Fadhila Mazanderani
Datos Biográficos
| ID | 82487 |
|---|---|
| NOMBRE | Fadhila Mazanderani |
| NOMBRES | Fadhila |
| APELLIDO | Mazanderani |
| FIRMA | MAZANDERANI F |
| AFILIACIONES | University of Edinburgh |
| ORCID | 0000-0002-3975-3283 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 15 |
| TOTAL DE CITAS | 75 |
| TOTAL COMO AUTOR | 15 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 2012 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2025 |
| ÍNDICE H | 5 |
Between dissatisfaction and support
Quantitative studies of public opinion on healthcare often distinguish between support for the system and satisfaction with its services. The relationship between these two dimensions can appear contradictory: in UK surveys strong support for the NHS co-exists with rising dissatisfaction with care quality. We investigate this apparent contradiction through a novel analysis of 169 critical reviews of emergency care visits in the UK submitted to th…
Fluctuating salience in those living with genetic risk of motor neuron disease
BACKGROUND: Motor neuron disease (MND) (also known as amyotrophic lateral sclerosis) is a life-limiting neurodegenerative condition. In up to 20% of people with MND, a pathogenic variant associated with autosomal dominant inheritance can be identified. Children of people carrying a pathogenic variant have a 50% chance of inheriting this and a higher, although harder to predict, chance of developing the disease compared to the general adult popula…
Life ‘on high alert’
It is estimated that up to ten per cent of people with motor neurone disease (MND) have an inherited form of the disease. Families with a history of inherited MND may face specific issues around managing the condition in relatives and adapting to life knowing that they too could develop the disease, which we refer to as living ‘at risk’. This qualitative study is based on a thematic analysis of posts from 37 threads shared on the MND Association …
Caring for care
Knowledge, evidence, expertise? The epistemics of experience in contemporary healthcare
This paper explores how personal experience acquires the status of knowledge and/or evidence in contemporary healthcare contexts that emphasise being both patient-centred and evidence-based. Drawing on a comparative analysis of three case studies – self-help and mutual aid groups; online patient activism; and patient feedback in healthcare service delivery – we foreground: a) the role that different technologies and temporalities play in how expe…
Health information work and the enactment of care in couples and families affected by Multiple Sclerosis
Given the considerable emphasis placed on informed choice, the management of health information has become an increasingly important part of living with chronic illness. This paper explores the intra-familial dynamics of managing health information in the context of chronic illness. Drawing on 77 interviews with people affected by Multiple Sclerosis in theUK(patients, partners, family members and close friends), we show how families develop their…
Introduction
Talking STS is a collection of interviews and accompanying reflections on the origins, the present and the future of the field referred to as Science and Technology Studies or Science, Technology and Society (STS). The volume assembles the thoughts and recollections of some of the leading figures in the making of this field. The occasion for producing the collection has been the fiftieth anniversary of the founding of the University of Edinburgh’…
The Whole World is Becoming Science Studies
How to survive in this forest? How to keep it alive? Latour poses these questions in relation to the current global ecological crisis; but they are equally apt when applied to the “forest”––or to use Latour’s own metaphor, “biodiversity”––of STS. In his interview, Latour puts forward a particular vision for STS’s survival; a vision of STS as neither critical of nor ancillary to science, but where a tacit STS sensibility becomes integrated into sc…
From embodied risk to embodying hope
The stories we tell
Since the earliest days of the HIV/AIDS epidemic, talking about the virus has been a key way affected communities have challenged the fear and discrimination directed against them and pressed for urgent medical and political attention. Today, HIV/AIDS is one of the most prolifically and intimately documented of all health conditions, with entrenched infrastructures, practices and technologies--what Vinh-Kim Nguyen has dubbed 'confessional technol…
The Patient's View
In 1985 the historian Roy Porter called for a ‘medical history from below’, arguing that it was time to move away from a history of medicine focussed on the medical establishment towards one that p
Biographical value
Illness narratives play a central role in social studies of health and illness, serving as both a key theoretical focus and a popular research method. Despite this, relatively little work has gone into conceptualising how and why illness narratives - be they in books, websites, television or other media - are commodified in contemporary healthcare and its social environment; namely, how distinctive forms of value are generated in the production, …
An ethics of intimacy
Therapeutic Sovereignty
The Republic of Therapy: Triage and Sovereignty in West Africa's Time of AIDS, by Vinh-Kim Nguyen, Durham, NC: Duke University Press, 2010, 256 pp., £15.99. Since the Centers for Disease Control (C
Being differently the same
Being differently the same
The stories we tell
Since the earliest days of the HIV/AIDS epidemic, talking about the virus has been a key way affected communities have challenged the fear and discrimination directed against them and pressed for urgent medical and political attention. Today, HIV/AIDS is one of the most prolifically and intimately documented of all health conditions, with entrenched infrastructures, practices and technologies--what Vinh-Kim Nguyen has dubbed 'confessional technol…
Biographical value
Illness narratives play a central role in social studies of health and illness, serving as both a key theoretical focus and a popular research method. Despite this, relatively little work has gone into conceptualising how and why illness narratives - be they in books, websites, television or other media - are commodified in contemporary healthcare and its social environment; namely, how distinctive forms of value are generated in the production, …
Knowledge, evidence, expertise? The epistemics of experience in contemporary healthcare
This paper explores how personal experience acquires the status of knowledge and/or evidence in contemporary healthcare contexts that emphasise being both patient-centred and evidence-based. Drawing on a comparative analysis of three case studies – self-help and mutual aid groups; online patient activism; and patient feedback in healthcare service delivery – we foreground: a) the role that different technologies and temporalities play in how expe…
Caring for care
Health information work and the enactment of care in couples and families affected by Multiple Sclerosis
Given the considerable emphasis placed on informed choice, the management of health information has become an increasingly important part of living with chronic illness. This paper explores the intra-familial dynamics of managing health information in the context of chronic illness. Drawing on 77 interviews with people affected by Multiple Sclerosis in theUK(patients, partners, family members and close friends), we show how families develop their…
Between dissatisfaction and support
Quantitative studies of public opinion on healthcare often distinguish between support for the system and satisfaction with its services. The relationship between these two dimensions can appear contradictory: in UK surveys strong support for the NHS co-exists with rising dissatisfaction with care quality. We investigate this apparent contradiction through a novel analysis of 169 critical reviews of emergency care visits in the UK submitted to th…
An ethics of intimacy
Therapeutic Sovereignty
The Republic of Therapy: Triage and Sovereignty in West Africa's Time of AIDS, by Vinh-Kim Nguyen, Durham, NC: Duke University Press, 2010, 256 pp., £15.99. Since the Centers for Disease Control (C
Being differently the same
Biographical value
Illness narratives play a central role in social studies of health and illness, serving as both a key theoretical focus and a popular research method. Despite this, relatively little work has gone into conceptualising how and why illness narratives - be they in books, websites, television or other media - are commodified in contemporary healthcare and its social environment; namely, how distinctive forms of value are generated in the production, …
The Patient's View
In 1985 the historian Roy Porter called for a ‘medical history from below’, arguing that it was time to move away from a history of medicine focussed on the medical establishment towards one that p
The stories we tell
Since the earliest days of the HIV/AIDS epidemic, talking about the virus has been a key way affected communities have challenged the fear and discrimination directed against them and pressed for urgent medical and political attention. Today, HIV/AIDS is one of the most prolifically and intimately documented of all health conditions, with entrenched infrastructures, practices and technologies--what Vinh-Kim Nguyen has dubbed 'confessional technol…
Introduction
Talking STS is a collection of interviews and accompanying reflections on the origins, the present and the future of the field referred to as Science and Technology Studies or Science, Technology and Society (STS). The volume assembles the thoughts and recollections of some of the leading figures in the making of this field. The occasion for producing the collection has been the fiftieth anniversary of the founding of the University of Edinburgh’…
The Whole World is Becoming Science Studies
How to survive in this forest? How to keep it alive? Latour poses these questions in relation to the current global ecological crisis; but they are equally apt when applied to the “forest”––or to use Latour’s own metaphor, “biodiversity”––of STS. In his interview, Latour puts forward a particular vision for STS’s survival; a vision of STS as neither critical of nor ancillary to science, but where a tacit STS sensibility becomes integrated into sc…
From embodied risk to embodying hope
Health information work and the enactment of care in couples and families affected by Multiple Sclerosis
Given the considerable emphasis placed on informed choice, the management of health information has become an increasingly important part of living with chronic illness. This paper explores the intra-familial dynamics of managing health information in the context of chronic illness. Drawing on 77 interviews with people affected by Multiple Sclerosis in theUK(patients, partners, family members and close friends), we show how families develop their…
Knowledge, evidence, expertise? The epistemics of experience in contemporary healthcare
This paper explores how personal experience acquires the status of knowledge and/or evidence in contemporary healthcare contexts that emphasise being both patient-centred and evidence-based. Drawing on a comparative analysis of three case studies – self-help and mutual aid groups; online patient activism; and patient feedback in healthcare service delivery – we foreground: a) the role that different technologies and temporalities play in how expe…
Life ‘on high alert’
It is estimated that up to ten per cent of people with motor neurone disease (MND) have an inherited form of the disease. Families with a history of inherited MND may face specific issues around managing the condition in relatives and adapting to life knowing that they too could develop the disease, which we refer to as living ‘at risk’. This qualitative study is based on a thematic analysis of posts from 37 threads shared on the MND Association …
Caring for care
Fluctuating salience in those living with genetic risk of motor neuron disease
BACKGROUND: Motor neuron disease (MND) (also known as amyotrophic lateral sclerosis) is a life-limiting neurodegenerative condition. In up to 20% of people with MND, a pathogenic variant associated with autosomal dominant inheritance can be identified. Children of people carrying a pathogenic variant have a 50% chance of inheriting this and a higher, although harder to predict, chance of developing the disease compared to the general adult popula…
Between dissatisfaction and support
Quantitative studies of public opinion on healthcare often distinguish between support for the system and satisfaction with its services. The relationship between these two dimensions can appear contradictory: in UK surveys strong support for the NHS co-exists with rising dissatisfaction with care quality. We investigate this apparent contradiction through a novel analysis of 169 critical reviews of emergency care visits in the UK submitted to th…
Sociology (12 obras) · Psychology (9 obras) · Political science (8 obras) · Medicine (7 obras) · Epistemology (6 obras) · Health care (6 obras) · Computer Science (5 obras) · Law (5 obras) · Law (5 obras) · Public relations (5 obras)