Fiona J Moola
Datos Biográficos
| ID | 93076 |
|---|---|
| NOMBRE | Fiona J Moola |
| NOMBRES | Fiona J |
| APELLIDO | Moola |
| FIRMA | MOOLA F J |
| AFILIACIONES | University of Toronto |
| ORCID | 0000-0003-4904-7304 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 29 |
| TOTAL DE CITAS | 41 |
| TOTAL COMO AUTOR | 29 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 2011 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2026 |
| ÍNDICE H | 4 |
“Blackness, Blood, and Borders
The lives, selves, and social worlds of racialized disabled children and their parents have been hidden and silenced under the weight of grand metanarratives about the white disabled child. In this way, the centrality of the white disabled Eurocentric child is a symbolic violence that has erased the lives of other children, especially Black children and their families. In this qualitative interpretive study, we utilized a theoretically informed a…
Exploring assisted dying policies for mature minors
Different policy approaches are associated with assisted dying (including/excluding mature minors). • The Dutch and Belgian approach was parliamentary; Canada was primarily judiciary. • Patient suffering emphasized for Dutch/Belgian context, contrasting human rights in Canada. • Assisted dying eligibility is consistently competence-focused—Canada only applies to adults. • Canada lacks strong social consensus on MAID for mature minors. Medical Ass…
Risky methodologies and humble knowledges
The socio-materiality of risk in sport, exercise, and health has greatly advanced an understanding of the entanglement of embodiment and the social realm, opening up discussions about bodies and technologies as well as bodies and work. The socio-materiality of risk has also facilitated a discussion on both the embodied and material components of risk. In this paper, however, we consider ‘risky methodologies’ to advance discussions on the socio-ma…
We are always in self-isolation”
The pandemic disproportionately influenced marginalized communities in North America. However, the social and spatial inequalities impacting marginalized rare genetic disease communities – such as those living with cystic fibrosis – have not been heard in mainstream pandemic narratives. Sensitized by the social determinants of health, this qualitative study explored the experiences of 12 youth with Cystic Fibrosis (CF) during the pandemic. Conten…
Portraits of Resistance
The lives of children who live at the intersectional nexus between childhood autism and race may be considered as “shadow stories” that have remained silenced in autism literature. We explored the experiences of racialized parents who provide care to autistic children. We drew on a theoretical framework known as DisCrit and decolonizing arts-based methodologies. Racialized parents of autistic children demonstrated resistance along various themes,…
The complexity of cancer
Malevolent or Benevolent Brushstrokes
It may be important to situate disability historically to move toward understanding the rise of contemporary and often dominant ableist approaches to thinking about and representing disability today. The arts serve as “living artifacts” which store historical ideas about disabled bodies. Using a critical disability studies (CDS) lens, we explored the historical depiction of disability through Renaissance paintings created between 1300 and 1700. O…
Listening to the Margins
The late Black feminist scholar, bell hooks, suggested that the margin can be a place of radical possibility, where marginalized people nourish their capacity for collective resistance. On the margin, it is possible to generate a counter-language. In this paper, we chronicle, describe and reflect upon how bell hooks' ideas inspired the creation of a national 2-day conference titled, ‘Listening to the Margins’. This conference was focused on under…
Autism and Autism Services with Indigenous Families and Children in the Settler-Colonial Context of Canada
In Canada, Indigenous families and children experience structurally-rooted marginalization due to longstanding and ongoing histories of colonization and discrimination. Indigenous children with autism spectrum disorder (ASD) are currently underrepresented in literature and databases on ASD in Canada, raising concerns about their equitable access to related services and optimal health outcomes. This critical scoping review maps out existing and em…
Behind the Paintbrush
Arts-based research (ABR) makes many promises, including the opportunity to engage with embodied ways of being and knowing, raise social and political concerns, as well as to address novel, participant-led inquiries. In this critical narrative review of the literature, we examine how disabled children and youth employ ABR methods in research contexts by carefully examining studies that use visual ABR. A secondary aim is to glean methodological in…
Parenting Between the Rules
Moving beyond narrative archetypes among children with cancer
Children's narrations of their experiences with cancer provide researchers/clinicians with an understanding of their lived experiences. Arthur Frank's illness narrative framework—restitution, quest, and chaos—was used to explore 11 children's experiences with cancer. Several participants identified with the restitution narrative of “overcoming” an illness, whereas others identified with the quest narrative of a changed identity after an illness. …
The Unspeakable Nature of Death & Dying During Childhood
In pediatric settings, the concept of hope is frequently positioned as a fundamental aspect of care and at odds with the possibility and proximity of death. This arguably fosters silence about death and dying in childhood despite evidence indicating the benefits of open communication at the end of life. In this paper, we describe the unspeakable nature of death and dying in childhood, including its conceptual and clinical causes and dimensions, i…
Living the journey to school
Research about school travel and the built environment developed using positivist and post-positivist onto-epistemologies often relies heavily on travel surveys, activity diaries, GPS tracking, and the "objective" measurement of built environment features using geographical information systems and planimetric data. That work takes up and applies specialized disciplinary and practice-based language (e.g., planning and engineering) and concepts tha…
Forging friendships
Historically, the ‘ivory tower’ has been guarded in its approach to educating students with disabilities. Further, these students’ physical activity experiences have been greatly neglected in the existing scholarship. Drawing on the phenomenological research tradition and affective theories – which offer unique opportunities to foreground the body and emotions in knowledge – in this study, I explored the experience and phenomena of physical activ…
Telling My Tale
Storytelling is perennial to the human condition. We all tell stories and we all bear witness to the stories of others. According to narrative scholars, only certain stories are valorized in contemporary culture, while others go unrecognized. The inability to recognize ourselves and identities in contemporary cultural narratives can contribute to the silencing and muting of certain lives and voices. Young people with life-shortening conditions, s…
Therapeutic endings
Some time and temporarily scholars suggest that separation is one of the most arduous of human experiences. Given what is often a long history of unpleasant relationship endings, the clients of therapy themselves may be particularly susceptible to painful ruptures. Informed by a qualitative approach, I describe and explain how 10 Canadian children living with cystic fibrosis and their caregivers felt at the end of a research-based counselling sup…
The weight of (the) matter
Critical feminist approaches to eating disorders and "obesity" have recently come under criticism for relying too heavily on textual- and image-based analyses of health, identity and body weight, shape, and size. In this article, we examine qualitative interviews with self-identified anorexic and "obese" women using a new material feminist lens-particularly the work of Karen Barad-to see what this perspective contributes to conceptualizations of …
HPV vaccination discourses and the construction of “at-risk” girls
On judgement day
In contemporary Western society, both anorexic and obese 1 bodies are regarded to be “out of bounds.” Although scholars have enhanced our understanding of anorexia and obesity, these “disorders” have most often been studied in isolation from one another. In this article, we examine the similarities and differences in the embodied experiences of anorexic and obese women. Informed by the phenomenological research tradition, we follow in the footste…
Kids with special hearts
While camps may enhance the psychological well-being of children with congenital heart disease, there is an absence of qualitative research in Canada. In this phenomenological ideographic analysis, the experiences of 15 youth with heart disease at Camp Willowood in Ontario, Canada were studied. Camp allowed youth to engage in free, unrestricted movement in a natural environment and forge friendships with others that share similar medical biograph…
The Road to the Ivory Tower
Although qualitative research on the learning experiences of disabled students at university is burgeoning, either/or, medical or social approaches are most often used to study disablement. In this study, I adopted an interpretive phenomenological analysis — which considers the fundamental imbrication of bodies, identities, and environments — to explore the learning experiences of students with disabilities at the University of Manitoba in Canada…
The Heartbeat of Hamilton
Traditionally, children's 'voices' have been underrepresented in the field of cultural geography. Rather, 'adultist views' dominate. In this article, we describe the methodological process of undertaking a comprehensive, participatory action visual methodologies project known as the Hamilton Photovoice Project (HPP) with children from low socioeconomic status neighborhoods in Hamilton, Ontario, Canada. We also discuss the lessons that we have lea…
Supporting participation in physical education at school in youth with type 1 diabetes
It is not clear how best to support youth with type 1 diabetes to participate in physical education (PE) at school. The aim of this study was to explore perceptions of facilitators and barriers to PE in youth with type 1 diabetes and to determine how schools can help these individuals to be physically active. Interviews and focus groups were conducted with youth with type 1 diabetes aged 7–9 ( n = 8) and 12–14 ( n = 8) years with type 1 diabetes,…
Teaching Across the Lines of Fault in Psychology and Sociology
While interdisciplinary knowledge is critical to moving beyond categorical ways of knowing, this comes with its own set of pedagogical challenges. We contend that acknowledging existing knowledge hierarchies and epistemological differences, recognizing the ideological baggage that students’ bring to the classroom in terms of their understandings of health, embracing intellectual uncertainty, and encouraging learning-as-witnessing, are fundamental…
Toward an understanding of children’s perceptions of their transport geographies
Telling My Tale
Storytelling is perennial to the human condition. We all tell stories and we all bear witness to the stories of others. According to narrative scholars, only certain stories are valorized in contemporary culture, while others go unrecognized. The inability to recognize ourselves and identities in contemporary cultural narratives can contribute to the silencing and muting of certain lives and voices. Young people with life-shortening conditions, s…
The weight of (the) matter
Critical feminist approaches to eating disorders and "obesity" have recently come under criticism for relying too heavily on textual- and image-based analyses of health, identity and body weight, shape, and size. In this article, we examine qualitative interviews with self-identified anorexic and "obese" women using a new material feminist lens-particularly the work of Karen Barad-to see what this perspective contributes to conceptualizations of …
On judgement day
In contemporary Western society, both anorexic and obese 1 bodies are regarded to be “out of bounds.” Although scholars have enhanced our understanding of anorexia and obesity, these “disorders” have most often been studied in isolation from one another. In this article, we examine the similarities and differences in the embodied experiences of anorexic and obese women. Informed by the phenomenological research tradition, we follow in the footste…
HPV vaccination discourses and the construction of “at-risk” girls
This is the Best Fatal Illness That You Can Have
Despite the important instrumental and emotional role that parents play in the lives of children with cystic fibrosis (CF) and congenital heart disease (CHD), qualitative researchers have not examined the similarities and differences between caregivers' experiences. Informed by thematic analysis, in this qualitative study I explored what it is like to care for a child with a chronic illness from the perspective of CF and CHD parents at a children…
Listening to the Margins
The late Black feminist scholar, bell hooks, suggested that the margin can be a place of radical possibility, where marginalized people nourish their capacity for collective resistance. On the margin, it is possible to generate a counter-language. In this paper, we chronicle, describe and reflect upon how bell hooks' ideas inspired the creation of a national 2-day conference titled, ‘Listening to the Margins’. This conference was focused on under…
The Heartbeat of Hamilton
Traditionally, children's 'voices' have been underrepresented in the field of cultural geography. Rather, 'adultist views' dominate. In this article, we describe the methodological process of undertaking a comprehensive, participatory action visual methodologies project known as the Hamilton Photovoice Project (HPP) with children from low socioeconomic status neighborhoods in Hamilton, Ontario, Canada. We also discuss the lessons that we have lea…
The Perceptions of Caregivers Toward Physical Activity and Health in Youth with Congenital Heart Disease
Medical advances have reduced mortality in youth with congenital heart disease (CHD). Although physical activity is associated with enhanced quality of life, most patients are inactive. By addressing medical and psychological barriers, previous literature has reproduced discourses of individualism which position cardiac youth as personally responsible for physical inactivity. Few sociological investigations have sought to address the influence of…
Supporting participation in physical education at school in youth with type 1 diabetes
It is not clear how best to support youth with type 1 diabetes to participate in physical education (PE) at school. The aim of this study was to explore perceptions of facilitators and barriers to PE in youth with type 1 diabetes and to determine how schools can help these individuals to be physically active. Interviews and focus groups were conducted with youth with type 1 diabetes aged 7–9 ( n = 8) and 12–14 ( n = 8) years with type 1 diabetes,…
Teaching Across the Lines of Fault in Psychology and Sociology
While interdisciplinary knowledge is critical to moving beyond categorical ways of knowing, this comes with its own set of pedagogical challenges. We contend that acknowledging existing knowledge hierarchies and epistemological differences, recognizing the ideological baggage that students’ bring to the classroom in terms of their understandings of health, embracing intellectual uncertainty, and encouraging learning-as-witnessing, are fundamental…
Toward an understanding of children’s perceptions of their transport geographies
The Perceptions of Caregivers Toward Physical Activity and Health in Youth with Congenital Heart Disease
Medical advances have reduced mortality in youth with congenital heart disease (CHD). Although physical activity is associated with enhanced quality of life, most patients are inactive. By addressing medical and psychological barriers, previous literature has reproduced discourses of individualism which position cardiac youth as personally responsible for physical inactivity. Few sociological investigations have sought to address the influence of…
Transcending ‘Hoop Dreams’
In modern cultures where ability is revered, the disabled body continues to engender both fear and fascination. While the sociology of sport and disability studies has made great conceptual strides, they have done so in relative isolation from one another. This has resulted in a dearth of empirical evidence regarding the sporting lives of disabled athletes. Dr Ronald Berger’s Hoop Dreams – that is, a critical qualitative life history investigatio…
This is the Best Fatal Illness That You Can Have
Despite the important instrumental and emotional role that parents play in the lives of children with cystic fibrosis (CF) and congenital heart disease (CHD), qualitative researchers have not examined the similarities and differences between caregivers' experiences. Informed by thematic analysis, in this qualitative study I explored what it is like to care for a child with a chronic illness from the perspective of CF and CHD parents at a children…
Supporting participation in physical education at school in youth with type 1 diabetes
It is not clear how best to support youth with type 1 diabetes to participate in physical education (PE) at school. The aim of this study was to explore perceptions of facilitators and barriers to PE in youth with type 1 diabetes and to determine how schools can help these individuals to be physically active. Interviews and focus groups were conducted with youth with type 1 diabetes aged 7–9 ( n = 8) and 12–14 ( n = 8) years with type 1 diabetes,…
Teaching Across the Lines of Fault in Psychology and Sociology
While interdisciplinary knowledge is critical to moving beyond categorical ways of knowing, this comes with its own set of pedagogical challenges. We contend that acknowledging existing knowledge hierarchies and epistemological differences, recognizing the ideological baggage that students’ bring to the classroom in terms of their understandings of health, embracing intellectual uncertainty, and encouraging learning-as-witnessing, are fundamental…
Kids with special hearts
While camps may enhance the psychological well-being of children with congenital heart disease, there is an absence of qualitative research in Canada. In this phenomenological ideographic analysis, the experiences of 15 youth with heart disease at Camp Willowood in Ontario, Canada were studied. Camp allowed youth to engage in free, unrestricted movement in a natural environment and forge friendships with others that share similar medical biograph…
The Road to the Ivory Tower
Although qualitative research on the learning experiences of disabled students at university is burgeoning, either/or, medical or social approaches are most often used to study disablement. In this study, I adopted an interpretive phenomenological analysis — which considers the fundamental imbrication of bodies, identities, and environments — to explore the learning experiences of students with disabilities at the University of Manitoba in Canada…
The Heartbeat of Hamilton
Traditionally, children's 'voices' have been underrepresented in the field of cultural geography. Rather, 'adultist views' dominate. In this article, we describe the methodological process of undertaking a comprehensive, participatory action visual methodologies project known as the Hamilton Photovoice Project (HPP) with children from low socioeconomic status neighborhoods in Hamilton, Ontario, Canada. We also discuss the lessons that we have lea…
On judgement day
In contemporary Western society, both anorexic and obese 1 bodies are regarded to be “out of bounds.” Although scholars have enhanced our understanding of anorexia and obesity, these “disorders” have most often been studied in isolation from one another. In this article, we examine the similarities and differences in the embodied experiences of anorexic and obese women. Informed by the phenomenological research tradition, we follow in the footste…
HPV vaccination discourses and the construction of “at-risk” girls
Therapeutic endings
Some time and temporarily scholars suggest that separation is one of the most arduous of human experiences. Given what is often a long history of unpleasant relationship endings, the clients of therapy themselves may be particularly susceptible to painful ruptures. Informed by a qualitative approach, I describe and explain how 10 Canadian children living with cystic fibrosis and their caregivers felt at the end of a research-based counselling sup…
The weight of (the) matter
Critical feminist approaches to eating disorders and "obesity" have recently come under criticism for relying too heavily on textual- and image-based analyses of health, identity and body weight, shape, and size. In this article, we examine qualitative interviews with self-identified anorexic and "obese" women using a new material feminist lens-particularly the work of Karen Barad-to see what this perspective contributes to conceptualizations of …
Forging friendships
Historically, the ‘ivory tower’ has been guarded in its approach to educating students with disabilities. Further, these students’ physical activity experiences have been greatly neglected in the existing scholarship. Drawing on the phenomenological research tradition and affective theories – which offer unique opportunities to foreground the body and emotions in knowledge – in this study, I explored the experience and phenomena of physical activ…
Telling My Tale
Storytelling is perennial to the human condition. We all tell stories and we all bear witness to the stories of others. According to narrative scholars, only certain stories are valorized in contemporary culture, while others go unrecognized. The inability to recognize ourselves and identities in contemporary cultural narratives can contribute to the silencing and muting of certain lives and voices. Young people with life-shortening conditions, s…
Living the journey to school
Research about school travel and the built environment developed using positivist and post-positivist onto-epistemologies often relies heavily on travel surveys, activity diaries, GPS tracking, and the "objective" measurement of built environment features using geographical information systems and planimetric data. That work takes up and applies specialized disciplinary and practice-based language (e.g., planning and engineering) and concepts tha…
Autism and Autism Services with Indigenous Families and Children in the Settler-Colonial Context of Canada
In Canada, Indigenous families and children experience structurally-rooted marginalization due to longstanding and ongoing histories of colonization and discrimination. Indigenous children with autism spectrum disorder (ASD) are currently underrepresented in literature and databases on ASD in Canada, raising concerns about their equitable access to related services and optimal health outcomes. This critical scoping review maps out existing and em…
Behind the Paintbrush
Arts-based research (ABR) makes many promises, including the opportunity to engage with embodied ways of being and knowing, raise social and political concerns, as well as to address novel, participant-led inquiries. In this critical narrative review of the literature, we examine how disabled children and youth employ ABR methods in research contexts by carefully examining studies that use visual ABR. A secondary aim is to glean methodological in…
Parenting Between the Rules
Moving beyond narrative archetypes among children with cancer
Children's narrations of their experiences with cancer provide researchers/clinicians with an understanding of their lived experiences. Arthur Frank's illness narrative framework—restitution, quest, and chaos—was used to explore 11 children's experiences with cancer. Several participants identified with the restitution narrative of “overcoming” an illness, whereas others identified with the quest narrative of a changed identity after an illness. …
The Unspeakable Nature of Death & Dying During Childhood
In pediatric settings, the concept of hope is frequently positioned as a fundamental aspect of care and at odds with the possibility and proximity of death. This arguably fosters silence about death and dying in childhood despite evidence indicating the benefits of open communication at the end of life. In this paper, we describe the unspeakable nature of death and dying in childhood, including its conceptual and clinical causes and dimensions, i…
The complexity of cancer
Malevolent or Benevolent Brushstrokes
It may be important to situate disability historically to move toward understanding the rise of contemporary and often dominant ableist approaches to thinking about and representing disability today. The arts serve as “living artifacts” which store historical ideas about disabled bodies. Using a critical disability studies (CDS) lens, we explored the historical depiction of disability through Renaissance paintings created between 1300 and 1700. O…
Listening to the Margins
The late Black feminist scholar, bell hooks, suggested that the margin can be a place of radical possibility, where marginalized people nourish their capacity for collective resistance. On the margin, it is possible to generate a counter-language. In this paper, we chronicle, describe and reflect upon how bell hooks' ideas inspired the creation of a national 2-day conference titled, ‘Listening to the Margins’. This conference was focused on under…
Exploring assisted dying policies for mature minors
Different policy approaches are associated with assisted dying (including/excluding mature minors). • The Dutch and Belgian approach was parliamentary; Canada was primarily judiciary. • Patient suffering emphasized for Dutch/Belgian context, contrasting human rights in Canada. • Assisted dying eligibility is consistently competence-focused—Canada only applies to adults. • Canada lacks strong social consensus on MAID for mature minors. Medical Ass…
Psychology (23 obras) · Sociology (22 obras) · Medicine (15 obras) · Political science (12 obras) · Developmental psychology (10 obras) · Qualitative research (9 obras) · Social science (9 obras) · Epistemology (7 obras) · Art (6 obras) · Family and Disability Support Research (6 obras)