Sara Riggare

Datos Biográficos

ID8980775
NOMBRESara Riggare
NOMBRESSara
APELLIDORiggare
FIRMARIGGARE S
AFILIACIONESDepartment of Women's and Children's Health, Participatory eHealth and Health Data Uppsala University Uppsala Sweden
ORCID0000-0002-2256-7310
VERIFICADOSí
TOTAL DE OBRAS5
TOTAL DE CITAS0
TOTAL COMO AUTOR5
TOTAL COMO EDITOR0
PRIMER AÑO DE PUBLICACIÓN2020
AÑO MÁS RECIENTE DE PUBLICACIÓN2026
ÍNDICE H0

  • “The more you learn, the more you can influence”—learning circles to support citizen science in Parkinson's disease

    Open AccessJamie L Luckhaus, Therese Scott Duncan et al.ARTICLEFrontiers in Public Health2026

    Introduction: Parkinson's disease (PD) is the fastest growing neurological condition, making it a public health concern. There is still much to be learned about this complex disease, and citizen science-the involvement of the public in scientific research-has been used for public health initiatives in other conditions. Meaningful engagement in science requires knowledge and skillset to do so, including a foundational understanding of one's condit…

  • Balancing feeling ‘prepared’ without feeling ‘devoured’

    Open AccessJamie L Luckhaus, Anna Clareborn et al.ARTICLEHealth Expectations2024

    INTRODUCTION: Parkinson's Disease (PD) is a complex neurodegenerative disease resulting in a wide range of motor and nonmotor symptoms for which the treatment regimen is often complex. People with Parkinson's (PwP) spend time daily on self-care practices including self-tracking signs and symptoms or seeking disease-specific knowledge. Research suggests self-care interventions yield promising care and health outputs for PwP, yet most research focu…

  • Assessing the perceived value of a user‐led educational intervention to support recovery in a Swedish psychiatric organization

    Open AccessMaria Reinius, Lina Al‐Adili et al.ARTICLEHealth Expectations2024

    INTRODUCTION: Many people with mental health issues recover and re-establish their identity and find hope and meaning in life, irrespective of symptom burden. Recovery can be supported through learning and education, aiming at strengthening self-management and coping skills. Such education offered by peers with lived experience is rare and scarcely reported. The aim was to assess the perceived value of an educational intervention, called the Pati…

  • A rocky road but worth the drive

    Open AccessCarolina Wannheden, Sara Riggare et al.ARTICLEHealth Expectations2023

    BACKGROUND: Partnership research practices involving various stakeholder groups are gaining ground. Yet, the research community is still exploring how to effectively coproduce research together. This study describes (a) key programme developments in the creation of a 6-year partnership research programme in Sweden, and (b) explores the hopes, expectations, and experiences of patient innovators (i.e., individuals with lived experience as patients …

  • Patient advocates respond to ‘Utilizing Patient Advocates…’ by Feeney et al

    Open AccessSara Riggare, Benjamin Stecher et al.ARTICLEHealth Expectations2020

    We read with interest the recent article by Feeney and colleagues on ‘utilizing (sic) patient advocates in Parkinson's disease’.1 We acknowledge that sound methods for patient engagement need to be developed and evaluated. This can be especially relevant for Parkinson's disease (PD), a field we three know well from many years’ experience as active patient advocates living with PD. However, these methods need to be based on relevant premises. The …