Krysta S Barton
Datos Biográficos
| ID | 770406 |
|---|---|
| NOMBRE | Krysta S Barton |
| NOMBRES | Krysta S |
| APELLIDO | Barton |
| FIRMA | BARTON K S |
| AFILIACIONES | Seattle Children's Hospital |
| ORCID | 0000-0002-3424-3911 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 7 |
| TOTAL DE CITAS | 2 |
| TOTAL COMO AUTOR | 7 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 2018 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2024 |
| ÍNDICE H | 1 |
Pediatric Resident and Program Director Views on Climate Change and Health Curricula
We'll deal with it as it comes
Background Although cystic fibrosis (CF) is a progressive, life-limiting, genetic disease, recent advances have extended survival, allowing persons with CF the time and physical and mental health to form romantic relationships. Previous studies have shown the importance of dyadic coping to positive psychosocial functioning and relationship satisfaction for people with serious chronic illness and their romantic partners, but little work has been d…
Grief Trajectories of Bereaved Parents of Adolescents and Young Adults With Advanced Cancer
Different parents grieve differently. However, research directed at understanding the important contextual or individual factors that influence the path each bereaved parent takes is lacking. In this qualitative analysis we seek to understand the array of bereaved parent experiences more completely. By deeply diving into one parent dyad using interpretive phenomenology analysis and situating that story within the conventional content analysis of …
Defining a “Good Death” in Pediatric Oncology
Delivering optimal end-of-life (EOL) care to children and adolescents is a healthcare priority, yet relatively little is known about what patients, families, and healthcare providers (HCPs) consider "best" practices. The objective of this study was to identify factors that pediatric oncology HCPs consider important for EOL care. This was a cross-sectional mixed methods study. Participants were multidisciplinary pediatric oncology staff who comple…
Conducting Psychosocial Intervention Research among Adolescents and Young Adults with Cancer
Efforts to engage AYAs prior to and during studies may help with accrual and retention
Access and Management
As genomic researchers are encouraged to engage in broad genomic data sharing, American Indian/Alaska Native/Native Hawaiian (AI/AN/NH) leaders have raised questions about ownership of data and biospecimens and concerns over emerging challenges and potential threats to tribal sovereignty. Using a community-engaged research approach, we conducted 42 semi-structured interviews with tribal leaders, clinicians, researchers, policy makers, and tribal …
“Before Facebook and before social media…we did not know anybody else that had this”
We'll deal with it as it comes
Background Although cystic fibrosis (CF) is a progressive, life-limiting, genetic disease, recent advances have extended survival, allowing persons with CF the time and physical and mental health to form romantic relationships. Previous studies have shown the importance of dyadic coping to positive psychosocial functioning and relationship satisfaction for people with serious chronic illness and their romantic partners, but little work has been d…
“Before Facebook and before social media…we did not know anybody else that had this”
Conducting Psychosocial Intervention Research among Adolescents and Young Adults with Cancer
Efforts to engage AYAs prior to and during studies may help with accrual and retention
Access and Management
As genomic researchers are encouraged to engage in broad genomic data sharing, American Indian/Alaska Native/Native Hawaiian (AI/AN/NH) leaders have raised questions about ownership of data and biospecimens and concerns over emerging challenges and potential threats to tribal sovereignty. Using a community-engaged research approach, we conducted 42 semi-structured interviews with tribal leaders, clinicians, researchers, policy makers, and tribal …
Defining a “Good Death” in Pediatric Oncology
Delivering optimal end-of-life (EOL) care to children and adolescents is a healthcare priority, yet relatively little is known about what patients, families, and healthcare providers (HCPs) consider "best" practices. The objective of this study was to identify factors that pediatric oncology HCPs consider important for EOL care. This was a cross-sectional mixed methods study. Participants were multidisciplinary pediatric oncology staff who comple…
Grief Trajectories of Bereaved Parents of Adolescents and Young Adults With Advanced Cancer
Different parents grieve differently. However, research directed at understanding the important contextual or individual factors that influence the path each bereaved parent takes is lacking. In this qualitative analysis we seek to understand the array of bereaved parent experiences more completely. By deeply diving into one parent dyad using interpretive phenomenology analysis and situating that story within the conventional content analysis of …
Pediatric Resident and Program Director Views on Climate Change and Health Curricula
We'll deal with it as it comes
Background Although cystic fibrosis (CF) is a progressive, life-limiting, genetic disease, recent advances have extended survival, allowing persons with CF the time and physical and mental health to form romantic relationships. Previous studies have shown the importance of dyadic coping to positive psychosocial functioning and relationship satisfaction for people with serious chronic illness and their romantic partners, but little work has been d…
Medicine (6 obras) · Psychology (5 obras) · Palliative Care and End-of-Life Issues (3 obras) · Qualitative research (3 obras) · Sociology (3 obras) · Alternative medicine (2 obras) · Childhood Cancer Survivors' Quality of Life (2 obras) · Clinical Psychology (2 obras) · Clinical Psychology (2 obras) · Computer Science (2 obras)