Susan Kirk
Datos Biográficos
| ID | 3582849 |
|---|---|
| NOMBRE | Susan Kirk |
| NOMBRES | Susan |
| APELLIDO | Kirk |
| FIRMA | KIRK S |
| AFILIACIONES | University of Manchester |
| ORCID | 0000-0002-1485-8804 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 29 |
| TOTAL DE CITAS | 90 |
| TOTAL COMO AUTOR | 29 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 1963 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2024 |
| ÍNDICE H | 6 |
Challenges and recommendations for advancing respite care for families of children and youth with special health care needs
INTRODUCTION: Caring for children and youth with special health care needs (CYSHCN) is a significant undertaking for families. While respite care is intended to address this burden, demand continues to exceed supply. Exploring the perspectives of respite service providers (SPs) and stakeholders (SKs) provides unique insight into families' needs and respite care systems. METHODS: We conducted semistructured interviews with 41 respite care SPs and …
Mind the gap
Increasingly higher education institutions are expected to demonstrate their contribution to academia, society, and the economy. This is pertinent for business schools as a key purpose for them is to provide education that enhances management practice, with Doctorates in Business Administration (DBAs) being the highest-level qualification offered in pursuit of this goal. Yet there is scant research that captures the impact of DBAs beyond the indi…
Shifting responsibilities
INTRODUCTION: The responsibility for managing a long-term condition (LTC) such as chronic kidney disease (CKD) typically transfers from parent to child, as children become older. However, children can find it challenging to become independent at managing their LTC, and evidence for how healthcare professionals (HCPs) support transfer of responsibility is limited. This study aimed to explore how young people with CKD assume responsibility for mana…
How a child's gender mediates maternal care and expectations in the fatigue experiences of adolescents with sickle cell disease
Despite the chronicity and biopsychosocial significance of fatigue in sickle cell disease (SCD), it is rarely prioritized in understanding illness experiences and the social consequences of SCD for children, young people and their families. This study examined fatigue's social meaning and significance for young people with SCD. This examination involved perspectives on parental (maternal) care/support. We adopted a constructivist grounded theory …
Qualitative Observational Research in the Intensive Care Setting
The aim of this theoretical paper is to critically reflect on the ethical and methodological issues that arose during a study that observed nurses' care-giving in an intensive care unit setting. The authors critically discuss the methodological and ethical issues as well as the practical realities that were encountered when evaluating a complex intervention using unstructured qualitative observations. We describe the process with negotiating acce…
Home sweet home
Globalization has transformed spatial relations, increasing the demand for mobility. Literature tends to see the de-emphasizing of national identity and the foregrounding of a cosmopolitan identity as central to an individual's ability to navigate this global landscape. For individuals who are constantly moving the question is how do globally mobile workers navigate the intersection of identity, meaningfulness and place? This interpretivist study…
Sticks and Stones
In the workplace, demand for globally mobile workers continues to grow. This article examines the consequences for the individual of being named as global talent. Findings from a qualitative study within a large, multinational organisation, reveal the identity struggles these individuals engage in as they seek to reconcile the tensions inherent in such challenging careers. By combining and building on extant literature in naming, identity and glo…
Patient safety in marginalised groups
Not applicable for a scoping review
Body as a Machine
Research exploring illness experiences of young people with sickle cell disease (SCD) has, to date, ignored fatigue, despite the distinctive anemic nature of SCD. To examine adolescents with SCD fatigue experiences, we conducted narrative and picture-elicitation interviews with 24 adolescents in Ghana. A grounded theory, "body as a machine," was constructed from the narratives. Fatigue represented the most restrictive and disruptive aspect of gro…
Asset-Based Community Development
Asset-Based Community Development (ABCD) is seen as a way of tackling the social determinants of health and reducing health inequalities. However, a better understanding of the mechanisms through which ABCD operates, and the environmental and relational conditions within which it is likely to be most effective, could increase its effectiveness at improving health and well-being and reducing inequalities. Interviews and focus groups were conducted…
The Opportunities and Challenges of Using Photo-Elicitation in Child-Centered Constructivist Grounded Theory Research
In the last three decades, there has been a growing interest in listening to children's voices in child health research. Ensuring an appropriate level of dialogical engagement with children calls for participatory methods. Auto-driven photo-elicitation interviews (PEIs) are a powerful approach to obtain rich data from children. This article discusses the opportunities and challenges of using auto-driven PEIs in a health-related child-centered con…
What is Asset-Based Community Development and How Might It Improve the Health of People With Long-Term Conditions? A Realist Synthesis
Asset-Based Community Development (ABCD) appears to be a promising way to supporting people with long-term health problems but there is currently a lack of evidence to support this approach. Taking a realist approach, a review and concept-mapping exercise of ABCD approaches to improve health were conducted with a view to providing a better understanding about these approaches, how they work, and who they work for. Totally, 29 papers were deemed r…
How a moderated online discussion forum facilitates support for young people with eating disorders
INTRODUCTION: Young people with eating disorders are at risk of harm to their social, emotional and physical development and life chances. Although they can be reluctant to seek help, they may access social media for information, advice or support. The relationship between social media and youth well-being is an emotive subject, but not clearly understood. This qualitative study aimed to explore how young people used a youth-orientated, moderated…
An exploration of how young people and parents use online support in the context of living with cystic fibrosis
BACKGROUND: There is increasing recognition of the Internet's potential role in providing information and support for people living with long-term conditions. However, how young people and parents use online forms of self-care support in the context of living with childhood chronic illness has been under-researched. OBJECTIVE: To explore how online peer support is used by young people and parents to support self-care in relation to cystic fibrosi…
Families' and healthcare professionals' perceptions of healthcare services for children and young people with medically unexplained symptoms
Teachers' perspectives of supporting pupils with long-term health conditions in mainstream schools
Hidden caring, hidden carers? Exploring the experience of carers for people with long‐term conditions
Informal carers make a significant contribution to illness management in communities, but many struggle to access support and remain 'hidden carers'. We aimed to explore how carers of people with common long-term conditions (LTCs, such as coronary heart disease or kidney disease) conceptualised their caring, and whether they struggled to identify themselves with the term 'carer' or access for support. We conducted semi-structured interviews with …
Participation in voluntary and community organisations in the United Kingdom and the influences on the self-management of long-term conditions
Voluntary and community organisations (VCOs) have health benefits for those who attend and are viewed as having the potential to support long-term condition management. However, existing community-level understandings of participation do not explain the involvement with VCOs at an individual level, or the nature of support, which may elicit health benefits. Framing active participation as 'doing and experiencing', the aim of this qualitative stud…
Developing biographies
This article reports on data from a qualitative interview study that sought to understand the experiences, choices and actions of children and young people undergoing surgery for a long-term condition and that of their parents. Using the concept of biography the article examines how the biographies of children, young people and their parents can be influenced by surgery and the ongoing management of a long-term continence condition. This article …
Parents' Emotional and Social Experiences of Caring for a Child Through Cleft Treatment
Little is known about the experiences of parents caring for a child through long-term treatment for cleft lip and/or cleft palate. We conducted in-depth interviews with 35 parents with children between the ages of 20 weeks and 21 years to explore experiences across the treatment program. We analyzed the data using a constructivist grounded theory approach and present in detail in this article one subcategory from the analysis: managing emotions. …
Doing the "Right" Thing
Established users and the making of telecare work in long term condition management
How children and young people construct and negotiate living with medical technology
Methodological and ethical issues in conducting qualitative research with children and young people
Challenging Professional Roles
The bulk of care in the community is carried out by lay carers. Recent policy initiatives to support them in the United Kingdom are outlined. There remains evidence of significant gaps in support from professional health and social‐care workers including community nurses. This paper reports three studies of lay carers: those caring for older people, carers of technology‐dependent children, and home‐care workers involved in the “direct payments” s…
Developing biographies
This article reports on data from a qualitative interview study that sought to understand the experiences, choices and actions of children and young people undergoing surgery for a long-term condition and that of their parents. Using the concept of biography the article examines how the biographies of children, young people and their parents can be influenced by surgery and the ongoing management of a long-term continence condition. This article …
Caring for children with specialized health care needs in the community
People needing intensive and specialized health care are being cared for now in community settings; this has implications for both primary health care professionals and family carers. This paper draws on research investigating how services can be developed to support families caring for children with complex health care needs, to consider the challenges facing professionals working in the primary health care sector. Interviews conducted with pare…
Sticks and Stones
In the workplace, demand for globally mobile workers continues to grow. This article examines the consequences for the individual of being named as global talent. Findings from a qualitative study within a large, multinational organisation, reveal the identity struggles these individuals engage in as they seek to reconcile the tensions inherent in such challenging careers. By combining and building on extant literature in naming, identity and glo…
Hidden caring, hidden carers? Exploring the experience of carers for people with long‐term conditions
Informal carers make a significant contribution to illness management in communities, but many struggle to access support and remain 'hidden carers'. We aimed to explore how carers of people with common long-term conditions (LTCs, such as coronary heart disease or kidney disease) conceptualised their caring, and whether they struggled to identify themselves with the term 'carer' or access for support. We conducted semi-structured interviews with …
The Opportunities and Challenges of Using Photo-Elicitation in Child-Centered Constructivist Grounded Theory Research
In the last three decades, there has been a growing interest in listening to children's voices in child health research. Ensuring an appropriate level of dialogical engagement with children calls for participatory methods. Auto-driven photo-elicitation interviews (PEIs) are a powerful approach to obtain rich data from children. This article discusses the opportunities and challenges of using auto-driven PEIs in a health-related child-centered con…
Established users and the making of telecare work in long term condition management
What is Asset-Based Community Development and How Might It Improve the Health of People With Long-Term Conditions? A Realist Synthesis
Asset-Based Community Development (ABCD) appears to be a promising way to supporting people with long-term health problems but there is currently a lack of evidence to support this approach. Taking a realist approach, a review and concept-mapping exercise of ABCD approaches to improve health were conducted with a view to providing a better understanding about these approaches, how they work, and who they work for. Totally, 29 papers were deemed r…
How children and young people construct and negotiate living with medical technology
Asset-Based Community Development
Asset-Based Community Development (ABCD) is seen as a way of tackling the social determinants of health and reducing health inequalities. However, a better understanding of the mechanisms through which ABCD operates, and the environmental and relational conditions within which it is likely to be most effective, could increase its effectiveness at improving health and well-being and reducing inequalities. Interviews and focus groups were conducted…
Parents' Emotional and Social Experiences of Caring for a Child Through Cleft Treatment
Little is known about the experiences of parents caring for a child through long-term treatment for cleft lip and/or cleft palate. We conducted in-depth interviews with 35 parents with children between the ages of 20 weeks and 21 years to explore experiences across the treatment program. We analyzed the data using a constructivist grounded theory approach and present in detail in this article one subcategory from the analysis: managing emotions. …
Doing the "Right" Thing
Participation in voluntary and community organisations in the United Kingdom and the influences on the self-management of long-term conditions
Voluntary and community organisations (VCOs) have health benefits for those who attend and are viewed as having the potential to support long-term condition management. However, existing community-level understandings of participation do not explain the involvement with VCOs at an individual level, or the nature of support, which may elicit health benefits. Framing active participation as 'doing and experiencing', the aim of this qualitative stud…
Body as a Machine
Research exploring illness experiences of young people with sickle cell disease (SCD) has, to date, ignored fatigue, despite the distinctive anemic nature of SCD. To examine adolescents with SCD fatigue experiences, we conducted narrative and picture-elicitation interviews with 24 adolescents in Ghana. A grounded theory, "body as a machine," was constructed from the narratives. Fatigue represented the most restrictive and disruptive aspect of gro…
Challenging Professional Roles
The bulk of care in the community is carried out by lay carers. Recent policy initiatives to support them in the United Kingdom are outlined. There remains evidence of significant gaps in support from professional health and social‐care workers including community nurses. This paper reports three studies of lay carers: those caring for older people, carers of technology‐dependent children, and home‐care workers involved in the “direct payments” s…
Educating Exceptional Children
The first survey of its kind to be published, Educating Exceptional Children is highly regarded for its academic and authoritative approach. The text provides both practical applications Change the concept of child with physical attributes and resources. For special education the needs of exceptional children share document. Gallagher received his research on reading, aloud in the council for information behalf of north. In the needs or community…
The Role of Politics in Feminist Counseling
No abstract available for this article
Involving communities in health service planning in primary care
Recent health service policy in the United Kingdom has emphasized the need to involve local people in health service planning. This paper will describe how local communities were involved in the development of Primary Care Resource Centres. These centres are designed to provide a base for the delivery of a range of health, social welfare and information services within a community setting. Four centres in the process of being developed in one reg…
Caring for children with specialized health care needs in the community
People needing intensive and specialized health care are being cared for now in community settings; this has implications for both primary health care professionals and family carers. This paper draws on research investigating how services can be developed to support families caring for children with complex health care needs, to consider the challenges facing professionals working in the primary health care sector. Interviews conducted with pare…
Challenging Professional Roles
The bulk of care in the community is carried out by lay carers. Recent policy initiatives to support them in the United Kingdom are outlined. There remains evidence of significant gaps in support from professional health and social‐care workers including community nurses. This paper reports three studies of lay carers: those caring for older people, carers of technology‐dependent children, and home‐care workers involved in the “direct payments” s…
Methodological and ethical issues in conducting qualitative research with children and young people
How children and young people construct and negotiate living with medical technology
Established users and the making of telecare work in long term condition management
Parents' Emotional and Social Experiences of Caring for a Child Through Cleft Treatment
Little is known about the experiences of parents caring for a child through long-term treatment for cleft lip and/or cleft palate. We conducted in-depth interviews with 35 parents with children between the ages of 20 weeks and 21 years to explore experiences across the treatment program. We analyzed the data using a constructivist grounded theory approach and present in detail in this article one subcategory from the analysis: managing emotions. …
Doing the "Right" Thing
Participation in voluntary and community organisations in the United Kingdom and the influences on the self-management of long-term conditions
Voluntary and community organisations (VCOs) have health benefits for those who attend and are viewed as having the potential to support long-term condition management. However, existing community-level understandings of participation do not explain the involvement with VCOs at an individual level, or the nature of support, which may elicit health benefits. Framing active participation as 'doing and experiencing', the aim of this qualitative stud…
Developing biographies
This article reports on data from a qualitative interview study that sought to understand the experiences, choices and actions of children and young people undergoing surgery for a long-term condition and that of their parents. Using the concept of biography the article examines how the biographies of children, young people and their parents can be influenced by surgery and the ongoing management of a long-term continence condition. This article …
Teachers' perspectives of supporting pupils with long-term health conditions in mainstream schools
Hidden caring, hidden carers? Exploring the experience of carers for people with long‐term conditions
Informal carers make a significant contribution to illness management in communities, but many struggle to access support and remain 'hidden carers'. We aimed to explore how carers of people with common long-term conditions (LTCs, such as coronary heart disease or kidney disease) conceptualised their caring, and whether they struggled to identify themselves with the term 'carer' or access for support. We conducted semi-structured interviews with …
An exploration of how young people and parents use online support in the context of living with cystic fibrosis
BACKGROUND: There is increasing recognition of the Internet's potential role in providing information and support for people living with long-term conditions. However, how young people and parents use online forms of self-care support in the context of living with childhood chronic illness has been under-researched. OBJECTIVE: To explore how online peer support is used by young people and parents to support self-care in relation to cystic fibrosi…
Families' and healthcare professionals' perceptions of healthcare services for children and young people with medically unexplained symptoms
How a moderated online discussion forum facilitates support for young people with eating disorders
INTRODUCTION: Young people with eating disorders are at risk of harm to their social, emotional and physical development and life chances. Although they can be reluctant to seek help, they may access social media for information, advice or support. The relationship between social media and youth well-being is an emotive subject, but not clearly understood. This qualitative study aimed to explore how young people used a youth-orientated, moderated…
What is Asset-Based Community Development and How Might It Improve the Health of People With Long-Term Conditions? A Realist Synthesis
Asset-Based Community Development (ABCD) appears to be a promising way to supporting people with long-term health problems but there is currently a lack of evidence to support this approach. Taking a realist approach, a review and concept-mapping exercise of ABCD approaches to improve health were conducted with a view to providing a better understanding about these approaches, how they work, and who they work for. Totally, 29 papers were deemed r…
Asset-Based Community Development
Asset-Based Community Development (ABCD) is seen as a way of tackling the social determinants of health and reducing health inequalities. However, a better understanding of the mechanisms through which ABCD operates, and the environmental and relational conditions within which it is likely to be most effective, could increase its effectiveness at improving health and well-being and reducing inequalities. Interviews and focus groups were conducted…
The Opportunities and Challenges of Using Photo-Elicitation in Child-Centered Constructivist Grounded Theory Research
In the last three decades, there has been a growing interest in listening to children's voices in child health research. Ensuring an appropriate level of dialogical engagement with children calls for participatory methods. Auto-driven photo-elicitation interviews (PEIs) are a powerful approach to obtain rich data from children. This article discusses the opportunities and challenges of using auto-driven PEIs in a health-related child-centered con…
Patient safety in marginalised groups
Not applicable for a scoping review
Body as a Machine
Research exploring illness experiences of young people with sickle cell disease (SCD) has, to date, ignored fatigue, despite the distinctive anemic nature of SCD. To examine adolescents with SCD fatigue experiences, we conducted narrative and picture-elicitation interviews with 24 adolescents in Ghana. A grounded theory, "body as a machine," was constructed from the narratives. Fatigue represented the most restrictive and disruptive aspect of gro…
Qualitative Observational Research in the Intensive Care Setting
The aim of this theoretical paper is to critically reflect on the ethical and methodological issues that arose during a study that observed nurses' care-giving in an intensive care unit setting. The authors critically discuss the methodological and ethical issues as well as the practical realities that were encountered when evaluating a complex intervention using unstructured qualitative observations. We describe the process with negotiating acce…
Home sweet home
Globalization has transformed spatial relations, increasing the demand for mobility. Literature tends to see the de-emphasizing of national identity and the foregrounding of a cosmopolitan identity as central to an individual's ability to navigate this global landscape. For individuals who are constantly moving the question is how do globally mobile workers navigate the intersection of identity, meaningfulness and place? This interpretivist study…
Sticks and Stones
In the workplace, demand for globally mobile workers continues to grow. This article examines the consequences for the individual of being named as global talent. Findings from a qualitative study within a large, multinational organisation, reveal the identity struggles these individuals engage in as they seek to reconcile the tensions inherent in such challenging careers. By combining and building on extant literature in naming, identity and glo…
Psychology (22 obras) · Sociology (20 obras) · Medicine (17 obras) · Political science (17 obras) · Qualitative research (14 obras) · Public relations (12 obras) · Computer Science (9 obras) · Nursing (9 obras) · Grounded theory (7 obras) · Business (6 obras)