Vikki Entwistle
Datos Biográficos
| ID | 307349 |
|---|---|
| NOMBRE | Vikki Entwistle |
| NOMBRES | Vikki |
| APELLIDO | Entwistle |
| FIRMA | ENTWISTLE V |
| AFILIACIONES | University of Dundee |
| ORCID | 0000-0002-0856-4025 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 42 |
| TOTAL DE CITAS | 127 |
| TOTAL COMO AUTOR | 42 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 1992 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2024 |
| ÍNDICE H | 6 |
Hybrid funerals
Livestreaming and filming death rites and funeral ceremonies to enable remote engagement proliferated rapidly during the COVID-19 pandemic, and many expect these options to remain prevalent going forward. This paper draws on interviews with a diverse UK sample of 68 bereaved people, funeral directors, officiants and celebrants. It illustrates how, and explains why, people’s experiences and evaluations of hybrid funerals can vary. In a context whe…
Why does funeral attendance matter? Revisiting ‘configurational eulogies’ in light of the Covid-19 pandemic in the UK
This paper uses disruption to norms of funeral attendance experienced in the UK during the COVID−19 pandemic as a lens to illuminate why and how funeral attendance can matter. It draws on an extensive qualitative dataset, gathered through semi-structured interviews with a diverse sample of 68 individuals who were bereaved and/or worked or volunteered in death care during the COVID−19 pandemic. It first examines interviewees’ concerns about the in…
Varieties of improvement expertise
The 'improvement' of health care is now established and growing as a field of research and practice. This article, based on qualitative data from interviews with 21 senior leaders in this field, analyses the growth of improvement expertise as not simply an expansion but also a multiplication of 'ways of knowing'. It illustrates how health-care improvement is an area where contests about relevant kinds of knowledge, approaches and purposes prolife…
How should the ‘privilege’ in therapeutic privilege be conceived when considering the decision-making process for patients with borderline capacity
Therapeutic privilege (TP) is a defence that may be available to doctors who fail to disclose to the patient relevant information when seeking informed consent for treatment if they have a reasonable belief that providing that information would likely cause the patient concerned serious physical or mental harm. In a landmark judgement, the Singapore Court of Appeal introduced a novel interpretation of TP, identifying circumstances in which it mig…
Talking it better
In this paper, we consider the role of conversations in contributing to healthcare quality improvement. More specifically, we suggest that conversations can be important in responding to what we call 'normative complexity'. As well as reflecting on the value of conversations, the aim is to introduce the dimension of normative complexity as something that requires theoretical and practical attention alongside the more recognised challenges of comp…
Understanding and investigating relationality in the capability approach
The capability approach (CA) is a framework for understanding, assessing, and promoting the quality of human lives and social justice. It focuses on capabilities – people's freedoms and opportunities to live in valuable ways. Although its proponents readily acknowledge that capabilities can depend on personal, social and environmental factors, little attention has been paid to the ontology of capabilities (what they are and how they are caused an…
Revisiting the equity debate in Covid-19
Throughout March and April 2020, debate raged about how best to allocate limited intensive care unit (ICU) resources in the face of a growing COVID-19 pandemic. The debate was dominated by utility-based arguments for saving the most lives or life-years. These arguments were tempered by equity-based concerns that triage based solely on prognosis would exacerbate existing health inequities, leaving disadvantaged patients worse off. Central to this …
Health professionals’ experiences and perspectives on food insecurity and long‐term conditions
Estimates suggest that over 10% of the UK population are affected by food insecurity. International evidence indicates that food insecurity is a risk factor for many long-term health conditions, and can adversely affect people's ability to manage existing conditions. Food insecurity is thus not only a serious social concern but also a healthcare issue requiring the attention of UK health professionals. An exploratory qualitative study was underta…
We need to talk about purpose
Can consumers learn to ask three questions to improve shared decision making? A feasibility study of the ASK (AskShareKnow) Patient–Clinician Communication Model ® intervention in a primary health‐car…
OBJECTIVE: To test the feasibility and assess the uptake and acceptability of implementing a consumer questions programme, AskShareKnow, to encourage consumers to use the questions '1. What are my options; 2. What are the possible benefits and harms of those options; 3. How likely are each of those benefits and harms to happen to me?' These three questions have previously shown important effects in improving the quality of information provided du…
Valuing patients' experiences of healthcare processes
Devolution and Patient Choice
Background: market reforms in England have been identified as making a clear distinction between English health policy and health policy in the devolved systems in Northern Ireland, Scotland and Wales. Patient choice is a high profile policy in the English National Health Service that constitutes significant changes to the demand side of health care. It is not clear what national differences this has led to regarding implementation of policy. Thi…
Addressing complex healthcare problems in diverse settings
Shared decision making
Shared decision-making approaches, by recognizing the autonomy and responsibility of both health professionals and patients, aim for an ethical 'middle way' between 'paternalistic' and 'consumerist' models of clinical decision making. Shared decision making has been understood in various ways. In this paper, we distinguish narrow and broader conceptions of shared decision making and explore their relative strengths and weaknesses. In the first pa…
How personal experiences feature in women's accounts of use of information for decisions about antenatal diagnostic testing for foetal abnormality
What is an adequate sample size? Operationalising data saturation for theory-based interview studies
In interview studies, sample size is often justified by interviewing participants until reaching 'data saturation'. However, there is no agreed method of establishing this. We propose principles for deciding saturation in theory-based interview studies (where conceptual categories are pre-established by existing theory). First, specify a minimum sample size for initial analysis (initial analysis sample). Second, specify how many more interviews w…
Supporting Patient Autonomy
Brief reflections – from Vikki
In my 3 years as Editor of Health Expectations, I have been privileged to consider a wide range of manuscripts relating broadly to the notion of service user or public participation in healthcare. With the help of generous and insightful reviewers from around the world, and a supportive Editorial Team and Board, I have been pleased to help authors get some of the best of these manuscripts into print. Papers published in the last 3 years have star…
Supporting participation in clinical research
BACKGROUND AND AIMS: Fistulotomy remains the gold standard for the treatment of both low and high anal fistulae. The invasive nature of this modality and the associated risk of incontinence following fistulotomy have propelled the search for alternatives. We present our results after a 12 month follow-up of the instillation of fibrin glue in both low and high fistulae in ano including complicated cases such as post-surgery recurrence and horsesho…
Hurtful comments are harmful comments
In a study reported in this issue of Health Expectations, 76 Australian adults talked with Samantha Thomas et al. about their experiences of living with obesity.1 Half of them described instances in which they had been humiliated by healthcare professionals because of their weight. This is perhaps not surprising given the social stigma that now attaches to obesity, but it represents a significant failing on the part of health services. Respectful…
Health literacy
Health literacy can be an important facilitator of effective participation in health care, but there is significant scope to improve our collective understanding of how it can be enhanced and how it can influence health-care outcomes.1 When the two papers about health literacy that feature in this issue of Health Expectations2,3 are taken in conjunction with another paper in this issue – about the acceptability of larval (maggot) therapy as a pos…
Offering choices
The idea that people should be enabled to make informed choices about their own health care is a key theme in much contemporary thinking about participation in health care, but two papers in this issue of Health Expectations remind us that the offering of choice does not always attract universal support. Chris Woodrow et al.1 convened focus groups of people aged between 60 and 69 years to consider drafts of an information leaflet that would accom…
Placing evidence in context
Avoiding harm to others’ considerations in relation to parental measles, mumps and rubella (MMR) vaccination discussions – An analysis of an online chat forum
Promoting research participation
Unilateral' and 'bilateral' practitioner approaches in decision-making about treatment
Promoting research participation
Avoiding harm to others’ considerations in relation to parental measles, mumps and rubella (MMR) vaccination discussions – An analysis of an online chat forum
How personal experiences feature in women's accounts of use of information for decisions about antenatal diagnostic testing for foetal abnormality
Understanding and investigating relationality in the capability approach
The capability approach (CA) is a framework for understanding, assessing, and promoting the quality of human lives and social justice. It focuses on capabilities – people's freedoms and opportunities to live in valuable ways. Although its proponents readily acknowledge that capabilities can depend on personal, social and environmental factors, little attention has been paid to the ontology of capabilities (what they are and how they are caused an…
Devolution and Patient Choice
Background: market reforms in England have been identified as making a clear distinction between English health policy and health policy in the devolved systems in Northern Ireland, Scotland and Wales. Patient choice is a high profile policy in the English National Health Service that constitutes significant changes to the demand side of health care. It is not clear what national differences this has led to regarding implementation of policy. Thi…
Involvement in treatment decision-making
Which surgical decisions should patients participate in and how? Reflections on women's recollections of discussions about variants of hysterectomy
Decisions about treatment
Talking it better
In this paper, we consider the role of conversations in contributing to healthcare quality improvement. More specifically, we suggest that conversations can be important in responding to what we call 'normative complexity'. As well as reflecting on the value of conversations, the aim is to introduce the dimension of normative complexity as something that requires theoretical and practical attention alongside the more recognised challenges of comp…
Valuing patients' experiences of healthcare processes
The significance for decision-making of information that is not exchanged by patients and health professionals during consultations
Varieties of improvement expertise
The 'improvement' of health care is now established and growing as a field of research and practice. This article, based on qualitative data from interviews with 21 senior leaders in this field, analyses the growth of improvement expertise as not simply an expansion but also a multiplication of 'ways of knowing'. It illustrates how health-care improvement is an area where contests about relevant kinds of knowledge, approaches and purposes prolife…
Addressing complex healthcare problems in diverse settings
Placing evidence in context
Who are your public? A survey comparing the views of a population-based sample with those of a community-based public forum in Scotland
differences in demographic profiles and opinions about different feedback mechanisms (patient representative, telephone helpline and NHS feedback website) and their likely effectiveness in three different scenarios. 46% of community forum members consented to take part compared to 24% of the population sample. Younger people and residents in more deprived areas were under-represented in both groups. Community forum members were older (only one un…
Health professionals’ experiences and perspectives on food insecurity and long‐term conditions
Estimates suggest that over 10% of the UK population are affected by food insecurity. International evidence indicates that food insecurity is a risk factor for many long-term health conditions, and can adversely affect people's ability to manage existing conditions. Food insecurity is thus not only a serious social concern but also a healthcare issue requiring the attention of UK health professionals. An exploratory qualitative study was underta…
Health and medical coverage in the UK national press
The growth of UK public interest in health in the last decade is reflected by the inclusion in most national newspapers of regular health or medical sections. These potentially allow subjects to be covered in detail, with more background information and useful advice. This paper reports on a content analysis study of eight national newspapers, which aimed to obtain an overview of press health coverage, to compare the coverage of popular and quali…
Preparing, publicizing and disseminating health research
Lay perspectives
Although involvement of the consumer is increasingly being advocated in health related research, it is not welcome universally. Furthermore, the underlying rationale is rarely made explicit. Policy makers, health care professionals, and researchers need to be clear about the benefits and ways of including lay perspectives and the criteria for evaluating these. Examples of lay involvement in setting research agendas,1 2 3 4 methodological debate,5…
Supporting and resourcing treatment decision‐making
This paper considers some of the policy implications of issues raised during a conference about treatment decision‐making in the clinical encounter held in Hamilton, Ontario in May 1999. Policies promoting patient participation in treatment decision‐making need to be flexible enough to ensure that they are appropriate across the range of contexts in which health care decisions are made and acceptable to people with diverse preferences and abiliti…
The potential contribution of decision aids to screening programmes
Decision aids for health service users facing decisions about screening have been developed for controversial tests (such as that for prostate specific antigen as a screen for prostate cancer) and tests in which outcomes are value laden (as in some prenatal tests). The potential usefulness of decision aids in established screening programmes (such as those offering mammography to women over 50 in the United Kingdom) remains to be explored. In pri…
Participation in screening programmes
Most of the papers in this special issue of Health Expectations were first prepared for a workshop on Informed Choice in Screening and Preventive Health-care held in June 2000 to help the UK’s National Screening Committee develop policies relating to how people should be informed about and invited to have particular screening tests. The collection of papers presented here reflects some key debates about who should decide, and on what basis, who w…
Decisions about treatment
Putting participation in the picture
Photographs are sometimes described as ‘studies’ of their subject matter. How would photographers portray ‘participation in healthcare’? I am not about to use this editorial to review a new photographic exhibition, but think we could have fun and learn something by imagining one. If we imagine the photographs that would feature in an exhibition, we might stimulate fresh insights into participation in health care. If we imagine the ways in which t…
Trust and shared decision‐making
Trust has long been regarded as an important aspect of therapeutic relationships. However, until recently, it has been largely neglected in both bioethics and health services research literature. Two papers in this issue of Health Expectations present data relating to the question of whether patients’ trust in their doctors affects the adoption of shared decision-making. We hope they will be among the early markers of the development of an import…
Nursing shortages and patient safety problems in hospital care
I am currently in the USA,* where I have been struck by the frequency of the message – especially in advice to health care consumers – that hospital patients should, if possible, have a family member with them to be vigilant about their condition and the care they are given in order to keep them safe from health care errors. The strength of the recommendations and the kinds of vigilance recommended vary, but the following examples should serve to…
Who are your public? A survey comparing the views of a population-based sample with those of a community-based public forum in Scotland
differences in demographic profiles and opinions about different feedback mechanisms (patient representative, telephone helpline and NHS feedback website) and their likely effectiveness in three different scenarios. 46% of community forum members consented to take part compared to 24% of the population sample. Younger people and residents in more deprived areas were under-represented in both groups. Community forum members were older (only one un…
Which surgical decisions should patients participate in and how? Reflections on women's recollections of discussions about variants of hysterectomy
Unilateral' and 'bilateral' practitioner approaches in decision-making about treatment
Considerations of ‘fit’ and patient involvement in decision making
Several papers in this issue of Health Expectations consider and raise questions about the ‘fit’ between the health care that people need or prefer and the health care that services provide. Most obviously, Gould et al. highlight a lack of fit between what Canadian health services provide to women with breast cancer and the concerns of women who are diagnosed with breast cancer before the age of 45.1Current breast cancer services, for example, ar…
The significance for decision-making of information that is not exchanged by patients and health professionals during consultations
Considering ‘balance’ in information
Varios ejemplos extraídos del aula demuestran que hacer matemáticas es hablar, escribir, leer y escuchar matemáticas de forma combinada con hablar, escribir, leer y escuchar lengua. Comprender la complejidad lingüística que entrañan las matemáticas puede contribuir a entender mejor las dificultades de su aprendizaje
Supporting participation in clinical research
BACKGROUND AND AIMS: Fistulotomy remains the gold standard for the treatment of both low and high anal fistulae. The invasive nature of this modality and the associated risk of incontinence following fistulotomy have propelled the search for alternatives. We present our results after a 12 month follow-up of the instillation of fibrin glue in both low and high fistulae in ano including complicated cases such as post-surgery recurrence and horsesho…
Hurtful comments are harmful comments
In a study reported in this issue of Health Expectations, 76 Australian adults talked with Samantha Thomas et al. about their experiences of living with obesity.1 Half of them described instances in which they had been humiliated by healthcare professionals because of their weight. This is perhaps not surprising given the social stigma that now attaches to obesity, but it represents a significant failing on the part of health services. Respectful…
Health literacy
Health literacy can be an important facilitator of effective participation in health care, but there is significant scope to improve our collective understanding of how it can be enhanced and how it can influence health-care outcomes.1 When the two papers about health literacy that feature in this issue of Health Expectations2,3 are taken in conjunction with another paper in this issue – about the acceptability of larval (maggot) therapy as a pos…
Offering choices
The idea that people should be enabled to make informed choices about their own health care is a key theme in much contemporary thinking about participation in health care, but two papers in this issue of Health Expectations remind us that the offering of choice does not always attract universal support. Chris Woodrow et al.1 convened focus groups of people aged between 60 and 69 years to consider drafts of an information leaflet that would accom…
Placing evidence in context
Avoiding harm to others’ considerations in relation to parental measles, mumps and rubella (MMR) vaccination discussions – An analysis of an online chat forum
Promoting research participation
Involvement in treatment decision-making
What is an adequate sample size? Operationalising data saturation for theory-based interview studies
In interview studies, sample size is often justified by interviewing participants until reaching 'data saturation'. However, there is no agreed method of establishing this. We propose principles for deciding saturation in theory-based interview studies (where conceptual categories are pre-established by existing theory). First, specify a minimum sample size for initial analysis (initial analysis sample). Second, specify how many more interviews w…
Political science (32 obras) · Psychology (32 obras) · Medicine (26 obras) · Health care (22 obras) · Computer Science (20 obras) · Public relations (18 obras) · Patient-Provider Communication in Healthcare (16 obras) · Sociology (16 obras) · Law (13 obras) · Nursing (11 obras)