RESPIRE collaboration
Datos Biográficos
| ID | 8979551 |
|---|---|
| NOMBRE | RESPIRE collaboration |
| NOMBRES | RESPIRE |
| APELLIDO | collaboration |
| FIRMA | COLLABORATION R |
| VERIFICADO | No |
| TOTAL DE OBRAS | 23 |
| TOTAL DE CITAS | 0 |
| TOTAL COMO AUTOR | 23 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 2021 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2026 |
| ÍNDICE H | 0 |
Healthcare professionals' challenges and solutions in providing palliative care to patients with severe chronic obstructive pulmonary disease
Palliative care significantly improves the quality of life for individuals with advanced chronic diseases. However, access in Malaysia remains limited, particularly for patients with non-malignant conditions such as chronic obstructive pulmonary disease (COPD). Here, we discuss the barriers and solutions identified through a nine hour in-person stakeholder workshop to co-develop practical initiatives for integrating palliative care into the manag…
Development of a clinical algorithm-based scoring system to diagnose smear-negative pulmonary tuberculosis in Sabah, Malaysia using the modified Delphi method
Background: Tuberculosis (TB) remains a major global health threat, particularly in resource-constrained settings where delayed diagnosis of smear-negative pulmonary TB (SNPTB) is common due to limited access to rapid molecular diagnostics. We aimed to develop a clinical algorithm-based scoring system to aid the diagnosis of SNPTB among symptomatic patients in Sabah, Malaysia. Methods: We conducted a modified Delphi process between January and Ju…
Open science policy guidelines promoting open data sharing in low and middle-income countries for respiratory health research under Nihr Global Respire project
Open science drives progress, especially in the low-and-middle-income countries (LMICs), where data security and confidentiality are at risk due to lack of resources and non-compliance with diverse privacy laws. The National Institutes of Health and Care Research (NIHR) Global Health Research Unit on Respiratory Health (RESPIRE 2) project, funded by the UK NIHR, is a global collaboration led by the University of Edinburgh and Universiti Malaya, i…
Current landscape and future directions of policies addressing air quality improvement in Pakistan
Background: Pakistan ranks third in global air-pollution burden, yet evidence on how its air quality-related policies are implemented remains fragmented. We aim to map the existing air quality policies in Pakistan, identify barriers to policy implementation, and highlight policy priorities for improving air quality governance. Methods: We conducted a scoping review following Arksey-O'Malley and PRISMA-ScR guidelines to map national and provincial…
Delivering remote pulmonary rehabilitation in Bangladesh
Background: Pulmonary rehabilitation (PR) is an effective and essential component of care for the increasing number of individuals with chronic respiratory diseases (CRDs). Despite the benefits, it remains underutilised and poorly accessible in low- and middle-income countries (LMICs). We aimed to determine the feasibility of delivering PR in Bangladesh at home because of pandemic travel restrictions. Methods: Aligned with the Medical Research Co…
Stakeholder engagement champions
Stakeholder engagement is increasingly required by global health funders as a means to enhance research impact and bridge the gap between knowledge generation and its application in local health systems. However, global health researchers often face structural and operational barriers that limit meaningful stakeholder engagement. We present a practical model developed by a global respiratory health research programme implemented in four low- and …
Scaling digital health in low- and middle-income countries
The COVID-19 pandemic catalysed the development of digital health interventions across the globe, including low- and middle-income countries (LMICs) such as Malaysia. However, moving from pockets of innovation to sustainable implementation at scale remains a major challenge. This viewpoint presents insights from a digital health training programme using a multi-stakeholder engagement series convened by the National Institute for Health and Care R…
Optimising participation in a pulmonary rehabilitation programme for people living with chronic respiratory diseases in rural India
Background: Pulmonary rehabilitation (PR) plays a vital role in managing chronic obstructive pulmonary disease and other chronic respiratory diseases (CRDs). However, implementation of this multidisciplinary approach in resource-poor settings may not be sufficient because of referrers' uncertainty regarding the effectiveness of PR, inconvenient timing, travel issues, patients' lack of motivation, and poor family support. The aim was to test the f…
Exploring the disease experience and supportive care for people with very severe chronic obstructive pulmonary disease in Malaysia
Background: In Malaysia, palliative services are almost non-existent for those with severe organ failure such as chronic obstructive pulmonary disease (COPD). Access to palliative care services and awareness among the public and healthcare professionals remain low. While recognised as important in high income settings, the literature on palliative care for non-malignant disease is relatively uncommon in low- and middle-income countries, and none …
Barriers and enablers to centre-based pulmonary rehabilitation for patients with chronic obstructive pulmonary disease in low- and middle-income countries
Background: Chronic obstructive pulmonary disease (COPD) is a leading cause of mortality and morbidity in low- and middle-income countries (LMICs). Despite the proven benefits of pulmonary rehabilitation (PR) for patients with COPD, its referral, uptake, and completion rates remain low. This systematic review aimed to identify the barriers and enablers to centre-based PR among patients with COPD in LMICs. Methods: We searched PubMed, Web of Scien…
Mapping respiratory health digital interventions in South and Southeast Asia
Background: The growing burden of respiratory disease, particularly in Asia, where mortality is higher and awareness and policy engagement lag, could be mitigated through rapidly advancing digital health tools that offer opportunities for improved management, prevention, and personal health empowerment. We aimed to map the existing evidence, technologies, opportunities, and gaps related to respiratory digital health interventions in South and Sou…
Exploring the perceptions of patients with chronic respiratory diseases and their insights into pulmonary rehabilitation in Bangladesh
Background: Chronic respiratory diseases (CRDs) require holistic management which considers patients' preferences, appropriate pharmacotherapy, pulmonary rehabilitation, and integrated care. We aimed to understand the perceptions of people with CRDs about their condition and pulmonary rehabilitation in Bangladesh. Methods: We conducted semi-structured interviews with a maximum variation sample of people with CRDs who had participated in a feasibi…
Seroprevalence of Sars-CoV-2 specific Immunoglobin G antibodies in rural population of Western Maharashtra, India
Background: Severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infection, responsible for the coronavirus disease 2019 (COVID-19) pandemic, has been a major public health concern requiring continuous efforts for understanding its epidemiology. Patients infected with SARS-CoV-2 have a wide range of clinical features ranging from asymptomatic infection to mild or severe illness with fatal outcomes or recovery. Population-based seroepidemi…
Developing a home-based pulmonary rehabilitation programme for patients with chronic respiratory diseases in Malaysia
Background: The COVID-19 pandemic has underscored the importance of remote healthcare and home-based interventions, including pulmonary rehabilitation, for patients with chronic respiratory diseases (CRDs). It has also heightened the vulnerability of individuals with underlying respiratory conditions to severe illness from COVID-19, necessitating exploration and assessment of the feasibility of delivering home - pulmonary rehabilitation (home-PR)…
Feasibility and acceptability of the paediatric pulse oximeter in integrated management of neonatal and childhood illnesses (IMNCI) services by public health facilities
Background: Pneumonia contributes to about 15% of child deaths globally, with 20% of the overall deaths occurring in India. Although WHO recommends the use of pulse oximeters (PO) in first-level facilities for early detection of child pneumonia in low- and middle-income countries (LMICs), this has not yet been implemented in India. We aimed to assess the feasibility and acceptability of introducing PO in integrated management of neonatal and chil…
A systematic review of the theory of planned behaviour interventions for chronic diseases in low health-literacy settings
The ability of non-physician health workers to identify chest indrawing to detect pneumonia in children below five years of age in low- and middle-income countries
Sustaining stakeholder engagement for health research during the Covid-19 pandemic
Governments worldwide responded to the continual waves of the COVID-19 pandemic with unprecedented measures ranging from social distancing and cancellation of public events to border restrictions and complete closure of all but essential services [1]. Health research studies were suspended, becoming casualties of COVID-19-related lockdowns and distancing policies [2]. Engaging and involving stakeholders including patients, [...]
Accuracy of non-physician health workers in respiratory rate measurement to identify paediatric pneumonia in low- and middle-income countries
Working as frontline health facilitators, service providers, program supporters, and social health activists in Indian hilly terrain areas
Background: Community health workers (CHW) contribute to achieving health targets of the Sustainable Development Goals (SDG) and Universal Health Care (UHC) in low- and middle-income countries (LMICs). In India, accredited social health activists (ASHAs) function as health facilitators, service providers, and programme supporters for rural and tribal communities and are at the frontline during the COVID-19 pandemic. We aimed to describe the ASHAs…
Insights into how Malaysian adults with limited health literacy self‐manage and live with asthma
BACKGROUND: Adjusting to life with a chronic condition is challenging, especially for people with limited health literacy, which is associated with low compliance with self-management activities and poor clinical outcomes. OBJECTIVE: We explored how people with limited health literacy understand asthma and undertake self-management practices. DESIGN: We adapted the arts-based qualitative methodology Photovoice. SETTING AND PARTICIPANTS: We sample…
Predictors for detecting chronic respiratory diseases in community surveys
BACKGROUND: Our previous scoping review revealed limitations and inconsistencies in population surveys of chronic respiratory disease. Informed by this review, we piloted a cross-sectional survey of adults in four South/South-East Asian low-and middle-income countries (LMICs) to assess survey feasibility and identify variables that predicted asthma or chronic obstructive pulmonary disease (COPD). METHODS: We administered relevant translations of …
Operational definitions of paediatric asthma used in epidemiological studies
Sin obras prominentes en esta página.
Predictors for detecting chronic respiratory diseases in community surveys
BACKGROUND: Our previous scoping review revealed limitations and inconsistencies in population surveys of chronic respiratory disease. Informed by this review, we piloted a cross-sectional survey of adults in four South/South-East Asian low-and middle-income countries (LMICs) to assess survey feasibility and identify variables that predicted asthma or chronic obstructive pulmonary disease (COPD). METHODS: We administered relevant translations of …
Operational definitions of paediatric asthma used in epidemiological studies
Sustaining stakeholder engagement for health research during the Covid-19 pandemic
Governments worldwide responded to the continual waves of the COVID-19 pandemic with unprecedented measures ranging from social distancing and cancellation of public events to border restrictions and complete closure of all but essential services [1]. Health research studies were suspended, becoming casualties of COVID-19-related lockdowns and distancing policies [2]. Engaging and involving stakeholders including patients, [...]
Accuracy of non-physician health workers in respiratory rate measurement to identify paediatric pneumonia in low- and middle-income countries
Working as frontline health facilitators, service providers, program supporters, and social health activists in Indian hilly terrain areas
Background: Community health workers (CHW) contribute to achieving health targets of the Sustainable Development Goals (SDG) and Universal Health Care (UHC) in low- and middle-income countries (LMICs). In India, accredited social health activists (ASHAs) function as health facilitators, service providers, and programme supporters for rural and tribal communities and are at the frontline during the COVID-19 pandemic. We aimed to describe the ASHAs…
Insights into how Malaysian adults with limited health literacy self‐manage and live with asthma
BACKGROUND: Adjusting to life with a chronic condition is challenging, especially for people with limited health literacy, which is associated with low compliance with self-management activities and poor clinical outcomes. OBJECTIVE: We explored how people with limited health literacy understand asthma and undertake self-management practices. DESIGN: We adapted the arts-based qualitative methodology Photovoice. SETTING AND PARTICIPANTS: We sample…
Seroprevalence of Sars-CoV-2 specific Immunoglobin G antibodies in rural population of Western Maharashtra, India
Background: Severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infection, responsible for the coronavirus disease 2019 (COVID-19) pandemic, has been a major public health concern requiring continuous efforts for understanding its epidemiology. Patients infected with SARS-CoV-2 have a wide range of clinical features ranging from asymptomatic infection to mild or severe illness with fatal outcomes or recovery. Population-based seroepidemi…
Developing a home-based pulmonary rehabilitation programme for patients with chronic respiratory diseases in Malaysia
Background: The COVID-19 pandemic has underscored the importance of remote healthcare and home-based interventions, including pulmonary rehabilitation, for patients with chronic respiratory diseases (CRDs). It has also heightened the vulnerability of individuals with underlying respiratory conditions to severe illness from COVID-19, necessitating exploration and assessment of the feasibility of delivering home - pulmonary rehabilitation (home-PR)…
Feasibility and acceptability of the paediatric pulse oximeter in integrated management of neonatal and childhood illnesses (IMNCI) services by public health facilities
Background: Pneumonia contributes to about 15% of child deaths globally, with 20% of the overall deaths occurring in India. Although WHO recommends the use of pulse oximeters (PO) in first-level facilities for early detection of child pneumonia in low- and middle-income countries (LMICs), this has not yet been implemented in India. We aimed to assess the feasibility and acceptability of introducing PO in integrated management of neonatal and chil…
A systematic review of the theory of planned behaviour interventions for chronic diseases in low health-literacy settings
The ability of non-physician health workers to identify chest indrawing to detect pneumonia in children below five years of age in low- and middle-income countries
Exploring the perceptions of patients with chronic respiratory diseases and their insights into pulmonary rehabilitation in Bangladesh
Background: Chronic respiratory diseases (CRDs) require holistic management which considers patients' preferences, appropriate pharmacotherapy, pulmonary rehabilitation, and integrated care. We aimed to understand the perceptions of people with CRDs about their condition and pulmonary rehabilitation in Bangladesh. Methods: We conducted semi-structured interviews with a maximum variation sample of people with CRDs who had participated in a feasibi…
Open science policy guidelines promoting open data sharing in low and middle-income countries for respiratory health research under Nihr Global Respire project
Open science drives progress, especially in the low-and-middle-income countries (LMICs), where data security and confidentiality are at risk due to lack of resources and non-compliance with diverse privacy laws. The National Institutes of Health and Care Research (NIHR) Global Health Research Unit on Respiratory Health (RESPIRE 2) project, funded by the UK NIHR, is a global collaboration led by the University of Edinburgh and Universiti Malaya, i…
Current landscape and future directions of policies addressing air quality improvement in Pakistan
Background: Pakistan ranks third in global air-pollution burden, yet evidence on how its air quality-related policies are implemented remains fragmented. We aim to map the existing air quality policies in Pakistan, identify barriers to policy implementation, and highlight policy priorities for improving air quality governance. Methods: We conducted a scoping review following Arksey-O'Malley and PRISMA-ScR guidelines to map national and provincial…
Delivering remote pulmonary rehabilitation in Bangladesh
Background: Pulmonary rehabilitation (PR) is an effective and essential component of care for the increasing number of individuals with chronic respiratory diseases (CRDs). Despite the benefits, it remains underutilised and poorly accessible in low- and middle-income countries (LMICs). We aimed to determine the feasibility of delivering PR in Bangladesh at home because of pandemic travel restrictions. Methods: Aligned with the Medical Research Co…
Stakeholder engagement champions
Stakeholder engagement is increasingly required by global health funders as a means to enhance research impact and bridge the gap between knowledge generation and its application in local health systems. However, global health researchers often face structural and operational barriers that limit meaningful stakeholder engagement. We present a practical model developed by a global respiratory health research programme implemented in four low- and …
Scaling digital health in low- and middle-income countries
The COVID-19 pandemic catalysed the development of digital health interventions across the globe, including low- and middle-income countries (LMICs) such as Malaysia. However, moving from pockets of innovation to sustainable implementation at scale remains a major challenge. This viewpoint presents insights from a digital health training programme using a multi-stakeholder engagement series convened by the National Institute for Health and Care R…
Optimising participation in a pulmonary rehabilitation programme for people living with chronic respiratory diseases in rural India
Background: Pulmonary rehabilitation (PR) plays a vital role in managing chronic obstructive pulmonary disease and other chronic respiratory diseases (CRDs). However, implementation of this multidisciplinary approach in resource-poor settings may not be sufficient because of referrers' uncertainty regarding the effectiveness of PR, inconvenient timing, travel issues, patients' lack of motivation, and poor family support. The aim was to test the f…
Exploring the disease experience and supportive care for people with very severe chronic obstructive pulmonary disease in Malaysia
Background: In Malaysia, palliative services are almost non-existent for those with severe organ failure such as chronic obstructive pulmonary disease (COPD). Access to palliative care services and awareness among the public and healthcare professionals remain low. While recognised as important in high income settings, the literature on palliative care for non-malignant disease is relatively uncommon in low- and middle-income countries, and none …
Barriers and enablers to centre-based pulmonary rehabilitation for patients with chronic obstructive pulmonary disease in low- and middle-income countries
Background: Chronic obstructive pulmonary disease (COPD) is a leading cause of mortality and morbidity in low- and middle-income countries (LMICs). Despite the proven benefits of pulmonary rehabilitation (PR) for patients with COPD, its referral, uptake, and completion rates remain low. This systematic review aimed to identify the barriers and enablers to centre-based PR among patients with COPD in LMICs. Methods: We searched PubMed, Web of Scien…
Mapping respiratory health digital interventions in South and Southeast Asia
Background: The growing burden of respiratory disease, particularly in Asia, where mortality is higher and awareness and policy engagement lag, could be mitigated through rapidly advancing digital health tools that offer opportunities for improved management, prevention, and personal health empowerment. We aimed to map the existing evidence, technologies, opportunities, and gaps related to respiratory digital health interventions in South and Sou…
Healthcare professionals' challenges and solutions in providing palliative care to patients with severe chronic obstructive pulmonary disease
Palliative care significantly improves the quality of life for individuals with advanced chronic diseases. However, access in Malaysia remains limited, particularly for patients with non-malignant conditions such as chronic obstructive pulmonary disease (COPD). Here, we discuss the barriers and solutions identified through a nine hour in-person stakeholder workshop to co-develop practical initiatives for integrating palliative care into the manag…
Development of a clinical algorithm-based scoring system to diagnose smear-negative pulmonary tuberculosis in Sabah, Malaysia using the modified Delphi method
Background: Tuberculosis (TB) remains a major global health threat, particularly in resource-constrained settings where delayed diagnosis of smear-negative pulmonary TB (SNPTB) is common due to limited access to rapid molecular diagnostics. We aimed to develop a clinical algorithm-based scoring system to aid the diagnosis of SNPTB among symptomatic patients in Sabah, Malaysia. Methods: We conducted a modified Delphi process between January and Ju…
Medicine (13 obras) · Chronic Obstructive Pulmonary Disease (COPD) Research (9 obras) · Health care (7 obras) · MEDLINE (7 obras) · Family medicine (6 obras) · Nursing (6 obras) · Public health (6 obras) · Delphi Technique in Research (5 obras) · Physical therapy (5 obras) · Pulmonary rehabilitation (5 obras)