Anne M Stiggelbout

Datos Biográficos

ID326809
NOMBREAnne M Stiggelbout
NOMBRESAnne M
APELLIDOStiggelbout
FIRMASTIGGELBOUT A M
AFILIACIONESLeiden University Medical Center
ORCID0000-0002-6293-4509
VERIFICADOSí
TOTAL DE OBRAS32
TOTAL DE CITAS6
TOTAL COMO AUTOR32
TOTAL COMO EDITOR0
PRIMER AÑO DE PUBLICACIÓN1994
AÑO MÁS RECIENTE DE PUBLICACIÓN2026
ÍNDICE H1

  • “Timelining” Treatment Trajectories During Interviews About Shared Decision Making With Ethnic Minorities in Oncology

    Open AccessRoukayya Oueslati, Dorothea P Touwen et al.ARTICLEInternational Journal of…2026

    The use of timelines is well-established in qualitative research and has been employed across a range of studies. However, the development of timelines (timelining) during interviews on shared decision making (SDM) remains relatively uncommon. This article reflects on our experiences with integrating timelining into semi-structured interviews with ethnic minority patients and their relatives on SDM in oncology. During the interviews, the intervie…

  • Patient readiness for shared decision making about treatment

    Open AccessSascha M Keij, Anne M Stiggelbout et al.ARTICLEHealth Expectations2024

  • The value of using patient‐reported outcomes for health screening during long‐term follow‐up after paediatric stem cell transplantation for nonmalignant diseases

    Open AccessJoëll E Bense, Nicole Guilonard et al.ARTICLEHealth Expectations2024

    INTRODUCTION: The assessment of using patient-reported outcomes (PROs) within comprehensive care follow-up programmes, specifically focused on health screening, remains largely unexplored. PROs were implemented in our late effects and comprehensive care programme after paediatric hematopoietic stem cell transplantation (HSCT) for nonmalignant diseases. The programme focuses solely on screening of physical and mental health and on discussing PROs …

  • Assessing collaborative efforts of making care fit for each patient

    Open AccessMarleen Kunneman, Derek Gravholt et al.ARTICLEHealth Expectations2023

  • Differing Professional Perspectives on the Interprofessional Collaboration in IPUs

    Open AccessDorine J van Staalduinen, Petra Van Den Bekerom et al.ARTICLEInternational Journal of…2023Referencias: 1

    In VBHC, there seems to be a lack of common perception of an IPU's composition and a failure to always achieve high quality interprofessional collaboration. Given the importance of interprofessional collaboration in VBHC, effort should be invested in achieving a shared understanding and improved collaboration

  • Differing professional perspectives on the integration of care in Integrated Practice Units

    Open AccessDorine van Staalduinen, Petra Van Den Bekerom et al.ARTICLEInternational Journal of…2023

    Introduction: An important component of Value-Based Healthcare (VBHC) is providing the full cycle of care for a specific medical condition in an Integrated Practice Unit (IPU). Although this requires employees from diverse professional backgrounds to interact, there is limited knowledge on how professionals perceive such interprofessional collaboration. Research shows that organising the delivery of integrated care can be challenging, in part due…

  • Psychometric evaluation of the Health-Risk Attitude Scale (HRAS-13)

    Open AccessSamare P I Hul, Sylvie M C van Osch et al.ARTICLEPsychology & Health2022

    OBJECTIVES: The aim of this study was to assess the reliability, dimensionality and validity of the self-report questionnaire Health-Risk Attitude Scale (HRAS-13) in a sample of the general population and a patient population. METHODS: = 486) was recruited from the population of knee and hip osteoarthritis patients aged 45 and over, also from the Netherlands. Reliability was assessed using Cronbach's alpha, average inter-item correlation and item…

  • Perspectives of people living with Parkinson's disease on personalized prediction models

    Open AccessLieneke van den Heuvel, Marjan Knippenberg et al.ARTICLEHealth Expectations2022

    BACKGROUND: There is a great need for the development of personalized prediction models (PPMs) that can predict the rate of disease progression for persons with Parkinson's disease (PD), based on their individual characteristics. In this study, we aimed to clarify the perspective of persons diagnosed with PD on the value of such hypothetical PPMs. METHODS: We organized four focus group discussions, each including five persons with PD who were dia…

  • Towards Culturally Sensitive Shared Decision-Making in Oncology A Study Protocol Integrating Bioethical Qualitative Research on Shared Decision-Making Among Ethnic Minorities With Ethical Reflection

    Open AccessRoukayya Oueslati, Ria Reis et al.ARTICLEInternational Journal of…2022Referencias: 96

    Background Shared decision-making (SDM) is often considered the ideal for decision-making in oncology. Views of specific groups such as ethnic minorities have seldom been considered in its development. Aim In this study we seek to assess in oncology if there is a need for adaptation of the current SDM model to ethnic minorities and to formulate possible adjustments. Design This study is embedded in empirical bioethics, an interdisciplinary approa…

  • Identifying Entrustable Professional Activities for Shared Decision Making in Postgraduate Medical Education

    Open AccessAnouk Baghus, Esther Giroldi et al.ARTICLEAcademic Medicine2021

    PURPOSE: Although shared decision making (SDM) is considered the preferred approach in medical decision making, it is currently not routinely used in clinical practice. To bridge the transfer gap between SDM training and application, the authors aimed to reach consensus on entrustable professional activities (EPAs) for SDM and associated behavioral indicators as a framework to support self-directed learning during postgraduate medical education. …

  • A scoping review of practice recommendations for clinicians’ communication of uncertainty

    Open AccessNiki M Medendorp, Anne M Stiggelbout et al.ARTICLEHealth Expectations2021

  • Measuring shared decision making in oncology

    Open AccessHanna Bomhof‐Roordink, Fania R Gärtner et al.ARTICLEHealth Expectations2020

  • Uncertainty related to multigene panel testing for cancer

    Open AccessNiki M Medendorp, Marij A Hillen et al.ARTICLEJournal of Community Genetics2018

    Multigene panel testing is mainly used to improve identification of genetic causes in families with characteristics fitting multiple possible cancer syndromes. This technique may yield uncertainty, for example when variants of unknown significance are identified. This study explores counsellors' and counselees' experiences with uncertainty, and how they discuss uncertainties and decide about multigene panel testing. Six focus groups were conducte…

  • Challenges in shared decision making in advanced cancer care

    Open AccessLinda Brom, Magali Richard et al.ARTICLEHealth Expectations2017

    To reach SDM in daily practice, physicians should create awareness of all treatment options, including forgoing treatment, and communicate the risk of benefit and harm. Open and honest communication is needed in which patients' expectations and concerns are discussed. Through this, the difficult process of decision making in the last phase of life can be facilitated and the focus on the best care for the specific patient is strengthened

  • Shared decision making

    Open AccessAnne M Stiggelbout, Arwen H Pieterse et al.ARTICLEPatient Education and Counseling2015

  • Women's experiences with information provision and deciding about fertility preservation in the Netherlands

    Open AccessMirjam M Garvelink, Moniek M ter Kuile et al.ARTICLEHealth Expectations2015

    OBJECTIVE: It is not well-known how women receiving counselling consultation about fertility preservation (FP) in the Netherlands perceive the information provision about and referral for FP in the oncology setting. The aim of this study was to qualitatively explore women's experiences with the (process of) information provision about the gonadotoxic effects of cancer treatment and about FP and the decision-making process and to obtain their reco…

  • Response and participation of underserved populations after a three-step invitation strategy for a cardiometabolic health check

    Open AccessIris Groenenberg, Mathilde R Crone et al.ARTICLEBMC Public Health2015

    Underserved populations can be reached by a low-cost culturally adapted postal approach with a reminder and follow-up telephone calls. The added value of the more expensive face-to-face invitation was negligible. PC participation rates were acceptable. Efforts should be particularly targeted at practices in the most deprived areas

  • The EORTC QLQ-CR29 quality of life questionnaire for colorectal cancer

    Open AccessAnne M Stiggelbout, Marleen Kunneman et al.ARTICLEQuality of Life Research2015

    We found a very satisfactory scale for bowel problems, in patients both with and without stoma. The body image and urinary incontinence scales were reliable, and construct validity was sufficient. We suggest the questionnaire to be adapted to decrease the number of individual items, improve the scales, and therefore increase reliability of the entire questionnaire

  • Do individuals with and without depression value depression differently? And if so, why

    Open AccessKaterina Papageorgiou, Karin M Vermeulen et al.ARTICLEQuality of Life Research2015

    Since the general population values depression less negatively, using their perspective might result in less effectiveness for interventions for mild depression. Perceptions of depression or to individual characteristics did not seem to differentially affect valuations made by either individuals with or without depression

  • Validation of a Dutch Version of the Reproductive Concerns Scale (RCS) in Three Populations of Women

    Mirjam M Garvelink, Moniek M ter Kuile et al.ARTICLEHealth Care For Women International2015

    We investigated the psychometric properties of a Dutch version of the Reproductive Concerns Scale (RCS). Questionnaires (N = 515) were administered to 90 women with breast cancer, 227 women with fertility problems, and 198 healthy controls. Principal axis factor analysis suggested a one-factor structure with 11 items (breast cancer patients R(2) =.48, α =.87, ICC =.95; women with fertility problems R(2) =.45, α =.89, ICC =.86). Women with fertili…

  • Cultural targeting and tailoring of shared decision making technology

    Open AccessDana L Alden, John M Friend et al.ARTICLESocial Science & Medicine2014Citada por: 5Referencias: 54

  • Theory-informed design of values clarification methods

    Open AccessArwen H Pieterse, Marieke De Vries et al.ARTICLESocial Science & Medicine2013Citada por: 1Referencias: 74

  • Shared decision making

    Open AccessAnne M Stiggelbout, Trudy Van Der Weijden et al.ARTICLEBMJ2012

    Although many clinicians feel they already use shared decision making, research shows a perception-reality gap. A M Stiggelbout and colleagues discuss why it is important and highlight some best practices.

  • Focusing illusion, adaptation and EQ‐5D health state descriptions

    Open AccessYvette Peeters, T P M Vliet Vlieland et al.ARTICLEHealth Expectations2012

    Background Patients tend to assign higher utilities to health states compared with the general public. Several explanations have been given for this difference including focusing illusion ‐, caused in part by the sparseness of a health state description such as the EQ‐5D ‐, and adaptation. Objective We investigated whether patients and the public differ in which dimensions they find important. Furthermore, we compared whether the dimensions named…

  • Methodologic evaluation of adaptive conjoint analysis to assess patient preferences

    Open AccessArwen H Pieterse, Anne M Stiggelbout et al.ARTICLEHealth Expectations2010

    Background Adaptive conjoint analysis (ACA) is an individually tailored preferences elicitation technique that mimics actual decision‐making processes by asking participants to make trade‐offs between the various dimensions that underlie decision problems. ACA is increasingly applied in patient preferences assessments but formal evaluation of its validity and reliability is lacking. Objective To investigate ACA’s validity and reliability in elici…