Sophie Staniszewska
Datos Biográficos
| ID | 259959 |
|---|---|
| NOMBRE | Sophie Staniszewska |
| NOMBRES | Sophie |
| APELLIDO | Staniszewska |
| FIRMA | STANISZEWSKA S |
| AFILIACIONES | University of Warwick |
| ORCID | 0000-0002-7723-9074 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 22 |
| TOTAL DE CITAS | 30 |
| TOTAL COMO AUTOR | 22 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 1999 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2026 |
| ÍNDICE H | 3 |
Patient and public involvement in health technology assessments
Patient and public involvement (PPI) is an essential component of Health Technology Assessment (HTA), as it enhances the relevance and transparency of evaluation processes. Nevertheless, the scope of such involvement varies considerably across contexts, and empirical evidence on current practices within the National Health System remains limited. This study will examine the extent to which HTA reports incorporate PPI and how these practices are p…
Gripp2
Patient and public involvement in research contributes to improving the relevance of studies, although its reporting in the literature is inconsistent and lacks clarity. To enhance the transparency and quality of this involvement, the GRIPP2 (Guidance for Reporting Involvement of Patients and the Public) guidelines were developed, providing specific guidance for systematic and transparent reporting. This methodological note describes the adaptati…
Understanding Inclusion and Participation of People From Black African Diaspora Communities in Health and Care Research
Comparing In-Person and Remote Qualitative Data Collection Methods for Data Quality and Inclusion
Background: In-person data collection has long been considered the ‘gold standard’ for qualitative data collection. Societal changes and the rapid increase in the use of remote methods during the Covid-19 pandemic intensified debate about the limitations and opportunities of remote data collection, while reigniting questions about data quality and inclusion. Objective: We sought to map available evidence exploring the characteristics and quality …
What Does “Good” Community and Public Engagement Look Like? Developing Relationships With Community Members in Global Health Research
Community and public engagement (CPE) is increasingly becoming a key component in global health research. The National Institute for Health Research (NIHR) is one of the leading funders in the UK of global health research and requires a robust CPE element in the research it funds, along with CPE monitoring and evaluation. But what does “good” CPE look like? And what factors facilitate or inhibit good CPE? Addressing these questions would help ens…
Consolidated Health Economic Evaluation Reporting Standards 2022 (CHEERS 2022) statement
Health economic evaluations are comparative analyses of alternative courses of action in terms of their costs and consequences. The Consolidated Health Economic Evaluation Reporting Standards (CHEERS) statement, published in 2013, was created to ensure health economic evaluations are identifiable, interpretable, and useful for decision making. It was intended as guidance to help authors report accurately which health interventions were being comp…
“About sixty per cent I want to do it”
BACKGROUND: Funders, policy-makers and research organizations increasingly expect health researchers in the UK to involve patients and members of the public in research. It has been stated that it makes research "more effective, more credible and often more cost efficient." However, the evidence base for this assertion is evolving and can be limited. There has been little research into how health researchers feel about involving people, how they …
GRIPP2 reporting checklists
While the patient and public involvement (PPI) evidence base has expanded over the past decade, the quality of reporting within papers is often inconsistent, limiting our understanding of how it works, in what context, for whom, and why. To develop international consensus on the key items to report to enhance the quality, transparency, and consistency of the PPI evidence base. To collaboratively involve patients as research partners at all stages…
GRIPP2 reporting checklists
Background While the patient and public involvement (PPI) evidence base has expanded over the past decade, the quality of reporting within papers is often inconsistent, limiting our understanding of how it works, in what context, for whom, and why. Objective To develop international consensus on the key items to report to enhance the quality, transparency, and consistency of the PPI evidence base. To collaboratively involve patients as research p…
The power of symbolic capital in patient and public involvement in health research
BACKGROUND: Policy-makers and health research funders increasingly require researchers to demonstrate that they have involved patients in the design and conduct of research. However, the extent to which patients and public have the power to get involved on an equal footing is dependent on their economic, cultural, social and symbolic capital. OBJECTIVE: To explore power relations in patient and public involvement (PPI) in research, particularly h…
The development of service user‐led recommendations for health and social care services on leaving hospital with memory loss or dementia – the SHARED study
BACKGROUND: Health and social care services are under strain providing care in the community particularly at hospital discharge. Patient and carer experiences can inform and shape services. OBJECTIVE: To develop service user-led recommendations enabling smooth transition for people living with memory loss from acute hospital to community. DESIGN: Lead and co-researchers conducted semi-structured interviews with 15 pairs of carers and patients wit…
Establishing the values for patient engagement (PE) in health-related quality of life (HRQoL) research
An explicit statement of values seeks to align all stakeholders on the purpose, practice and credibility of PE activities. An innovative, flexible and transparent research environment was valued as essential to developing a trustworthy evidence-base with which to underpin future guidance for good PE practice
Moving from rational to normative ideologies of control over public involvement
A Systematic Review of the Impact of Patient and Public Involvement on Service Users, Researchers and Communities
Mapping the impact of patient and public involvement on health and social care research
Patient and public engagement in health-related quality of life and patient-reported outcomes research
The PRIME project
Background The concept of evidence has become firmly rooted in health care, with most importance placed on the outcome of research in clinical and economic spheres. Much less emphasis is placed on the patient’s contribution to evidence which remains relatively vague, of low status and often difficult to integrate with other forms of knowledge. Aim This article proposes a concept of patient‐based evidence, to complement clinical and economic forms…
User involvement in the development of a research bid
Objective To involve users in the development of a research bid to examine parents’ experiences of having a pre‐term baby, and to examine the barriers, enablers and impacts of user involvement. Design A mainly collaborative approach to user involvement was adopted, although different types of involvement were evident at different stages of the project. Users’ experiences and perspectives provided the focus for the regular meetings which underpinn…
Investigation of the ways in which patients' reports of their satisfaction with healthcare are constructed
A characteristic feature of patient satisfaction research is the consistently high level of satisfaction recorded. More reliable and relevant inquiry tools are constantly being developed, but underlying psychological and social pressures that could promote such a consistent and undiscriminating response have been little investigated. Williams et al. (1998) explored the phenomenon and concluded that, by considering issues of duty and culpability, …
Accessing the user’s perspective
Pressure is increasing on health care providers in the UK to demonstrate that they incorporate the views of users when planning and evaluating services. Most recently this has been seen in the commissioning of the National Patients’ Experiences Survey. It is timely therefore to review the progress that has been made in trying to access the user’s perspective. The aim of this paper is to assist individual service providers in planning their own st…
Patient expectations and health‐related quality of life
OBJECTIVE: The measurement of health-related quality of life (HRQL) has become increasingly common in health services research. Whilst useful, its focus on behaviour, capacities and activities means that it remains relatively specific. This paper explores the possibility of extending the evaluation of health by considering the concept of patients' expectations. DESIGN: In-depth and semi-structured interviews were used to explore the concept of ex…
The Conceptual Validity and Appropriateness of Using Health-related Quality of Life Measures with Minority Ethnic Groups
Health-related quality of life measures have become increasingly used in the evaluation of health care to provide a measure of patients' subjective health status. Although studies often include ethnically heterogeneous samples, it is not clear to what extent the use of quality of life measures in this context is valid, because culture can affect the perception and interpretation of health and illness and so may affect the responses to items in a …
Investigation of the ways in which patients' reports of their satisfaction with healthcare are constructed
A characteristic feature of patient satisfaction research is the consistently high level of satisfaction recorded. More reliable and relevant inquiry tools are constantly being developed, but underlying psychological and social pressures that could promote such a consistent and undiscriminating response have been little investigated. Williams et al. (1998) explored the phenomenon and concluded that, by considering issues of duty and culpability, …
Accessing the user’s perspective
Pressure is increasing on health care providers in the UK to demonstrate that they incorporate the views of users when planning and evaluating services. Most recently this has been seen in the commissioning of the National Patients’ Experiences Survey. It is timely therefore to review the progress that has been made in trying to access the user’s perspective. The aim of this paper is to assist individual service providers in planning their own st…
Moving from rational to normative ideologies of control over public involvement
The Conceptual Validity and Appropriateness of Using Health-related Quality of Life Measures with Minority Ethnic Groups
Health-related quality of life measures have become increasingly used in the evaluation of health care to provide a measure of patients' subjective health status. Although studies often include ethnically heterogeneous samples, it is not clear to what extent the use of quality of life measures in this context is valid, because culture can affect the perception and interpretation of health and illness and so may affect the responses to items in a …
Patient expectations and health‐related quality of life
OBJECTIVE: The measurement of health-related quality of life (HRQL) has become increasingly common in health services research. Whilst useful, its focus on behaviour, capacities and activities means that it remains relatively specific. This paper explores the possibility of extending the evaluation of health by considering the concept of patients' expectations. DESIGN: In-depth and semi-structured interviews were used to explore the concept of ex…
The Conceptual Validity and Appropriateness of Using Health-related Quality of Life Measures with Minority Ethnic Groups
Health-related quality of life measures have become increasingly used in the evaluation of health care to provide a measure of patients' subjective health status. Although studies often include ethnically heterogeneous samples, it is not clear to what extent the use of quality of life measures in this context is valid, because culture can affect the perception and interpretation of health and illness and so may affect the responses to items in a …
Accessing the user’s perspective
Pressure is increasing on health care providers in the UK to demonstrate that they incorporate the views of users when planning and evaluating services. Most recently this has been seen in the commissioning of the National Patients’ Experiences Survey. It is timely therefore to review the progress that has been made in trying to access the user’s perspective. The aim of this paper is to assist individual service providers in planning their own st…
Investigation of the ways in which patients' reports of their satisfaction with healthcare are constructed
A characteristic feature of patient satisfaction research is the consistently high level of satisfaction recorded. More reliable and relevant inquiry tools are constantly being developed, but underlying psychological and social pressures that could promote such a consistent and undiscriminating response have been little investigated. Williams et al. (1998) explored the phenomenon and concluded that, by considering issues of duty and culpability, …
User involvement in the development of a research bid
Objective To involve users in the development of a research bid to examine parents’ experiences of having a pre‐term baby, and to examine the barriers, enablers and impacts of user involvement. Design A mainly collaborative approach to user involvement was adopted, although different types of involvement were evident at different stages of the project. Users’ experiences and perspectives provided the focus for the regular meetings which underpinn…
The PRIME project
Background The concept of evidence has become firmly rooted in health care, with most importance placed on the outcome of research in clinical and economic spheres. Much less emphasis is placed on the patient’s contribution to evidence which remains relatively vague, of low status and often difficult to integrate with other forms of knowledge. Aim This article proposes a concept of patient‐based evidence, to complement clinical and economic forms…
A Systematic Review of the Impact of Patient and Public Involvement on Service Users, Researchers and Communities
Mapping the impact of patient and public involvement on health and social care research
Patient and public engagement in health-related quality of life and patient-reported outcomes research
Establishing the values for patient engagement (PE) in health-related quality of life (HRQoL) research
An explicit statement of values seeks to align all stakeholders on the purpose, practice and credibility of PE activities. An innovative, flexible and transparent research environment was valued as essential to developing a trustworthy evidence-base with which to underpin future guidance for good PE practice
Moving from rational to normative ideologies of control over public involvement
GRIPP2 reporting checklists
While the patient and public involvement (PPI) evidence base has expanded over the past decade, the quality of reporting within papers is often inconsistent, limiting our understanding of how it works, in what context, for whom, and why. To develop international consensus on the key items to report to enhance the quality, transparency, and consistency of the PPI evidence base. To collaboratively involve patients as research partners at all stages…
GRIPP2 reporting checklists
Background While the patient and public involvement (PPI) evidence base has expanded over the past decade, the quality of reporting within papers is often inconsistent, limiting our understanding of how it works, in what context, for whom, and why. Objective To develop international consensus on the key items to report to enhance the quality, transparency, and consistency of the PPI evidence base. To collaboratively involve patients as research p…
The power of symbolic capital in patient and public involvement in health research
BACKGROUND: Policy-makers and health research funders increasingly require researchers to demonstrate that they have involved patients in the design and conduct of research. However, the extent to which patients and public have the power to get involved on an equal footing is dependent on their economic, cultural, social and symbolic capital. OBJECTIVE: To explore power relations in patient and public involvement (PPI) in research, particularly h…
The development of service user‐led recommendations for health and social care services on leaving hospital with memory loss or dementia – the SHARED study
BACKGROUND: Health and social care services are under strain providing care in the community particularly at hospital discharge. Patient and carer experiences can inform and shape services. OBJECTIVE: To develop service user-led recommendations enabling smooth transition for people living with memory loss from acute hospital to community. DESIGN: Lead and co-researchers conducted semi-structured interviews with 15 pairs of carers and patients wit…
“About sixty per cent I want to do it”
BACKGROUND: Funders, policy-makers and research organizations increasingly expect health researchers in the UK to involve patients and members of the public in research. It has been stated that it makes research "more effective, more credible and often more cost efficient." However, the evidence base for this assertion is evolving and can be limited. There has been little research into how health researchers feel about involving people, how they …
What Does “Good” Community and Public Engagement Look Like? Developing Relationships With Community Members in Global Health Research
Community and public engagement (CPE) is increasingly becoming a key component in global health research. The National Institute for Health Research (NIHR) is one of the leading funders in the UK of global health research and requires a robust CPE element in the research it funds, along with CPE monitoring and evaluation. But what does “good” CPE look like? And what factors facilitate or inhibit good CPE? Addressing these questions would help ens…
Consolidated Health Economic Evaluation Reporting Standards 2022 (CHEERS 2022) statement
Health economic evaluations are comparative analyses of alternative courses of action in terms of their costs and consequences. The Consolidated Health Economic Evaluation Reporting Standards (CHEERS) statement, published in 2013, was created to ensure health economic evaluations are identifiable, interpretable, and useful for decision making. It was intended as guidance to help authors report accurately which health interventions were being comp…
Understanding Inclusion and Participation of People From Black African Diaspora Communities in Health and Care Research
Comparing In-Person and Remote Qualitative Data Collection Methods for Data Quality and Inclusion
Background: In-person data collection has long been considered the ‘gold standard’ for qualitative data collection. Societal changes and the rapid increase in the use of remote methods during the Covid-19 pandemic intensified debate about the limitations and opportunities of remote data collection, while reigniting questions about data quality and inclusion. Objective: We sought to map available evidence exploring the characteristics and quality …
Patient and public involvement in health technology assessments
Patient and public involvement (PPI) is an essential component of Health Technology Assessment (HTA), as it enhances the relevance and transparency of evaluation processes. Nevertheless, the scope of such involvement varies considerably across contexts, and empirical evidence on current practices within the National Health System remains limited. This study will examine the extent to which HTA reports incorporate PPI and how these practices are p…
Gripp2
Patient and public involvement in research contributes to improving the relevance of studies, although its reporting in the literature is inconsistent and lacks clarity. To enhance the transparency and quality of this involvement, the GRIPP2 (Guidance for Reporting Involvement of Patients and the Public) guidelines were developed, providing specific guidance for systematic and transparent reporting. This methodological note describes the adaptati…
Psychology (14 obras) · Political science (13 obras) · Medicine (12 obras) · Mental Health and Patient Involvement (12 obras) · Computer Science (8 obras) · Sociology (8 obras) · Health care (7 obras) · Nursing (7 obras) · Patient-Provider Communication in Healthcare (7 obras) · Public health (7 obras)