Aaron J Goldenberg

Datos Biográficos

ID3573010
NOMBREAaron J Goldenberg
NOMBRESAaron J
APELLIDOGoldenberg
FIRMAGOLDENBERG A J
AFILIACIONESCase Western Reserve University
ORCID0000-0002-0314-0303
VERIFICADOSí
TOTAL DE OBRAS15
TOTAL DE CITAS3
TOTAL COMO AUTOR15
TOTAL COMO EDITOR0
PRIMER AÑO DE PUBLICACIÓN2011
AÑO MÁS RECIENTE DE PUBLICACIÓN2025
ÍNDICE H1

  • Recruitment Techniques Used for Clinical Trials and the Potential Impact of Nudges

    Open AccessMolly Volkmar, Jewels Watts et al.ARTICLEJournal of Empirical Research on…2025Referencias: 1

    While clinical trials are essential to improving public health, little research has examined the range of recruitment techniques used or whether they involve behavioral nudges. Behavioral nudges have been defined as "any aspect of the choice architecture [the manner in which options are presented] that alters people's behavior in a predictable way without forbidding any options or significantly changing their economic incentives"; these may influ…

  • A Just Genomics Needs an Elsi of Translation

    Open AccessMeghan C Halley, Nate W Olson et al.ARTICLEThe Hastings Center Report2024

    The rapid advances in genomics over the last decade have come to fruition amid intense public discussions of justice in medicine and health care. While much emphasis has been placed on increasing diversity in genomics research participation, an overly narrow focus on recruitment eschews recognition of the disparities in health care that will ultimately shape access to the benefits of genomic medicine. In this essay, we suggest that achieving a ju…

  • Public involvement in the governance of population-level biomedical research

    Open AccessSonja Erikainen, Phoebe Friesen et al.ARTICLEJournal of Medical Ethics2021

    Population-level biomedical research offers new opportunities to improve population health, but also raises new challenges to traditional systems of research governance and ethical oversight. Partly in response to these challenges, various models of public involvement in research are being introduced. Yet, the ways in which public involvement should meet governance challenges are not well understood. We conducted a qualitative study with 36 exper…

  • Comparison of Video, App, and Standard Consent Processes on Decision-Making for Biospecimen Research

    Open AccessErin Rothwell, Erin Johnson et al.ARTICLEJournal of Empirical Research on…2020Referencias: 1

    Obtaining informed consent for bloodspot research from newborn screening is particularly challenging due to the hectic environment of the postnatal period and the relatively abstract nature of future, unspecified research on the biospecimens. A randomized controlled trial was conducted in three Michigan hospitals to compare two different consent processes (video and interactive tablet "app") with standard brochure-based consent in the Michigan Bi…

  • Sequencing Newborns

    Open AccessJosephine Johnston, John D Lantos et al.ARTICLEThe Hastings Center Report2018

    Many scientists and doctors hope that affordable genome sequencing will lead to more personalized medical care and improve public health in ways that will benefit children, families, and society more broadly. One hope in particular is that all newborns could be sequenced at birth, thereby setting the stage for a lifetime of medical care and self‐directed preventive actions tailored to each child's genome. Indeed, commentators often suggest that u…

  • What Precision Medicine Can Learn from Rare Genetic Disease Research and Translation

    Open AccessHolly K Tabor, Aaron J GoldenbergARTICLEThe AMA Journal of Ethic2018

    The goal of this article is to examine the intersections of precision health and rare diseases. Specifically, we propose 3 lessons from the last decade of applying genomics to rare diseases: (1) precision can end one odyssey and start another; (2) precise interventions can exacerbate health disparities and create other ethical dilemmas; and (3) democratization of data will transform research and translation. By studying experiences of patients wi…

  • An Assessment of a Shortened Consent Form for the Storage and Research Use of Residual Newborn Screening Blood Spots

    Open AccessErin Rothwell, Aaron J Goldenberg et al.ARTICLEJournal of Empirical Research on…2017Citada por: 1Referencias: 3

    As state newborn screening programs develop approaches to parental permission for the storage and use of residual dried newborn screening samples, it is important to understand how the public comprehends the consent elements. Focus groups in Utah, California, and Michigan ( n = 7 groups, 69 participants) were conducted to evaluate the language on a shortened consent form. Outcomes from the analysis included barriers to conceptualizing biospecimen…

  • Biobank participant support of newborn screening for disorders with variable treatment and intervention options

    Open AccessMegan E Bunnell, Beth A Tarini et al.ARTICLEJournal of Community Genetics2016

  • Evaluating Harms in the Assessment of Net Benefit

    Open AccessAaron J Goldenberg, Anne Marie Comeau et al.ARTICLEMaternal and Child Health Journal2016

  • Is There a Space for Place in Family History Assessment? Underserved Community Views on the Impact of Neighborhood Factors on Health and Prevention

    Open AccessChristopher D Hartmann, Christopher Hartmann et al.ARTICLEThe Journal of Primary Prevention2015

  • Investigator Experiences and Attitudes About Research With Biospecimens

    Open AccessSuzanne M Rivera, Aaron J Goldenberg et al.ARTICLEJournal of Empirical Research on…2015

    To advance scientific knowledge about human diseases and effective therapeutic treatments, investigators need access to human biospecimens and associated data. However, regulatory and procedural requirements may impede investigators' efforts to share biospecimens and data within and across institutions. Although a number of studies have explored experiences and attitudes of study participants and others about biospecimen and data sharing, less is…

  • Practical Barriers and Ethical Challenges in Genetic Data Sharing

    Open AccessClaire Simpson, Claire L Simpson et al.ARTICLEInternational Journal of…2014

    The underlying ethos of dbGaP is that access to these data by secondary data analysts facilitates advancement of science. NIH has required that genome-wide association study data be deposited in the Database of Genotypes and Phenotypes (dbGaP) since 2003. In 2013, a proposed updated policy extended this requirement to next-generation sequencing data. However, recent literature and anecdotal reports suggest lingering logistical and ethical concern…

  • Gene–environment interactions and health inequalities

    Open AccessAaron J Goldenberg, Christopher D Hartmann et al.ARTICLEJournal of Community Genetics2013

  • Assessing public attitudes on the retention and use of residual newborn screening blood samples

    Open AccessErin Rothwell, Rebecca Anderson et al.ARTICLESocial Science & Medicine2012Citada por: 2Referencias: 8

  • Concerns of Newborn Blood Screening Advisory Committee Members Regarding Storage and Use of Residual Newborn Screening Blood Spots

    Erin Rothwell, Erin W Rothwell et al.ARTICLEAmerican Journal of Public Health2011Referencias: 14

    Objectives. We assessed attitudes and opinions of members of newborn blood screening (NBS) advisory committees regarding the storage and secondary research use of residual specimens from NBS. Methods. We conducted focus groups in 2008 and 2009 with NBS advisory committees (4 focus groups; n = 39 participants) in the Mountain States region (i.e., AZ, CO, MT, NM, NV, TX, UT, and WY). Results. Participants identified several challenges to implementi…