Julie Darbyshire
Datos Biográficos
| ID | 257885 |
|---|---|
| NOMBRE | Julie Darbyshire |
| NOMBRES | Julie |
| APELLIDO | Darbyshire |
| FIRMA | DARBYSHIRE J |
| AFILIACIONES | University of Oxford |
| ORCID | 0000-0002-7655-1963 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 6 |
| TOTAL DE CITAS | 4 |
| TOTAL COMO AUTOR | 6 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 2012 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2025 |
| ÍNDICE H | 2 |
Choosing wisely? A frame analysis of the evolution and adoption of shared decision making in the UK
Shared decision making is an ethical way to engage patients in treatment decisions. • Shared decision making is both means (to a wise choice) and end (choosing wisely). • Shared decision making has been shaped by changing social norms. • The immediate clinical context can impede the process of shared decision making. • Shared decision making can be skewed by health system priorities
Addressing Inequalities in Long Covid Healthcare
BACKGROUND: Long Covid (LC) significantly impacts health, economic and social activities. Women, deprived, learning disability, homeless and some minority ethnic populations have high prevalence rates but low access to support, indicating health inequities in LC care. AIM: To identify health inequities in LC care and inclusion strategies that align with the priorities of people with LC. DESIGN AND SETTING: Mixed-methods study employing qualitativ…
What Can We Learn Four Years On? A Multi‐Centre Service Evaluation Exploring Symptoms, Functional Impact, Recovery and Care Pathways in Long Covid
BACKGROUND: Long Covid (LC) is associated with long-term health impacts that require ongoing support from healthcare services. We aimed to gain insights into patients' perceptions of their ongoing symptoms of LC, the effect on daily living and vocation, perceptions of what helps with LC recovery, as well as LC care pathways and ongoing care needs. METHODS: An online survey was sent to 513 participants who had used one of three LC services across …
Working knowledge, uncertainty and ontological politics
Long covid (persistent COVID-19) is a new disease with contested aetiology and variable prognosis. We report a 2-year ethnography of UK long covid clinics. Using a preformative lens, we show that multidisciplinary teams (MDTs) built working knowledge based on shared practices, mutual trust, distributed cognition (e.g. emails, record entries), relational knowledge of what was at stake for the patient, and harnessing uncertainty to open new discurs…
Public involvement in the governance of population-level biomedical research
Population-level biomedical research offers new opportunities to improve population health, but also raises new challenges to traditional systems of research governance and ethical oversight. Partly in response to these challenges, various models of public involvement in research are being introduced. Yet, the ways in which public involvement should meet governance challenges are not well understood. We conducted a qualitative study with 36 exper…
Understanding the outcomes of multi-centre clinical trials
Working knowledge, uncertainty and ontological politics
Long covid (persistent COVID-19) is a new disease with contested aetiology and variable prognosis. We report a 2-year ethnography of UK long covid clinics. Using a preformative lens, we show that multidisciplinary teams (MDTs) built working knowledge based on shared practices, mutual trust, distributed cognition (e.g. emails, record entries), relational knowledge of what was at stake for the patient, and harnessing uncertainty to open new discurs…
Understanding the outcomes of multi-centre clinical trials
Understanding the outcomes of multi-centre clinical trials
Public involvement in the governance of population-level biomedical research
Population-level biomedical research offers new opportunities to improve population health, but also raises new challenges to traditional systems of research governance and ethical oversight. Partly in response to these challenges, various models of public involvement in research are being introduced. Yet, the ways in which public involvement should meet governance challenges are not well understood. We conducted a qualitative study with 36 exper…
Working knowledge, uncertainty and ontological politics
Long covid (persistent COVID-19) is a new disease with contested aetiology and variable prognosis. We report a 2-year ethnography of UK long covid clinics. Using a preformative lens, we show that multidisciplinary teams (MDTs) built working knowledge based on shared practices, mutual trust, distributed cognition (e.g. emails, record entries), relational knowledge of what was at stake for the patient, and harnessing uncertainty to open new discurs…
Choosing wisely? A frame analysis of the evolution and adoption of shared decision making in the UK
Shared decision making is an ethical way to engage patients in treatment decisions. • Shared decision making is both means (to a wise choice) and end (choosing wisely). • Shared decision making has been shaped by changing social norms. • The immediate clinical context can impede the process of shared decision making. • Shared decision making can be skewed by health system priorities
Addressing Inequalities in Long Covid Healthcare
BACKGROUND: Long Covid (LC) significantly impacts health, economic and social activities. Women, deprived, learning disability, homeless and some minority ethnic populations have high prevalence rates but low access to support, indicating health inequities in LC care. AIM: To identify health inequities in LC care and inclusion strategies that align with the priorities of people with LC. DESIGN AND SETTING: Mixed-methods study employing qualitativ…
What Can We Learn Four Years On? A Multi‐Centre Service Evaluation Exploring Symptoms, Functional Impact, Recovery and Care Pathways in Long Covid
BACKGROUND: Long Covid (LC) is associated with long-term health impacts that require ongoing support from healthcare services. We aimed to gain insights into patients' perceptions of their ongoing symptoms of LC, the effect on daily living and vocation, perceptions of what helps with LC recovery, as well as LC care pathways and ongoing care needs. METHODS: An online survey was sent to 513 participants who had used one of three LC services across …
Sociology (5 obras) · Medicine (4 obras) · Health care (3 obras) · Intensive Care Unit Cognitive Disorders (3 obras) · Long-Term Effects of COVID-19 (3 obras) · Nursing (3 obras) · Political science (3 obras) · Psychology (3 obras) · Business (2 obras) · Computer Science (2 obras)