Jennifer E James
Datos Biográficos
| ID | 3603939 |
|---|---|
| NOMBRE | Jennifer E James |
| NOMBRES | Jennifer E |
| APELLIDO | James |
| FIRMA | JAMES J E |
| AFILIACIONES | University of California, San Francisco |
| ORCID | 0000-0001-6240-3487 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 16 |
| TOTAL DE CITAS | 16 |
| TOTAL COMO AUTOR | 16 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 2020 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2026 |
| ÍNDICE H | 2 |
Healthcare in a system of punishment
Carework as resistance
The COVID-19 pandemic was a crisis in prisons and jails, with some of the largest outbreaks in the United States happening inside carceral facilities. In the absence of structural interventions to protect them, people inside prisons engaged in various forms of carework to support one another and to draw attention to the horrific conditions. We conducted interviews and focus groups with people who were incarcerated during the COVID-19 pandemic; he…
Cultural and Language Discrimination in Healthcare as Experienced by Basque Women and Gender Non-Normative Individuals in the Basque Country
Basque women and gender non-normative individuals are a part of an Indigenous and ethnic minority culture, thus more likely to be exposed to discrimination and sub-optimal healthcare services. This study explores their experiences with healthcare and identifies the barriers and facilitators to implement culturally safe healthcare practices in the Basque Country. We used a critical ethnographic approach to conduct 37 semi-structured interviews, 36…
“Mammograms are kind of my pacifier”
Population genetic testing and risk-based screening have the potential to shift how we determine risk and screen for breast cancer. While much attention has been paid to the experiences of individuals who may be at elevated risk for breast cancer, less is known about how those at average risk make decisions about their health. Through qualitative interviews with 30 participants, we explore how those enrolled in a risk-based screening trial who ar…
Moving toward Equity through Embedded Elsi Ethnography
This paper describes the unique values of, challenges within, and opportunities presented by embedded ELSI ethnography. Drawing from our six‐year embedded ELSI study of the WISDOM (Women Informed to Screen Depending on Measures of Risk) trial, we present three examples of the variable ways we engaged with the WISDOM trial's scientific team. WISDOM is a preference‐sensitive, pragmatic, randomized controlled trial of risk‐based breast cancer screen…
Controlling Reproduction and Disrupting Family Formation
Prisons in the United States serve as a site and embodiment of gendered and racialized state violence. The US incarcerates more people than any other nation in both numbers and per capita rates. Individuals incarcerated in women’s prisons are 10% of the total prison population, yet women’s prisons remain understudied, and the violence that occurs in women’s facilities is rampant, widespread, and operates in particular racialized and gendered ways…
Diagnosis and the practices of patienthood
Sociologists have a rich history of studying the process of diagnosis and how people experience illness. Yet, the sociology of diagnosis and illness experience literatures have seldom been fully integrated. Instead, these literatures highlight one element of the illness journey, wherein scholars either primarily study diagnostic processes and categories or people's illness experiences. Drawing on empirical studies that examine diagnosis and exper…
“Good luck, social distance”
The COVID-19 pandemic inspired calls for rapid decarceration of prisons and jails to slow the spread of disease in a high-risk congregate setting. Due to the rarity of intentionally-decarcerative policies, little is known about the effects of rapid decarceration on individuals with serious mental illness (SMI) substance use disorder (SUD), a population who receive many services via the criminal legal system (CLS). We conducted interviews with 13 …
The Problem Is Not (Merely) Mass Incarceration
Mass incarceration is an ethical crisis. Yet it is not only the magnitude of the system that is troubling. Mass incarceration has been created and sustained by racism, classism, and ableism, and the problems of the criminal legal system will not be solved without meaningfully intervening upon these forms of oppression. Beyond that, incarceration itself—whether of one person or 2 million—represents a moral failing. To punish and control, rather th…
Black Bioethics in the Age of Black Lives Matter
Black Feminist Bioethics
This commentary builds off the article “Is Trust Enough? Anti‐Black Racism and the Perception of Black Vaccine ‘Hesitancy,’” by Yolonda Wilson, and her assertion that the question, “Why don't Black people trust ... ?” is insufficient. The commentary describes ways in which a Black feminist approach to knowledge production can facilitate centering community and can lead researchers, health care providers, and bioethicists to ask better questions. …
It’s personalized, but it’s still bucket based”
Adaptive pragmatic clinical trials offer an innovative approach that integrates clinical care and research. Yet, blurring the boundaries between research and clinical care raises questions about how clinicians and investigators balance their caregiving and research roles and what types of knowledge and risk assessment are most valued. This paper presents findings from an ethnographic ELSI (Ethical, Legal, Social Implications) study of an innovati…
Black Feminist Epistemological Methodology
This chapter describes a new methodology developed and piloted for a project on the lived experiences of black women with advanced cancer. It argues there is a need for a defined black feminist epistemological methodology, which acts as a bridge between the epistemological commitment of black feminist theory and the traditional qualitative research methods of interviews and observations. Finally, black feminist epistemology requires personal acco…
A Second Chance at Health
Mass incarceration and the aging prison population in the United States is an ethical crisis, understudied in empirical bioethics research. In this article, I share one woman’s narrative to illustrate how older Black women describe accessing healthcare while incarcerated and identify sites for bioethical exploration. I argue that, due to the punitive nature of prison healthcare interactions, wherein women are seen as inmates first and patients se…
Creativity, Resilience and Resistance
This article documents the experiences of Black birthworkers supporting pregnant and birthing people and new mamas during the first six months of the COVID-19 pandemic. Building on the methodology and outcomes of Battling Over Birth-a Research Justice project by and for Black women about their experiences of pregnancy and childbirth-the authors utilized a "community-based sheltered-in-place research methodology" to collect the narratives of Black…
Regimes of Patienthood
In this paper, we develop the concept regimes of patienthood. Regimes of patienthood highlights the micro and macro dimensions of illness, paying close attention to how the interplay between the two creates expectations and points of intervention for people when they are ill. Such expectations may vary across time, place, and social position (e.g., age, class, ethnicity, gender, race, sexuality). Regimes of patienthood are always regimes of power…
Diagnosis and the practices of patienthood
Sociologists have a rich history of studying the process of diagnosis and how people experience illness. Yet, the sociology of diagnosis and illness experience literatures have seldom been fully integrated. Instead, these literatures highlight one element of the illness journey, wherein scholars either primarily study diagnostic processes and categories or people's illness experiences. Drawing on empirical studies that examine diagnosis and exper…
Creativity, Resilience and Resistance
This article documents the experiences of Black birthworkers supporting pregnant and birthing people and new mamas during the first six months of the COVID-19 pandemic. Building on the methodology and outcomes of Battling Over Birth-a Research Justice project by and for Black women about their experiences of pregnancy and childbirth-the authors utilized a "community-based sheltered-in-place research methodology" to collect the narratives of Black…
Regimes of Patienthood
In this paper, we develop the concept regimes of patienthood. Regimes of patienthood highlights the micro and macro dimensions of illness, paying close attention to how the interplay between the two creates expectations and points of intervention for people when they are ill. Such expectations may vary across time, place, and social position (e.g., age, class, ethnicity, gender, race, sexuality). Regimes of patienthood are always regimes of power…
Black Feminist Epistemological Methodology
This chapter describes a new methodology developed and piloted for a project on the lived experiences of black women with advanced cancer. It argues there is a need for a defined black feminist epistemological methodology, which acts as a bridge between the epistemological commitment of black feminist theory and the traditional qualitative research methods of interviews and observations. Finally, black feminist epistemology requires personal acco…
A Second Chance at Health
Mass incarceration and the aging prison population in the United States is an ethical crisis, understudied in empirical bioethics research. In this article, I share one woman’s narrative to illustrate how older Black women describe accessing healthcare while incarcerated and identify sites for bioethical exploration. I argue that, due to the punitive nature of prison healthcare interactions, wherein women are seen as inmates first and patients se…
Creativity, Resilience and Resistance
This article documents the experiences of Black birthworkers supporting pregnant and birthing people and new mamas during the first six months of the COVID-19 pandemic. Building on the methodology and outcomes of Battling Over Birth-a Research Justice project by and for Black women about their experiences of pregnancy and childbirth-the authors utilized a "community-based sheltered-in-place research methodology" to collect the narratives of Black…
Black Feminist Bioethics
This commentary builds off the article “Is Trust Enough? Anti‐Black Racism and the Perception of Black Vaccine ‘Hesitancy,’” by Yolonda Wilson, and her assertion that the question, “Why don't Black people trust ... ?” is insufficient. The commentary describes ways in which a Black feminist approach to knowledge production can facilitate centering community and can lead researchers, health care providers, and bioethicists to ask better questions. …
It’s personalized, but it’s still bucket based”
Adaptive pragmatic clinical trials offer an innovative approach that integrates clinical care and research. Yet, blurring the boundaries between research and clinical care raises questions about how clinicians and investigators balance their caregiving and research roles and what types of knowledge and risk assessment are most valued. This paper presents findings from an ethnographic ELSI (Ethical, Legal, Social Implications) study of an innovati…
“Good luck, social distance”
The COVID-19 pandemic inspired calls for rapid decarceration of prisons and jails to slow the spread of disease in a high-risk congregate setting. Due to the rarity of intentionally-decarcerative policies, little is known about the effects of rapid decarceration on individuals with serious mental illness (SMI) substance use disorder (SUD), a population who receive many services via the criminal legal system (CLS). We conducted interviews with 13 …
The Problem Is Not (Merely) Mass Incarceration
Mass incarceration is an ethical crisis. Yet it is not only the magnitude of the system that is troubling. Mass incarceration has been created and sustained by racism, classism, and ableism, and the problems of the criminal legal system will not be solved without meaningfully intervening upon these forms of oppression. Beyond that, incarceration itself—whether of one person or 2 million—represents a moral failing. To punish and control, rather th…
Black Bioethics in the Age of Black Lives Matter
“Mammograms are kind of my pacifier”
Population genetic testing and risk-based screening have the potential to shift how we determine risk and screen for breast cancer. While much attention has been paid to the experiences of individuals who may be at elevated risk for breast cancer, less is known about how those at average risk make decisions about their health. Through qualitative interviews with 30 participants, we explore how those enrolled in a risk-based screening trial who ar…
Moving toward Equity through Embedded Elsi Ethnography
This paper describes the unique values of, challenges within, and opportunities presented by embedded ELSI ethnography. Drawing from our six‐year embedded ELSI study of the WISDOM (Women Informed to Screen Depending on Measures of Risk) trial, we present three examples of the variable ways we engaged with the WISDOM trial's scientific team. WISDOM is a preference‐sensitive, pragmatic, randomized controlled trial of risk‐based breast cancer screen…
Controlling Reproduction and Disrupting Family Formation
Prisons in the United States serve as a site and embodiment of gendered and racialized state violence. The US incarcerates more people than any other nation in both numbers and per capita rates. Individuals incarcerated in women’s prisons are 10% of the total prison population, yet women’s prisons remain understudied, and the violence that occurs in women’s facilities is rampant, widespread, and operates in particular racialized and gendered ways…
Diagnosis and the practices of patienthood
Sociologists have a rich history of studying the process of diagnosis and how people experience illness. Yet, the sociology of diagnosis and illness experience literatures have seldom been fully integrated. Instead, these literatures highlight one element of the illness journey, wherein scholars either primarily study diagnostic processes and categories or people's illness experiences. Drawing on empirical studies that examine diagnosis and exper…
Carework as resistance
The COVID-19 pandemic was a crisis in prisons and jails, with some of the largest outbreaks in the United States happening inside carceral facilities. In the absence of structural interventions to protect them, people inside prisons engaged in various forms of carework to support one another and to draw attention to the horrific conditions. We conducted interviews and focus groups with people who were incarcerated during the COVID-19 pandemic; he…
Cultural and Language Discrimination in Healthcare as Experienced by Basque Women and Gender Non-Normative Individuals in the Basque Country
Basque women and gender non-normative individuals are a part of an Indigenous and ethnic minority culture, thus more likely to be exposed to discrimination and sub-optimal healthcare services. This study explores their experiences with healthcare and identifies the barriers and facilitators to implement culturally safe healthcare practices in the Basque Country. We used a critical ethnographic approach to conduct 37 semi-structured interviews, 36…
Healthcare in a system of punishment
Political science (9 obras) · Sociology (9 obras) · Law (7 obras) · Medicine (6 obras) · Bioethics (5 obras) · Criminal Justice and Corrections Analysis (5 obras) · Health care (5 obras) · Psychology (5 obras) · Criminology (4 obras) · Gender Studies (4 obras)