Glenn Robert
Datos Biográficos
| ID | 94272 |
|---|---|
| NOMBRE | Glenn Robert |
| NOMBRES | Glenn |
| APELLIDO | Robert |
| FIRMA | ROBERT G |
| AFILIACIONES | King's College London |
| ORCID | 0000-0001-8781-6675 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 38 |
| TOTAL DE CITAS | 90 |
| TOTAL COMO AUTOR | 38 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 2002 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2026 |
| ÍNDICE H | 5 |
The rise of patient and public involvement in health research in Denmark – a qualitative study of funder's policies and practices
Patient and public involvement (PPI) aims to produce knowledge and improve health services by involving patients, citizens, and stakeholders in various processes, including research. Research funders are centrally positioned to influence how PPI is understood in a given context and legitimise how it is done. This article investigates the rationales used by research funders to encourage PPI in Danish health research, and the possible implications …
Understanding lived experience-driven co-production in health and social services
Person-centred care is often illusive in traditionally hierarchical systems. • Co-production equalizes professional and client power by centering lived experience. • These values mobilize professional and client advocacy driving 5 phases of growth. • A co-production mindset germinates, sprouts, blossoms, and propagates to new sites. • A community garden fosters sustainability, helping individual sites weather threats
Supporting continuing bonds for parents with infants with uncertain futures on neonatal units in the United Kingdom
This is the first co-designed neonatal music therapy intervention. Through increasing social connections and promoting individuals' strengths, it has the potential to increase psychological safety for both parents and staff
Constraining co-creation? An ethnographic study of Healthwatch organizations in England
While the potential benefits of co-production and co-creation are widely vaunted, the degree to which they precipitate innovative change in systems varies, and influences on their impact demand greater attention.We present an ethnographic study of organizations intended to foster co-creation in English health and social care.Comparing five cases, we find demonstrable activity and some tangible impacts.At the same time, the positioning of these or…
Reflections on the opportunities and challenges of applying experience‐based co‐design (EBCD) to phase 1 clinical trials in oncology
BACKGROUND: Experience-Based Co-Design (EBCD) is a multi-stage participatory action research process which was developed originally to increase patient involvement in service improvement initiatives. This viewpoint article serves as a reflection on the researchers' experiences, focusing on the application and feasibility of participatory approaches, particularly co-design, in the specific context of early-phase clinical trials. METHODS: We reflec…
The qualities of data
Purpose To investigate ethnographically how patient experience data, as a named category in healthcare organisations, is actively “made” through the co-creative interactions of data, people and meanings in English hospitals. Design/methodology/approach The authors draw on fieldnotes, interview recordings and transcripts produced from 13 months (2016–2017) of ethnographic research on patient experience data work at five acute English National Heal…
Co-producing Research with Disabled Lay Researchers
The value of co-produced research is increasingly recognised. This is a case study of a lay conducted, co-produced qualitative research study on the experiences of social workers and Disabled users of their services of using (or not) digital technologies when communicating with each other. We describe the co-production process from inception to dissemination and draw out lessons for future studies. Disabled lay researchers developed interview top…
Mapping definitions of co‐production and co‐design in health and social care
OBJECTIVES: This study aimed to explore how the concepts of co-production and co-design have been defined and applied in the context of health and social care and to identify the temporal adoption of the terms. METHODS: A systematic scoping review of CINAHL with Full Text, Cochrane Central Register of Controlled Trials, MEDLINE, PsycINFO, PubMed and Scopus was conducted to identify studies exploring co-production or co-design in health and social…
An outbreak of appreciation
BACKGROUND: The early stages of the coronavirus disease 2019 pandemic prompted unprecedented displays of gratitude to healthcare workers. In the United Kingdom, gratitude was a hotly debated topic in public discourse, catalysing compelling displays of civic togetherness but also attracting criticism for being an unhelpful distraction that authorized unrealistic expectations of healthcare workers. Expressions of thanks tend to be neglected as driv…
Co-designing models for the communication of genomic results for rare diseases
The communication of genomic results to patients and families with rare diseases raise distinctive challenges. However, there is little evidence about optimal methods to communicate results to this group of service users. To address this gap, we worked with rare disease families and health professionals from two genetic/genomic services, one in the United Kingdom and one in the Czech Republic, to co-design that best meet their needs. Using the pa…
Doing nothing? An ethnography of patients' (In)activity on an acute stroke unit
Health research has begun to pay increasing attention to inactivity in its broadest sense as lack of meaningful activity and boredom. Few studies however have taken a critical look at this phenomenon. We explore (in)activity drawing on ethnographic data from observations in an acute stroke unit and post-discharge interviews with stroke survivors and their families. Four themes emerged that explain patients' (in)activity: (i) planned activities; (…
Special Issue- Engaging Vulnerable Populations in the Co-Production of Public Services
(2021). Special Issue- Engaging Vulnerable Populations in the Co-Production of Public Services. International Journal of Public Administration: Vol. 44, Engaging Vulnerable Populations in the Co-Production of Public Services, pp. 711-714
Applying Elinor Ostrom’s Design Principles to Guide Co-Design in Health(care) Improvement
The eight design principles - and the relationships between them - form a heuristic that can support the planning, delivery, and evaluation of future healthcare improvement projects adopting co-design. They may help to address questions of how to scale up and embed such approaches as self-sustaining in wider systems
Exploring liminality in the co-design of rehabilitation environments
This paper describes an Experience-based Co-design (EBCD) project that aimed to increase patient activity within an acute stroke unit. We apply the concept of liminality to explore ways in which the EBCD process, a form of Participatory Action Research, may dilute or even dissolve social hierarchies and challenge assumptions about practices and constraints in this care setting, thereby opening up possibilities for transformation that enhances the…
Patient experience data as enacted
Over the last three decades, sociomaterial approaches to the study of health care practices have made an important contribution to the sociology of health care. Significant attention has been paid to the role of technology and artefacts in health care and the operation of actor-networks but less space has been given to questions of ontological multiplicity in health care practices. In this paper, we draw upon our study of patient experience data …
Is the end in sight? A study of how and why services are decommissioned in the English National Health Service
The decommissioning of a health-care service is invariably a highly complex and contentious process which faces many implementation challenges. There has been little specific theorisation of this phenomena, although insights can be transferred from wider literatures on policy implementation and change processes. In this paper, we present findings from empirical case studies of three decommissioning processes initiated in the English National Heal…
Lost in the shadows
This article is a response to Oliver et al.’s Commentary ‘The dark side of coproduction: do the costs outweigh the benefits for health research?’ recently published in Health Research Policy and Systems (2019, 17:33). The original commentary raises some important questions about how and when to co-produce health research, including highlighting various professional costs to those involved. However, we identify four related limitations in their in…
Enabling ‘citizen voice’ in the English health and social care system
BACKGROUND: Local Healthwatch have been operating since 2013 as 'consumer champions' in health and social care in England. There is little evidence about how they operate and the daily practices through which they seek to represent citizen views and influence others. OBJECTIVE: To explore (a) the current organizational arrangements, relationships and impact of local Healthwatch in England, and (b) to what extent do these vary across local Healthw…
Gratitude in Health Care
Research into gratitude as a significant sociological and psychological phenomenon has proliferated in the past two decades. However, there is little consensus on how it should be conceptualized or investigated empirically. We present a meta-narrative review that focuses on gratitude in health care, with an emphasis on research exploring interpersonal experiences in the context of care provision. Six meta-narratives from literatures across the hu…
Exploring the conceptualisation and study of freebirthing as a historical and social phenomenon
Freebirthing is a clandestine practice whereby women intentionally give birth without healthcare professionals (HCPs) present in countries where there are medical facilities available to assist them. Women who make this decision are frequently subjected to stigma and condemnation, yet research on the phenomenon suggests that women’s motivations are often complex. The aim of this review was to explore how freebirth has been conceptualised over tim…
Codesigning health and other public services with vulnerable and disadvantaged populations
Co-creative approaches to knowledge production
TEST 02 - Elsevier's Scopus, the largest abstract and citation database of peer-reviewed literature. Search and access research from the science, technology, medicine, social sciences and arts and humanities fields
The Participatory Zeitgeist
Healthcare systems redesign and service improvement approaches are adopting participatory tools, techniques and mindsets. Participatory methods increasingly used in healthcare improvement coalesce around the concept of coproduction, and related practices of cocreation, codesign and coinnovation. These participatory methods have become the new Zeitgeist-the spirit of our times in quality improvement. The rationale for this new spirit of participat…
It's sometimes hard to tell what patients are playing at
This article draws from sociological and socio-legal studies of dispute between patients and doctors to examine how healthcare professionals made sense of patients' complaints about healthcare. We analyse 41 discursive interviews with professional healthcare staff working in eight different English National Health Service settings to explore how they made sense of events of complaint and of patients' (including families') motives for complaining.…
Doing More with Less in Health Care
In the context of an austere financial climate, local health care budget holders are increasingly expected to make and enact decisions to decommission (reduce or stop providing) services. However, little is currently known about the experiences of those seeking to decommission. This paper presents the first national study of decommissioning in the English National Health Service drawing on multiple methods, including: an interview-based review of…
Knowledge management and communities of practice in the private sector
The National Health Service (NHS) in England and Wales has embarked upon a radical and far–reaching programme of change and reform. However, to date the results of organizational quality and service improvement initiatives in the public sector have been mixed, if not to say disappointing, with anticipated gains often failing to materialize or to be sustained in the longer term. This paper draws on the authors’ recent extensive research into one o…
The Participatory Zeitgeist
Healthcare systems redesign and service improvement approaches are adopting participatory tools, techniques and mindsets. Participatory methods increasingly used in healthcare improvement coalesce around the concept of coproduction, and related practices of cocreation, codesign and coinnovation. These participatory methods have become the new Zeitgeist-the spirit of our times in quality improvement. The rationale for this new spirit of participat…
Lost in Translation
This paper explores the early implementation of an organizational innovation in the UK National Health Service (NHS) – Treatment Centres (TCs) – designed to dramatically reduce waiting lists for elective care. The paper draws on case studies of 8 TCs (each at varying stages of their development) and aims to explore how meanings about TCs are created and evolve, and how these meanings impact upon the development of the organizational innovation. R…
Build it and they will come' – or will they? Choice, policy paradoxes and the case of NHS treatment centres
At a time when ?choice? is being proposed as the main driver for cultural change and the raising of standards across the public services generally, this paper examines some of the policy issues and arguments involved with reference to one particular organisational innovation being implemented within the ?choice? agenda: National Health Service (NHS) Treatment Centres (TCs). In this context, the paper reveals eight policy paradoxes or contradictio…
Nursing work and sensory experiences of hospital design
The embodied experience of nursing practice is rarely studied. Drawing on data from an internationally relevant larger study conducted in 2013-14, here we explore the sensory dimension of the embodied experiences of nursing staff working on two acute NHS hospital wards before and after a move to all-single room inpatient accommodation. We undertook a secondary analysis of 25 interviews with nursing staff (12 before and 13 after the move with half…
Where next for policy evaluation? Insights from researching National Health Service modernisation
This article takes a critical and reflective look at the summative evaluation approach often employed in the context of NHS policy making and puts the case for an evaluation method which is based on a particular concept or variant of formative evaluation. The article uses two contemporary case study evaluations (one summative and one formative) to illustrate the key questions and issues, dilemmas and tensions associated with conducting evaluation…
It's sometimes hard to tell what patients are playing at
This article draws from sociological and socio-legal studies of dispute between patients and doctors to examine how healthcare professionals made sense of patients' complaints about healthcare. We analyse 41 discursive interviews with professional healthcare staff working in eight different English National Health Service settings to explore how they made sense of events of complaint and of patients' (including families') motives for complaining.…
Applying Elinor Ostrom’s Design Principles to Guide Co-Design in Health(care) Improvement
The eight design principles - and the relationships between them - form a heuristic that can support the planning, delivery, and evaluation of future healthcare improvement projects adopting co-design. They may help to address questions of how to scale up and embed such approaches as self-sustaining in wider systems
Exploring liminality in the co-design of rehabilitation environments
This paper describes an Experience-based Co-design (EBCD) project that aimed to increase patient activity within an acute stroke unit. We apply the concept of liminality to explore ways in which the EBCD process, a form of Participatory Action Research, may dilute or even dissolve social hierarchies and challenge assumptions about practices and constraints in this care setting, thereby opening up possibilities for transformation that enhances the…
Co-creative approaches to knowledge production
TEST 02 - Elsevier's Scopus, the largest abstract and citation database of peer-reviewed literature. Search and access research from the science, technology, medicine, social sciences and arts and humanities fields
Doing More with Less in Health Care
In the context of an austere financial climate, local health care budget holders are increasingly expected to make and enact decisions to decommission (reduce or stop providing) services. However, little is currently known about the experiences of those seeking to decommission. This paper presents the first national study of decommissioning in the English National Health Service drawing on multiple methods, including: an interview-based review of…
Patient experience data as enacted
Over the last three decades, sociomaterial approaches to the study of health care practices have made an important contribution to the sociology of health care. Significant attention has been paid to the role of technology and artefacts in health care and the operation of actor-networks but less space has been given to questions of ontological multiplicity in health care practices. In this paper, we draw upon our study of patient experience data …
Is the end in sight? A study of how and why services are decommissioned in the English National Health Service
The decommissioning of a health-care service is invariably a highly complex and contentious process which faces many implementation challenges. There has been little specific theorisation of this phenomena, although insights can be transferred from wider literatures on policy implementation and change processes. In this paper, we present findings from empirical case studies of three decommissioning processes initiated in the English National Heal…
Catching up
This article examines the importance of some informal work practices among community nurses during a period of significant organizational change. Ethnographic fieldwork in two purposively selected adult community nursing services in England comprised 79 hours of observation of routine practice, 21 interviews with staff and 23 interviews with patients. We identified the informal work practice of 'catching up', informal work conversations between i…
Studying Health Care “Quality” Qualitatively
The authors tell the story of an attempt to depart from a tradition of evaluation research (ER) and to address the research-practice interface in a different way through a more hands-on, action research (AR) approach, which combines qualitative and quantitative methods. In doing so, they raise issues about the role and nature of evaluation for development and, especially, about the place of qualitative research in such evaluations; the identity o…
Knowledge management and communities of practice in the private sector
The National Health Service (NHS) in England and Wales has embarked upon a radical and far–reaching programme of change and reform. However, to date the results of organizational quality and service improvement initiatives in the public sector have been mixed, if not to say disappointing, with anticipated gains often failing to materialize or to be sustained in the longer term. This paper draws on the authors’ recent extensive research into one o…
Redesigning mental health services
Objectives To explore the involvement of mental health service users in the redesign of in‐patient mental health services in six Trusts participating in a multi‐regional NHS modernization programme. Design Semi‐structured interviews and observation of team meetings undertaken as part of an action research study. Participants and setting Users, clinical, medical and managerial staff from six mental health trusts which participated in the Northern …
Where next for policy evaluation? Insights from researching National Health Service modernisation
This article takes a critical and reflective look at the summative evaluation approach often employed in the context of NHS policy making and puts the case for an evaluation method which is based on a particular concept or variant of formative evaluation. The article uses two contemporary case study evaluations (one summative and one formative) to illustrate the key questions and issues, dilemmas and tensions associated with conducting evaluation…
Diffusion of Innovations in Service Organizations
This article summarizes an extensive literature review addressing the question, How can we spread and sustain innovations in health service delivery and organization? It considers both content (defining and measuring the diffusion of innovation in organizations) and process (reviewing the literature in a systematic and reproducible way). This article discusses (1) a parsimonious and evidence‐based model for considering the diffusion of innovation…
Storylines of research in diffusion of innovation
Experience-based design
Involving patients in service improvement and listening and responding to what they say has played a key part in the redesign of healthcare processes over the past five years and more. Patients and users have attended stakeholder events, participated in discovery interviews, completed surveys, mapped healthcare processes and even designed new hospitals with healthcare staff. However, to date efforts have not necessarily focused on the patient's e…
Lost in Translation
This paper explores the early implementation of an organizational innovation in the UK National Health Service (NHS) – Treatment Centres (TCs) – designed to dramatically reduce waiting lists for elective care. The paper draws on case studies of 8 TCs (each at varying stages of their development) and aims to explore how meanings about TCs are created and evolve, and how these meanings impact upon the development of the organizational innovation. R…
Build it and they will come' – or will they? Choice, policy paradoxes and the case of NHS treatment centres
At a time when ?choice? is being proposed as the main driver for cultural change and the raising of standards across the public services generally, this paper examines some of the policy issues and arguments involved with reference to one particular organisational innovation being implemented within the ?choice? agenda: National Health Service (NHS) Treatment Centres (TCs). In this context, the paper reveals eight policy paradoxes or contradictio…
Catching up
This article examines the importance of some informal work practices among community nurses during a period of significant organizational change. Ethnographic fieldwork in two purposively selected adult community nursing services in England comprised 79 hours of observation of routine practice, 21 interviews with staff and 23 interviews with patients. We identified the informal work practice of 'catching up', informal work conversations between i…
Experience-based Co-design and Healthcare Improvement
Over the last decade, growing attention has been paid to the potential value of design theory and practice in improving public services. Experience-based Co-design (EBCD) is a participatory research approach that draws upon design tools and ways of thinking in order to bring healthcare staff and patients together to improve the quality of care. The co-design process that is integral to EBCD is powerful but also challenging, as it requires both st…
Exploring the Legacies of Filmed Patient Narratives
We trace the legacies of filmed patient narratives that were edited and screened to encourage engagement with a participatory quality improvement project in an acute hospital setting in England. Using Gabriel's theory of "narrative contract," we examine the initial success of the films in establishing common grounds for participatory project and later, and more varied, interpretations of the films. Over time, the films were interpreted by staff a…
Nursing work and sensory experiences of hospital design
The embodied experience of nursing practice is rarely studied. Drawing on data from an internationally relevant larger study conducted in 2013-14, here we explore the sensory dimension of the embodied experiences of nursing staff working on two acute NHS hospital wards before and after a move to all-single room inpatient accommodation. We undertook a secondary analysis of 25 interviews with nursing staff (12 before and 13 after the move with half…
The Participatory Zeitgeist
Healthcare systems redesign and service improvement approaches are adopting participatory tools, techniques and mindsets. Participatory methods increasingly used in healthcare improvement coalesce around the concept of coproduction, and related practices of cocreation, codesign and coinnovation. These participatory methods have become the new Zeitgeist-the spirit of our times in quality improvement. The rationale for this new spirit of participat…
It's sometimes hard to tell what patients are playing at
This article draws from sociological and socio-legal studies of dispute between patients and doctors to examine how healthcare professionals made sense of patients' complaints about healthcare. We analyse 41 discursive interviews with professional healthcare staff working in eight different English National Health Service settings to explore how they made sense of events of complaint and of patients' (including families') motives for complaining.…
Doing More with Less in Health Care
In the context of an austere financial climate, local health care budget holders are increasingly expected to make and enact decisions to decommission (reduce or stop providing) services. However, little is currently known about the experiences of those seeking to decommission. This paper presents the first national study of decommissioning in the English National Health Service drawing on multiple methods, including: an interview-based review of…
Codesigning health and other public services with vulnerable and disadvantaged populations
Co-creative approaches to knowledge production
TEST 02 - Elsevier's Scopus, the largest abstract and citation database of peer-reviewed literature. Search and access research from the science, technology, medicine, social sciences and arts and humanities fields
Lost in the shadows
This article is a response to Oliver et al.’s Commentary ‘The dark side of coproduction: do the costs outweigh the benefits for health research?’ recently published in Health Research Policy and Systems (2019, 17:33). The original commentary raises some important questions about how and when to co-produce health research, including highlighting various professional costs to those involved. However, we identify four related limitations in their in…
Enabling ‘citizen voice’ in the English health and social care system
BACKGROUND: Local Healthwatch have been operating since 2013 as 'consumer champions' in health and social care in England. There is little evidence about how they operate and the daily practices through which they seek to represent citizen views and influence others. OBJECTIVE: To explore (a) the current organizational arrangements, relationships and impact of local Healthwatch in England, and (b) to what extent do these vary across local Healthw…
Gratitude in Health Care
Research into gratitude as a significant sociological and psychological phenomenon has proliferated in the past two decades. However, there is little consensus on how it should be conceptualized or investigated empirically. We present a meta-narrative review that focuses on gratitude in health care, with an emphasis on research exploring interpersonal experiences in the context of care provision. Six meta-narratives from literatures across the hu…
Exploring the conceptualisation and study of freebirthing as a historical and social phenomenon
Freebirthing is a clandestine practice whereby women intentionally give birth without healthcare professionals (HCPs) present in countries where there are medical facilities available to assist them. Women who make this decision are frequently subjected to stigma and condemnation, yet research on the phenomenon suggests that women’s motivations are often complex. The aim of this review was to explore how freebirth has been conceptualised over tim…
Special Issue- Engaging Vulnerable Populations in the Co-Production of Public Services
(2021). Special Issue- Engaging Vulnerable Populations in the Co-Production of Public Services. International Journal of Public Administration: Vol. 44, Engaging Vulnerable Populations in the Co-Production of Public Services, pp. 711-714
Applying Elinor Ostrom’s Design Principles to Guide Co-Design in Health(care) Improvement
The eight design principles - and the relationships between them - form a heuristic that can support the planning, delivery, and evaluation of future healthcare improvement projects adopting co-design. They may help to address questions of how to scale up and embed such approaches as self-sustaining in wider systems
Exploring liminality in the co-design of rehabilitation environments
This paper describes an Experience-based Co-design (EBCD) project that aimed to increase patient activity within an acute stroke unit. We apply the concept of liminality to explore ways in which the EBCD process, a form of Participatory Action Research, may dilute or even dissolve social hierarchies and challenge assumptions about practices and constraints in this care setting, thereby opening up possibilities for transformation that enhances the…
Political science (23 obras) · Public relations (22 obras) · Medicine (20 obras) · Mental Health and Patient Involvement (18 obras) · Psychology (18 obras) · Sociology (18 obras) · Business (17 obras) · Computer Science (14 obras) · Health care (14 obras) · Nursing (13 obras)