Simon M Dyson
Datos Biográficos
| ID | 247450 |
|---|---|
| NOMBRE | Simon M Dyson |
| NOMBRES | Simon M |
| APELLIDO | Dyson |
| FIRMA | DYSON S M |
| AFILIACIONES | De Montfort University |
| ORCID | 0000-0002-4735-2527 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 34 |
| TOTAL DE CITAS | 115 |
| TOTAL COMO AUTOR | 34 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 1986 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2026 |
| ÍNDICE H | 7 |
A Racialized Capitalism Perspective on the Work and Employment of Black and Minoritized Ethnic Workers Living With Sickle Cell Disorder
Little is known about the employment experiences of Black minoritized ethnic workers in England with sickle cell disorder (SCD). Using Satnam Virdee's concept of racialized capitalism within the context of a critical discussion of intersectionality, we argue that their experiences are usefully understood as shared occurrences of racism determined by structural conditions across three generations. Drawing on in‐depth interviews with 47 individuals…
I want to become someone!” gender, reproduction and the moral career of motherhood for women with sickle cell disorders
In Sierra Leone, motherhood is being transformed into a moral career for women with sickle cell disorders. This qualitative participatory study, conducted in 2018, involved thirty-six semi-structured interviews with female care-givers and women with sickle cell disorders. Mothers argued that medical models of disease, combined with caring practices, are means to morally manage ideas of 'spoiled identity' and rethink the sick role, disability and …
On the possibility of a disabled life in capitalist ruins
The link between workers with sickle cell disorder (SCD) and employment has until now been seen through the lens of the person's disease, not their relationship to work (paid and unpaid). Using SCD as a case study, we foreground relations of employment, setting sickle cell and work into ecological context. In 2018, two focus group discussions and 47 depth-interviews were conducted with black disabled workers living with SCD across England. The re…
Intersectionality and employment in the United Kingdom
This paper begins by giving a description of the relationship between austerity and the neoliberal policy focus on work in the UK, and how this impacts negatively on disabled people. It examines why Black disabled people’s employment experiences have been missing in the literature despite the fact that they are more affected by austerity. Black disabled people’s experiences in the job market tend to focus on racism and discrimination, whilst othe…
"You have to find a caring man, like your father!" gendering sickle cell and refashioning women's moral boundaries in Sierra Leone
Most research on sickle cell disorders has tended to be gender-blind. This qualitative study undertaken in 2018, explores if and how sickle cell disorders become gendered in Sierra Leone through the analytical framework of a feminist ethics of care. It argues that women have to navigate moral blame when they have children with the condition. At the same time women refashion moral boundaries so that gendered norms around childhood and parenting fo…
Assessing Latour
The work of Bruno Latour has animated debates in sociology, anthropology and philosophy over several decades, while attracting criticisms of the ontological, epistemological and political implications of his focus on networks. This article takes a particular depth example - the case of the genetic condition of sickle cell - and, drawing upon anthropological, archaeological and sociological evidence of the sickle cell body in history, appraises ea…
Resignifying the sickle cell gene
Connecting theoretical discussion with empirical qualitative work, this article examines how sickle cell became a site of public health intervention in terms of 'racialised' risks. Historically, sickle cell became socio-politically allied to ideas of repair, in terms of the state improving the health of a neglected ethnic minority population. Yet, we elucidate how partial improvements in care and education arose alongside preventative public heal…
Talk to Me. There’s Two of Us’
Studying kinship has involved doing family, displaying family and ‘displaying family’ as a sensitising concept to understand modalities troublesome to display. Fathers at antenatal screening clinics for sickle cell are faced with pressures to produce multiple displays – of family, illness knowledge, the good father and the model citizen – often in the face of racialised identities. Such fathers emphasise the importance of hypervisibility in gende…
Narrative as re-fusion
The moral turn within sociology suggests that we need to be attentive to values and have a rapprochement with philosophy. The study of illness narratives is one area of sociology that has consistently addressed itself to moral domains but has tended to focus on stories of living with genetic or chronic illness per se rather than liminal states such as genetic traits. This article takes the case of genetic carriers within racialized minority group…
Living with sickle cell disease and depression in Lagos, Nigeria
Sickle cell disorders (SCD) and depression are both chronic illnesses of global significance. Past research on SCD and depression struggles to make sense of statistical associations, essentializes depression within the person with SCD, and treats stigma as an automatic correlate of chronic illness. A mixed methods study (March 2012-April 2014) was undertaken with people living with SCD and depression in Lagos, Nigeria, examining depression-as dis…
Actor network theory, agency and racism
Who's the guy in the room?' Involving fathers in antenatal care screening for sickle cell disorders
The Politics of Health Services Research
Previous health services research has failed to account for the role played by clinical staff in the collection of data. In this paper we use the work of Roth on hired hand research to examine the politics of evidence production within health services research. Sociologies of work predict lack of engagement in the research tasks by subordinated groups of workers. We examine the role of midwives in researching ante-natal screening for sickle cell …
Critical realism, agency and sickle cell
Critical realism suggests that historical structures may operate as underlying generative mechanisms but not always be activated. This explains the near-absence of references to racism by black students with sickle cell disorder (SCD). Through case studies we show how latent mechanisms are not activated, and how social actors come to develop corporate agency. Themes discussed include: wider/historical racisms (carers' own experiences of overt rac…
Sickle cell and thalassaemia
I can die today, I can die tomorrow’
Lay perspectives on SCD are constructed in the contexts of enduring culture (the high value placed on children); changing culture (medicine and research as available alternative discourses to supernatural ones); altered material circumstances (newborn screening producing cohorts of children with SCD); changing political situations (insurance-based treatment); enhanced family resources (the experience of a cohort of young people with SCD). Above a…
Territory, Ancestry and Descent
Sociologists have long questioned the naturalness and stability of 'ethnic groups', suggesting that a concern with how they are socially constituted is more appropriate. However, the example of genetically based medical conditions appears to challenge this by suggesting that, in certain cases, ancestry, territorial affiliation and identity may be linked objectively by genetics. The article uses the example of sickle cell disease (SCD) to examine …
Sickle cell, habitual dys-positions and fragile dispositions
The experiences of young people living with a sickle cell disorder in schools in England are reported through a thematic analysis of forty interviews, using Bourdieu's notions of field, capital and habitus. Young people with sickle cell are found to be habitually dys-positioned between the demands of the clinic for health maintenance through self-care and the field of the school, with its emphases on routines, consistent attendance and contextual…
Reported school experiences of young people living with sickle cell disorder in England
A survey of 569 young people with sickle cell disorder (SCD) in England has found such pupils miss considerable periods of time from school, typically in short periods of two or three days. One in eight has school absences equating to government‐defined ‘persistent absence’. Students with SCD report that they are not helped to catch up after these school absences. Half the children reported not being allowed to use the toilet when needed and not …
Disclosure and sickle cell disorder
Children and young people in hospitals
Young people in hospitals face a range of challenging issues. Many have chronic conditions and experience stigmatisation, anxiety and family conflict. They may also experience social isolation in hospitals, separation from local peer groups and sources of support, and separation from trusted carers during transition to adult care. These issues can require careful handling. However, there is evidence that clinical staff often do not communicate ef…
Ethnicity, Health and Health Care
W.I.U. Ahmad and H. Bradby (eds) Ethnicity, Health and Health Care: Understanding diversity, tackling disadvantage . Malden, MA and Oxford : Blackwell , 2008 £19.99 (pbk) ISBN 978-1-4051-6898-4 This book, edited by two sociologists who have helped delineate the field, brings the reader up to date through seven empirical studies in ethnicity and health care, covering self-reported health, nutrition, depression, end-of-life care, diabetes, chronic …
Beyond normalization and impairment
Normalization and social role valorization continue to play a central role in shaping debates and practice relating to learning difficulties. In the context of recent arguments this paper draws on the work of Foucault to deconstruct these theories. Foucault’s work alerts us to a conceptual confusion at their heart which reproduces a common but problematic individual–society dualism. There is an implicit, and problematic, presence in the theories …
Local authorities and the education of young people with sickle cell disorders in England
The successful inclusion of minority ethnic pupils with sickle cell disorders (SCD) raises a number of challenges for educational systems. In England, local education authorities were important drivers for innovative responses to complex needs and the former Inner London Education Authority produced guidance in 1989 on SCD in schools. Local education authorities, however, have been superseded by centralised curricula on the one hand and by local …
Ethnicity questions and antenatal screening for sickle cell/thalassaemia (Equans) in England
The objective of this study was to describe understandings that mothers and midwives have of ethnicity, and to explore barriers to the successful implementation of an ethnicity screening question for sickle cell/thalassaemia. Observation was made of 121 first antenatal interviews between midwife and mother in four contrasting areas of sickle cell prevalence in England. Taped interviews were undertaken with 111 mothers, and 115 interviews were rec…
"Race", ethnicity and haemoglobin disorders
I can die today, I can die tomorrow’
Lay perspectives on SCD are constructed in the contexts of enduring culture (the high value placed on children); changing culture (medicine and research as available alternative discourses to supernatural ones); altered material circumstances (newborn screening producing cohorts of children with SCD); changing political situations (insurance-based treatment); enhanced family resources (the experience of a cohort of young people with SCD). Above a…
Territory, Ancestry and Descent
Sociologists have long questioned the naturalness and stability of 'ethnic groups', suggesting that a concern with how they are socially constituted is more appropriate. However, the example of genetically based medical conditions appears to challenge this by suggesting that, in certain cases, ancestry, territorial affiliation and identity may be linked objectively by genetics. The article uses the example of sickle cell disease (SCD) to examine …
Sickle cell, habitual dys-positions and fragile dispositions
The experiences of young people living with a sickle cell disorder in schools in England are reported through a thematic analysis of forty interviews, using Bourdieu's notions of field, capital and habitus. Young people with sickle cell are found to be habitually dys-positioned between the demands of the clinic for health maintenance through self-care and the field of the school, with its emphases on routines, consistent attendance and contextual…
"You have to find a caring man, like your father!" gendering sickle cell and refashioning women's moral boundaries in Sierra Leone
Most research on sickle cell disorders has tended to be gender-blind. This qualitative study undertaken in 2018, explores if and how sickle cell disorders become gendered in Sierra Leone through the analytical framework of a feminist ethics of care. It argues that women have to navigate moral blame when they have children with the condition. At the same time women refashion moral boundaries so that gendered norms around childhood and parenting fo…
Disclosure and sickle cell disorder
Living with sickle cell disease and depression in Lagos, Nigeria
Sickle cell disorders (SCD) and depression are both chronic illnesses of global significance. Past research on SCD and depression struggles to make sense of statistical associations, essentializes depression within the person with SCD, and treats stigma as an automatic correlate of chronic illness. A mixed methods study (March 2012-April 2014) was undertaken with people living with SCD and depression in Lagos, Nigeria, examining depression-as dis…
Beyond normalization and impairment
Normalization and social role valorization continue to play a central role in shaping debates and practice relating to learning difficulties. In the context of recent arguments this paper draws on the work of Foucault to deconstruct these theories. Foucault’s work alerts us to a conceptual confusion at their heart which reproduces a common but problematic individual–society dualism. There is an implicit, and problematic, presence in the theories …
The feasibility of using ethnicity as a primary tool for antenatal selective screening for sickle cell disorders
Who's the guy in the room?' Involving fathers in antenatal care screening for sickle cell disorders
On the possibility of a disabled life in capitalist ruins
The link between workers with sickle cell disorder (SCD) and employment has until now been seen through the lens of the person's disease, not their relationship to work (paid and unpaid). Using SCD as a case study, we foreground relations of employment, setting sickle cell and work into ecological context. In 2018, two focus group discussions and 47 depth-interviews were conducted with black disabled workers living with SCD across England. The re…
Intersectionality and employment in the United Kingdom
This paper begins by giving a description of the relationship between austerity and the neoliberal policy focus on work in the UK, and how this impacts negatively on disabled people. It examines why Black disabled people’s employment experiences have been missing in the literature despite the fact that they are more affected by austerity. Black disabled people’s experiences in the job market tend to focus on racism and discrimination, whilst othe…
Actor network theory, agency and racism
Critical realism, agency and sickle cell
Critical realism suggests that historical structures may operate as underlying generative mechanisms but not always be activated. This explains the near-absence of references to racism by black students with sickle cell disorder (SCD). Through case studies we show how latent mechanisms are not activated, and how social actors come to develop corporate agency. Themes discussed include: wider/historical racisms (carers' own experiences of overt rac…
Knowledge of sickle-cell in a screened population
The aim of this study is to begin to assess the awareness and knowledge of sickle-cell amongst carriers and non-carriers in a screened population of primarily African-Caribbean descent. A structured questionnaire containing 10 multiple-choice knowledge questions on sickle-cell was administered by community interviewers of African-Caribbean descent who did not know the respondents' haemoglobinopathy status. The survey took place in Leicester betwe…
Talk to Me. There’s Two of Us’
Studying kinship has involved doing family, displaying family and ‘displaying family’ as a sensitising concept to understand modalities troublesome to display. Fathers at antenatal screening clinics for sickle cell are faced with pressures to produce multiple displays – of family, illness knowledge, the good father and the model citizen – often in the face of racialised identities. Such fathers emphasise the importance of hypervisibility in gende…
Ethnicity Questions and Antenatal Screening for Sickle Cell/Thalassaemia [Equans] in England
A category-based ethnicity screening question was more effective than a binary plus open-ended question. Using the more effective question, 5.74% (CI 2.34-11.46%) of significant haemoglobinopathies will be missed in a selective screening programme, and 4.33% (CI 2.63-6.68%) of replies to an ethnicity screening question will be unreliable when compared to information given upon re-interview. In specific carefully circumscribed situations, namely, …
Genetic screening and ethnic minorities
No theory of ‘race’ and ethnicity is without serious practical drawbacks for effecting selective screening for haemoglobin disorders. Universal screening raises issues about consent, resources and eugenicist representation of impairment. The latter requires that people living with haemoglobin disorders and their counsellors should be central to education of practitioners in this area. Practitioners should link explanations of the haemoglobin diso…
Assessing Latour
The work of Bruno Latour has animated debates in sociology, anthropology and philosophy over several decades, while attracting criticisms of the ontological, epistemological and political implications of his focus on networks. This article takes a particular depth example - the case of the genetic condition of sickle cell - and, drawing upon anthropological, archaeological and sociological evidence of the sickle cell body in history, appraises ea…
Resignifying the sickle cell gene
Connecting theoretical discussion with empirical qualitative work, this article examines how sickle cell became a site of public health intervention in terms of 'racialised' risks. Historically, sickle cell became socio-politically allied to ideas of repair, in terms of the state improving the health of a neglected ethnic minority population. Yet, we elucidate how partial improvements in care and education arose alongside preventative public heal…
Reported school experiences of young people living with sickle cell disorder in England
A survey of 569 young people with sickle cell disorder (SCD) in England has found such pupils miss considerable periods of time from school, typically in short periods of two or three days. One in eight has school absences equating to government‐defined ‘persistent absence’. Students with SCD report that they are not helped to catch up after these school absences. Half the children reported not being allowed to use the toilet when needed and not …
Children and young people in hospitals
Young people in hospitals face a range of challenging issues. Many have chronic conditions and experience stigmatisation, anxiety and family conflict. They may also experience social isolation in hospitals, separation from local peer groups and sources of support, and separation from trusted carers during transition to adult care. These issues can require careful handling. However, there is evidence that clinical staff often do not communicate ef…
Local authorities and the education of young people with sickle cell disorders in England
The successful inclusion of minority ethnic pupils with sickle cell disorders (SCD) raises a number of challenges for educational systems. In England, local education authorities were important drivers for innovative responses to complex needs and the former Inner London Education Authority produced guidance in 1989 on SCD in schools. Local education authorities, however, have been superseded by centralised curricula on the one hand and by local …
The educational experiences of young people with sickle cell disorder
Sickle cell disease (SCD) is a chronic illness that in England disproportionately affects marginalized ethnic groups, but has yet to feature extensively within educational or disability research. This review of existing literature makes the case for a sustained developmental research programme around SCD, disability and education. There are potentially life-saving decisions that could be made by teachers in caring for a child with SCD. The place …
Professionals, Mentally Handicapped Children and Confidential Files
The professional files kept on ESN (S) children contain self-contradictory justifications for school placements; damaging social stereotyping; moral evaluation of parents; professional procedures involving circularity of thought, and attempts by professionals to protect themselves from the type of abuse to which they subject the children and their parents. On the basis that confidentiality offends both quality of information and basic human right…
Polls Apart
"Race", ethnicity and haemoglobin disorders
Genetic screening and ethnic minorities
No theory of ‘race’ and ethnicity is without serious practical drawbacks for effecting selective screening for haemoglobin disorders. Universal screening raises issues about consent, resources and eugenicist representation of impairment. The latter requires that people living with haemoglobin disorders and their counsellors should be central to education of practitioners in this area. Practitioners should link explanations of the haemoglobin diso…
The feasibility of using ethnicity as a primary tool for antenatal selective screening for sickle cell disorders
Sickle Cell Anaemia and Deaths in Custody in the UK and the USA
An unexplained death in custody represents an important focal point for public scrutiny of the criminal justice system, especially when excess deaths occur in those of minority ethnic descent. Sickle cell anaemia is a serious inherited blood disorder disproportionately affecting minority ethnic groups. Sickle cell trait is the genetic carrier state and not an illness. The evidence suggests that the treatment of sickle cell in the criminal justice…
Ethnicity Questions and Antenatal Screening for Sickle Cell/Thalassaemia [Equans] in England
A category-based ethnicity screening question was more effective than a binary plus open-ended question. Using the more effective question, 5.74% (CI 2.34-11.46%) of significant haemoglobinopathies will be missed in a selective screening programme, and 4.33% (CI 2.63-6.68%) of replies to an ethnicity screening question will be unreliable when compared to information given upon re-interview. In specific carefully circumscribed situations, namely, …
Ethnicity questions and antenatal screening for sickle cell/thalassaemia (Equans) in England
The objective of this study was to describe understandings that mothers and midwives have of ethnicity, and to explore barriers to the successful implementation of an ethnicity screening question for sickle cell/thalassaemia. Observation was made of 121 first antenatal interviews between midwife and mother in four contrasting areas of sickle cell prevalence in England. Taped interviews were undertaken with 111 mothers, and 115 interviews were rec…
The educational experiences of young people with sickle cell disorder
Sickle cell disease (SCD) is a chronic illness that in England disproportionately affects marginalized ethnic groups, but has yet to feature extensively within educational or disability research. This review of existing literature makes the case for a sustained developmental research programme around SCD, disability and education. There are potentially life-saving decisions that could be made by teachers in caring for a child with SCD. The place …
Knowledge of sickle-cell in a screened population
The aim of this study is to begin to assess the awareness and knowledge of sickle-cell amongst carriers and non-carriers in a screened population of primarily African-Caribbean descent. A structured questionnaire containing 10 multiple-choice knowledge questions on sickle-cell was administered by community interviewers of African-Caribbean descent who did not know the respondents' haemoglobinopathy status. The survey took place in Leicester betwe…
Beyond normalization and impairment
Normalization and social role valorization continue to play a central role in shaping debates and practice relating to learning difficulties. In the context of recent arguments this paper draws on the work of Foucault to deconstruct these theories. Foucault’s work alerts us to a conceptual confusion at their heart which reproduces a common but problematic individual–society dualism. There is an implicit, and problematic, presence in the theories …
Local authorities and the education of young people with sickle cell disorders in England
The successful inclusion of minority ethnic pupils with sickle cell disorders (SCD) raises a number of challenges for educational systems. In England, local education authorities were important drivers for innovative responses to complex needs and the former Inner London Education Authority produced guidance in 1989 on SCD in schools. Local education authorities, however, have been superseded by centralised curricula on the one hand and by local …
Children and young people in hospitals
Young people in hospitals face a range of challenging issues. Many have chronic conditions and experience stigmatisation, anxiety and family conflict. They may also experience social isolation in hospitals, separation from local peer groups and sources of support, and separation from trusted carers during transition to adult care. These issues can require careful handling. However, there is evidence that clinical staff often do not communicate ef…
Ethnicity, Health and Health Care
W.I.U. Ahmad and H. Bradby (eds) Ethnicity, Health and Health Care: Understanding diversity, tackling disadvantage . Malden, MA and Oxford : Blackwell , 2008 £19.99 (pbk) ISBN 978-1-4051-6898-4 This book, edited by two sociologists who have helped delineate the field, brings the reader up to date through seven empirical studies in ethnicity and health care, covering self-reported health, nutrition, depression, end-of-life care, diabetes, chronic …
Reported school experiences of young people living with sickle cell disorder in England
A survey of 569 young people with sickle cell disorder (SCD) in England has found such pupils miss considerable periods of time from school, typically in short periods of two or three days. One in eight has school absences equating to government‐defined ‘persistent absence’. Students with SCD report that they are not helped to catch up after these school absences. Half the children reported not being allowed to use the toilet when needed and not …
Disclosure and sickle cell disorder
Sickle cell and thalassaemia
I can die today, I can die tomorrow’
Lay perspectives on SCD are constructed in the contexts of enduring culture (the high value placed on children); changing culture (medicine and research as available alternative discourses to supernatural ones); altered material circumstances (newborn screening producing cohorts of children with SCD); changing political situations (insurance-based treatment); enhanced family resources (the experience of a cohort of young people with SCD). Above a…
Territory, Ancestry and Descent
Sociologists have long questioned the naturalness and stability of 'ethnic groups', suggesting that a concern with how they are socially constituted is more appropriate. However, the example of genetically based medical conditions appears to challenge this by suggesting that, in certain cases, ancestry, territorial affiliation and identity may be linked objectively by genetics. The article uses the example of sickle cell disease (SCD) to examine …
Sickle cell, habitual dys-positions and fragile dispositions
The experiences of young people living with a sickle cell disorder in schools in England are reported through a thematic analysis of forty interviews, using Bourdieu's notions of field, capital and habitus. Young people with sickle cell are found to be habitually dys-positioned between the demands of the clinic for health maintenance through self-care and the field of the school, with its emphases on routines, consistent attendance and contextual…
The Politics of Health Services Research
Previous health services research has failed to account for the role played by clinical staff in the collection of data. In this paper we use the work of Roth on hired hand research to examine the politics of evidence production within health services research. Sociologies of work predict lack of engagement in the research tasks by subordinated groups of workers. We examine the role of midwives in researching ante-natal screening for sickle cell …
Critical realism, agency and sickle cell
Critical realism suggests that historical structures may operate as underlying generative mechanisms but not always be activated. This explains the near-absence of references to racism by black students with sickle cell disorder (SCD). Through case studies we show how latent mechanisms are not activated, and how social actors come to develop corporate agency. Themes discussed include: wider/historical racisms (carers' own experiences of overt rac…
Actor network theory, agency and racism
Who's the guy in the room?' Involving fathers in antenatal care screening for sickle cell disorders
Talk to Me. There’s Two of Us’
Studying kinship has involved doing family, displaying family and ‘displaying family’ as a sensitising concept to understand modalities troublesome to display. Fathers at antenatal screening clinics for sickle cell are faced with pressures to produce multiple displays – of family, illness knowledge, the good father and the model citizen – often in the face of racialised identities. Such fathers emphasise the importance of hypervisibility in gende…
Sociology (24 obras) · Hemoglobinopathies and Related Disorders (21 obras) · Political science (21 obras) · Psychology (17 obras) · Medicine (16 obras) · Ethnic group (13 obras) · Gender Studies (13 obras) · Law (13 obras) · Gender Studies (12 obras) · Politics (10 obras)