Louisa Smith
Datos Biográficos
| ID | 3596891 |
|---|---|
| NOMBRE | Louisa Smith |
| NOMBRES | Louisa |
| APELLIDO | Smith |
| FIRMA | SMITH L |
| AFILIACIONES | Deakin University |
| ORCID | 0000-0001-7026-0607 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 27 |
| TOTAL DE CITAS | 66 |
| TOTAL COMO AUTOR | 27 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 2013 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2026 |
| ÍNDICE H | 5 |
The Tensions Between Hidden Work and Hiding Work for Care Workers in Residential Aged Care
Although care workers in residential aged care are pivotal to maintaining the dignity of older people, little is known about their experiences of work. We know they are undervalued, invisible and unrecognised. This paper explores embodied experiences of care workers supporting older people in residential aged care. Two interactive workshops using the arts‐based method of body mapping were conducted with 11 care workers. In making body maps, parti…
Only a peer in one way
Only a peer in one way: the value of lived experience for peer workers with disability supporting people with disability and complex communication access needs
Gardens, agency and citizenship of people with dementia
People living with dementia are often presumed to have no agency or capacity to act in the social world. They are often excluded from participating in research while research methodologies may not capture their embodied engagement with people and places. Yet, like everyone, people with dementia can express their agency in nuanced ways, for example, through emotions or embodied expression. In the conceptual framework discussed here, nuanced agency…
The meaning of home when you don't live there anymore
The significance of home is broadly recognised as representing selfhood, safety and autonomy. For older people, especially those with dementia, the ability to age in place at home can be threatened by a necessary move into a care home. Home has heightened importance for people with dementia. We know most people want to stay in their own homes, but there is limited research which explores what home means for people with dementia when they move int…
Exploring How Nuanced Agency Enables Citizenship of People Living With Dementia in Their Home Gardens
An expanded view of agency as nuanced and embodied can help us recognise the agency of people with dementia as citizens in everyday life. Places such as gardens, with their sensory and material appeal, have potential to support this but how people with dementia experience gardens is not well understood. This study aimed to explore how people with dementia experience nuanced agency and citizenship in their domestic home gardens, and to identify en…
Articulating researcher self-care, reflection and reflexivity
While qualitative researchers on sensitive topics spend significant and important time assessing and mitigating risks for their research participants, there is much less focus on risks to researchers doing this work. Sensitive qualitative research requires researchers to empathise with participants talking about some of life's most challenging moments, and exposure to this can be deeply emotional and even traumatic for researchers. Researchers ne…
Investigating the lived experience of LGBT+ people with dementia and their care partners
Dementia, a global health priority, poses a disproportionately high risk to lesbian, gay, bisexual and trans plus (LGBT+)/gender and sexuality diverse people. Despite this, little research has explored the lived experience of LGBT+ people with dementia or their care partners. This scoping review aims to understand what the literature reveals about their experiences, the ways in which their lives have been investigated, to inform future research, …
Is There Anything Else You’d Like to Tell Us About Your Experience?’ Orientations Towards Listening to Open-Ended Survey Responses
While survey research design tends to prioritise closed questions with predetermined responses, many surveys conclude with an open-ended ‘anything else you would like to tell us?’ question. This question, designed to elicit feedback or create opportunities for respondents to share additional information, offers significant potential for insight into respondents’ experiences. Yet, the extent to which these open-ended data are listened to remains o…
Interdependencies in peer work with people with disability
Peer work with people with disability often engages people with lived experience of disability to address social exclusion and isolation experienced by their focus people. This paper discusses findings that are part of a project evaluation wherein peer workers with varied disabilities aimed to support focus people to make community connections for their focus people. Focus people lived in disability group homes in regional New South Wales, Austra…
Re-imagining care transitions for people with dementia and complex support needs in residential aged care
The concept of transition is often used in health and lifecourse research to understand a significant movement from one state or place to another. While people with dementia experience more major transitions than their peers, they are often excluded from transitional care research. This study set out to develop meaningful transitional supports for people with dementia and complex support needs who were undertaking a significant planned geographic…
The Utility of Researcher-Driven Projective and Enabling Techniques to Support Engagement in Research About Dementia Diagnosis and Post-Diagnostic Support
Research involving people with dementia has highlighted the need to improve engagement in the conduct of interviews and focus groups. Projective and enabling techniques may be useful and avoid some of the drawbacks associated with direct questioning. However, researcher-driven projective techniques have not been extensively tested in research with people with dementia. In 2019, researchers in Australia, Canada, the Netherlands and Poland received…
Getting People with Dementia onto the Map
A deficit framing continues to surround the perceived capabilities of people with dementia to comprehend and engage with cartographic maps. While some people with dementia might experience issues with wayfinding and spatial orientation, this has frequently been unfairly extended to all people living with dementia. From the perspective of qualitative research, the potentials for how mapping might contribute methodologically to understanding how so…
Supporting the involvement of older adults with complex needs in evaluation of outcomes in long‐term care at home programmes
BACKGROUND: It is important to involve older people in evaluating public programmes that affect their lives. This includes those with physical and cognitive impairments (such as dementia) who may need support to live at home. Many countries have implemented new approaches to support older people to live well at home for longer. However, it can be challenging to involve disabled people in service evaluation, so we are unclear whether services are …
Key characteristics of the refugee journey for Iraqi and Syrian family members who support their children or siblings with disability
Refugees with disability and their families are increasingly resettled in Australia but remain an under-researched group. As such, this study aimed to understand experiences of disability for humanitarian migrants who support a family member with a disability. Interviews took place with 10 family members from Iraqi and Syrian refugee backgrounds living in Australia, whose children or siblings had disability. BenEzer and Zetter’s conceptualisation…
Perspectives and practices associated with consumer‐directed care in Australia
This study used a qualitative, cross-sectional design to address a gap in understanding the perspectives and practices of care planners and case managers in supporting consumer- directed care (CDC) for community dwelling people living with dementia. Semi-structured telephone interviews were conducted with a convenience sample of n = 16 planners and managers from seven providers of the Australian home care packages (HCP) program in NSW (Australia)…
A framework for interconnected benefits of peer support for family members of people with disability
Peer support describes the process of giving and receiving support between people who share similar life experiences. It is commonly used by family members of people with disability, with positive outcomes. However, existing research tends to assume it has separate and discrete benefits, neglecting the subtleties of how the different outcomes may be interconnected and mutually reinforcing. An account of these broader connections between benefits …
Transcending the Professional–Client Divide
Thinking through participatory action research with people with late-stage dementia
The perspective of people with dementia, particularly late-stage dementia, is often excluded from research, even from methods like Participatory Action Research (PAR), which aim to democratise research. This research note outlines how a PAR project engaged with the perspective of people with late-stage dementia in a residential aged care facility. Firstly, we focus on our mistakes: methods which did not appropriately include or engage this group.…
Exploring the intersection of human rights, health, disability and refugee status
Refugees often come from countries with histories of human rights violations and can face multiple challenges in building a new life in Australia. Little is known about the specific experiences of those who also live with a disability, and how this may impact their rights to health. We present an intersectional approach to using arts-based research to bring to light the embodied experiences of these people, who live at the intersection of multipl…
Understanding the meaning of support in the Australian disability context – an analysis of the term “support” in seven key documents
In the past four years, Australia has undergone a major change in the way it funds supports and services for people living with disability. Part of this change has, of course, occurred in the discourse of disability, and the emergence of the term “support” rather than “care” has been a feature of this discursive shift. In this paper we used aspects of Systemic Functional Linguistic (SFL) theory to analyse how the term “support” is used in a seven…
To the Arabic Community Disability Is Not Normal’
In 2015, the Australian government committed to take an additional 12,000 refugees from Syria and Iraq prioritizing those considered most vulnerable including people with disability. The aim of this preliminary study was to understand, from multiple stakeholder perspectives, the experiences of settling in Australia for people with disability from Syrian and Iraqi refugee backgrounds living in Sydney. Interviews were conducted with nine family mem…
Boy Interrupted - Biographical disruption during the transition to adulthood
Most studies on the gendered aspects of biographical disruption are predicated on adult experiences of chronic illness, often based on heterogeneous samples. This paper goes beyond typologies by analysing the life-history case study of 'Sam', a 23-year-old Australian man raised in a refugee family, who developed a disabling chronic health condition at 15 years of age. The analysis illustrates how critical contextual factors like life-phase, combi…
Times during transition for young people with complex support needs
Youth studies has called for new ways of thinking about transitions for young people. This paper argues for new ways of understanding times during transition, particularly for young people with complex support needs. Young people (16–26 years) with complex support needs are those who experience multiple forms of social disadvantage, and who depend on siloed services to support them. Complex support needs are created by the intersection between a …
Services to young people with complex support needs in rural and regional Australia
A Cohesive Research Approach to Assess Care-Related Quality of Life
New or adapted methods and tools are needed to ensure the voices of older people with cognitive impairment and dementia are included in evaluations of care services which aim to support their quality of life (QoL). In this study, cognitive interviewing practices were used with a group of 26 older service users with cognitive impairment from two service providers in New South Wales, Australia, to test and modify the Adult Social Care Outcomes Tool…
Boy Interrupted - Biographical disruption during the transition to adulthood
Most studies on the gendered aspects of biographical disruption are predicated on adult experiences of chronic illness, often based on heterogeneous samples. This paper goes beyond typologies by analysing the life-history case study of 'Sam', a 23-year-old Australian man raised in a refugee family, who developed a disabling chronic health condition at 15 years of age. The analysis illustrates how critical contextual factors like life-phase, combi…
Thinking through participatory action research with people with late-stage dementia
The perspective of people with dementia, particularly late-stage dementia, is often excluded from research, even from methods like Participatory Action Research (PAR), which aim to democratise research. This research note outlines how a PAR project engaged with the perspective of people with late-stage dementia in a residential aged care facility. Firstly, we focus on our mistakes: methods which did not appropriately include or engage this group.…
Times during transition for young people with complex support needs
Youth studies has called for new ways of thinking about transitions for young people. This paper argues for new ways of understanding times during transition, particularly for young people with complex support needs. Young people (16–26 years) with complex support needs are those who experience multiple forms of social disadvantage, and who depend on siloed services to support them. Complex support needs are created by the intersection between a …
Working hard with gender
Purpose Manual trades and information technology (IT) are male‐dominated occupations and as such cultivate unique forms of hegemonic masculinity. Women entering these occupations represent a kind of crisis to this gender order in the workplace, making the experiences of these women a useful way of studying how gender regimes are maintained and may be challenged at work. The aim of this paper is to examine how women found doing gender in the male …
A Cohesive Research Approach to Assess Care-Related Quality of Life
New or adapted methods and tools are needed to ensure the voices of older people with cognitive impairment and dementia are included in evaluations of care services which aim to support their quality of life (QoL). In this study, cognitive interviewing practices were used with a group of 26 older service users with cognitive impairment from two service providers in New South Wales, Australia, to test and modify the Adult Social Care Outcomes Tool…
To the Arabic Community Disability Is Not Normal’
In 2015, the Australian government committed to take an additional 12,000 refugees from Syria and Iraq prioritizing those considered most vulnerable including people with disability. The aim of this preliminary study was to understand, from multiple stakeholder perspectives, the experiences of settling in Australia for people with disability from Syrian and Iraqi refugee backgrounds living in Sydney. Interviews were conducted with nine family mem…
Services to young people with complex support needs in rural and regional Australia
Key characteristics of the refugee journey for Iraqi and Syrian family members who support their children or siblings with disability
Refugees with disability and their families are increasingly resettled in Australia but remain an under-researched group. As such, this study aimed to understand experiences of disability for humanitarian migrants who support a family member with a disability. Interviews took place with 10 family members from Iraqi and Syrian refugee backgrounds living in Australia, whose children or siblings had disability. BenEzer and Zetter’s conceptualisation…
Exploring the intersection of human rights, health, disability and refugee status
Refugees often come from countries with histories of human rights violations and can face multiple challenges in building a new life in Australia. Little is known about the specific experiences of those who also live with a disability, and how this may impact their rights to health. We present an intersectional approach to using arts-based research to bring to light the embodied experiences of these people, who live at the intersection of multipl…
Re-imagining care transitions for people with dementia and complex support needs in residential aged care
The concept of transition is often used in health and lifecourse research to understand a significant movement from one state or place to another. While people with dementia experience more major transitions than their peers, they are often excluded from transitional care research. This study set out to develop meaningful transitional supports for people with dementia and complex support needs who were undertaking a significant planned geographic…
Interdependencies in peer work with people with disability
Peer work with people with disability often engages people with lived experience of disability to address social exclusion and isolation experienced by their focus people. This paper discusses findings that are part of a project evaluation wherein peer workers with varied disabilities aimed to support focus people to make community connections for their focus people. Focus people lived in disability group homes in regional New South Wales, Austra…
The Utility of Researcher-Driven Projective and Enabling Techniques to Support Engagement in Research About Dementia Diagnosis and Post-Diagnostic Support
Research involving people with dementia has highlighted the need to improve engagement in the conduct of interviews and focus groups. Projective and enabling techniques may be useful and avoid some of the drawbacks associated with direct questioning. However, researcher-driven projective techniques have not been extensively tested in research with people with dementia. In 2019, researchers in Australia, Canada, the Netherlands and Poland received…
Intellectual disability and complex support needs
People with intellectual disability and complex support needs challenge human rights in the current disability policy and practice framework in Australia. With the implementation of the National Disability Insurance Scheme (NDIS) in Australia, it is pivotal to understand how human rights can offer a framework for understanding these challenges. There are complex issues and challenges in operationalising support for the human rights of people with…
Working hard with gender
Purpose Manual trades and information technology (IT) are male‐dominated occupations and as such cultivate unique forms of hegemonic masculinity. Women entering these occupations represent a kind of crisis to this gender order in the workplace, making the experiences of these women a useful way of studying how gender regimes are maintained and may be challenged at work. The aim of this paper is to examine how women found doing gender in the male …
Intellectual disability and complex support needs
People with intellectual disability and complex support needs challenge human rights in the current disability policy and practice framework in Australia. With the implementation of the National Disability Insurance Scheme (NDIS) in Australia, it is pivotal to understand how human rights can offer a framework for understanding these challenges. There are complex issues and challenges in operationalising support for the human rights of people with…
Times during transition for young people with complex support needs
Youth studies has called for new ways of thinking about transitions for young people. This paper argues for new ways of understanding times during transition, particularly for young people with complex support needs. Young people (16–26 years) with complex support needs are those who experience multiple forms of social disadvantage, and who depend on siloed services to support them. Complex support needs are created by the intersection between a …
Services to young people with complex support needs in rural and regional Australia
A Cohesive Research Approach to Assess Care-Related Quality of Life
New or adapted methods and tools are needed to ensure the voices of older people with cognitive impairment and dementia are included in evaluations of care services which aim to support their quality of life (QoL). In this study, cognitive interviewing practices were used with a group of 26 older service users with cognitive impairment from two service providers in New South Wales, Australia, to test and modify the Adult Social Care Outcomes Tool…
Transcending the Professional–Client Divide
Thinking through participatory action research with people with late-stage dementia
The perspective of people with dementia, particularly late-stage dementia, is often excluded from research, even from methods like Participatory Action Research (PAR), which aim to democratise research. This research note outlines how a PAR project engaged with the perspective of people with late-stage dementia in a residential aged care facility. Firstly, we focus on our mistakes: methods which did not appropriately include or engage this group.…
Exploring the intersection of human rights, health, disability and refugee status
Refugees often come from countries with histories of human rights violations and can face multiple challenges in building a new life in Australia. Little is known about the specific experiences of those who also live with a disability, and how this may impact their rights to health. We present an intersectional approach to using arts-based research to bring to light the embodied experiences of these people, who live at the intersection of multipl…
Understanding the meaning of support in the Australian disability context – an analysis of the term “support” in seven key documents
In the past four years, Australia has undergone a major change in the way it funds supports and services for people living with disability. Part of this change has, of course, occurred in the discourse of disability, and the emergence of the term “support” rather than “care” has been a feature of this discursive shift. In this paper we used aspects of Systemic Functional Linguistic (SFL) theory to analyse how the term “support” is used in a seven…
To the Arabic Community Disability Is Not Normal’
In 2015, the Australian government committed to take an additional 12,000 refugees from Syria and Iraq prioritizing those considered most vulnerable including people with disability. The aim of this preliminary study was to understand, from multiple stakeholder perspectives, the experiences of settling in Australia for people with disability from Syrian and Iraqi refugee backgrounds living in Sydney. Interviews were conducted with nine family mem…
Boy Interrupted - Biographical disruption during the transition to adulthood
Most studies on the gendered aspects of biographical disruption are predicated on adult experiences of chronic illness, often based on heterogeneous samples. This paper goes beyond typologies by analysing the life-history case study of 'Sam', a 23-year-old Australian man raised in a refugee family, who developed a disabling chronic health condition at 15 years of age. The analysis illustrates how critical contextual factors like life-phase, combi…
A framework for interconnected benefits of peer support for family members of people with disability
Peer support describes the process of giving and receiving support between people who share similar life experiences. It is commonly used by family members of people with disability, with positive outcomes. However, existing research tends to assume it has separate and discrete benefits, neglecting the subtleties of how the different outcomes may be interconnected and mutually reinforcing. An account of these broader connections between benefits …
Supporting the involvement of older adults with complex needs in evaluation of outcomes in long‐term care at home programmes
BACKGROUND: It is important to involve older people in evaluating public programmes that affect their lives. This includes those with physical and cognitive impairments (such as dementia) who may need support to live at home. Many countries have implemented new approaches to support older people to live well at home for longer. However, it can be challenging to involve disabled people in service evaluation, so we are unclear whether services are …
Key characteristics of the refugee journey for Iraqi and Syrian family members who support their children or siblings with disability
Refugees with disability and their families are increasingly resettled in Australia but remain an under-researched group. As such, this study aimed to understand experiences of disability for humanitarian migrants who support a family member with a disability. Interviews took place with 10 family members from Iraqi and Syrian refugee backgrounds living in Australia, whose children or siblings had disability. BenEzer and Zetter’s conceptualisation…
Perspectives and practices associated with consumer‐directed care in Australia
This study used a qualitative, cross-sectional design to address a gap in understanding the perspectives and practices of care planners and case managers in supporting consumer- directed care (CDC) for community dwelling people living with dementia. Semi-structured telephone interviews were conducted with a convenience sample of n = 16 planners and managers from seven providers of the Australian home care packages (HCP) program in NSW (Australia)…
Interdependencies in peer work with people with disability
Peer work with people with disability often engages people with lived experience of disability to address social exclusion and isolation experienced by their focus people. This paper discusses findings that are part of a project evaluation wherein peer workers with varied disabilities aimed to support focus people to make community connections for their focus people. Focus people lived in disability group homes in regional New South Wales, Austra…
Re-imagining care transitions for people with dementia and complex support needs in residential aged care
The concept of transition is often used in health and lifecourse research to understand a significant movement from one state or place to another. While people with dementia experience more major transitions than their peers, they are often excluded from transitional care research. This study set out to develop meaningful transitional supports for people with dementia and complex support needs who were undertaking a significant planned geographic…
The Utility of Researcher-Driven Projective and Enabling Techniques to Support Engagement in Research About Dementia Diagnosis and Post-Diagnostic Support
Research involving people with dementia has highlighted the need to improve engagement in the conduct of interviews and focus groups. Projective and enabling techniques may be useful and avoid some of the drawbacks associated with direct questioning. However, researcher-driven projective techniques have not been extensively tested in research with people with dementia. In 2019, researchers in Australia, Canada, the Netherlands and Poland received…
Getting People with Dementia onto the Map
A deficit framing continues to surround the perceived capabilities of people with dementia to comprehend and engage with cartographic maps. While some people with dementia might experience issues with wayfinding and spatial orientation, this has frequently been unfairly extended to all people living with dementia. From the perspective of qualitative research, the potentials for how mapping might contribute methodologically to understanding how so…
Investigating the lived experience of LGBT+ people with dementia and their care partners
Dementia, a global health priority, poses a disproportionately high risk to lesbian, gay, bisexual and trans plus (LGBT+)/gender and sexuality diverse people. Despite this, little research has explored the lived experience of LGBT+ people with dementia or their care partners. This scoping review aims to understand what the literature reveals about their experiences, the ways in which their lives have been investigated, to inform future research, …
Is There Anything Else You’d Like to Tell Us About Your Experience?’ Orientations Towards Listening to Open-Ended Survey Responses
While survey research design tends to prioritise closed questions with predetermined responses, many surveys conclude with an open-ended ‘anything else you would like to tell us?’ question. This question, designed to elicit feedback or create opportunities for respondents to share additional information, offers significant potential for insight into respondents’ experiences. Yet, the extent to which these open-ended data are listened to remains o…
Only a peer in one way
Only a peer in one way: the value of lived experience for peer workers with disability supporting people with disability and complex communication access needs
Gardens, agency and citizenship of people with dementia
People living with dementia are often presumed to have no agency or capacity to act in the social world. They are often excluded from participating in research while research methodologies may not capture their embodied engagement with people and places. Yet, like everyone, people with dementia can express their agency in nuanced ways, for example, through emotions or embodied expression. In the conceptual framework discussed here, nuanced agency…
The meaning of home when you don't live there anymore
The significance of home is broadly recognised as representing selfhood, safety and autonomy. For older people, especially those with dementia, the ability to age in place at home can be threatened by a necessary move into a care home. Home has heightened importance for people with dementia. We know most people want to stay in their own homes, but there is limited research which explores what home means for people with dementia when they move int…
Exploring How Nuanced Agency Enables Citizenship of People Living With Dementia in Their Home Gardens
An expanded view of agency as nuanced and embodied can help us recognise the agency of people with dementia as citizens in everyday life. Places such as gardens, with their sensory and material appeal, have potential to support this but how people with dementia experience gardens is not well understood. This study aimed to explore how people with dementia experience nuanced agency and citizenship in their domestic home gardens, and to identify en…
Psychology (23 obras) · Sociology (23 obras) · Political science (16 obras) · Medicine (14 obras) · Dementia (12 obras) · Public relations (9 obras) · Qualitative research (9 obras) · Social science (9 obras) · Healthcare innovation and challenges (8 obras) · Mental Health and Patient Involvement (7 obras)