Claire Pentecost
Datos Biográficos
| ID | 387387 |
|---|---|
| NOMBRE | Claire Pentecost |
| NOMBRES | Claire |
| APELLIDO | Pentecost |
| FIRMA | PENTECOST C |
| AFILIACIONES | University of Exeter |
| ORCID | 0000-0003-2048-5538 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 18 |
| TOTAL DE CITAS | 19 |
| TOTAL COMO AUTOR | 18 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 2005 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2026 |
| ÍNDICE H | 3 |
Negotiating the caring role and carer identity over time
Longitudinal studies can provide insights into how family members negotiate the caring role and carer identity over time. The analyses of the longitudinal, qualitative interviews on ‘living well’ with dementia from the IDEAL cohort study aimed to identify the shifting, embedded narratives of family members of people with dementia as they negotiated the caring role and carer identity over time. Twenty semi-structured, qualitative interviews were c…
Continuity, change and ‘living well’ for older people with dementia
Living well’ is an important concept across national dementia strategies. Qualitative research has contributed to understanding of living well for people with dementia. Longitudinal qualitative approaches, though fewer, can explore potential changes in accounts of living well, psychological coping and adapting to dementia, and if/how people with dementia maintain continuity in their lives. This longitudinal qualitative study aims to gauge what is…
Longitudinal Trajectories of Stress and Positive Aspects of Dementia Caregiving
The findings highlight the importance of identifying caregivers at risk of increased stress and declining PAC and offering them targeted support
Perspectives of Minority Ethnic Caregivers of People with Dementia Interviewed as Part of the Ideal Programme
Postwar migrants from the Caribbean and Indian subcontinent (Bangladesh, India, and Pakistan) to the UK are now experiencing the onset of age‐related diseases such as dementia. Our evidence base, both quantitative and qualitative, documenting the experiences of family caregivers of people with dementia is largely drawn from studies undertaken with white European, North American, and Australasian populations. Consequently, there is a need for rese…
Living with dementia during the Covid-19 pandemic
The continuing COVID-19 pandemic and social restrictions have impacted on the cognitive decline and mental health of people with dementia. Social isolation and loss of activities due to social restrictions may also have implications as to sense of identity for people with dementia. As part of the INCLUDE (Identifying and Mitigating the Individual and Dyadic Impact of COVID-19 and Life Under Physical Distancing on People with Dementia and Carers) …
Navigating the Covid-19 pandemic two years on
We explored carers experiences during the COVID-19 pandemic in England to identify long-term impacts and implications, and to suggest future support for caregivers. Data were collected during COVID-19 rapid response studies (IDEAL-CDI; INCLUDE) from carers participating in a British longitudinal cohort study (IDEAL). Semi-structured interview data were compared to their accounts from previous interviews conducted during the first 18 months of the…
Caring beyond capacity’ during the Covid-19 pandemic
Family carers of people with dementia have reported increased caring demands during the COVID-19 pandemic. The aim of this qualitative study was to explore seven family carers' accounts of dementia caregiving one year into the COVID-19 pandemic in England in relation to carer resilience. Themes described the complex challenges of caring during the pandemic, with interviewees burned out and 'caring beyond capacity' due to unmet needs within the ca…
We're happy as we are’
It is estimated that a third of people in the United Kingdom with signs of dementia are living without a formal diagnosis. In Wales, the proportion is nearly half. Some explanations for the gap between prevalence of dementia and number of diagnoses include living with a long-term partner/spouse and systemic barriers to diagnosis. This study recruited participants from the Cognitive Function and Ageing Studies-Wales (CFAS-Wales) cohort, randomly s…
Living with dementia under Covid-19 restrictions
Stringent social restrictions imposed during 2020 to counter the spread of the COVID-19 pandemic could significantly affect the wellbeing and quality of life of people with dementia living in the community and their family carers. We explored the impact of COVID-19 restrictions on people with dementia and family carers in England and considered how negative effects might be mitigated. We conducted semi-structured telephone interviews with 11 peop…
Are profiles of social, cultural, and economic capital related to living well with dementia? Longitudinal findings from the Ideal programme
New policies and efforts from the government, philanthropic foundations, the voluntary and primary care sectors are needed to address social, cultural, and economic disadvantage among people with dementia
The precariousness of living with, and caring for people with, dementia
This paper uses precarity as a framework to understand the vulnerabilities experienced by those living with or caring for someone living with dementia. Drawing on qualitative interview data from the Improving the Experience of Dementia and Enhancing Active Life (IDEAL) programme, we attend to our participants' reflections on how they manage the condition and the wider circumstances in which this occurs. To interrogate the utility of precarity, we…
Minimal Impact of Covid-19 Pandemic on the Mental Health and Wellbeing of People Living With Dementia
Results suggest the pandemic had little effect on the mental health and wellbeing of PwD, with any changes observed likely to be consistent with expected rates of decline due to dementia. Although personal accounts attest to the challenges experienced, PwD appear to have been resilient to the impact of lockdown and social restrictions during the pandemic
Living Well” Trajectories Among Family Caregivers of People With Mild-to-Moderate Dementia in the Ideal Cohort
The findings indicate the importance of prompt identification of, and support for, caregivers at risk of the declining capability to "live well" and may assist in identifying those caregivers who could benefit most from targeted support
Longitudinal Trajectories of Quality of Life Among People With Mild-to-Moderate Dementia
Understanding individual trajectories can contribute to personalized care planning. Efforts to prevent decline in perceived QoL should primarily target psychological well-being. Efforts to improve QoL for those with poorer QoL should additionally address functional impairment, isolation, and disadvantage related to social structure
Effects of social restrictions on people with dementia and carers during the pre‐vaccine phase of the Covid ‐19 pandemic
This qualitative study was designed to understand the impact of social distancing measures on people with dementia and carers living in the community in England and Wales during a period of social restrictions before the COVID-19 vaccination roll-out. We conducted 12 semi-structured interviews with people with dementia aged 50-88 years, living alone or with a partner, and 10 carers aged 61-78 years, all living with the person with dementia. Three…
Quand l'art c'est la vie
En 2000, Eduardo Kac déclare à la télévision qu'il a commandité la « création » d'un lapin transgénique. En 2004, l'artiste Steve Kurtz est détenu par le FBI, soupçonné de « bioterrorisme » en raison du matériel scientifique qu'il utilise dans des installations conçues pour démystifier la biotechnologie. Ce contraste entre un artiste-publicitaire qui travaille à la gloire de la biotech et un artiste-chercheur qui la critique, sert de point de dép…
Appetites/Sovereignty
Of Patriots and Profits
Research Article| October 01 2005 Of Patriots and Profits: New Tools for Keeping Academic Research in Line Beatriz da Costa; Beatriz da Costa Search for other works by this author on: This Site Google Claire Pentecost Claire Pentecost Search for other works by this author on: This Site Google Radical History Review (2005) 2005 (93): 111–121. https://doi.org/10.1215/01636545-2005-93-111 Cite Icon Cite Share Icon Share Twitter Permissions Search Si…
The precariousness of living with, and caring for people with, dementia
This paper uses precarity as a framework to understand the vulnerabilities experienced by those living with or caring for someone living with dementia. Drawing on qualitative interview data from the Improving the Experience of Dementia and Enhancing Active Life (IDEAL) programme, we attend to our participants' reflections on how they manage the condition and the wider circumstances in which this occurs. To interrogate the utility of precarity, we…
Longitudinal Trajectories of Quality of Life Among People With Mild-to-Moderate Dementia
Understanding individual trajectories can contribute to personalized care planning. Efforts to prevent decline in perceived QoL should primarily target psychological well-being. Efforts to improve QoL for those with poorer QoL should additionally address functional impairment, isolation, and disadvantage related to social structure
Are profiles of social, cultural, and economic capital related to living well with dementia? Longitudinal findings from the Ideal programme
New policies and efforts from the government, philanthropic foundations, the voluntary and primary care sectors are needed to address social, cultural, and economic disadvantage among people with dementia
Effects of social restrictions on people with dementia and carers during the pre‐vaccine phase of the Covid ‐19 pandemic
This qualitative study was designed to understand the impact of social distancing measures on people with dementia and carers living in the community in England and Wales during a period of social restrictions before the COVID-19 vaccination roll-out. We conducted 12 semi-structured interviews with people with dementia aged 50-88 years, living alone or with a partner, and 10 carers aged 61-78 years, all living with the person with dementia. Three…
Living Well” Trajectories Among Family Caregivers of People With Mild-to-Moderate Dementia in the Ideal Cohort
The findings indicate the importance of prompt identification of, and support for, caregivers at risk of the declining capability to "live well" and may assist in identifying those caregivers who could benefit most from targeted support
Caring beyond capacity’ during the Covid-19 pandemic
Family carers of people with dementia have reported increased caring demands during the COVID-19 pandemic. The aim of this qualitative study was to explore seven family carers' accounts of dementia caregiving one year into the COVID-19 pandemic in England in relation to carer resilience. Themes described the complex challenges of caring during the pandemic, with interviewees burned out and 'caring beyond capacity' due to unmet needs within the ca…
We're happy as we are’
It is estimated that a third of people in the United Kingdom with signs of dementia are living without a formal diagnosis. In Wales, the proportion is nearly half. Some explanations for the gap between prevalence of dementia and number of diagnoses include living with a long-term partner/spouse and systemic barriers to diagnosis. This study recruited participants from the Cognitive Function and Ageing Studies-Wales (CFAS-Wales) cohort, randomly s…
Living with dementia under Covid-19 restrictions
Stringent social restrictions imposed during 2020 to counter the spread of the COVID-19 pandemic could significantly affect the wellbeing and quality of life of people with dementia living in the community and their family carers. We explored the impact of COVID-19 restrictions on people with dementia and family carers in England and considered how negative effects might be mitigated. We conducted semi-structured telephone interviews with 11 peop…
Of Patriots and Profits
Research Article| October 01 2005 Of Patriots and Profits: New Tools for Keeping Academic Research in Line Beatriz da Costa; Beatriz da Costa Search for other works by this author on: This Site Google Claire Pentecost Claire Pentecost Search for other works by this author on: This Site Google Radical History Review (2005) 2005 (93): 111–121. https://doi.org/10.1215/01636545-2005-93-111 Cite Icon Cite Share Icon Share Twitter Permissions Search Si…
Quand l'art c'est la vie
En 2000, Eduardo Kac déclare à la télévision qu'il a commandité la « création » d'un lapin transgénique. En 2004, l'artiste Steve Kurtz est détenu par le FBI, soupçonné de « bioterrorisme » en raison du matériel scientifique qu'il utilise dans des installations conçues pour démystifier la biotechnologie. Ce contraste entre un artiste-publicitaire qui travaille à la gloire de la biotech et un artiste-chercheur qui la critique, sert de point de dép…
Appetites/Sovereignty
Minimal Impact of Covid-19 Pandemic on the Mental Health and Wellbeing of People Living With Dementia
Results suggest the pandemic had little effect on the mental health and wellbeing of PwD, with any changes observed likely to be consistent with expected rates of decline due to dementia. Although personal accounts attest to the challenges experienced, PwD appear to have been resilient to the impact of lockdown and social restrictions during the pandemic
Living Well” Trajectories Among Family Caregivers of People With Mild-to-Moderate Dementia in the Ideal Cohort
The findings indicate the importance of prompt identification of, and support for, caregivers at risk of the declining capability to "live well" and may assist in identifying those caregivers who could benefit most from targeted support
Longitudinal Trajectories of Quality of Life Among People With Mild-to-Moderate Dementia
Understanding individual trajectories can contribute to personalized care planning. Efforts to prevent decline in perceived QoL should primarily target psychological well-being. Efforts to improve QoL for those with poorer QoL should additionally address functional impairment, isolation, and disadvantage related to social structure
Effects of social restrictions on people with dementia and carers during the pre‐vaccine phase of the Covid ‐19 pandemic
This qualitative study was designed to understand the impact of social distancing measures on people with dementia and carers living in the community in England and Wales during a period of social restrictions before the COVID-19 vaccination roll-out. We conducted 12 semi-structured interviews with people with dementia aged 50-88 years, living alone or with a partner, and 10 carers aged 61-78 years, all living with the person with dementia. Three…
Navigating the Covid-19 pandemic two years on
We explored carers experiences during the COVID-19 pandemic in England to identify long-term impacts and implications, and to suggest future support for caregivers. Data were collected during COVID-19 rapid response studies (IDEAL-CDI; INCLUDE) from carers participating in a British longitudinal cohort study (IDEAL). Semi-structured interview data were compared to their accounts from previous interviews conducted during the first 18 months of the…
Caring beyond capacity’ during the Covid-19 pandemic
Family carers of people with dementia have reported increased caring demands during the COVID-19 pandemic. The aim of this qualitative study was to explore seven family carers' accounts of dementia caregiving one year into the COVID-19 pandemic in England in relation to carer resilience. Themes described the complex challenges of caring during the pandemic, with interviewees burned out and 'caring beyond capacity' due to unmet needs within the ca…
We're happy as we are’
It is estimated that a third of people in the United Kingdom with signs of dementia are living without a formal diagnosis. In Wales, the proportion is nearly half. Some explanations for the gap between prevalence of dementia and number of diagnoses include living with a long-term partner/spouse and systemic barriers to diagnosis. This study recruited participants from the Cognitive Function and Ageing Studies-Wales (CFAS-Wales) cohort, randomly s…
Living with dementia under Covid-19 restrictions
Stringent social restrictions imposed during 2020 to counter the spread of the COVID-19 pandemic could significantly affect the wellbeing and quality of life of people with dementia living in the community and their family carers. We explored the impact of COVID-19 restrictions on people with dementia and family carers in England and considered how negative effects might be mitigated. We conducted semi-structured telephone interviews with 11 peop…
Are profiles of social, cultural, and economic capital related to living well with dementia? Longitudinal findings from the Ideal programme
New policies and efforts from the government, philanthropic foundations, the voluntary and primary care sectors are needed to address social, cultural, and economic disadvantage among people with dementia
The precariousness of living with, and caring for people with, dementia
This paper uses precarity as a framework to understand the vulnerabilities experienced by those living with or caring for someone living with dementia. Drawing on qualitative interview data from the Improving the Experience of Dementia and Enhancing Active Life (IDEAL) programme, we attend to our participants' reflections on how they manage the condition and the wider circumstances in which this occurs. To interrogate the utility of precarity, we…
Longitudinal Trajectories of Stress and Positive Aspects of Dementia Caregiving
The findings highlight the importance of identifying caregivers at risk of increased stress and declining PAC and offering them targeted support
Perspectives of Minority Ethnic Caregivers of People with Dementia Interviewed as Part of the Ideal Programme
Postwar migrants from the Caribbean and Indian subcontinent (Bangladesh, India, and Pakistan) to the UK are now experiencing the onset of age‐related diseases such as dementia. Our evidence base, both quantitative and qualitative, documenting the experiences of family caregivers of people with dementia is largely drawn from studies undertaken with white European, North American, and Australasian populations. Consequently, there is a need for rese…
Living with dementia during the Covid-19 pandemic
The continuing COVID-19 pandemic and social restrictions have impacted on the cognitive decline and mental health of people with dementia. Social isolation and loss of activities due to social restrictions may also have implications as to sense of identity for people with dementia. As part of the INCLUDE (Identifying and Mitigating the Individual and Dyadic Impact of COVID-19 and Life Under Physical Distancing on People with Dementia and Carers) …
Continuity, change and ‘living well’ for older people with dementia
Living well’ is an important concept across national dementia strategies. Qualitative research has contributed to understanding of living well for people with dementia. Longitudinal qualitative approaches, though fewer, can explore potential changes in accounts of living well, psychological coping and adapting to dementia, and if/how people with dementia maintain continuity in their lives. This longitudinal qualitative study aims to gauge what is…
Negotiating the caring role and carer identity over time
Longitudinal studies can provide insights into how family members negotiate the caring role and carer identity over time. The analyses of the longitudinal, qualitative interviews on ‘living well’ with dementia from the IDEAL cohort study aimed to identify the shifting, embedded narratives of family members of people with dementia as they negotiated the caring role and carer identity over time. Twenty semi-structured, qualitative interviews were c…
Dementia (15 obras) · Disease (15 obras) · Medicine (15 obras) · Psychology (15 obras) · Gerontology (14 obras) · Cohort (10 obras) · Dementia and Cognitive Impairment Research (10 obras) · Geriatric Care and Nursing Homes (9 obras) · Intergenerational Family Dynamics and Caregiving (7 obras) · Sociology (7 obras)