Lorna Kerin
Datos Biográficos
| ID | 6777481 |
|---|---|
| NOMBRE | Lorna Kerin |
| NOMBRES | Lorna |
| APELLIDO | Kerin |
| FIRMA | KERIN L |
| AFILIACIONES | Queen's University Belfast |
| ORCID | 0000-0001-6735-6368 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 3 |
| TOTAL DE CITAS | 0 |
| TOTAL COMO AUTOR | 3 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 2017 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2025 |
| ÍNDICE H | 0 |
Learning from a 7 year long Public Patient Involvement (PPI) journey with the rare disease patient organisation 22q Ireland
Introduction: This research reflects on multi-stakeholder perspectives on the outcomes, enablers, barriers and lessons learnt from a 7 year Public Patient Involvement (PPI) partnership with a rare disease patient charity. Context: In 2014, families of children with the rare disorder, 22q11.2 deletion syndrome (22q) reported frustration and exhaustion as they sought care from a range of different healthcare providers who were unaware of their chil…
Developing integrated care in the context of rare chromosomal conditions
The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)
Hearing the lived experience of young women with a rare genetic disorder 22q11.2DS regarding integrated care
The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)
Sin obras prominentes en esta página.
Developing integrated care in the context of rare chromosomal conditions
The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)
Hearing the lived experience of young women with a rare genetic disorder 22q11.2DS regarding integrated care
The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)
Learning from a 7 year long Public Patient Involvement (PPI) journey with the rare disease patient organisation 22q Ireland
Introduction: This research reflects on multi-stakeholder perspectives on the outcomes, enablers, barriers and lessons learnt from a 7 year Public Patient Involvement (PPI) partnership with a rare disease patient charity. Context: In 2014, families of children with the rare disorder, 22q11.2 deletion syndrome (22q) reported frustration and exhaustion as they sought care from a range of different healthcare providers who were unaware of their chil…
Medicine (3 obras) · Family medicine (2 obras) · Aging, Health, and Disability (1 obra) · Biomedical Ethics and Regulation (1 obra) · Computer Science (1 obra) · Congenital Heart Disease Studies (1 obra) · Context (archaeology (1 obra) · Disease (1 obra) · Genomics and Rare Diseases (1 obra) · Geography (1 obra)