Denise Dillard
Datos Biográficos
| ID | 79454 |
|---|---|
| NOMBRE | Denise Dillard |
| NOMBRES | Denise |
| APELLIDO | Dillard |
| FIRMA | DILLARD D |
| AFILIACIONES | Southcentral Foundation |
| ORCID | 0000-0003-2969-7385 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 26 |
| TOTAL DE CITAS | 6 |
| TOTAL COMO AUTOR | 26 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 2012 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2025 |
| ÍNDICE H | 2 |
Community-based participatory research
People-centered care (PCC) represents a key paradigm shift in achieving universal health coverage and closing global public health divides. Amid growing global health disparities, shifts in epidemiological disease burden, and evolving sociopolitical contexts that affect healthcare delivery and research initiatives, there is an urgent need for public health scientists to develop community-rooted research strategies that uphold health promotion pri…
Creating zines about Alzheimer's disease and related dementias for American Indian and Alaska Native youth caregivers
In many American Indian and Alaska Native (AIAN) communities, family members care for elders with memory issues. AIAN youth are a unique and important caregiving group who may lack basic caregiving skills, as well as developmentally and culturally appropriate support and resources. Grounded in community-based participatory research (CBPR), AIAN youth (n = 8) participated in talking circles to discuss their experiences caring for someone who has m…
Making a Community Health Needs Assessment Participatory
Community health needs assessments (CHNAs) often lack sufficient community member participation. This lack of participation contributes to a continuation of unmet needs and systematic inequities. Southcentral Foundation (SCF) is an Alaska Native-owned, nonprofit healthcare organization serving 70,000 Alaska Native and American Indian (AN/AI) people living in and around Anchorage and 55 rural villages. Results of a 1993 CHNA shaped the organizatio…
Food Insecurity and Chronic Disease Among Native Hawaiians and Pacific Islanders on the Continent During Covid-19
Financial precarity and food insecurity are strongly associated with poor health outcomes. Recently, the COVID-19 pandemic caused major disruptions to people's livelihoods as well as interrupting supply chains, furthering economic hardship and exacerbating existing inequities. Native Hawaiian and Pacific Islander individuals, particularly those living on the continent, were especially impacted by the pandemic. This analysis used data from the Moa…
Food insecurity in urban American Indian and Alaska Native populations during the Covid-19 pandemic
High rates of food insecurity among American Indian and Alaska Native communities likely increased during the COVID-19 pandemic. However, despite the high prevalence of food insecurity, community-led efforts to reduce COVID-19 infection and increase vaccination uptake across Indian Health Service and Tribal healthcare facilities may have mitigated the negative impacts of the pandemic for families experiencing food insecurity. These successful app…
Associations Between Rurality, pre-pregnancy Health Status, and Macrosomia in American Indian/Alaska Native Populations
Retention in a 6-Month Smoking Cessation Study Among Alaska Native and American Indian People
Participant retention in longitudinal health research is necessary for generalizable results. Understanding factors that correlate with increased retention could improve retention in future studies. Here, we describe how participant and study process measures are associated with retention in a longitudinal tobacco cessation research study performed in Anchorage, Alaska. Specifically, we conducted a secondary analysis exploring retention among 151…
Home Blood Pressure Monitoring Devices
Objectives: Home blood pressure monitoring (HBPM) is an important component of blood pressure (BP) management. We assessed performance of two HBPM devices among Alaska Native and American Indian people (ANAIs). Methods: We measured BP using Omron BP786 arm cuff, Omron BP654 wrist cuff, and Baum aneroid sphygmomanometer in 100 ANAIs. Performance was assessed with intraclass correlation, paired t -tests, and calibration models. Results: Compared to…
Best Practices for Conducting Clinical Trials With Indigenous Children in the United States
We provide guidance for conducting clinical trials with Indigenous children in the United States. We drew on extant literature and our experience to describe 3 best practices for the ethical and effective conduct of clinical trials with Indigenous children. Case examples of pediatric research conducted with American Indian, Alaska Native, and Native Hawaiian communities are provided to illustrate these practices. Ethical and effective clinical tr…
You Actually View Us as the Experts in Our Own System
This study highlights that the concept of "bidirectional" learning as it is usually presented in the literature fails to capture the complexity of how partnerships work
Perspectives on communication and engagement with regard to collecting biospecimens and family health histories for cancer research in a rural Alaska Native community
Perceptions of alcohol misuse among Alaska native health care system stakeholders
Although alcohol misuse is a priority for health care systems serving Alaska Native and American Indian (ANAI) people, stakeholders' perceptions of misuse are understudied. Patients ( n = 34), providers ( n = 20), and leaders ( n = 16) at a Tribally owned and operated health care system reported that alcohol misuse results from the interaction of factors, including colonization, structural factors, social alienation, social norms about overdrinki…
Approach and Methods of the 2016 Alaska Native Research Forum
Southcentral Foundation, a tribal health organization serving Alaska Native and American Indian (AN/AI) people in southcentral Alaska, convened the Alaska Native Health Research Forum (Forum) for AN/AI people in May 2016. The purpose of the Forum was to obtain AN/AI community member feedback about sharing health research results. This article describes the funding mechanism that provided resources for the Forum and other factors that were conside…
Community Dissemination in a Tribal Health Setting
Alaska Native and American Indian (AN/AI) people experience a disproportionate burden of health disparities in the United States. Including AN/AI people in pharmacogenetic research offers an avenue to address these health disparities, however the dissemination of pharmacogenetic research results in the community context can be a challenging task. In this paper, we describe a case-study that explores the preferences of AN/AI community members rega…
Challenges in Engaging and Disseminating Health Research Results Among Alaska Native and American Indian People in Southcentral Alaska
Alaska Native and American Indian (AN/AI) people have negative research experiences, including lack of timely, respectful, and relevant communication about research findings. Southcentral Foundation (SCF), a tribally owned and operated health care organization in Alaska, has redesigned the health care system, enacted research policies, and established a research department which uses best practices of Community Engaged Research with AN/AI people.…
Disseminating the Results of a Depression Management Study in an Urban Alaska Native Health Care System
Increased attention to diagnostic accuracy in depression screening and management within primary care has demonstrated inadequate care when patients prematurely discontinue recommended treatments such as medication and counseling. Decision-support tools can enhance the medical decision-making process. In 2010, the Southcentral Foundation (SCF) Research Department developed a stakeholder-driven decision support tool to aid in depression management…
Future Directions in Disseminating Research Findings to Urban Alaska Native People
Southcentral Foundation (SCF), a tribal health organization based in Anchorage, Alaska, operates and plans health care services in response to the priorities and tribal values of Alaska Native and American Indian (AN/AI) people, including traditional concepts of wellness, reciprocity, and working in relationship. In an effort to better incorporate AN/AI priorities and values in research dissemination, the SCF Research Department hosted the Alaska…
Alaska Native Health Research Forum
In May 2016, Southcentral Foundation (SCF), a regional tribal health corporation based in Anchorage, Alaska convened a half-day health research forum for Alaska Native and American Indian community members to obtain feedback on communication of research findings. Thirty one individuals attended the Forum and 22 completed a pre and post survey. Respondents found the Forum to be a useful method to learn about research projects and their willingness…
Disseminating Information on Trauma Screening, Brief Intervention, and Referral to Treatment in a Tribal Health Setting
Exposure to trauma is consistently associated with co-occurrence of behavioral health disorders. Primary care settings are opportune places to screen for traumatic experiences and symptoms, as they are often the initial point of care for behavioral health concerns by the Alaska Native and American Indian (AN/AI) population. In this case study, we examine results dissemination activities at the SCF Research Department-hosted 2016 Alaska Native Hea…
Self-Determination in Health Research
Alaska Native (AN) and American Indian (AI) people are underrepresented in health research, yet many decline to participate in studies due to past researcher misconduct. Southcentral Foundation (SCF), an Alaska Native-owned and operated health care organization, is transforming the relationship between researchers and the tribal community by making trust and accountability required features of health research in AN/AI communities. In 1998, SCF as…
Formative evaluation to assess communication technology access and health communication preferences of Alaska Native people
Objective:Information technology can improve the quality, safety, and efficiency of healthcare delivery by improving provider and patient access to health information. We conducted a nonrandomized, cross-sectional, self-report survey to determine whether Alaska Native and American Indian (AN/AI) people have access to the health communication technologies available through a patient-centered medical home. Methods: In 2011, we administered a self-r…
Engaging stakeholders to develop a depression management decision support tool in a tribal health system
Estimating Cotinine Associations and a Saliva Cotinine Level to Identify Active Cigarette Smoking in Alaska Native Pregnant Women
Risk, Reward, and the Double-Edged Sword
Objectives. Pharmacogenetic research and clinical testing raise important concerns for individuals and communities, especially where past medical research and practice has perpetrated harm and cultivated distrust of health care systems and clinicians. We investigated perceptions of pharmacogenetics among Alaska Native (AN) people. Methods. We held four focus groups for 32 ANs in south central Alaska to elicit views about pharmacogenetics in gener…
Views of Biobanking Research Among Alaska Native People
Views of Biobanking Research Among Alaska Native People:The Role of Community Context Vanessa Hiratsuka, MPH, Jennifer Brown, BA, and Denise Dillard, PhD What Is the Purpose of This Study? • The purpose of this study was to explore the views of biobanking research among Alaska Native community members and leaders across the state of Alaska using a community-based participatory research approach with tribal and federal partners. • The team underto…
Challenges in Engaging and Disseminating Health Research Results Among Alaska Native and American Indian People in Southcentral Alaska
Alaska Native and American Indian (AN/AI) people have negative research experiences, including lack of timely, respectful, and relevant communication about research findings. Southcentral Foundation (SCF), a tribally owned and operated health care organization in Alaska, has redesigned the health care system, enacted research policies, and established a research department which uses best practices of Community Engaged Research with AN/AI people.…
Views of Biobanking Research Among Alaska Native People
Background: Research using stored clinical data and samples held in biobanks has potential to address health disparities in minority communities. However, ethical and cultural considerations about use of these samples for research warrant attention. Literature about how Alaska Native people (ANs) view biobanking research consists largely of theoretical papers and position statements with limited systematic information gathered from a broad range …
Views of Biobanking Research Among Alaska Native People
Views of Biobanking Research Among Alaska Native People:The Role of Community Context Vanessa Hiratsuka, MPH, Jennifer Brown, BA, and Denise Dillard, PhD What Is the Purpose of This Study? • The purpose of this study was to explore the views of biobanking research among Alaska Native community members and leaders across the state of Alaska using a community-based participatory research approach with tribal and federal partners. • The team underto…
Views of Biobanking Research Among Alaska Native People
Background: Research using stored clinical data and samples held in biobanks has potential to address health disparities in minority communities. However, ethical and cultural considerations about use of these samples for research warrant attention. Literature about how Alaska Native people (ANs) view biobanking research consists largely of theoretical papers and position statements with limited systematic information gathered from a broad range …
Estimating Cotinine Associations and a Saliva Cotinine Level to Identify Active Cigarette Smoking in Alaska Native Pregnant Women
Risk, Reward, and the Double-Edged Sword
Objectives. Pharmacogenetic research and clinical testing raise important concerns for individuals and communities, especially where past medical research and practice has perpetrated harm and cultivated distrust of health care systems and clinicians. We investigated perceptions of pharmacogenetics among Alaska Native (AN) people. Methods. We held four focus groups for 32 ANs in south central Alaska to elicit views about pharmacogenetics in gener…
Engaging stakeholders to develop a depression management decision support tool in a tribal health system
Formative evaluation to assess communication technology access and health communication preferences of Alaska Native people
Objective:Information technology can improve the quality, safety, and efficiency of healthcare delivery by improving provider and patient access to health information. We conducted a nonrandomized, cross-sectional, self-report survey to determine whether Alaska Native and American Indian (AN/AI) people have access to the health communication technologies available through a patient-centered medical home. Methods: In 2011, we administered a self-r…
Self-Determination in Health Research
Alaska Native (AN) and American Indian (AI) people are underrepresented in health research, yet many decline to participate in studies due to past researcher misconduct. Southcentral Foundation (SCF), an Alaska Native-owned and operated health care organization, is transforming the relationship between researchers and the tribal community by making trust and accountability required features of health research in AN/AI communities. In 1998, SCF as…
Approach and Methods of the 2016 Alaska Native Research Forum
Southcentral Foundation, a tribal health organization serving Alaska Native and American Indian (AN/AI) people in southcentral Alaska, convened the Alaska Native Health Research Forum (Forum) for AN/AI people in May 2016. The purpose of the Forum was to obtain AN/AI community member feedback about sharing health research results. This article describes the funding mechanism that provided resources for the Forum and other factors that were conside…
Community Dissemination in a Tribal Health Setting
Alaska Native and American Indian (AN/AI) people experience a disproportionate burden of health disparities in the United States. Including AN/AI people in pharmacogenetic research offers an avenue to address these health disparities, however the dissemination of pharmacogenetic research results in the community context can be a challenging task. In this paper, we describe a case-study that explores the preferences of AN/AI community members rega…
Challenges in Engaging and Disseminating Health Research Results Among Alaska Native and American Indian People in Southcentral Alaska
Alaska Native and American Indian (AN/AI) people have negative research experiences, including lack of timely, respectful, and relevant communication about research findings. Southcentral Foundation (SCF), a tribally owned and operated health care organization in Alaska, has redesigned the health care system, enacted research policies, and established a research department which uses best practices of Community Engaged Research with AN/AI people.…
Disseminating the Results of a Depression Management Study in an Urban Alaska Native Health Care System
Increased attention to diagnostic accuracy in depression screening and management within primary care has demonstrated inadequate care when patients prematurely discontinue recommended treatments such as medication and counseling. Decision-support tools can enhance the medical decision-making process. In 2010, the Southcentral Foundation (SCF) Research Department developed a stakeholder-driven decision support tool to aid in depression management…
Future Directions in Disseminating Research Findings to Urban Alaska Native People
Southcentral Foundation (SCF), a tribal health organization based in Anchorage, Alaska, operates and plans health care services in response to the priorities and tribal values of Alaska Native and American Indian (AN/AI) people, including traditional concepts of wellness, reciprocity, and working in relationship. In an effort to better incorporate AN/AI priorities and values in research dissemination, the SCF Research Department hosted the Alaska…
Alaska Native Health Research Forum
In May 2016, Southcentral Foundation (SCF), a regional tribal health corporation based in Anchorage, Alaska convened a half-day health research forum for Alaska Native and American Indian community members to obtain feedback on communication of research findings. Thirty one individuals attended the Forum and 22 completed a pre and post survey. Respondents found the Forum to be a useful method to learn about research projects and their willingness…
Disseminating Information on Trauma Screening, Brief Intervention, and Referral to Treatment in a Tribal Health Setting
Exposure to trauma is consistently associated with co-occurrence of behavioral health disorders. Primary care settings are opportune places to screen for traumatic experiences and symptoms, as they are often the initial point of care for behavioral health concerns by the Alaska Native and American Indian (AN/AI) population. In this case study, we examine results dissemination activities at the SCF Research Department-hosted 2016 Alaska Native Hea…
Perspectives on communication and engagement with regard to collecting biospecimens and family health histories for cancer research in a rural Alaska Native community
Perceptions of alcohol misuse among Alaska native health care system stakeholders
Although alcohol misuse is a priority for health care systems serving Alaska Native and American Indian (ANAI) people, stakeholders' perceptions of misuse are understudied. Patients ( n = 34), providers ( n = 20), and leaders ( n = 16) at a Tribally owned and operated health care system reported that alcohol misuse results from the interaction of factors, including colonization, structural factors, social alienation, social norms about overdrinki…
You Actually View Us as the Experts in Our Own System
This study highlights that the concept of "bidirectional" learning as it is usually presented in the literature fails to capture the complexity of how partnerships work
Home Blood Pressure Monitoring Devices
Objectives: Home blood pressure monitoring (HBPM) is an important component of blood pressure (BP) management. We assessed performance of two HBPM devices among Alaska Native and American Indian people (ANAIs). Methods: We measured BP using Omron BP786 arm cuff, Omron BP654 wrist cuff, and Baum aneroid sphygmomanometer in 100 ANAIs. Performance was assessed with intraclass correlation, paired t -tests, and calibration models. Results: Compared to…
Best Practices for Conducting Clinical Trials With Indigenous Children in the United States
We provide guidance for conducting clinical trials with Indigenous children in the United States. We drew on extant literature and our experience to describe 3 best practices for the ethical and effective conduct of clinical trials with Indigenous children. Case examples of pediatric research conducted with American Indian, Alaska Native, and Native Hawaiian communities are provided to illustrate these practices. Ethical and effective clinical tr…
Associations Between Rurality, pre-pregnancy Health Status, and Macrosomia in American Indian/Alaska Native Populations
Retention in a 6-Month Smoking Cessation Study Among Alaska Native and American Indian People
Participant retention in longitudinal health research is necessary for generalizable results. Understanding factors that correlate with increased retention could improve retention in future studies. Here, we describe how participant and study process measures are associated with retention in a longitudinal tobacco cessation research study performed in Anchorage, Alaska. Specifically, we conducted a secondary analysis exploring retention among 151…
Food insecurity in urban American Indian and Alaska Native populations during the Covid-19 pandemic
High rates of food insecurity among American Indian and Alaska Native communities likely increased during the COVID-19 pandemic. However, despite the high prevalence of food insecurity, community-led efforts to reduce COVID-19 infection and increase vaccination uptake across Indian Health Service and Tribal healthcare facilities may have mitigated the negative impacts of the pandemic for families experiencing food insecurity. These successful app…
Community-based participatory research
People-centered care (PCC) represents a key paradigm shift in achieving universal health coverage and closing global public health divides. Amid growing global health disparities, shifts in epidemiological disease burden, and evolving sociopolitical contexts that affect healthcare delivery and research initiatives, there is an urgent need for public health scientists to develop community-rooted research strategies that uphold health promotion pri…
Creating zines about Alzheimer's disease and related dementias for American Indian and Alaska Native youth caregivers
In many American Indian and Alaska Native (AIAN) communities, family members care for elders with memory issues. AIAN youth are a unique and important caregiving group who may lack basic caregiving skills, as well as developmentally and culturally appropriate support and resources. Grounded in community-based participatory research (CBPR), AIAN youth (n = 8) participated in talking circles to discuss their experiences caring for someone who has m…
Making a Community Health Needs Assessment Participatory
Community health needs assessments (CHNAs) often lack sufficient community member participation. This lack of participation contributes to a continuation of unmet needs and systematic inequities. Southcentral Foundation (SCF) is an Alaska Native-owned, nonprofit healthcare organization serving 70,000 Alaska Native and American Indian (AN/AI) people living in and around Anchorage and 55 rural villages. Results of a 1993 CHNA shaped the organizatio…
Medicine (21 obras) · Political science (17 obras) · Public relations (13 obras) · Ethics in Clinical Research (11 obras) · Sociology (11 obras) · Nursing (10 obras) · Health care (9 obras) · Health Policy Implementation Science (9 obras) · Psychology (9 obras) · Community-based participatory research (8 obras)