learning disabilities to lead a ‘life like any other’ person. This article examines the extent to which this is the case in England, by tracing the lived experiences of people with learning disabilities within their communities. The article draws on two interlinked qualitative studies involving interviews that examined their loca…
Self-building safe havens in a post-service landscape
With the increased commitment towards personalisation in adult social care, allied with more ‘austere’ funding of social services and day centre closures, support is increasingly becoming less placement-driven and woven into everyday spaces within the community. Consequently, support is being re-framed from ‘care’ in formal settings towards an effort at enabling meaningful lives in a post-service landscape nested in local neighbourhoods and ordin…
Visualising dementia activism
This article contributes to methodological debates regarding the role of art in communicating research findings in the context of a completed research project on dementia activism. Previous work has focused on the value and effectiveness of using art to communicate research, rather than the actual transformation and creative process. As a result, there has been an inadequate exploration of how the art affects the scholarly endeavour. In this arti…
Citizenship in action
This article examines the experiences of citizens with dementia who campaign for social change, with a particular focus on the effects of campaigning on citizenry identity and psycho-emotional well-being. In diary-interviews, 16 people with dementia recorded and described their experiences of campaigning. Findings revealed that although campaigning can be energising and reaffirming of citizen identity, because it (re)located a person within the r…
The emergent modes of dementia activism
After decades of silencing and discrimination, people with dementia are beginning to join forces, take action and campaign for social change. Drawing on data obtained from ‘activists’ with dementia using diary interview method and participant observation, this paper considers the emergent modes of dementia activism in the context of the social movement literature, and in particular, work emphasising the role of networks in health social movements…
Playing with meaning
Cartoons are a ubiquitous form of visual communication. Yet they are often overlooked in methodological debates about dissemination. In this article, the potential of cartoons as a vehicle for processing and transmitting qualitative research findings is explored and some methodological advantages and concerns of using cartoons in this way are outlined. Discussion stems from a small-scale, experimental 'knowledge transfer' project located within a…
Modifying the Diary Interview Method to Research the Lives of People With Dementia
Debates about involving people with dementia in qualitative research are extensive, yet the range of methods used is limited. Researchers tend to rely on interview and/or observation methods to collect data, even though these tools might preclude participation. I modified the conventional diary interview method to include photo and audio diaries in an effort to investigate the lives of people with dementia in a participatory way. Sixteen people w…
Broadening the dementia debate
Broadening the dementia debate
From personhood to citizenship
Magic, Secrets, and Grim Reality
This article examines the performances that funeral directors undertake in protecting the public from the disorder of death and in creating the “magic” of a funeral. Goffman's (1959) concepts of back-stage/front-stage performances are used to illustrate the tension that arises as funeral workers switch between these two elements of their professional role. Based on fieldwork study in a number of funeral establishments, we present examples of the …
From personhood to citizenship
Self-building safe havens in a post-service landscape
With the increased commitment towards personalisation in adult social care, allied with more ‘austere’ funding of social services and day centre closures, support is increasingly becoming less placement-driven and woven into everyday spaces within the community. Consequently, support is being re-framed from ‘care’ in formal settings towards an effort at enabling meaningful lives in a post-service landscape nested in local neighbourhoods and ordin…
Citizenship in action
This article examines the experiences of citizens with dementia who campaign for social change, with a particular focus on the effects of campaigning on citizenry identity and psycho-emotional well-being. In diary-interviews, 16 people with dementia recorded and described their experiences of campaigning. Findings revealed that although campaigning can be energising and reaffirming of citizen identity, because it (re)located a person within the r…
Modifying the Diary Interview Method to Research the Lives of People With Dementia
Debates about involving people with dementia in qualitative research are extensive, yet the range of methods used is limited. Researchers tend to rely on interview and/or observation methods to collect data, even though these tools might preclude participation. I modified the conventional diary interview method to include photo and audio diaries in an effort to investigate the lives of people with dementia in a participatory way. Sixteen people w…
On being outdoors
Ageing with a learning disability
Visualising dementia activism
This article contributes to methodological debates regarding the role of art in communicating research findings in the context of a completed research project on dementia activism. Previous work has focused on the value and effectiveness of using art to communicate research, rather than the actual transformation and creative process. As a result, there has been an inadequate exploration of how the art affects the scholarly endeavour. In this arti…
I shouldn’t be living there because I am a sponger’
Learning disability policy has for some time been framed by the goal of inclusion which purports to enable people with learning disabilities to lead a ‘life like any other’ person. This article examines the extent to which this is the case in England, by tracing the lived experiences of people with learning disabilities within their communities. The article draws on two interlinked qualitative studies involving interviews that examined their loca…
The emergent modes of dementia activism
After decades of silencing and discrimination, people with dementia are beginning to join forces, take action and campaign for social change. Drawing on data obtained from ‘activists’ with dementia using diary interview method and participant observation, this paper considers the emergent modes of dementia activism in the context of the social movement literature, and in particular, work emphasising the role of networks in health social movements…
Playing with meaning
Cartoons are a ubiquitous form of visual communication. Yet they are often overlooked in methodological debates about dissemination. In this article, the potential of cartoons as a vehicle for processing and transmitting qualitative research findings is explored and some methodological advantages and concerns of using cartoons in this way are outlined. Discussion stems from a small-scale, experimental 'knowledge transfer' project located within a…
Inclusive (social) citizenship and persons with dementia
This article aims to advance knowledge of inclusive (social) citizenship, through an empirical analysis of the access work of persons with a dementia. Drawing on the notion of cognitive accessibility and empirical data collected in Southern England using a novel methodology of go-along walking interviews with 15 people with dementia followed by a sit-down interview that included a nominated family member, this paper examines how persons with deme…
Material Citizenship
Materiality has become an increasingly important topic in sociological studies of health care. How objects support the identity of people with dementia in care homes is an emerging area. While early research has tended to focus on sentimental or cherished items (such as photographs or keepsakes), the present study focused on functional objects (such as curling tongs or a hairdryer) as a mechanism to actualise citizenship. This article presents fi…
Long-Term Care Homes
This article explores whether isolation and control observed during COVID-19 are a pandemic effect or a perpetual socio-spatial feature of long-term care (LTC) culture. We use narrative analysis to foreground the experiences of two women with dementia trying to leave LTC: one before and the other during the pandemic. Using the lens of affective citizenship, we argue that the spatial experiences of confinement for people living in LTC are routinel…
Using Walking Interviews to Enhance Research Relations with People with Dementia
Ethical research practice requires inclusionary approaches that enable people to contribute as fully as possible. Not enough is yet known about the impacts of dementia on daily life, however, people with dementia may find inclusion in research challenging, as the ‘cognitive load’ required may be overwhelming. When responding is difficult, others may contribute and the voice of people with dementia may be diminished. In this paper, the method of w…
From personhood to citizenship
Magic, Secrets, and Grim Reality
This article examines the performances that funeral directors undertake in protecting the public from the disorder of death and in creating the “magic” of a funeral. Goffman's (1959) concepts of back-stage/front-stage performances are used to illustrate the tension that arises as funeral workers switch between these two elements of their professional role. Based on fieldwork study in a number of funeral establishments, we present examples of the …
Broadening the dementia debate
Broadening the dementia debate
Modifying the Diary Interview Method to Research the Lives of People With Dementia
Debates about involving people with dementia in qualitative research are extensive, yet the range of methods used is limited. Researchers tend to rely on interview and/or observation methods to collect data, even though these tools might preclude participation. I modified the conventional diary interview method to include photo and audio diaries in an effort to investigate the lives of people with dementia in a participatory way. Sixteen people w…
Playing with meaning
Cartoons are a ubiquitous form of visual communication. Yet they are often overlooked in methodological debates about dissemination. In this article, the potential of cartoons as a vehicle for processing and transmitting qualitative research findings is explored and some methodological advantages and concerns of using cartoons in this way are outlined. Discussion stems from a small-scale, experimental 'knowledge transfer' project located within a…
Citizenship in action
This article examines the experiences of citizens with dementia who campaign for social change, with a particular focus on the effects of campaigning on citizenry identity and psycho-emotional well-being. In diary-interviews, 16 people with dementia recorded and described their experiences of campaigning. Findings revealed that although campaigning can be energising and reaffirming of citizen identity, because it (re)located a person within the r…
The emergent modes of dementia activism
After decades of silencing and discrimination, people with dementia are beginning to join forces, take action and campaign for social change. Drawing on data obtained from ‘activists’ with dementia using diary interview method and participant observation, this paper considers the emergent modes of dementia activism in the context of the social movement literature, and in particular, work emphasising the role of networks in health social movements…
Visualising dementia activism
This article contributes to methodological debates regarding the role of art in communicating research findings in the context of a completed research project on dementia activism. Previous work has focused on the value and effectiveness of using art to communicate research, rather than the actual transformation and creative process. As a result, there has been an inadequate exploration of how the art affects the scholarly endeavour. In this arti…
Gender, citizenship and dementia care
Gender is a neglected dimension in public discourse related to people with dementia. Those living with this condition are typically portrayed in policies and strategies in gender neutral terms as 'people with dementia' and 'family carers' as if gender does not matter, when clearly it does. The purpose of this scoping review was to take stock of knowledge about gender differences in relation to dementia care to inform policy and future research. T…
I shouldn’t be living there because I am a sponger’
Learning disability policy has for some time been framed by the goal of inclusion which purports to enable people with learning disabilities to lead a ‘life like any other’ person. This article examines the extent to which this is the case in England, by tracing the lived experiences of people with learning disabilities within their communities. The article draws on two interlinked qualitative studies involving interviews that examined their loca…
Self-building safe havens in a post-service landscape
With the increased commitment towards personalisation in adult social care, allied with more ‘austere’ funding of social services and day centre closures, support is increasingly becoming less placement-driven and woven into everyday spaces within the community. Consequently, support is being re-framed from ‘care’ in formal settings towards an effort at enabling meaningful lives in a post-service landscape nested in local neighbourhoods and ordin…
On being outdoors
Ageing with a learning disability
Using Walking Interviews to Enhance Research Relations with People with Dementia
Ethical research practice requires inclusionary approaches that enable people to contribute as fully as possible. Not enough is yet known about the impacts of dementia on daily life, however, people with dementia may find inclusion in research challenging, as the ‘cognitive load’ required may be overwhelming. When responding is difficult, others may contribute and the voice of people with dementia may be diminished. In this paper, the method of w…
Inclusive (social) citizenship and persons with dementia
This article aims to advance knowledge of inclusive (social) citizenship, through an empirical analysis of the access work of persons with a dementia. Drawing on the notion of cognitive accessibility and empirical data collected in Southern England using a novel methodology of go-along walking interviews with 15 people with dementia followed by a sit-down interview that included a nominated family member, this paper examines how persons with deme…
Material Citizenship
Materiality has become an increasingly important topic in sociological studies of health care. How objects support the identity of people with dementia in care homes is an emerging area. While early research has tended to focus on sentimental or cherished items (such as photographs or keepsakes), the present study focused on functional objects (such as curling tongs or a hairdryer) as a mechanism to actualise citizenship. This article presents fi…
Using Walking / Go Along Interviews With People in Vulnerable Situations
Walking/go along interviews are increasingly used in qualitative research studies to explore various phenomena, including the experience of disability. The method involves a researcher walking or travelling alongside a participant in their local neighborhood and asking questions along the way. It enables researchers to generate data about a person’s relationship with themselves and others, as well as the place in which they live. Scholars acknowl…
Long-Term Care Homes
This article explores whether isolation and control observed during COVID-19 are a pandemic effect or a perpetual socio-spatial feature of long-term care (LTC) culture. We use narrative analysis to foreground the experiences of two women with dementia trying to leave LTC: one before and the other during the pandemic. Using the lens of affective citizenship, we argue that the spatial experiences of confinement for people living in LTC are routinel…
Vignette Research
Vignette research is an innovative qualitative, narrative and phenomenological research methodology that has gained international recognition, sparking interest from a wide range of individuals and institutions in global contexts. Vignettes are concise narratives, which capture human experiences in real life settings. They reveal surprising or intriguing facets and intangible moments. The experiential narratives resonate with readers and reduce t…
Religion and the everyday citizenship of people with dementia in Nigeria
This article contributes to advancing the understanding of the socially orientated everyday experience of dementia. It contributes to a small body of literature on the social aspect and everyday experiences of living with dementia in Africa and stands out as the first of its kind study in Nigeria
Access to Social Farms for People With Dementia Living at Home in England
While much of the care literature has focused on the benefits of social farms for people living with dementia, less research has examined the accessibility of this form of support. Conducted in England between 2023 and 2024, this study examined access to social farms by people living with dementia using Levesque’s conceptual framework of access as a navigational guide. We surveyed 32 social farm managers, held four online focus groups—two with ca…
Psychology (18 obras) · Sociology (18 obras) · Dementia (13 obras) · Medicine (13 obras) · Political science (13 obras) · Social science (11 obras) · Politics (8 obras) · Law (7 obras) · Qualitative research (7 obras) · Citizenship (6 obras)