Nancy Berlinger
Datos Biográficos
| ID | 6732347 |
|---|---|
| NOMBRE | Nancy Berlinger |
| NOMBRES | Nancy |
| APELLIDO | Berlinger |
| FIRMA | BERLINGER N |
| AFILIACIONES | Hastings Center |
| VERIFICADO | No |
| TOTAL DE OBRAS | 36 |
| TOTAL DE CITAS | 0 |
| TOTAL COMO AUTOR | 36 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 2003 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2025 |
| ÍNDICE H | 0 |
Imagining Ourselves into the Lives of People Living with Dementia
Aging societies frequently fail to imagine their own collective needs, including the care needs of people with dementia and who will be expected to meet these needs. This essay considers how to build a practice of moral imagination—a capacity to think about current and future challenges in ways that aim at better lives and greater justice—into rethinking familiar cultural narratives about dementia that fail to improve the lives of people with dem…
Innovation with People Living with Dementia
Across aging societies, there's a hunger for real‐world examples of what could be better for people living with dementia and for dementia caregivers. This roundtable brought together four innovators in dementia‐friendly community initiatives in North America to discuss how researchers and community organizations can collaborate to create opportunities for people living with dementia and to illuminate the crucial role of people living with dementi…
How Do Cultural Narratives Shape the Lives of People Living with Dementia? Insights from Humanities Research
“Dementia” is a collective term for a group of common, aging‐associated, progressively debilitating, ultimately terminal conditions that affect a person's thought, memory, speech, and behavior. Dementia challenges ideas about the self, about social relationships, and about how aging societies should respond to the needs of people living with dementia and to the needs of dementia caregivers. This introduction to a collection of original essays and…
Opening the Door
This essay looks closely at metaphors and other figures of speech that often feature in how Americans talk about dementia, becoming part of cultural narratives: shared stories that convey ideas and values, and also worries and fears. It uses approaches from literary studies to analyze how cultural narratives about dementia may surface in conversations with family members or health care professionals. This essay also draws on research on a notable…
Choice in the Context of Dementia
This introduction to the special report “Facing Dementia: Clarifying End‐of‐Life Choices, Supporting Better Lives” explains why focused attention to dementia is needed in bioethics and in health care practice in a range of settings. It explains how this strongly age‐associated condition shapes individual lives over years, revealing inequities in how dementia care is financed. The introduction explains the structure of the report, which consists o…
Centering Home Care in Bioethics Scholarship, Education, and Practice
This commentary responds to “Home Care in America: The Urgent Challenge of Putting Ethical Care into Practice,” by Coleman Solis and colleagues, in the May‐June 2023 issue of the Hastings Center Report. More specifically, we respond to the authors’ call for “inquiry into the nature, value, and practice” of home care. We argue that the most urgently needed normative reset for thinking about care work is the replacement of dominant individualistic …
Bioethics in Community Health
What keeps community health providers up at night? And how should bioethics evolve to meet the needs of these providers? Hastings Center research scholar Nancy Berlinger introduces a new project and line of research and public‐facing work at The Hastings Center to explore ethical challenges that arise in primary and preventative health care for medically underserved communities, where ethical challenges often reflect the health consequences of so…
Interdependent Citizens
The crisis of Covid‐19 has forced us to notice two things: our human interdependence and American society's tolerance for what Nancy Krieger has called “inequalities embodied in health inequities,” reflected in data on Covid‐19 mortality and geographies. Care is integral to our recovery from this catastrophe and to the development of sustainable public health policies and practices that promote societal resilience and reduce the vulnerabilities o…
And Counting
What will we remember, as scholars, practitioners, policy‐makers, educators, and citizens, about this acute phase of the catastrophe in the United States? The shocking federal failure concerning testing? That the first shortage was not of ventilators but protective gear? How infection rates and deaths in communities of color, immigrant neighborhoods, and nursing homes mercilessly exposed the relationship between social inequalities and health ine…
Choice Architecture
“Choices” about nonmedical aging‐related matters, such as housing, are weirdly extreme in the long last stage of life in America. In my experiences accompanying my parents to consultations with physicians, elder‐care lawyers, and social service providers, a middle‐class older adult's presumed choices are the high‐end assisted living facility—or the Medicaid spend‐down. Nothing in between. Experts in aging and housing are calling attention to this…
Resources for Teaching and Learning About Immigrant Health Care in Health Professions Education
How to provide good care to uninsured undocumented immigrants who are broadly excluded from federally funded health benefits in the United States can raise ethical challenges for clinicians. The chilling effect of current immigration enforcement policies on health care access affects other immigrant populations and US citizens in mixed-status families. In the current political environment, students in health professions, house staff and other ear…
Is It Ethical to Bend the Rules for Undocumented and Other Immigrant Patients
Physicians and other health care professionals who work in hospitals and clinics serving low-income populations will encounter undocumented immigrants as patients, family members, community members, and persons whose health-related rights can be overlooked, imperiled, or difficult to use. The routine uncertainty arising in how to provide good care to patients who are excluded from key public insurance provisions, together with the desire to be a …
You Can't Always Get (or Give) What You Want
People who lack decision‐making capacity may be able to communicate preferences, which can and should inform surrogate decision‐making on their behalf. It is unclear whether making a further distinction about “capacity for preferences,” as Jason Wasserman and Mark Navin propose in this issue of the Hastings Center Report , would improve the process of surrogate decision‐making. Anyone who is regularly involved in surrogate decision‐making or who …
Brain Death at Fifty
This special report is published in commemoration of the fiftieth anniversary of the “Report of the Ad Hoc Committee of the Harvard Medical School to Examine the Definition of Brain Death,” a landmark document that proposed a new way to define death, with implications that advanced the field of organ transplantation. This remarkable success notwithstanding, the concept has raised lasting questions about what it means to be dead. Is death defined …
Becoming Good Citizens of Aging Societies
The ethical dimensions of an aging society are larger than the experience of chronic illness, the moral concerns of health care professionals, or the allocation of health care resources. What, then, is the role of bioethics in an aging society, beyond calling attention to these problems? Once we’ve agreed that aging is morally important and that population‐level aging across wealthy nations raises ethical concerns that cannot be fixed through tra…
Culture and Moral Distress
Culture is learned behavior shared among members of a group and from generation to generation within that group. In health care work, references to "culture" may also function as code for ethical uncertainty or moral distress concerning patients, families, or populations. This paper analyzes how culture can be a factor in patient-care situations that produce moral distress. It discusses three common, problematic situations in which assumptions ab…
From the Team to the Table
Health care work is interprofessional work. Nurses and physicians, members of the professions whose close collaboration is foundational to health care delivery, continue to be educated separately in most academic institutions. Their work also is organized in ways that challenge interprofessional collaboration. Understanding workplace realities faced by nurses and physicians, separately and jointly, is a starting place for exploring how to support…
When Policy Produces Moral Distress
For too long, bioethics has followed law in reducing “conscience” to “conscientious objection,” in other words, to laws and policies permitting and protecting refusal. In “Reframing Conscientious Care: Providing Abortion Care When Law and Conscience Collide,” Mara Buchbinder and colleagues draw our attention to one dimension of the problem of reducing conscience to refusal to provide certain forms of medical care: what about the conscience proble…
Transitional Care
Numerous studies have revealed that health care transitions for chronically ill older adults are frequently poorly managed, often with devastating human and economic consequences. And poorly managed transitions and their consequences also occur among younger, relatively healthy individuals who have adequate resources and are prepared to advocate on their own behalf. Despite the rich base of research confirming that evidence‐based transitional car…
Time-out
Participation in patient safety is one concrete expression of a foundational principle of medical ethics: do no harm. Being an ethical professional requires taking action to prevent harm to patients in health care environments. Checklists and time-outs have become common patient safety tools in the US and other nations. While their use can support ethical practice, recent research has revealed their limitations and has underscored the importance …
Bioethics Casebook 2.0
The idea of the Internet as Gutenberg 2.0—a true revolution in disseminating information—is now a routine part of how bioethics education works. The Internet has become indispensable as a channel for sharing teaching materials and connecting learners with a central platform (such as a professional society's website or a course page on a university's web portal) that houses materials to support an online or hybrid curriculum or a traditional cours…
Moral Progress in the Public Safety Net
As a population, people who self‐identify as lesbian, gay, bisexual, or transgender face significant risks to health and difficulty in obtaining medical and behavioral health care, relative to the general public. These issues are especially challenging in safety‐net health care institutions, which serve a range of vulnerable populations with limited access, limited options, and significant health disparities. Safety‐net hospitals, particularly pu…
Et in Arcadia ego
Two years ago, I was on a boat in the middle of the river that runs through Brisbane, Australia, with Sarah Winch, a medical ethicist at the University of Queensland. We were talking about the intersection of our professional work and our personal experiences of caregiving. Sarah's husband, Lincoln, had died at the age of forty-eight, four months after a late-stage diagnosis of kidney cancer. My friend Julia was the same age when she died, on Nov…
The Ethics of Advocacy for Undocumented Patients
Approximately 11.2 million undocumented immigrants have settled in the United States. Providing health care to these residents is an everyday concern for the clinicians and health care organizations who serve them. Uncertain how to proceed in the face of severe financial constraints, clinicians may improvise remedies–a strategy that allows our society to avoid confronting the clinical and organizational implications of public policy gaps. There i…
Cueing “The Conversation”
In “Avoiding a ‘Death Panel Redux,” Nicole M. Piemonte describes how she tried to fire palliative care after first refusing to let it—and any mention of death, from any source—into her dying mother's room. One way to read this is as a familiar human story about the profound difficulty of facing death, a story that, too often, is reduced to the word “denial.” But Piemonte and Hermer suggest that there is another way to read this story, in terms of…
Sin obras prominentes en esta página.
Avoiding Cheap Grace
Dena Davis defines the job of the ethicist working on clinical issues as describing what real people really believe and how they really act. (2) If so, then insights from religion and related aspects of culture may help hospital administrators charged with meeting new standards for patient safety to recognize the restorative role that has long played between individuals and within communities and to incorporate into their systems for dealing with…
Listening to Aslan
Broken Stories
Narratives written by patients, family members, and clinicians who have been affected by harmful medical mistakes are becoming part of the discourse of the patient safety movement, which has emerged over the past decade in response to two landmark studies of the problem of medical error in U.S. hospitals: the Harvard Medical Practice Study (1991) and the Institute of Medicine report To Err Is Human (2000). These narratives do not quite fit into t…
Parental Resistance to Childhood Immunizations
Physicians play an important role in educating parents about the social and medical consequences of refusing to have their children immunized. Virtual Mentor is a monthly bioethics journal published by the American Medical Association
After Harm
Chaplains and Quality Improvement
To date, the field of health care chaplaincy has little information about what constitutes "quality spiritual care. "A qualitative study of four focus groups in New York, Illinois, Arizona, and California was conducted to gather preliminary information about how health care chaplains' experience and understand "quality" and "quality improvement" in spiritual care. The study revealed that many chaplains feel a tension inherent in the task of measu…
Values Engineering
Field notes
Resolving Harmful Medical Mistakes—Is There a Role for Forgiveness
What ought to happen after one person harms another person he or she was trying to help? Physicians may wonder if the answer to this question includes the word "forgiveness." A focus-group study of academic and community physicians, published in the Journal of the American Medical Association in 2003, reported that physicians "experienced powerful emotions following a medical error [and] felt upset and guilty about harming the patient. For many p…
A Survey of Chaplains' Roles in Pediatric Palliative Care
To date, the field of health care chaplaincy has had little information about how pediatric palliative care (PPC) programs meet the spiritual needs of patients and families. We conducted a qualitative study consisting of surveys of 28 well-established PPC programs in the United States followed by interviews with medical directors and professional chaplains in 8 randomly selected programs among those surveyed. In this report, we describe the PPC c…
The Ethics of Advocacy for Undocumented Patients
Approximately 11.2 million undocumented immigrants have settled in the United States. Providing health care to these residents is an everyday concern for the clinicians and health care organizations who serve them. Uncertain how to proceed in the face of severe financial constraints, clinicians may improvise remedies–a strategy that allows our society to avoid confronting the clinical and organizational implications of public policy gaps. There i…
Cueing “The Conversation”
In “Avoiding a ‘Death Panel Redux,” Nicole M. Piemonte describes how she tried to fire palliative care after first refusing to let it—and any mention of death, from any source—into her dying mother's room. One way to read this is as a familiar human story about the profound difficulty of facing death, a story that, too often, is reduced to the word “denial.” But Piemonte and Hermer suggest that there is another way to read this story, in terms of…
Whose Hands? Global Migration, Elder Care, and the Mothers of Others
One of the major driving forces for migration by women is the availability of caregiving work in wealthier nations, so improving working conditions for migrant women and ensuring that elderly and other persons in need of care receive good care are intertwined goals
Moral Progress in the Public Safety Net
As a population, people who self‐identify as lesbian, gay, bisexual, or transgender face significant risks to health and difficulty in obtaining medical and behavioral health care, relative to the general public. These issues are especially challenging in safety‐net health care institutions, which serve a range of vulnerable populations with limited access, limited options, and significant health disparities. Safety‐net hospitals, particularly pu…
Et in Arcadia ego
Two years ago, I was on a boat in the middle of the river that runs through Brisbane, Australia, with Sarah Winch, a medical ethicist at the University of Queensland. We were talking about the intersection of our professional work and our personal experiences of caregiving. Sarah's husband, Lincoln, had died at the age of forty-eight, four months after a late-stage diagnosis of kidney cancer. My friend Julia was the same age when she died, on Nov…
Bioethics Casebook 2.0
The idea of the Internet as Gutenberg 2.0—a true revolution in disseminating information—is now a routine part of how bioethics education works. The Internet has become indispensable as a channel for sharing teaching materials and connecting learners with a central platform (such as a professional society's website or a course page on a university's web portal) that houses materials to support an online or hybrid curriculum or a traditional cours…
From the Team to the Table
Health care work is interprofessional work. Nurses and physicians, members of the professions whose close collaboration is foundational to health care delivery, continue to be educated separately in most academic institutions. Their work also is organized in ways that challenge interprofessional collaboration. Understanding workplace realities faced by nurses and physicians, separately and jointly, is a starting place for exploring how to support…
When Policy Produces Moral Distress
For too long, bioethics has followed law in reducing “conscience” to “conscientious objection,” in other words, to laws and policies permitting and protecting refusal. In “Reframing Conscientious Care: Providing Abortion Care When Law and Conscience Collide,” Mara Buchbinder and colleagues draw our attention to one dimension of the problem of reducing conscience to refusal to provide certain forms of medical care: what about the conscience proble…
Transitional Care
Numerous studies have revealed that health care transitions for chronically ill older adults are frequently poorly managed, often with devastating human and economic consequences. And poorly managed transitions and their consequences also occur among younger, relatively healthy individuals who have adequate resources and are prepared to advocate on their own behalf. Despite the rich base of research confirming that evidence‐based transitional car…
Time-out
Participation in patient safety is one concrete expression of a foundational principle of medical ethics: do no harm. Being an ethical professional requires taking action to prevent harm to patients in health care environments. Checklists and time-outs have become common patient safety tools in the US and other nations. While their use can support ethical practice, recent research has revealed their limitations and has underscored the importance …
Culture and Moral Distress
Culture is learned behavior shared among members of a group and from generation to generation within that group. In health care work, references to "culture" may also function as code for ethical uncertainty or moral distress concerning patients, families, or populations. This paper analyzes how culture can be a factor in patient-care situations that produce moral distress. It discusses three common, problematic situations in which assumptions ab…
You Can't Always Get (or Give) What You Want
People who lack decision‐making capacity may be able to communicate preferences, which can and should inform surrogate decision‐making on their behalf. It is unclear whether making a further distinction about “capacity for preferences,” as Jason Wasserman and Mark Navin propose in this issue of the Hastings Center Report , would improve the process of surrogate decision‐making. Anyone who is regularly involved in surrogate decision‐making or who …
Brain Death at Fifty
This special report is published in commemoration of the fiftieth anniversary of the “Report of the Ad Hoc Committee of the Harvard Medical School to Examine the Definition of Brain Death,” a landmark document that proposed a new way to define death, with implications that advanced the field of organ transplantation. This remarkable success notwithstanding, the concept has raised lasting questions about what it means to be dead. Is death defined …
Becoming Good Citizens of Aging Societies
The ethical dimensions of an aging society are larger than the experience of chronic illness, the moral concerns of health care professionals, or the allocation of health care resources. What, then, is the role of bioethics in an aging society, beyond calling attention to these problems? Once we’ve agreed that aging is morally important and that population‐level aging across wealthy nations raises ethical concerns that cannot be fixed through tra…
Choice Architecture
“Choices” about nonmedical aging‐related matters, such as housing, are weirdly extreme in the long last stage of life in America. In my experiences accompanying my parents to consultations with physicians, elder‐care lawyers, and social service providers, a middle‐class older adult's presumed choices are the high‐end assisted living facility—or the Medicaid spend‐down. Nothing in between. Experts in aging and housing are calling attention to this…
Medicine (25 obras) · Psychology (25 obras) · Political science (23 obras) · Law (19 obras) · Health care (17 obras) · Nursing (13 obras) · Sociology (13 obras) · Ethics in medical practice (12 obras) · Palliative Care and End-of-Life Issues (10 obras) · Public relations (10 obras)