Jacinta Douglas
Datos Biográficos
| ID | 3922634 |
|---|---|
| NOMBRE | Jacinta Douglas |
| NOMBRES | Jacinta |
| APELLIDO | Douglas |
| FIRMA | DOUGLAS J |
| AFILIACIONES | Living with Disability Research Centre, La Trobe University, Melbourne, Australia |
| ORCID | 0000-0003-0940-6624 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 23 |
| TOTAL DE CITAS | 57 |
| TOTAL COMO AUTOR | 23 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 1992 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2026 |
| ÍNDICE H | 5 |
Barriers and Enablers for Effective Support Coordination in the National Disability Insurance Scheme
Support coordinators act as intermediaries between the National Disability Insurance Scheme (NDIS) and participants, facilitating access to funded supports. To optimise outcomes, they must navigate NDIS complexities, identify services that meet individual needs and engage with diverse stakeholders. This multifaceted role demands extensive system knowledge, specialised skills and key personal attributes. However, understanding how these factors in…
Evaluating the Feasibility of the Participant‐Led Video Intervention to Train Support Workers From the Perspective of Disability Sector Professionals
BACKGROUND: Tailored disability support is fundamental to the lives of adults with disability and complex needs. However, support quality is inconsistent. An intervention was co-designed to help people with disability direct their supports: participant-led videos (PLVs). Following a successful pilot study, this study aimed to evaluate the feasibility of the use of PLVs by sector professionals working with people with disability in the community. …
Hurry Up and Get Me out of Here’
Following the Royal Commission into Aged Care Quality and Safety, the Australian Government set a target for no‐one under 65 years of age to be living in residential aged care (RAC) by 2025. The numbers of young people in residential aged care (YPIRAC) have significantly declined since the start of the targets. However, most of the reduction can be attributed to death and people turning 65 rather than to people moving into better housing. This qu…
Understanding the Housing and Support Experience of People With Complex Disability in Australia
In 2019, the Australian government established the Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability (‘Disability Royal Commission’, DRC ) to investigate widespread mistreatment of people with disability. Nearly 10,000 people with disability, their families and supporters engaged with the DRC . The Commission published 1586 de‐identified narratives online, of which 485 focused on the theme of housing. The D…
Delivering decision making support to people with cognitive disability—What more has been learned from pilot programmes in Australia and internationally from 2016 to 2021
Article 12 of the United Nations Convention on the Rights of Persons with Disabilities has been instrumental in driving the development of the concept and practice of supported decision making. An important feature has been the development of “supported decision making pilots.” This paper identifies, describes and analyses pilot programmes providing support for decision making for people with cognitive disabilities in Australia and internationall…
Policy and practice issues in making an advance care directive with decision making support
The Medical Treatment Planning and Decisions Act 2016 (Vic) is a step toward law reform to implement supported decision making and the rights of people with disabilities enshrined in the United Nations Convention on the Rights of Persons with Disabilities. The Act includes provisions to enable a person, who might otherwise be assessed as being without decision making capacity, to make an advance care directive with support. This case study explor…
The healthcare needs and general practice utilization of people with acquired neurological disability and complex needs
Development and preliminary evaluation of a novel participant‐led video intervention to train disability support workers
This paper describes the development and preliminary evaluation of a novel participant-led video (PLV) intervention to support people with disability (PWD) and cognitive and communication impairments to communicate their needs and preferences to their disability support workers. The PLV intervention was designed following a scoping literature review and workshop with PWD and close others. Subsequently, it was piloted with five primary participant…
Young people in residential aged care
Over 4500 people under 65 years of age live in residential aged care (RAC) in Australia, and they experience poorer quality of life than people with similar disabilities in other settings. Governments have long aimed to reduce admissions of young people to RAC, but in 2019, for the first time, the Australian Government adopted target dates for resolving the issue. The targets include reducing admissions of young people to near zero by 2022 and en…
Making homes more accessible for people with mobility impairment
People with mobility impairment have the right to live in accessible housing that meets their needs. Although the Australian National Construction Code for residential housing will be amended to include minimum accessibility standards in September 2022, some states have chosen not to adopt these standards (New South Wales, Western Australia and South Australia). The inclusion of people with lived experience in decisions surrounding accessible hou…
The temporalities of supported decision-making by people with cognitive disability
In many societies, people with cognitive disability have been pre- sumed to lack reasoned decision-making capacity. Consequently, substituted decision-making laws and practices have traditionally authorised some people such as parents, guardians or medical professionals, to make decisions on their behalf. Several countries are now moving towards an alternative supported decision-making paradigm whereby people with different cognitive abilities ar…
Paternalism to empowerment
This article reports findings from the first set of qualitative data from a study aimed to further understand practices of decision support for people with cognitive disabilities and assess the impact of training supporters in an evidence-based practice framework. It poses questions about whether, using the Convention on the Rights of Persons with Disabilities (CRPD) as the benchmark, it is possible to identify purchase points for assessing the d…
General Considerations for Conducting Online Qualitative Research and Practice Implications for Interviewing People with Acquired Brain Injury
Qualitative methodology is key to understanding the lived experience of people with acquired brain injury (ABI). However, as demonstrated during the global pandemic (COVID-19), face-to-face interviewing is not always viable. This lack of availability has been particularly relevant for people with disability who are at increased risk of contracting the virus and experiencing poorer outcomes. Fortunately, advancing technologies provide increasing o…
Realising ‘will, preferences and rights’
‘Will, preferences and rights’ is the new guiding principle for all support for or exercise of decision-making under the Convention on Rights of Persons with Disabilities, but its meaning is disputed and practice implications are poorly understood. This article explores key debates across disciplines and draws on grounded theory fieldwork findings to bring greater clarity to the principle within law, policy and practice settings. It is argued tha…
Navigating the complexity of disability support in tertiary education
Access to education is a right for all students. This right is typically realised through the provision of disability support and reasonable adjustments to enable tertiary students with disabilities to participate on an equal footing with their peers. This paper presents perspectives of disability service staff and students about implementing and using reasonable adjustments. Data were collected at 2 tertiary institutions in Australia through int…
Delivering decision making support to people with cognitive disability — What has been learned from pilot programs in Australia from 2010 to 2015
The UNCRPD has generated debate about supported decision making as a way to better enable people with cognitive disability to participate in decision making. In Australia, between 2010–2015, a series of projects have piloted various models of delivering decision making support. A critical review was conducted on the program documents and evaluations of these pilot projects. The pilots were small scale, conducted by both statutory and non‐statutor…
Exploring the validity of the Transsexual Voice Questionnaire (male-to-female)
The recently developed Transsexual Voice Questionnaire (TVQMtF) is a self-report tool that assesses the perceptions of male-to-female transsexual women (MtF women) regarding their voices and the impact of voice on their everyday lives. Initial psychometric evaluation has demonstrated strong reliability of the TVQMtF, however, there has been relatively little investigation of its validity. There is evidence in the literature to support the notion …
Per-Contact Risk of Human Immunodificiency Virus Tramnsmision between Male Sexual Partners
The risk of human immunodeficiency virus (HIV) transmission from various types of homosexual contact, including oral sex, is of biologic, epidemiologic, and public health importance. The per-contact risk of acquiring HIV infection from specific acts was estimated in a prospective cohort study of 2,189 high-risk homosexual and bisexual men, conducted in San Francisco, California; Denver, Colorado; and Chicago, Illinois, in 1992-1994. During 2,633 …
Use of the Arizona Battery for Communication Disorders of Dementia in an Australian context
The Arizona Battery for Communication Disorders of Dementia (ABCD) (Bayles and Tomoeda, 1993) was administered to 20 normal elderly control participants and 20 participants with the diagnosis of probable Alzheimer's Disease (AD). Eleven of the participants with probable AD were described as having a mild dementia and nine as having a moderate dementia according to the Global Deterioration Scale (Reisberg et al., 1982). Minor cultural modification…
Use of reality "female condoms" for anal sex by US men who have sex with men. Hivnet Vaccine Preparedness Study Protocol Team
OBJECTIVES: This study assessed use of Reality "female condoms" for anal sex by HIV-seronegative men who have sex with men and are at high risk for HIV infection. METHODS: Self-administered questionnaires were completed by 2277 participants in a 6-city prospective cohort study. RESULTS: Of the 1084 (48%) men who had heard of using the female condom for anal sex, 145 (13%) reported using it in the prior 6 months. Users were at greater risk than no…
A review of specific language impairment
Specific language impairment (SLI) in children has been discussed as a clinical diagnostic category since Benton first suggested its existence in 1964. A common criticism of the construct of SLI has been the basis of the diagnosis on exclusionary criteria rather than inclusionary linguistic descriptions. Historically, children with SLI have been diagnosed based on the clinical categories they do not fit into, for example intellectual disability o…
Barrier contraceptives and sexually transmitted diseases in women
INTRODUCTION. Most efforts at sexually transmitted disease (STD) protection center on condom use, but little is known about how condoms compare with other barrier methods, particularly those controlled by women. METHODS. To evaluate the effect of different barrier contraceptives on the prevalence of STDs and other vaginal infections, we retrospectively studied 5681 visits by women to an urban STD clinic. RESULTS. As compared with women using no c…
Denver's increase in HIV counseling after Magic Johnson's HIV disclosure
Denver's increase in HIV counseling after Magic Johnson's HIV disclosure. D L Cohn, L A Miller, K J Yamaguchi, and J M DouglasCopyRight https://doi.org/10.2105/AJPH.82.12.1692 Published Online: October 07, 2011
General Considerations for Conducting Online Qualitative Research and Practice Implications for Interviewing People with Acquired Brain Injury
Qualitative methodology is key to understanding the lived experience of people with acquired brain injury (ABI). However, as demonstrated during the global pandemic (COVID-19), face-to-face interviewing is not always viable. This lack of availability has been particularly relevant for people with disability who are at increased risk of contracting the virus and experiencing poorer outcomes. Fortunately, advancing technologies provide increasing o…
Barrier contraceptives and sexually transmitted diseases in women
INTRODUCTION. Most efforts at sexually transmitted disease (STD) protection center on condom use, but little is known about how condoms compare with other barrier methods, particularly those controlled by women. METHODS. To evaluate the effect of different barrier contraceptives on the prevalence of STDs and other vaginal infections, we retrospectively studied 5681 visits by women to an urban STD clinic. RESULTS. As compared with women using no c…
Navigating the complexity of disability support in tertiary education
Access to education is a right for all students. This right is typically realised through the provision of disability support and reasonable adjustments to enable tertiary students with disabilities to participate on an equal footing with their peers. This paper presents perspectives of disability service staff and students about implementing and using reasonable adjustments. Data were collected at 2 tertiary institutions in Australia through int…
The temporalities of supported decision-making by people with cognitive disability
In many societies, people with cognitive disability have been pre- sumed to lack reasoned decision-making capacity. Consequently, substituted decision-making laws and practices have traditionally authorised some people such as parents, guardians or medical professionals, to make decisions on their behalf. Several countries are now moving towards an alternative supported decision-making paradigm whereby people with different cognitive abilities ar…
Paternalism to empowerment
This article reports findings from the first set of qualitative data from a study aimed to further understand practices of decision support for people with cognitive disabilities and assess the impact of training supporters in an evidence-based practice framework. It poses questions about whether, using the Convention on the Rights of Persons with Disabilities (CRPD) as the benchmark, it is possible to identify purchase points for assessing the d…
Delivering decision making support to people with cognitive disability — What has been learned from pilot programs in Australia from 2010 to 2015
The UNCRPD has generated debate about supported decision making as a way to better enable people with cognitive disability to participate in decision making. In Australia, between 2010–2015, a series of projects have piloted various models of delivering decision making support. A critical review was conducted on the program documents and evaluations of these pilot projects. The pilots were small scale, conducted by both statutory and non‐statutor…
Use of reality "female condoms" for anal sex by US men who have sex with men. Hivnet Vaccine Preparedness Study Protocol Team
OBJECTIVES: This study assessed use of Reality "female condoms" for anal sex by HIV-seronegative men who have sex with men and are at high risk for HIV infection. METHODS: Self-administered questionnaires were completed by 2277 participants in a 6-city prospective cohort study. RESULTS: Of the 1084 (48%) men who had heard of using the female condom for anal sex, 145 (13%) reported using it in the prior 6 months. Users were at greater risk than no…
Development and preliminary evaluation of a novel participant‐led video intervention to train disability support workers
This paper describes the development and preliminary evaluation of a novel participant-led video (PLV) intervention to support people with disability (PWD) and cognitive and communication impairments to communicate their needs and preferences to their disability support workers. The PLV intervention was designed following a scoping literature review and workshop with PWD and close others. Subsequently, it was piloted with five primary participant…
Delivering decision making support to people with cognitive disability—What more has been learned from pilot programmes in Australia and internationally from 2016 to 2021
Article 12 of the United Nations Convention on the Rights of Persons with Disabilities has been instrumental in driving the development of the concept and practice of supported decision making. An important feature has been the development of “supported decision making pilots.” This paper identifies, describes and analyses pilot programmes providing support for decision making for people with cognitive disabilities in Australia and internationall…
Young people in residential aged care
Over 4500 people under 65 years of age live in residential aged care (RAC) in Australia, and they experience poorer quality of life than people with similar disabilities in other settings. Governments have long aimed to reduce admissions of young people to RAC, but in 2019, for the first time, the Australian Government adopted target dates for resolving the issue. The targets include reducing admissions of young people to near zero by 2022 and en…
Exploring the validity of the Transsexual Voice Questionnaire (male-to-female)
The recently developed Transsexual Voice Questionnaire (TVQMtF) is a self-report tool that assesses the perceptions of male-to-female transsexual women (MtF women) regarding their voices and the impact of voice on their everyday lives. Initial psychometric evaluation has demonstrated strong reliability of the TVQMtF, however, there has been relatively little investigation of its validity. There is evidence in the literature to support the notion …
Denver's increase in HIV counseling after Magic Johnson's HIV disclosure
Denver's increase in HIV counseling after Magic Johnson's HIV disclosure. D L Cohn, L A Miller, K J Yamaguchi, and J M DouglasCopyRight https://doi.org/10.2105/AJPH.82.12.1692 Published Online: October 07, 2011
Barrier contraceptives and sexually transmitted diseases in women
INTRODUCTION. Most efforts at sexually transmitted disease (STD) protection center on condom use, but little is known about how condoms compare with other barrier methods, particularly those controlled by women. METHODS. To evaluate the effect of different barrier contraceptives on the prevalence of STDs and other vaginal infections, we retrospectively studied 5681 visits by women to an urban STD clinic. RESULTS. As compared with women using no c…
Denver's increase in HIV counseling after Magic Johnson's HIV disclosure
Denver's increase in HIV counseling after Magic Johnson's HIV disclosure. D L Cohn, L A Miller, K J Yamaguchi, and J M DouglasCopyRight https://doi.org/10.2105/AJPH.82.12.1692 Published Online: October 07, 2011
A review of specific language impairment
Specific language impairment (SLI) in children has been discussed as a clinical diagnostic category since Benton first suggested its existence in 1964. A common criticism of the construct of SLI has been the basis of the diagnosis on exclusionary criteria rather than inclusionary linguistic descriptions. Historically, children with SLI have been diagnosed based on the clinical categories they do not fit into, for example intellectual disability o…
Per-Contact Risk of Human Immunodificiency Virus Tramnsmision between Male Sexual Partners
The risk of human immunodeficiency virus (HIV) transmission from various types of homosexual contact, including oral sex, is of biologic, epidemiologic, and public health importance. The per-contact risk of acquiring HIV infection from specific acts was estimated in a prospective cohort study of 2,189 high-risk homosexual and bisexual men, conducted in San Francisco, California; Denver, Colorado; and Chicago, Illinois, in 1992-1994. During 2,633 …
Use of the Arizona Battery for Communication Disorders of Dementia in an Australian context
The Arizona Battery for Communication Disorders of Dementia (ABCD) (Bayles and Tomoeda, 1993) was administered to 20 normal elderly control participants and 20 participants with the diagnosis of probable Alzheimer's Disease (AD). Eleven of the participants with probable AD were described as having a mild dementia and nine as having a moderate dementia according to the Global Deterioration Scale (Reisberg et al., 1982). Minor cultural modification…
Use of reality "female condoms" for anal sex by US men who have sex with men. Hivnet Vaccine Preparedness Study Protocol Team
OBJECTIVES: This study assessed use of Reality "female condoms" for anal sex by HIV-seronegative men who have sex with men and are at high risk for HIV infection. METHODS: Self-administered questionnaires were completed by 2277 participants in a 6-city prospective cohort study. RESULTS: Of the 1084 (48%) men who had heard of using the female condom for anal sex, 145 (13%) reported using it in the prior 6 months. Users were at greater risk than no…
Exploring the validity of the Transsexual Voice Questionnaire (male-to-female)
The recently developed Transsexual Voice Questionnaire (TVQMtF) is a self-report tool that assesses the perceptions of male-to-female transsexual women (MtF women) regarding their voices and the impact of voice on their everyday lives. Initial psychometric evaluation has demonstrated strong reliability of the TVQMtF, however, there has been relatively little investigation of its validity. There is evidence in the literature to support the notion …
Navigating the complexity of disability support in tertiary education
Access to education is a right for all students. This right is typically realised through the provision of disability support and reasonable adjustments to enable tertiary students with disabilities to participate on an equal footing with their peers. This paper presents perspectives of disability service staff and students about implementing and using reasonable adjustments. Data were collected at 2 tertiary institutions in Australia through int…
Delivering decision making support to people with cognitive disability — What has been learned from pilot programs in Australia from 2010 to 2015
The UNCRPD has generated debate about supported decision making as a way to better enable people with cognitive disability to participate in decision making. In Australia, between 2010–2015, a series of projects have piloted various models of delivering decision making support. A critical review was conducted on the program documents and evaluations of these pilot projects. The pilots were small scale, conducted by both statutory and non‐statutor…
Realising ‘will, preferences and rights’
‘Will, preferences and rights’ is the new guiding principle for all support for or exercise of decision-making under the Convention on Rights of Persons with Disabilities, but its meaning is disputed and practice implications are poorly understood. This article explores key debates across disciplines and draws on grounded theory fieldwork findings to bring greater clarity to the principle within law, policy and practice settings. It is argued tha…
Paternalism to empowerment
This article reports findings from the first set of qualitative data from a study aimed to further understand practices of decision support for people with cognitive disabilities and assess the impact of training supporters in an evidence-based practice framework. It poses questions about whether, using the Convention on the Rights of Persons with Disabilities (CRPD) as the benchmark, it is possible to identify purchase points for assessing the d…
General Considerations for Conducting Online Qualitative Research and Practice Implications for Interviewing People with Acquired Brain Injury
Qualitative methodology is key to understanding the lived experience of people with acquired brain injury (ABI). However, as demonstrated during the global pandemic (COVID-19), face-to-face interviewing is not always viable. This lack of availability has been particularly relevant for people with disability who are at increased risk of contracting the virus and experiencing poorer outcomes. Fortunately, advancing technologies provide increasing o…
The healthcare needs and general practice utilization of people with acquired neurological disability and complex needs
Development and preliminary evaluation of a novel participant‐led video intervention to train disability support workers
This paper describes the development and preliminary evaluation of a novel participant-led video (PLV) intervention to support people with disability (PWD) and cognitive and communication impairments to communicate their needs and preferences to their disability support workers. The PLV intervention was designed following a scoping literature review and workshop with PWD and close others. Subsequently, it was piloted with five primary participant…
Young people in residential aged care
Over 4500 people under 65 years of age live in residential aged care (RAC) in Australia, and they experience poorer quality of life than people with similar disabilities in other settings. Governments have long aimed to reduce admissions of young people to RAC, but in 2019, for the first time, the Australian Government adopted target dates for resolving the issue. The targets include reducing admissions of young people to near zero by 2022 and en…
Making homes more accessible for people with mobility impairment
People with mobility impairment have the right to live in accessible housing that meets their needs. Although the Australian National Construction Code for residential housing will be amended to include minimum accessibility standards in September 2022, some states have chosen not to adopt these standards (New South Wales, Western Australia and South Australia). The inclusion of people with lived experience in decisions surrounding accessible hou…
The temporalities of supported decision-making by people with cognitive disability
In many societies, people with cognitive disability have been pre- sumed to lack reasoned decision-making capacity. Consequently, substituted decision-making laws and practices have traditionally authorised some people such as parents, guardians or medical professionals, to make decisions on their behalf. Several countries are now moving towards an alternative supported decision-making paradigm whereby people with different cognitive abilities ar…
Policy and practice issues in making an advance care directive with decision making support
The Medical Treatment Planning and Decisions Act 2016 (Vic) is a step toward law reform to implement supported decision making and the rights of people with disabilities enshrined in the United Nations Convention on the Rights of Persons with Disabilities. The Act includes provisions to enable a person, who might otherwise be assessed as being without decision making capacity, to make an advance care directive with support. This case study explor…
Delivering decision making support to people with cognitive disability—What more has been learned from pilot programmes in Australia and internationally from 2016 to 2021
Article 12 of the United Nations Convention on the Rights of Persons with Disabilities has been instrumental in driving the development of the concept and practice of supported decision making. An important feature has been the development of “supported decision making pilots.” This paper identifies, describes and analyses pilot programmes providing support for decision making for people with cognitive disabilities in Australia and internationall…
Evaluating the Feasibility of the Participant‐Led Video Intervention to Train Support Workers From the Perspective of Disability Sector Professionals
BACKGROUND: Tailored disability support is fundamental to the lives of adults with disability and complex needs. However, support quality is inconsistent. An intervention was co-designed to help people with disability direct their supports: participant-led videos (PLVs). Following a successful pilot study, this study aimed to evaluate the feasibility of the use of PLVs by sector professionals working with people with disability in the community. …
Hurry Up and Get Me out of Here’
Following the Royal Commission into Aged Care Quality and Safety, the Australian Government set a target for no‐one under 65 years of age to be living in residential aged care (RAC) by 2025. The numbers of young people in residential aged care (YPIRAC) have significantly declined since the start of the targets. However, most of the reduction can be attributed to death and people turning 65 rather than to people moving into better housing. This qu…
Understanding the Housing and Support Experience of People With Complex Disability in Australia
In 2019, the Australian government established the Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability (‘Disability Royal Commission’, DRC ) to investigate widespread mistreatment of people with disability. Nearly 10,000 people with disability, their families and supporters engaged with the DRC . The Commission published 1586 de‐identified narratives online, of which 485 focused on the theme of housing. The D…
Barriers and Enablers for Effective Support Coordination in the National Disability Insurance Scheme
Support coordinators act as intermediaries between the National Disability Insurance Scheme (NDIS) and participants, facilitating access to funded supports. To optimise outcomes, they must navigate NDIS complexities, identify services that meet individual needs and engage with diverse stakeholders. This multifaceted role demands extensive system knowledge, specialised skills and key personal attributes. However, understanding how these factors in…
Psychology (16 obras) · Medicine (14 obras) · Political science (11 obras) · Project commissioning (9 obras) · Public relations (9 obras) · Sociology (9 obras) · Healthcare innovation and challenges (8 obras) · Publishing (8 obras) · Law (7 obras) · Law (7 obras)