Research Participation as Work

Comparing the Perspectives of Researchers and Economically Marginalized Populations

Datos Bibliográficos

ID11018564
AutoresPeter J Davidson (0000-0003-4231-211X, University of California System), Peter Davidson (0000-0003-1321-9418, While conducting the research, Peter Davidson was with the Departments of Epidemiology and Biostatistics and Social Sciences, University of California, San Francisco (UCSF), and, while writing the article, was with the Division of Global Public Health, School of Medicine, University of California, San Diego. Kimberly Page was with the Department of Epidemiology and Biostatistics, UCSF.), Kimberly Page (0000-0002-7120-1673, While conducting the research, Peter Davidson was with the Departments of Epidemiology and Biostatistics and Social Sciences, University of California, San Francisco (UCSF), and, while writing the article, was with the Division of Global Public Health, School of Medicine, University of California, San Diego. Kimberly Page was with the Department of Epidemiology and Biostatistics, UCSF.)
Año2012
Volumen102
Número7
Páginas1254-1259
Fecha de publicación2012-07-01
Peer ReviewedSí
Open AccessNo
TipoARTICLE
RevistaAmerican Journal of Public Health (JOURNAL)
Identificadores de la revistaISSN: 0090-0036 • E-ISSN: 1541-0048
EditorialAmerican Public Health Association (PUBLISHER • US)
DOI10.2105/ajph.2011.300418
PMID22594754
PMCIDPMC3478002
OpenAlexW2094106927
IdiomaEN
Citas recibidas14
Referencias citadas17

We examined the historical and regulatory framework of research with human participants in the United States, and described some possible unintended consequences of this framework in the context of paying young injection drug users for their time participating in behavioral and medical research. We drew upon our own experiences while conducting a long-running epidemiological study of hepatitis C virus infection. We found that existing ethical and regulatory framings of research participation may lead to injustices from the perspectives of research participants. We propose considering research participation as a specialized form of work and the use of community advisory boards to facilitate discussion about appropriate compensation for research participation among economically marginalized populations

Compensation (psychology) · Context (archaeology) · Criminology · Drug injection · Economic growth · Economics · Family medicine · Geography · Human immunodeficiency virus (HIV) · Injection drug use · Medical research · Political science · Public relations · Sociology · Unintended consequences · Work (physics) · Ethics in Clinical Research · HIV, Drug Use, Sexual Risk · Law · Medicine · Mental Health and Patient Involvement · Psychology · Social Psychology · Gerontology